Re: daughter feels no pain

[Guest guest]

Angie,

I just saw something a couple of weeks on a news type show (20/20, Dateline)

about this. I would definately call her MD about it. There is a very rare

disorder and here is a quick link to an article I found on the internet.

http://www.oregonnews.com/article/20041124/FEATURES03/111240069

I hope this helps.

[ ] daughter feels no pain

My 3 year daughter had stitches for the 2nd time in 6 monthes

last tuesday. She did not feel a thing. She did not even act as if

she was hurt. The story I got from my 5 year old she that she fell

and hit her head on the bathroom door. But he did not know that she

was really hurt. She did not really cry when it happened. She just

laid at the top of the stairs bleeding for 10 min. She was just

kinda whining mommy every so often, I thought she was just tired. I

obviously feel really bad. But at medpoint she just walked in the

door smiling and when they gave her the numbing shots nothing not

even a blink. She did not feel a thing. Her last stitches were on

her foot so she could she them so there was a little response but

she fell asleep is the middle of the procedure ( she had 15 stitches

in her foot. And she was not sudated. She has never had a response

to shots or IVs or blood being drawn. She had one IV slip out of

the vain and blow up her arm and she did not even cry. If anyone

has heard of this or experienced this please let me know. We are

very concerned at this moment for her safety. She can not seem to

feel when she is hurt. Anyway anything would be helpful. Angie

[Guest guest]

Angie,

Here is the story from ABC.

http://abcnews.go.com/GMA/story?id=244391

Good luck to you.

[ ] daughter feels no pain

My 3 year daughter had stitches for the 2nd time in 6 monthes

last tuesday. She did not feel a thing. She did not even act as if

she was hurt. The story I got from my 5 year old she that she fell

and hit her head on the bathroom door. But he did not know that she

was really hurt. She did not really cry when it happened. She just

laid at the top of the stairs bleeding for 10 min. She was just

kinda whining mommy every so often, I thought she was just tired. I

obviously feel really bad. But at medpoint she just walked in the

door smiling and when they gave her the numbing shots nothing not

even a blink. She did not feel a thing. Her last stitches were on

her foot so she could she them so there was a little response but

she fell asleep is the middle of the procedure ( she had 15 stitches

in her foot. And she was not sudated. She has never had a response

to shots or IVs or blood being drawn. She had one IV slip out of

the vain and blow up her arm and she did not even cry. If anyone

has heard of this or experienced this please let me know. We are

very concerned at this moment for her safety. She can not seem to

feel when she is hurt. Anyway anything would be helpful. Angie

[Guest guest]

Hi Angie -

This is something you definitely want to address with her doc - and

don't allow yourself to be brushed off. Some kids just don't feel

pain normally - though rare, I happen to know the mom of a child

(otherwise normal) who is like this. She had to check him daily for

broken bones, etc. - as well as be sure he didn't burn himself,

etc.. She, herself, has a very high tolerance for pain and had an

emergency appendectomy while 8 mos preg with no anesthesia because

what they'd given her didn't work. She barely felt a thing - and the

appendectomy was discovered by accident - she never felt anything

more than discomfort equivalent to being 8 mos pregnant. So, go see

your doc.

Good luck,

Marina

>

>

> My 3 year daughter had stitches for the 2nd time in 6

monthes

> last tuesday. She did not feel a thing. She did not even act as

if

> she was hurt. The story I got from my 5 year old she that she fell

> and hit her head on the bathroom door. But he did not know that

she

> was really hurt. She did not really cry when it happened. She

just

> laid at the top of the stairs bleeding for 10 min. She was just

> kinda whining mommy every so often, I thought she was just tired.

I

> obviously feel really bad. But at medpoint she just walked in the

> door smiling and when they gave her the numbing shots nothing not

> even a blink. She did not feel a thing. Her last stitches were on

> her foot so she could she them so there was a little response but

> she fell asleep is the middle of the procedure ( she had 15

stitches

> in her foot. And she was not sudated. She has never had a

response

> to shots or IVs or blood being drawn. She had one IV slip out of

> the vain and blow up her arm and she did not even cry. If anyone

> has heard of this or experienced this please let me know. We are

> very concerned at this moment for her safety. She can not seem to

> feel when she is hurt. Anyway anything would be helpful. Angie

[Guest guest]

Does your daughter have any other unusual characteristics besides the pain

issue? I ask because this can be a symptom in some chromosome disorders. My

daughter has smith magenis syndrome and many of these children are desensitized

to pain. Rhonda

[ ] daughter feels no pain

My 3 year daughter had stitches for the 2nd time in 6 monthes

last tuesday. She did not feel a thing. She did not even act as if

she was hurt. The story I got from my 5 year old she that she fell

and hit her head on the bathroom door. But he did not know that she

was really hurt. She did not really cry when it happened. She just

laid at the top of the stairs bleeding for 10 min. She was just

kinda whining mommy every so often, I thought she was just tired. I

obviously feel really bad. But at medpoint she just walked in the

door smiling and when they gave her the numbing shots nothing not

even a blink. She did not feel a thing. Her last stitches were on

her foot so she could she them so there was a little response but

she fell asleep is the middle of the procedure ( she had 15 stitches

in her foot. And she was not sudated. She has never had a response

to shots or IVs or blood being drawn. She had one IV slip out of

the vain and blow up her arm and she did not even cry. If anyone

has heard of this or experienced this please let me know. We are

very concerned at this moment for her safety. She can not seem to

feel when she is hurt. Anyway anything would be helpful. Angie

[Guest guest]

Angie....

