Dee/E & T RECEPTORS to nne

[Guest guest]

Thanks so much Dee,

And yes you read right - the first paragraph is correct No problems -

I just thought (dumb...) that I had bypassed all of that..

I will read the web site you suggested.

I guess I assumed Premarin was OK, as I did not have any breast

cancer in my family and my mother took Premarin for over 25 YEARS!!,

and didn't have any problems, and died at age 90.

There is an awful lot you wrote to digest, and I will print it out

and see if I can assimilate it all.

The big question - do all GYN's prescribe the natural hormones you

recommended, or do I need to start calling GYN's to find one that

does?????

I am currently going to see Dr. E. for my LS and vulvodynia -

does she treat menopause? Or is there such a thing as a natural

menopause specialist? Or should I start with my PC who started me on

the Premain, or the GYN that referred me to Dr. . He was the

first to diagnose my vulvodynia, but missed the LS. I also have

pudendal neuropathy and am seeing a PN specialist to have nerve

blocks started in February, and if I can get some pain relief, I

will start PT in April. You know, if anyone, how bad I want to get

my body back and off all these pain meds. I am completely disabled,

haven't driven a car or gotten out of my pj's in months. And, I know

you know ... And, you can see I really do have an anwful lot of

problems with that going on down there ...

nne

>

> HI nne,

>

> Just to clarify in my own mind.

>

> You had a hysterectomy 30 yrs ago (1 ovary left in) and all that

time you never were on hormone replacement? and no problems. Two

years ago at 63 or so, you woke up with the extreme hot flashes &

more ... and started the Premarin? (assume a pill?) That's when

things went downhill for you? (for every vulvar problem known).

Right?

>

> WOW sounds like you stepped into a nightmare and by now I would

think likely to be cursing hormones. *sigh* What a shame.

>

> Well first of all hon I can tell you I've read some pretty bad

stories about Premarin , that's the first thing that made me nervous

when I saw that.

>

> Here's a link and I don't mean to scare you.....

>

> http://my.athenet.net/~nrsprntg/Letters2004.html

>

> it's about other peoples stories and what happened to them on

it... (if you change the yr... like 2005, or 2003 etc, you'll get

hundreds & hundreds more. ) I could get into the technical

differences but suffice it to say you couldn't get me to take

it 'ever'.

>

> And esp. if you never were on hormones before your body had to

say ''What the Hell is going on here!'' *sigh* (forgive me)... I've

no idea of your dosage amt. either but what a shame when they do

have the bioidentical estrogen (estradiol) available and you

probably just needed a very low dose to control those symptoms.

>

> I personally take my HRT more than just for controlling those

symptoms that's the least of it in my opinion (for me hon) yet it

sounded like it was really bad for you but I want it even more for

the brain, bones, mood, arteries, heart and SO much more that's

unseen...

>

> It's what keeps us healthy as women and when we lose it we get all

those problems or symptoms of meno they talk about, not only hot

flashes but especially bone loss, hair thinning, we can have an

atrophic vagina and dryness, painful sex, increased UTI's is another

big one, loss of libido and esp. lubrication and even incontinence

and bladder problems and those are just a 'few' benefits (or loss)

of both the E & T..

>

> Anyway hon that would be ''my'' first guess and I've just seen far

too often where they'll throw antidepressants at a woman (by far the

biggest users) when quite often it's simply the need of getting the

hormones in balance.

>

> You've been out of E for a long time (30 some yrs) even with one

ovary they know today that leaving the ovaries in does very little

as they soon start to diminish and die anyway with the blood supply

being cut off so it's minimal at best and only for a short while.

>

> No doubt you're out of testosterone too...Those effects are almost

immediate with a hysterectomy, (the loss of both E & T) and those

two need to be balanced and if a person takes ONLY estrogen for

their HRT? It depletes the T. even more... and some studies are

saying T may be more beneficial than the E. for bones (and much

more) but that hormone is just as important for women as the

estradiol is and yes we women produce it just as males produce

estrogen but of course in different quanities.

>

> Hon there is so much I could say (if I only had the time) *sigh*

but believe me 'my' first suggestion would be to get a complete

blood count for those hormones. The estradiol, the testosterone and

the free & unbound testosterone. (besides thyroid too). See

where 'you' stand.... Then you can work from there.

>

> There are other tests for sure but those to 'me' would be the main

ones right now. (you do have to ask your doctor for that hormone

panel separately as it's not part of a standard typical blood

workup.) Without that dip stick in the car there is no way to

guesstimate what you might need.

>

> But one thing you definitely DON " T need is Premarin believe me.

(well believe me or not that is most definitely my opinion)

*chuckle*as it's not at all like our own estrogen. Especially if

you check out that link about you'll see why.

