Re: Arline / Vulvular vestibulitis??

[Guest guest]

Hi Arline.

Thanks for responding. I am doing as much research as I can

about VV. I have had awful luck with doctors or should I say in

finding a good one that is. I have alot of health issues.

(neuropathic dysmotility of the small bowel, stomach

issues,inflammed bladder/urethra, burning throat issues for the last

three years from possible neuralgia, Now VV,vulvodynia,) I swear the

list seems to go on and on.

As far as the metronidazole, well I stopped it. The nurse from

my urogyne's office called and told me to stop it. She said that I

need to clear the infection though. She wants me to try the

metrogel, I guess the vaginal form of the metroniodazole. I hope it

does not carry as many side affects as the oral one. I find it weird

that he would put me on the same class of drug though knowing I was

sensitive to the oral form which gave me this awful tongue burning.

Is the vaginal form less likely to have the same side affects? I am

sensitive to alot of meds(especially oral). I am still trying to

learn as much as I can about these diseases. My quality of life has

been just horrible due to all the pain issues I deal with daily. It

is worse because I am so sensitive to alot of meds and cant take

them. This makes it worse. And having a bad gut really makes it hard

to tolerate anything.

Anyhow, thank you for the info, I appreciate it. I am glad

to have become a part of this group. I hope you are doing well. Big

Hugs to you.

Jen

wrote:

>

> ,

>

> If you have Vulvar Vestibulitis I personally have

> never seen it cured with Metronidazole?? It likely

> would help the vaginosis (I wish they would tell one

> what that really is--like what kind of infection, etc.

> it is).

>

> The following article you will get from the URL

> indicates that the medicine affects the nervous

> system sometimes. I don't doubt that your symptoms are

> from the drug. It says that people with inflammatory

> bowel diseases and other perhaps undiagnosed diseases

> shouldn't take it. I think that people with

> Vestibulitis have an undiagnosed bowel disease.

> Obviously there is something wrong which you need to

> explore and that is what you are doing. You will get

> other ideas here, too.

>

> http://www.nlm.nih.gov/medlineplus/druginfo/uspdi/202365.html

>

> I just sent an email to somebody on this list who is

> writing an article about Vulvodynia (vulvar pain of

> any sort) about what I think Vestibulitis is and I

> will send that after this email.

>

> Arline

>

>

> --- " (sari) Tesinsky "

> wrote:

>

> > Hi Gals.

> > Can someone tell me what vulvular

> > vestibullitis is? I went

> > to my dermatologist yesterday and she had a group of

> > gyne experts

> > come in and see me. They said I had this and

> > prescribed

> > metronidazole for it and said I should feel better

> > in two weeks. I

> > also have vaginosis(have no clue how I got this as I

> > my hubby and I

> > have not even had sex in months because of all the

> > pain I have down

> > there due to all my problems) an infection in the

> > vagina that was

> > found by a swab test done by my urogynecologist.

> > This drug is also

> > suppose to treat this. Unfortunately, I am having

> > side affects with

> > this drug (a horrible burning sensation in my

> > tongue), it kept me up

> > all night. I only took one pill of the

> > metronidazole last evening

> > and I am still having the burning in my tongue. I

> > stopped the med

> > and called the dermatologist and her assistant

> > called and said this

> > was not a side affect of this med. I dont buy it

> > because I did not

> > have this senstaion before i took the med. She wants

> > me to continue

> > taking it. I decided to call my urogynecologist to

> > see if he can

> > switch this to maybe a topical cream that goes

> > inside to treat the

> > vaginosis. I also have bladder pain and urethral

> > pain as well. I was

> > told that the vaginosis may be attributing to the

> > urethral pain as

> > well. I also have IC (interstitual cystitis). The

> > only bad thing is

> > that the nurse from my urogynes office said that the

> > metronidazole

> > pill is better than a topical because it is more

> > systemic, but if I

> > cant take it, then I cant take it.

> > Anyhow, what else do you guys use to treat

> > the vulvular

> > vestibulitis?