Check on Good Morning America web site. I think a few

weeks back they had another child that feels no pain

at all. I know I saw something in the news recently

on a little girl with the same problem.

Laurie

[Guest guest]

Angie,

While I know others will more likely to give a medical explanation for this

I will relate to it in a personal way.

My 5 year old grandson, Seth, has the same reaction to painful situations

and injuries. He has slammed his fingers in doors and just looks at you like

huh I can't get my hand out. When he was about 3-1/2 he fell against a stone

hearth and had to have stitches. He has the same reaction as your daughter.

He also did not react to the numbing, the only time he reacted was when he

had to held down to put the stitches in his forehead. The disturbing part

was the reaction of the ER staff. They were praising him and his mom for

being soooo good, little did they know we would have rather him screamed at

the top of his lungs.

His doctor is aware of the problem but did not have much to say as far as

and suggestions about treatment or coping strategies.

Seth is one of the kids with apraxia that needs more stimulation not less.

He has melt downs when the exciting activity stops, i.e. trick or treating

is a real challenge for him. He does not seem to understand that fun will

come again.

The way we deal with the danger a high pain level can cause is to protect

his environment with a special eye to things he might get into that other

children his age might not. And when he is in a " unsafe " environment one of

us must keep a watch out for any dangerous situations. He tends to mouth

EVERYTHING. It has been manageable though some people do not understand I

simply take a moment to explain it to them.

Anyway hope it helps to know there is another family out here that

experiences the same thing.

God Bless,

Dickinson

> From:

> Reply-

> Date: 13 Dec 2004 22:24:05 -0000

>

> Subject: [ ] Digest Number 2160

>

> Subject: daughter feels no pain

>

>

>

> My 3 year daughter had stitches for the 2nd time in 6 monthes

> last tuesday. She did not feel a thing. ...........If anyone

> has heard of this or experienced this please let me know. We are

> very concerned at this moment for her safety. She can not seem to

> feel when she is hurt. Anyway anything would be helpful. Angie

[Guest guest]

Many children with self regulation issues and sensory integration disorders

react in a very similar manner. After ruling out any medical condition such as

numbness, etc. you might consider seeing an occupational therapist who

specializes in integrating the child's senses to react in a particular way. Jodi

Schechtman MA-CCC-SLP

[Guest guest]

Before we started intervention - diet, supplements, therapy - my son

with autism showed little reaction to pain. He didn't self-injure much

like many other children with autism do, but he would get hurt without

registering pain.

>

> Angie,

> While I know others will more likely to give a medical explanation

for this

> I will relate to it in a personal way.

>

> My 5 year old grandson, Seth, has the same reaction to painful

situations

> and injuries. He has slammed his fingers in doors and just looks at

you like

> huh I can't get my hand out. When he was about 3-1/2 he fell against

a stone

> hearth and had to have stitches. He has the same reaction as your

daughter.

> He also did not react to the numbing, the only time he reacted was

when he

> had to held down to put the stitches in his forehead. The disturbing

part

> was the reaction of the ER staff. They were praising him and his mom for

> being soooo good, little did they know we would have rather him

screamed at

> the top of his lungs.

>

> His doctor is aware of the problem but did not have much to say as

far as

> and suggestions about treatment or coping strategies.

>

> Seth is one of the kids with apraxia that needs more stimulation not

less.

> He has melt downs when the exciting activity stops, i.e. trick or

treating

> is a real challenge for him. He does not seem to understand that fun

will

> come again.

>

> The way we deal with the danger a high pain level can cause is to

protect

> his environment with a special eye to things he might get into that

other

> children his age might not. And when he is in a " unsafe " environment

one of

> us must keep a watch out for any dangerous situations. He tends to mouth

> EVERYTHING. It has been manageable though some people do not

understand I

> simply take a moment to explain it to them.

>

> Anyway hope it helps to know there is another family out here that

> experiences the same thing.

>

> God Bless,

> Dickinson

>

>

> > From:

> > Reply-

> > Date: 13 Dec 2004 22:24:05 -0000

> >

> > Subject: [ ] Digest Number 2160

> >

> > Subject: daughter feels no pain

> >

> >

> >

> > My 3 year daughter had stitches for the 2nd time in 6 monthes

> > last tuesday. She did not feel a thing. ...........If anyone

> > has heard of this or experienced this please let me know. We are

> > very concerned at this moment for her safety. She can not seem to

> > feel when she is hurt. Anyway anything would be helpful. Angie