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Thanks so much Dee,

And yes you read right - the first paragraph is correct No problems -

I just thought (dumb...) that I had bypassed all of that..

I will read the web site you suggested.

I guess I assumed Premarin was OK, as I did not have any breast

cancer in my family and my mother took Premarin for over 25 YEARS!!,

and didn't have any problems, and died at age 90.

There is an awful lot you wrote to digest, and I will print it out

and see if I can assimilate it all.

The big question - do all GYN's prescribe the natural hormones you

recommended, or do I need to start calling GYN's to find one that

does?????

I am currently going to see Dr. E. for my LS and vulvodynia -

does she treat menopause? Or is there such a thing as a natural

menopause specialist? Or should I start with my PC who started me on

the Premain, or the GYN that referred me to Dr. . He was the

first to diagnose my vulvodynia, but missed the LS. I also have

pudendal neuropathy and am seeing a PN specialist to have nerve

blocks started in February, and if I can get some pain relief, I

will start PT in April. You know, if anyone, how bad I want to get

my body back and off all these pain meds. I am completely disabled,

haven't driven a car or gotten out of my pj's in months. And, I know

you know ... And, you can see I really do have an anwful lot of

problems with that going on down there ...

nne

> >

> > HI nne, ;)

> >

> > Just to clarify in my own mind.

> >

> > You had a hysterectomy 30 yrs ago (1 ovary left in) and all that

> time you never were on hormone replacement? and no problems. Two

> years ago at 63 or so, you woke up with the extreme hot flashes &

> more ... and started the Premarin? (assume a pill?) That's when

> things went downhill for you? (for every vulvar problem known).

> Right?

> >

> > WOW sounds like you stepped into a nightmare and by now I

would

> think likely to be cursing hormones. *sigh* What a shame.

> >

> > Well first of all hon I can tell you I've read some pretty bad

> stories about Premarin , that's the first thing that made me

nervous

> when I saw that.

> >

> > Here's a link and I don't mean to scare you.....

> >

> > http://my.athenet.net/~nrsprntg/Letters2004.html

> >

> > it's about other peoples stories and what happened to them on

> it... (if you change the yr... like 2005, or 2003 etc, you'll get

> hundreds & hundreds more. ) I could get into the technical

> differences but suffice it to say you couldn't get me to take

> it 'ever'.

> >

> > And esp. if you never were on hormones before your body had to

> say ''What the Hell is going on here!'' *sigh* (forgive me)...

I've

> no idea of your dosage amt. either but what a shame when they do

> have the bioidentical estrogen (estradiol) available and you

> probably just needed a very low dose to control those symptoms.

> >

> > I personally take my HRT more than just for controlling those

> symptoms that's the least of it in my opinion (for me hon) yet it

> sounded like it was really bad for you but I want it even more for

> the brain, bones, mood, arteries, heart and SO much more that's

> unseen...

> >

> > It's what keeps us healthy as women and when we lose it we get

all

> those problems or symptoms of meno they talk about, not only hot

> flashes but especially bone loss, hair thinning, we can have an

> atrophic vagina and dryness, painful sex, increased UTI's is

another

> big one, loss of libido and esp. lubrication and even incontinence

> and bladder problems and those are just a 'few' benefits (or

loss)

> of both the E & T..

> >

> > Anyway hon that would be ''my'' first guess and I've just seen

far

> too often where they'll throw antidepressants at a woman (by far

the

> biggest users) when quite often it's simply the need of getting

the

> hormones in balance.

> >

> > You've been out of E for a long time (30 some yrs) even with one

> ovary they know today that leaving the ovaries in does very little

> as they soon start to diminish and die anyway with the blood

supply

> being cut off so it's minimal at best and only for a short while.