>

> Your poor body had to be in shock when you started that and you

asked if I thought your problems might be hormonally connected? My

guess would be a yes and I'd definitely want that to be ruled

out 'first'. (with those tests) but too with you on the Premarin

they'll be skewed up right now. *Sigh*

>

>

> Whether there are other problems I've no idea of your overall

health.. but my goodness a woman of your age should still be feeling

great, still having sex and enjoying it if she wants to... and that

all depends on getting the 'right' hormone dosage (and a natural bio-

identical hormone) that works for YOU. Especially since you said

you felt great up till the last few years without previous

problems. I would think things can be turned around for you.

>

> And I definitely would ''suggest'' at the barest minimum that you

at least use the E & T for the vulvar tissue and if I were 'you " ?

I'd be inserting the Estrace cream with the applicator too. Usually

that's daily with an inch or so for 2 weeks.. (to saturate those E.

receptors) then on once or twice a week for maintenance. OF course

talk to your doctor but I'm telling you what " I " would do hon.

>

> I say that (using it intravaginally) only IF you are not taking

anything orally... and I would get off the Premarin. *sigh*

>

> Here's the problem with that though, it can take 3-4 months for

Premarin to be eliminated from your body. Estrace is so natural its

out of your system within 24-48 hrs... maybe even less.

>

> But I would use the E & T topically at least *sigh*for now and I'd

surely ask about switching to the Estrace or some form of estradiol

like the Vagifem, or E string, The patch would be ok for your whole

body benefits but to 'me' you'd still need the E & T 'topically' for

the vulvar area if you go that way.

>

> Believe me nne those are my opinions and what 'I' know and

have learned over the many years as well as experienced...and have

tons of info (easily over 500 articles just on E and prob. that many

or more on T and HRT and, and, and LOL) to back most of that up,

so just my two cents but I hope it helps a little.

>

> hugs hon

> Dee~

>

>

>

>

> Re: E & T RECEPTORS /dee

> Posted by: " solittletimeleft " solittletimeleft@...

solittletimeleft

> Date: Sat Jan 20, 2007 9:14 pm ((PST))

>

> Hi Dee,

>

> just by coincidence (maybe?) I developed mild (they are no longer

> mild) vulvar problems and now LS within two years of starting HRT.

I

> was a strange case - partial (left ovaries) hysterectomy over 30

> years ago. No systems of menopause at all - on my 63rd birthday I

> woke up with raging hot flashes - one every 15 minutes. I couldn't

> stand it - my glasses were fogged up - I couldn't see. I went on

the

> horrible premarin and I am still on it. Now I have every vulvar

> problem know to man, and a few that aren't (LOL). Do you see any

> connection here with anything?

>

> nne

>

[Guest guest]

HI nne I'll put some thoughts in blue under yours.

Dee here, hope it helps.

The big question - do all GYN's prescribe the natural hormones you recommended, or do I need to start calling GYN's to find one that does?????

''No.... in fact most physicians just automatically go for the Premarin.. it's what they've been taught and has been around for quite a while it's almost just an automatic thing. Of course they have the much deeper advertising pockets and even so graciously (said facitiously) donate their product for 99% of all those hormone studies. All you have to do is just say I'd prefer the bioidentical estrogen Estrace (whether in pill form for HRT replacement OR in the cream form) and they most definitely should be aware of it. You might also ask for samples.. My doctor gave me mine for years. and don't let a doctor tell you they're all the same (estrogen) they truly are not.

I am currently going to see Dr. E. for my LS and vulvodynia -does she treat menopause? Or is there such a thing as a natural menopause specialist? Or should I start with my PC who started me on the Premain, or the GYN that referred me to Dr. . He was the first to diagnose my vulvodynia, but missed the LS.

''I really don't know if treats meno but I would assume she does. Some doctors may call themselves 'specialists' but so can anyone, though she's certainly thought of as one of the best..I don't think there's a degree that says specialist but there are those who specialize, or 'think' they're specialists,

There are alternative practioners for menopause.. but they'll use other things like herbs, soy, black cohosh etc. which 'I' don't think those are any kind of true replacement for what you've lost. In fact some like the soy can block those estrogen receptors even more and I personally would stay away from any of those progesterone creams... Big time.. again that will block those receptors probably the worst.

It's like a diabetic who needs insulin and no matter how much one would love to take something so called natural or alternative nothing is going to replace true insulin. And estradiol (as in Estrace) is true 17b estradiol we ourselves produce and lose unfortunately.

I also have pudendal neuropathy and am seeing a PN specialist to have nerve blocks started in February, and if I can get some pain relief, I will start PT in April. You know, if anyone, how bad I want to get my body back and off all these pain meds. I am completely disabled, haven't driven a car or gotten out of my pj's in months. And, I know you know ... And, you can see I really do have an anwful lot of problems with that going on down there ...nne

You sure do nne... I am just so sorry... and I hope those are of benefit to you, you poor thing. *sigh* but also just a reminder how benefical estrogen is for those nerve endings too. Good luck.

hugsDee~

[Guest guest]

HI nne I'll put some thoughts in blue under yours.

