Re: TEST FOR ADD?

[Guest guest]

Lori De For--- is that you?!!! How are you and how is ?!

How is he doing in school? Is he also in first grade now or

second? I've talked about how we have members who have children

that are hearing impaired and apraxic...like .

Who does the testing with CADS Profile for Males?

Are you sure it wasn't the " Children’s Atypical Development Scale "

Children’s Atypical Development Scale (CADS)

http://www.gsi-add.com/references/default.htm

" Questioning about inappropriate thinking, affect, social relations, and motor

peculiarities may reveal a more seriously and pervasively disturbed child. If

such symptoms seem to be present, the clinician might consider employing the

Children’s Atypical Development Scale (see Barkley, 1990) to obtain a more

thorough review of these symptoms. Inquiry also must be made as to the presence

or history of tics or Tourette’s Disorder in the child or the immediate

biological family members. When noted, these disorders would result in a

recommendation for the cautious use of stimulant drugs in the treatment of ADHD

or, perhaps, lower doses of such medicine than typical to preclude the

exacerbation of the child’s tic disorder... "

http://www.continuingedcourses.net/active/courses/course004.php

I don't know if

I'd want anyone but a neuro MD testing my child for ADD (and all above)

personally -

do you really trust the school to do this?! Anyway -just want to

ask a few questions since I know you...and . Do they believe

is ADD? Was he always -that I don't recall.

Remember -you can 'just say no' (and test private if problem is suspected)

You know my

son Dakota has been diagnosed with ADD numerous times too and he is

doing just amazing in all areas..the school nurse however has to give him an

extra dose of fish oil at lunch -without it he is not that great in

the afternoon (we give him fish oils in the morning -wears off by noon) Not

sure if

it's psychosomatic or what but all his teachers see a dramatic

change since that extra dosage at lunch. There is a school

psychologist at his school who is a real believer in fish oils who says that

Dakota (who is now 9) is getting older and " may need a larger

dosage " Guess he did.

Sometimes it is just that simple -nothing else it's worth a try -but

I do have to use a higher formula of EPA for Dakota than for Tanner

to see results as I've reported here -and there is a dramatic

difference in this child on and off the oils -huge difference!

Please email me your number at lisa@... so we can catch up.

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[Guest guest]

Question about the fish oil. How much are you giving Dakatoa per day? of the

efa and epa?

thanks

Selena

-----Original Message-----

From: kiddietalk [mailto:kiddietalk@...]

[Guest guest]

Hi Selena,

For your question I'll use the name brand products from Nordic

Naturals ProEFA and ProEPA that many of us (including me) use and love

for example, but one could make up the formula/dosage using high quality fish

oil and

primrose or borage seed oil.

In short:

I have Tanner on a 2 to one ratio of ProEFA to ProEPA -he's now 7

and on 2 Pro EPA and 4 ProEFA once a day. Dakota's higher EPA -taking 2 ProEPA

and 3 ProEFA in the AM and then at lunch he takes another 1 capsule

each of ProEFA and ProEPA. Both have been on the oils for years -

and gradually increased dosages over time. In addition to

everything else -since the oils, almost never do any of us get

colds/sick even when exposed to others who are sick. Do any of you

guys notice this too or just us?!

In long:

If making the oil formula yourself -or using another brand: if you

are not seeing the same results -it's all in the dosage, formula,

and quality of oils -all oils are not the same. Head's up for

recent messages about wholesale prices of ProEFA posted here:

Retail price from Nordic Naturals direct for ProEFA is now around

$24 dollars a bottle the posted $15.60 price is below wholesale. There

are discount places that sell ProEFA online that are reputable

including Shop in Service for CHERAB which I am behind for history

reasons http://www.cherab.org/information/historyEFA.html Check

expiration dates since below wholesale price when it comes to this

product quite possibly could mean purchasing older bottles of

product. (unlike the oil outside of bottle which only stays fresh a

few months and needs refrigeration -ProEFA oil in capsules when

first manufactured stays fresh for 4 years. Tanner's only been

using ProEFA for as long as it's been around -around 3 years now to give you an

idea. Years ago

bottles cost only $17 dollars from NN so of course wholesale prices were

much less. Some old bottles may be left over and some 'may' be distributing

them) Just

make sure what you are buying is fresh/OK since it's for preschool

children in most cases - double check lot numbers direct with Nordic

Naturals especially if expiration dates are missing.

webpage on what we found with each oil:

http://www.speech-express.com/alternative-therapy/efa-faqs.html

oils and ADHD

http://www.emediawire.com/releases/2004/4/emw119523.htm

http://www.umm.edu/altmed/ConsSupplements/Omega6FattyAcidscs.html#Uses

http://www.fabresearch.org/view_item.aspx?item_id=327

Here is an archive on more:

From: " kiddietalk " <kiddietalk@...>

Date: Tue Mar 16, 2004 10:23 pm

Subject: Re: Apraxic Child w/possible ADD - EFAs

,

I found the two to one ratio better for Tanner who has apraxia (two

ProEFA to one ProEPA) and the one to one ratio better for my oldest

son Dakota who has ADHD. Dakota's formula

doesn't work as well for Tanner and Tanner's doesn't work as well

for Dakota. Even though Dakota was a late talker too and needed ST

for years due to birth trauma, he is not apraxic so not sure what

formula will be best for a child with both apraxia and ADHD -but

it's OK to try to change a bit. Run past the neuroMD, today more

than ever they can help we are hearing.