> >

> > No doubt you're out of testosterone too...Those effects are

almost

> immediate with a hysterectomy, (the loss of both E & T) and those

> two need to be balanced and if a person takes ONLY estrogen for

> their HRT? It depletes the T. even more... and some studies are

> saying T may be more beneficial than the E. for bones (and much

> more) but that hormone is just as important for women as the

> estradiol is and yes we women produce it just as males produce

> estrogen but of course in different quanities.

> >

> > Hon there is so much I could say (if I only had the time) *sigh*

> but believe me 'my' first suggestion would be to get a complete

> blood count for those hormones. The estradiol, the testosterone

and

> the free & unbound testosterone. (besides thyroid too). See

> where 'you' stand.... Then you can work from there.

> >

> > There are other tests for sure but those to 'me' would be the

main

> ones right now. (you do have to ask your doctor for that hormone

> panel separately as it's not part of a standard typical blood

> workup.) Without that dip stick in the car there is no way to

> guesstimate what you might need.

> >

> > But one thing you definitely DON " T need is Premarin believe me.

> (well believe me or not that is most definitely my opinion)

> *chuckle*as it's not at all like our own estrogen. Especially if

> you check out that link about you'll see why.

> >

> > Your poor body had to be in shock when you started that and you

> asked if I thought your problems might be hormonally connected?

My

> guess would be a yes and I'd definitely want that to be ruled

> out 'first'. (with those tests) but too with you on the Premarin

> they'll be skewed up right now. *Sigh*

> >

> >

> > Whether there are other problems I've no idea of your overall

> health.. but my goodness a woman of your age should still be

feeling

> great, still having sex and enjoying it if she wants to... and

that

> all depends on getting the 'right' hormone dosage (and a natural

bio-

> identical hormone) that works for YOU. ;) Especially since you

said

> you felt great up till the last few years without previous

> problems. I would think things can be turned around for you.

> >

> > And I definitely would ''suggest'' at the barest minimum that

you

> at least use the E & T for the vulvar tissue and if I were 'you " ?

> I'd be inserting the Estrace cream with the applicator too.

Usually

> that's daily with an inch or so for 2 weeks.. (to saturate those

E.

> receptors) then on once or twice a week for maintenance. OF

course

> talk to your doctor but I'm telling you what " I " would do hon.

> >

> > I say that (using it intravaginally) only IF you are not taking

> anything orally... and I would get off the Premarin. *sigh*

> >

> > Here's the problem with that though, it can take 3-4 months for

> Premarin to be eliminated from your body. Estrace is so natural

its

> out of your system within 24-48 hrs... maybe even less.

> >

> > But I would use the E & T topically at least *sigh*for now and

I'd

> surely ask about switching to the Estrace or some form of

estradiol

> like the Vagifem, or E string, The patch would be ok for your

whole

> body benefits but to 'me' you'd still need the E & T 'topically'

for

> the vulvar area if you go that way.

> >

> > Believe me nne those are my opinions and what 'I' know and

> have learned over the many years as well as experienced...and have

> tons of info (easily over 500 articles just on E and prob. that

many

> or more on T and HRT and, and, and LOL) to back most of that

up,

> so just my two cents but I hope it helps a little.

> >

> > hugs hon

> > Dee~

> >

> >

> >

> >

> > Re: E & T RECEPTORS /dee

> > Posted by: " solittletimeleft " solittletimeleft@

> solittletimeleft

> > Date: Sat Jan 20, 2007 9:14 pm ((PST))

> >

> > Hi Dee,

> >

> > just by coincidence (maybe?) I developed mild (they are no

longer

> > mild) vulvar problems and now LS within two years of starting

HRT.

> I

> > was a strange case - partial (left ovaries) hysterectomy over 30

> > years ago. No systems of menopause at all - on my 63rd birthday

I

> > woke up with raging hot flashes - one every 15 minutes. I

couldn't

> > stand it - my glasses were fogged up - I couldn't see. I went on

> the

> > horrible premarin and I am still on it. Now I have every vulvar

> > problem know to man, and a few that aren't (LOL). Do you see any

> > connection here with anything?

> >

> > nne

> >

>

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