Dee here, hope it helps.

The big question - do all GYN's prescribe the natural hormones you recommended, or do I need to start calling GYN's to find one that does?????

''No.... in fact most physicians just automatically go for the Premarin.. it's what they've been taught and has been around for quite a while it's almost just an automatic thing. Of course they have the much deeper advertising pockets and even so graciously (said facitiously) donate their product for 99% of all those hormone studies. All you have to do is just say I'd prefer the bioidentical estrogen Estrace (whether in pill form for HRT replacement OR in the cream form) and they most definitely should be aware of it. You might also ask for samples.. My doctor gave me mine for years. and don't let a doctor tell you they're all the same (estrogen) they truly are not.

I am currently going to see Dr. E. for my LS and vulvodynia -does she treat menopause? Or is there such a thing as a natural menopause specialist? Or should I start with my PC who started me on the Premain, or the GYN that referred me to Dr. . He was the first to diagnose my vulvodynia, but missed the LS.

''I really don't know if treats meno but I would assume she does. Some doctors may call themselves 'specialists' but so can anyone, though she's certainly thought of as one of the best..I don't think there's a degree that says specialist but there are those who specialize, or 'think' they're specialists,

There are alternative practioners for menopause.. but they'll use other things like herbs, soy, black cohosh etc. which 'I' don't think those are any kind of true replacement for what you've lost. In fact some like the soy can block those estrogen receptors even more and I personally would stay away from any of those progesterone creams... Big time.. again that will block those receptors probably the worst.

It's like a diabetic who needs insulin and no matter how much one would love to take something so called natural or alternative nothing is going to replace true insulin. And estradiol (as in Estrace) is true 17b estradiol we ourselves produce and lose unfortunately.

I also have pudendal neuropathy and am seeing a PN specialist to have nerve blocks started in February, and if I can get some pain relief, I will start PT in April. You know, if anyone, how bad I want to get my body back and off all these pain meds. I am completely disabled, haven't driven a car or gotten out of my pj's in months. And, I know you know ... And, you can see I really do have an anwful lot of problems with that going on down there ...nne

You sure do nne... I am just so sorry... and I hope those are of benefit to you, you poor thing. *sigh* but also just a reminder how benefical estrogen is for those nerve endings too. Good luck.

hugsDee~

[Guest guest]

HI nne I'll put some thoughts in blue under yours.

Dee here, hope it helps.

The big question - do all GYN's prescribe the natural hormones you recommended, or do I need to start calling GYN's to find one that does?????

''No.... in fact most physicians just automatically go for the Premarin.. it's what they've been taught and has been around for quite a while it's almost just an automatic thing. Of course they have the much deeper advertising pockets and even so graciously (said facitiously) donate their product for 99% of all those hormone studies. All you have to do is just say I'd prefer the bioidentical estrogen Estrace (whether in pill form for HRT replacement OR in the cream form) and they most definitely should be aware of it. You might also ask for samples.. My doctor gave me mine for years. and don't let a doctor tell you they're all the same (estrogen) they truly are not.

I am currently going to see Dr. E. for my LS and vulvodynia -does she treat menopause? Or is there such a thing as a natural menopause specialist? Or should I start with my PC who started me on the Premain, or the GYN that referred me to Dr. . He was the first to diagnose my vulvodynia, but missed the LS.

''I really don't know if treats meno but I would assume she does. Some doctors may call themselves 'specialists' but so can anyone, though she's certainly thought of as one of the best..I don't think there's a degree that says specialist but there are those who specialize, or 'think' they're specialists,

There are alternative practioners for menopause.. but they'll use other things like herbs, soy, black cohosh etc. which 'I' don't think those are any kind of true replacement for what you've lost. In fact some like the soy can block those estrogen receptors even more and I personally would stay away from any of those progesterone creams... Big time.. again that will block those receptors probably the worst.

It's like a diabetic who needs insulin and no matter how much one would love to take something so called natural or alternative nothing is going to replace true insulin. And estradiol (as in Estrace) is true 17b estradiol we ourselves produce and lose unfortunately.

I also have pudendal neuropathy and am seeing a PN specialist to have nerve blocks started in February, and if I can get some pain relief, I will start PT in April. You know, if anyone, how bad I want to get my body back and off all these pain meds. I am completely disabled, haven't driven a car or gotten out of my pj's in months. And, I know you know ... And, you can see I really do have an anwful lot of problems with that going on down there ...nne

You sure do nne... I am just so sorry... and I hope those are of benefit to you, you poor thing. *sigh* but also just a reminder how benefical estrogen is for those nerve endings too. Good luck.

hugsDee~