Re: Re: CFRI Mother's Day Tea?

[Guest guest]

We would welcome your support in whatever why you

deem possible.at CFRI .please check the web site

and write.......call .whatever., It is a group

that does BOTH RESEARCH.of the highest level AND

patient services.

Re: CFRI Mother's Day Tea?

> Can anyone tell me what this fundraiser is all

about? And what is

CFRI? I

> know I'll probably know it when you tell me,

it's just these

acronyms all

> come together sometimes!

, I'm sure n and others have by now

replied to you, but

since I was the one who mentioned the Mother's Day

Tea and CFRI I

thought I'd interject here.

The Mother's Day Tea is a fake tea. People who

volunteer to help

send out CFRI's little invitation and donation

envelope along with a

teabag to each of their friends.

CFRI is Cystic Fibrosis Research Inc.

(www.cfri.org). They are an

organization dedicated to raising awareness and

educating about

cystic fibrosis, and they also fund many great

research projects (as

this is their main focus). They are based in Palo

Alto, CA.

From the time of Ricky's diagnosis I personally

have found CFRI far

more responsive than the CFF, though we support

both. When I found

out he had CF I got a CFRI newsletter from the

social worker at the

hospital. I called and immediately talked to Ann

, one of

CFRI's founders I believe and at that time the

executive director.

She told me all about her son Carl (who started

out in life very

similar to Ricky) and taught me to have hope. For

years she has

offered me her support and advice and I forever

value it.

I also called CFF at that time and was directed to

leave my name and

address on a recorder for more information which

arrived many weeks

later rather impersonally. I do feel they serve

their purpose, but a

smaller organization like CFRI to me has always

meant more.

JMHO,

Becky

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this

list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

We would welcome your support in whatever why you

deem possible.at CFRI .please check the web site

and write.......call .whatever., It is a group

that does BOTH RESEARCH.of the highest level AND

patient services.

Re: CFRI Mother's Day Tea?

> Can anyone tell me what this fundraiser is all

about? And what is

CFRI? I

> know I'll probably know it when you tell me,

it's just these

acronyms all

> come together sometimes!

, I'm sure n and others have by now

replied to you, but

since I was the one who mentioned the Mother's Day

Tea and CFRI I

thought I'd interject here.

The Mother's Day Tea is a fake tea. People who

volunteer to help

send out CFRI's little invitation and donation

envelope along with a

teabag to each of their friends.

CFRI is Cystic Fibrosis Research Inc.

(www.cfri.org). They are an

organization dedicated to raising awareness and

educating about

cystic fibrosis, and they also fund many great

research projects (as

this is their main focus). They are based in Palo

Alto, CA.

From the time of Ricky's diagnosis I personally

have found CFRI far

more responsive than the CFF, though we support

both. When I found

out he had CF I got a CFRI newsletter from the

social worker at the

hospital. I called and immediately talked to Ann

, one of

CFRI's founders I believe and at that time the

executive director.

She told me all about her son Carl (who started

out in life very

similar to Ricky) and taught me to have hope. For

years she has

offered me her support and advice and I forever

value it.

I also called CFF at that time and was directed to

leave my name and

address on a recorder for more information which

arrived many weeks

later rather impersonally. I do feel they serve

their purpose, but a

smaller organization like CFRI to me has always

meant more.

JMHO,

Becky

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this

list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

We would welcome your support in whatever why you

deem possible.at CFRI .please check the web site

and write.......call .whatever., It is a group

that does BOTH RESEARCH.of the highest level AND

patient services.

Re: CFRI Mother's Day Tea?

> Can anyone tell me what this fundraiser is all

about? And what is

CFRI? I

> know I'll probably know it when you tell me,

it's just these

acronyms all

> come together sometimes!

, I'm sure n and others have by now

replied to you, but

since I was the one who mentioned the Mother's Day

Tea and CFRI I

thought I'd interject here.

The Mother's Day Tea is a fake tea. People who

volunteer to help

send out CFRI's little invitation and donation

envelope along with a

teabag to each of their friends.

CFRI is Cystic Fibrosis Research Inc.

(www.cfri.org). They are an

organization dedicated to raising awareness and

educating about

cystic fibrosis, and they also fund many great

research projects (as

this is their main focus). They are based in Palo

Alto, CA.

From the time of Ricky's diagnosis I personally

have found CFRI far

more responsive than the CFF, though we support

both. When I found

out he had CF I got a CFRI newsletter from the

social worker at the

hospital. I called and immediately talked to Ann

, one of

CFRI's founders I believe and at that time the

executive director.

She told me all about her son Carl (who started

out in life very

similar to Ricky) and taught me to have hope. For

years she has

offered me her support and advice and I forever

value it.

I also called CFF at that time and was directed to

leave my name and

address on a recorder for more information which

arrived many weeks

later rather impersonally. I do feel they serve

their purpose, but a

smaller organization like CFRI to me has always

meant more.

JMHO,

Becky

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this

list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

I hope I dont offend anyone here, but I am so glad that this was written

about the CFF. I had such a hard time fundraising for them this year,

especially after reading the amount that their CEO makes per year, and

realized that he was making more than 10 times what my husband makes, and we

are supporting a child with CF, is he? Anyway, I have decided to help with

the fundraising somehow with CFRI, seems to be a more people kinda agency,

the kind that parents and those with CF need to know is out there. Just my 2

cents worth, take care.

