Re: Receptive language Disorder

[Guest guest]

In a message dated 05/30/2004 12:10:15 PM Eastern Daylight Time,

olivia@... writes:

> . Has anyone had problems with their child being

> diagnosed with a receptive disorder when they were positive there is

> none? What can we do?

I understand your frustration. I have had similar issues (and I am assuming

many others on this website have as well) The more people who spend time with

my daughter, the more credit they give her. I suggest that you get as many

people on your side that spend the most time with your child (teachers,

therapist,

grandparents, ect...) and have each write a letter on your child's behalf

stating the things that they have seen. If it just comes from you, you will be

discounted as a mother in denial. Just this February my daughter had a 4 hour

speech evaluation done up in Pittsburgh. The outcome was devastating. It

questioned my daughter's cognitive abilities and made a prognosis for the hope

of any

intelligible speech as " high guarded. " In contrast, her teachers claim her to

be one of their brightest students in regular Pre-K and feel that she is

actually board. Her speech, OT, and physical therapist all claim the same thing.

Everyone who read the report feels that she had been grossly underestimated.

[Guest guest]

Get another eval from your own hand chosen SLP. Do not let this

eval make it in to the IEP. Take the eval to your current speech

therapist and have him/her respond to the eval via letter. I know

they won't berate someone in their own profession, but having a

general letter of disagreement from an SLP that works with your

child is a good start.

You would know if Timmy had a receptive delay. My guess is he

refused to participate.

How frustrating. Remember, the school SLP does not have the final

say with your son.

Pam

> Our Timmy aged 6 was diagnosed with verbal apraxia 2 years ago.He

also

> has hypotonia and fatigues easily. He has had private speech

therapy

> and OT the past year.The school SLP finally assessed him after as

we

> are looking at an IEP for him in grade one.She states that Timmy

has a

> dramatic difference between his receptive and expressive profile,

> scoring very low across the board in receptive category. I am in

> tears. Here we go AGAIN!From day one everyone who knows Timmy

> including his private SLP agrees that he appears to understand and

> comprehend what is being said to him yet has great difficulty with

> his expressive language. Am I dense or does receptive not mean

> receiving and comprehension of language? The SLP also states he

has a

> denasal voice( never noticed by three other SLP's that assessed

Timmy

> since age 2) and mouth breathes. She is wondering about possible

> airway obstruction (tonsils) and that this may be a reason for

Timmy's

> fatigue (interrupted sleep).Oh and the fact that Timmy had a cold

that

> week and testing was done 8 days before he developed chicken pox

> lesions escaped her. Has anyone had problems with their child being

> diagnosed with a receptive disorder when they were positive there

is

> none? What can we do? We are certain that Timmy has verbal apraxia

and

> he has improved dramatically with private speech dealing with motor

> planning issues, OT and ProEFA but now we once again are met with

the

> words " receptive " disorder through unreliable speech test results.

I

> desperately need advice and input.

>

> Sue

[Guest guest]

Hi Sue

I find it interesting that the school slp AND yr private slp are talking

about receptive issues yet neither has named it possible APD ( used to be

CAPD). Auditory Processing Disorder can get clouded by a verbally dyspraxic

child ( ie: my little 6 yr old girl - also oral dysprax.) until he/she hits

about 6 or older. APD is /can be quite on/off - the verbal dysprax is/can

be too - hence the hesitancy to diagnose apd until much later.

I never doubted that grasped what I had said but her replies with their

garbled context ( as well as the back to front speech that verbal dysprax

gives ) both add to that double dx with hindsight. Now looking at her I can

accept the APD dx. & also accept the lateness of that added dx.

In essence a sentance goes in & the core words jumble up (APD) and the

responses come out jumbled ( Verb Dysprax).

I'd recommend questioning APD with each SLP - just to see what they say

respectively. If nothing else you'll further conversations with each

individual who at the moment seem to have left you hanging.

Good Luck

Gin & 6.4 (verb & oral Dysprax + motor + residual dsi + APD )

Barnet, UK

----

From: " suecorson " <olivia@...: Sunday, May 30, 2004 6:56 AM

Subject: [ ] Receptive language Disorder

> Our Timmy aged 6 was diagnosed with verbal apraxia 2 years ago.He also

> has hypotonia and fatigues easily. He has had private speech therapy

> and OT the past year.The school SLP finally assessed him after as we

> are looking at an IEP for him in grade one.She states that Timmy has a

> dramatic difference between his receptive and expressive profile,

> scoring very low across the board in receptive category. I am in

> tears. Here we go AGAIN!From day one everyone who knows Timmy

> including his private SLP agrees that he appears to understand and

> comprehend what is being said to him yet has great difficulty with

> his expressive language. Am I dense or does receptive not mean

> receiving and comprehension of language? The SLP also states he has a

> denasal voice( never noticed by three other SLP's that assessed Timmy

> since age 2) and mouth breathes. She is wondering about possible

> airway obstruction (tonsils) and that this may be a reason for Timmy's

> fatigue (interrupted sleep).Oh and the fact that Timmy had a cold that

> week and testing was done 8 days before he developed chicken pox

> lesions escaped her. Has anyone had problems with their child being

> diagnosed with a receptive disorder when they were positive there is

> none? What can we do? We are certain that Timmy has verbal apraxia and

> he has improved dramatically with private speech dealing with motor

> planning issues, OT and ProEFA but now we once again are met with the

> words " receptive " disorder through unreliable speech test results. I

> desperately need advice and input.

>

> Sue

>

>

>

>

>

>

>

>

[Guest guest]

Hi,

When I get new advice about my son my 1st reaction is to feel bad specially when

its bad news. 1st i feel bad, then I get mad and tell everyone then I speak to

that person who gave that news and see if we are on the same page. I would to

talk to her and tell her what you told us(especially about the throat thing or

the voice thing). Try not rule out things like that and only thing to do is to

talk to her and ask a lot of questions. I get worried when people suggest

medical problems, it doesn't hurt to get tests done. At least I hope the tests

don't hurt.

Hope this helps

chris

also remember that these professionals do have our childrens interests close to

their heart

suecorson <olivia@...> wrote:

Our Timmy aged 6 was diagnosed with verbal apraxia 2 years ago.He also

has hypotonia and fatigues easily. He has had private speech therapy

and OT the past year.The school SLP finally assessed him after as we

are looking at an IEP for him in grade one.She states that Timmy has a

dramatic difference between his receptive and expressive profile,

scoring very low across the board in receptive category. I am in

tears. Here we go AGAIN!From day one everyone who knows Timmy

including his private SLP agrees that he appears to understand and

comprehend what is being said to him yet has great difficulty with

his expressive language. Am I dense or does receptive not mean

receiving and comprehension of language? The SLP also states he has a

denasal voice( never noticed by three other SLP's that assessed Timmy

since age 2) and mouth breathes. She is wondering about possible

airway obstruction (tonsils) and that this may be a reason for Timmy's

fatigue (interrupted sleep).Oh and the fact that Timmy had a cold that

week and testing was done 8 days before he developed chicken pox

lesions escaped her. Has anyone had problems with their child being

diagnosed with a receptive disorder when they were positive there is

none? What can we do? We are certain that Timmy has verbal apraxia and

he has improved dramatically with private speech dealing with motor

planning issues, OT and ProEFA but now we once again are met with the

words " receptive " disorder through unreliable speech test results. I

desperately need advice and input.

Sue