I don't like to mess with the formula either -so believe me I know

what you mean -but without trying other formulas, brands and dosages

it's

hard to know for sure what works the best. So, in the past couple

of years I have tried a few different brands and formulas which is

how I now for sure the formula, and dosage do matter and which works

better for both of my boys. I recommend all to start simple, (posted

below) you

do

see right away when it's working (a day to three weeks) and just as

fast when it's not. Good news is that if you use a the wrong

formula or dosage -you can always go back and so does your child.

(and that's not just for my boys -but has been the case in our group)

About GLA (the small amount of Omega 6 from primrose or borage seed

oil found in formula's we've anecdotally found to be successful) the

GLA has strong anti inflammatory properties which 'may' enable the

Omega 3s to get to where they are needed in the small vessels of the

brain. Just a theory however -we really don't know why they are

important -they just appear to be based on results

http://www.cherab.org/information/historyEFA.html

For all those that asked about formula, when to go to two capsules,

etc. Below is an archive on to answer that.

" I will use the following examples with the brand name ProEFA since

that's the formula/dosage that seems to work the best for most of us

(Efalex and EyeQ are similar Omega 3/6 formulas that also have good

reports) For any brand name of Omega 3/6 formula -you could make

the same formula by mixing together fish oil and either primrose or

borage seed oil if you prefer -or as found -another brand

name with a similar formula (and I hope also a good quality)

If you mix two fish oils together which is fine if you know why you

are doing that: Look at the amount of DHA, EPA (Omega 3) and the

amount of GLA (Omega 6) and then add them all together to see what

formula and dosage you now have is. So for those of you that ask -

you can mix any brand names together you would like -however what

you could change is the three things above (dosage, formula and

*quality (*if one of the companies you start using has rancid oils

which is not uncommon when it comes to fish oils -so make sure all

brands you use are pure) Keep in mind in anecdotal feedback done by

parents from all over through CHERAB -that pure Omega 3 or pure

Omega 6 either showed no results -or very little results in almost

all cases. Pure Omega 3 would include pure cod liver oil, fish oil,

flax seed oil without any Omega 6. So even though there is only a

small amount of GLA (Omega 6) in the formulas we found to be

successful -GLA appears to be important to be there for some

reason. GLA has anti-inflammatory properties which perhaps enable

to DHA and EPA to get to where it's needed in the brain?

Dosage of one capsule a day ProEFA that at the lowest dosage appears

to be the best -

148 mg EPA

99 mg DHA

40 mg GLA

Here is what many of us have found to be the best plan

anecdotally:

....start with the basic formula, one ProEFA a day, we

saw surges in a few days to three weeks which continued for months -

we then reached a plateau after around 6 months.

At this point we raised the dosage to two capsules of ProEFA a day

and once again had those surges which lasted again for months.

When we reached the next plateau after around a year, instead of

going to three a day - we squeezed 1/2 to one capsule of ProEPA into

the 2 capsules of ProEFA and for almost all of us that try -that

created another surge.

Over time -you may raise the dosage up higher -and you may slightly

change the formula to raise the Omega 3 over the Omega 6 ratio.

Most found raising the EPA vs. the DHA or GLA to be best -but

you need to know your own child, keep track of his progress through

both your own observations and that of the professionals -with the

advice of your child's doctor -to know what is best for him/her.

There is much more in the archives both here -as well as more

information at

http://www.cherab.org/information/indexinformation.html#diet

http://www.speechville.com

Since I receive lots of calls about this -I wanted to list the most

common changes in an apraxic or other speech disordered child on

EFAs from what I've read and heard and seen.

1. Increase in babbling or attempts at sounds.

2. Increase in imitation.

Changes also can be looked for in (what you see as positive or

negative)

sleep

attention

appetite

focus

behavior

stools

Next will come a breakthrough of something you were probably working

on for a bit -so you will be excited but will think " Well -I don't

want to get my hopes up we were working on that for awhile now -

maybe it's just a coincidence " However after the second or third

surge in a short period of time -and then another - you are pretty

sure things are different and it's at this point the professionals

and the rest of the family and your friends are noticing it too -

maybe about two to three weeks now.

OK -the next stage is pure elation and hope -you see the light and

no longer feel as desperate and want to share this new information

with everyone and anyone. As the months go by and your child

continues to progress at a much more rapid rate -you may even start

to doubt the original diagnosis -especially if you started EFA

supplementation at two -and perhaps the SLP that diagnosed the

apraxia who also was at first excited is starting to second guess if

the original diagnosis was correct as well.

Unless you have to stop the ProEFA (or other Essential Fatty Acids)

and literally have the chance to see the regression of acquired

speech and language skills, attempts, and changes in behavior like

we did with Tanner (and/or have a chance to again witness the second

surge when your child is put back on the EFAs) -that doubt will

probably remain somewhere in your mind and in others around your

child. So the " I told you that he would start talking when he was

ready " comments should be expected of course.

Up to this point is understandable to me -it's the point after this

that is confusing to me, and perhaps not the best stage for our

children and for raising awareness or having research done to find

out what is happening to our children and why. Perhaps because we

have truly hit a paradigm shift...

As Dr. Agin states the EFAs actually appear to be in some

ways " curing " the apraxic child -even those diagnosed with severe

oral and verbal apraxia, hypotonia, sensory and behavioral issues.

Especially those started at younger ages.

The child on ProEFA or some other EFA formula's like it no longer

fits the criteria of the classic definition of apraxia -and yet

doesn't fit the classic perception of what a late talker is either...

Some of the parents become more focused on other everyday activities

with their child and start to drift away from the support sources.

Problem with this attitude is that unless your child is really up to

speed on all aspects of speech and language, the support sources

that helped in the beginning will still benefit your child today.

ProEFA alone is not the only answer and until we know how and why it

works (or why in a handful of children it doesn't) we can't improve

on it "

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