, mommy of 4, 16, working and paying for her own driving

school, (my license is being retired, anyone in the Jersey area, this is your

fair warning), Caleb 7, my sega loving little helper, 5, my little

mommy, and s best friend, always calls Emmy, and , 22 months, who

loves his brothers and sisters, playing outside, still thinks Barney is tops,

and has a beautiful smile and big blue eyes, and a temper that is just as bad

as he is cute

[Guest guest]

I hope I dont offend anyone here, but I am so glad that this was written

about the CFF. I had such a hard time fundraising for them this year,

especially after reading the amount that their CEO makes per year, and

realized that he was making more than 10 times what my husband makes, and we

are supporting a child with CF, is he? Anyway, I have decided to help with

the fundraising somehow with CFRI, seems to be a more people kinda agency,

the kind that parents and those with CF need to know is out there. Just my 2

cents worth, take care.

, mommy of 4, 16, working and paying for her own driving

school, (my license is being retired, anyone in the Jersey area, this is your

fair warning), Caleb 7, my sega loving little helper, 5, my little

mommy, and s best friend, always calls Emmy, and , 22 months, who

loves his brothers and sisters, playing outside, still thinks Barney is tops,

and has a beautiful smile and big blue eyes, and a temper that is just as bad

as he is cute

[Guest guest]

IT IS A WONDERFUL ORG. IT DOES BOTH ....

RESEARCH & SUPPORT

& ACTIVITIES FOR PEOPLE HERE OFTEN & BEST AS

THEY CAN.

VERY LOW DIRECTOR SALARY. YOU CAN ASK & HAVE

THAT INFO TOO.

IT IS PUBLIC RECORD....:):)

LOVE & HUGS,

GRANDMOMBEV

Re: Re: CFRI Mother's Day

Tea?

I hope I dont offend anyone here, but I am so glad

that this was written

about the CFF. I had such a hard time

fundraising for them this year,

especially after reading the amount that their CEO

makes per year, and

realized that he was making more than 10 times

what my husband makes, and we

are supporting a child with CF, is he? Anyway, I

have decided to help with

the fundraising somehow with CFRI, seems to be a

more people kinda agency,

the kind that parents and those with CF need to

know is out there. Just my 2

cents worth, take care.

, mommy of 4, 16, working and

paying for her own driving

school, (my license is being retired, anyone in

the Jersey area, this is your

fair warning), Caleb 7, my sega loving little

helper, 5, my little

mommy, and s best friend, always calls Emmy,

and , 22 months, who

loves his brothers and sisters, playing outside,

still thinks Barney is tops,

and has a beautiful smile and big blue eyes, and a

temper that is just as bad

as he is cute

[Non-text portions of this message have been

removed]

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this

list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

IT IS A WONDERFUL ORG. IT DOES BOTH ....

RESEARCH & SUPPORT

& ACTIVITIES FOR PEOPLE HERE OFTEN & BEST AS

THEY CAN.

VERY LOW DIRECTOR SALARY. YOU CAN ASK & HAVE

THAT INFO TOO.

IT IS PUBLIC RECORD....:):)

LOVE & HUGS,

GRANDMOMBEV

Re: Re: CFRI Mother's Day

Tea?

I hope I dont offend anyone here, but I am so glad

that this was written

about the CFF. I had such a hard time

fundraising for them this year,

especially after reading the amount that their CEO

makes per year, and

realized that he was making more than 10 times

what my husband makes, and we

are supporting a child with CF, is he? Anyway, I

have decided to help with

the fundraising somehow with CFRI, seems to be a

more people kinda agency,

the kind that parents and those with CF need to

know is out there. Just my 2

cents worth, take care.

, mommy of 4, 16, working and

paying for her own driving

school, (my license is being retired, anyone in

the Jersey area, this is your

fair warning), Caleb 7, my sega loving little

helper, 5, my little

mommy, and s best friend, always calls Emmy,

and , 22 months, who

loves his brothers and sisters, playing outside,

still thinks Barney is tops,

and has a beautiful smile and big blue eyes, and a

temper that is just as bad

as he is cute

[Non-text portions of this message have been

removed]

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this

list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

IT IS A WONDERFUL ORG. IT DOES BOTH ....

RESEARCH & SUPPORT

& ACTIVITIES FOR PEOPLE HERE OFTEN & BEST AS

THEY CAN.

VERY LOW DIRECTOR SALARY. YOU CAN ASK & HAVE

THAT INFO TOO.

IT IS PUBLIC RECORD....:):)

LOVE & HUGS,

GRANDMOMBEV

Re: Re: CFRI Mother's Day

Tea?

I hope I dont offend anyone here, but I am so glad

that this was written

about the CFF. I had such a hard time

fundraising for them this year,

especially after reading the amount that their CEO

makes per year, and

realized that he was making more than 10 times

what my husband makes, and we

are supporting a child with CF, is he? Anyway, I

have decided to help with

the fundraising somehow with CFRI, seems to be a

more people kinda agency,

the kind that parents and those with CF need to

know is out there. Just my 2

cents worth, take care.

, mommy of 4, 16, working and

paying for her own driving

school, (my license is being retired, anyone in

the Jersey area, this is your

fair warning), Caleb 7, my sega loving little

helper, 5, my little

mommy, and s best friend, always calls Emmy,

and , 22 months, who

loves his brothers and sisters, playing outside,

still thinks Barney is tops,

and has a beautiful smile and big blue eyes, and a

temper that is just as bad

as he is cute

[Non-text portions of this message have been

removed]

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this

list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

MEDICATIONS OR TREATMENTS.

--------------------------------------------------