> > Jen

> >

> >

>

>

>

>

>

>

>

_____________________________________________________________________

_______________

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[Guest guest]

Hi Jen,

Thanks for the email and I surely hope you find some

answers soon.

It is quite likely that the vaginal form doesn't

absorb into the rest of the body. (hopefully) Recently

I used some steroid nose spray that the doctor told me

only stayed in the nasal passages. That was a surprise

to me as I figure most things are absorbed into the

body but what do I know??? It gave me a headache??

I don't think you will find much about cures for

vestibulitis. You will get some ideas for treatments,

pain killers, maybe physical therapy which is really

foreign to me for this problem????? Opportunites for

surgery where they remove the nerve endings. (Don't do

it--not year anyway). They just don't know much about

the cause. I don't know if anybody is looking besides

us. Again, this is my impression.

What you tell me about your other problems--stomach,

bowel, bladder, neuropathy, sensitivity to meds, bad

gut, lots of health problems tells me you are a really

classic case of gluten sensitivity. Do you also have

anxiety and fatique??

Vestibulitis isn't a disease I am sure but it is a

symptom of some disease. Gluten Sensitivity is an

autoimmune disease that can be helped and controlled.

I believe that if you order online the gluten

sensitivity stool test at http://www.enterolab.com for

$99.00 plus postage you will find the basic cause of

most of your health problems. You will then be able to

deal with something specific instead of launching out

on this never ending doctor hopping, medication and

treatment mightmare. That is where you should start in

my opinion.

All that pain is not just from some vaginal problem

that you have I strongly suspect.

Hope this all helps you.

Arline

--- " (sari) Tesinsky "

wrote:

>

> Hi Arline.

> Thanks for responding. I am doing as much

> research as I can

> about VV. I have had awful luck with doctors or

> should I say in

> finding a good one that is. I have alot of health

> issues.

> (neuropathic dysmotility of the small bowel, stomach

>

> issues,inflammed bladder/urethra, burning throat

> issues for the last

> three years from possible neuralgia, Now

> VV,vulvodynia,) I swear the

> list seems to go on and on.

> As far as the metronidazole, well I stopped

> it. The nurse from

> my urogyne's office called and told me to stop it.

> She said that I

> need to clear the infection though. She wants me to

> try the

> metrogel, I guess the vaginal form of the

> metroniodazole. I hope it

> does not carry as many side affects as the oral one.

> I find it weird

> that he would put me on the same class of drug

> though knowing I was

> sensitive to the oral form which gave me this awful

> tongue burning.

> Is the vaginal form less likely to have the same

> side affects? I am

> sensitive to alot of meds(especially oral). I am

> still trying to

> learn as much as I can about these diseases. My

> quality of life has

> been just horrible due to all the pain issues I deal

> with daily. It

> is worse because I am so sensitive to alot of meds

> and cant take

> them. This makes it worse. And having a bad gut

> really makes it hard

> to tolerate anything.

> Anyhow, thank you for the info, I

> appreciate it. I am glad

> to have become a part of this group. I hope you are

> doing well. Big

> Hugs to you.

> Jen

>

________________________________________________________________________________\

____

Don't pick lemons.

See all the new 2007 cars at Yahoo! Autos.

http://autos.yahoo.com/new_cars.html

[Guest guest]

Hi Jen,

Thanks for the email and I surely hope you find some

answers soon.

It is quite likely that the vaginal form doesn't

absorb into the rest of the body. (hopefully) Recently

I used some steroid nose spray that the doctor told me

only stayed in the nasal passages. That was a surprise

to me as I figure most things are absorbed into the

body but what do I know??? It gave me a headache??

I don't think you will find much about cures for

vestibulitis. You will get some ideas for treatments,

pain killers, maybe physical therapy which is really

foreign to me for this problem????? Opportunites for

surgery where they remove the nerve endings. (Don't do

it--not year anyway). They just don't know much about

the cause. I don't know if anybody is looking besides

us. Again, this is my impression.

What you tell me about your other problems--stomach,

bowel, bladder, neuropathy, sensitivity to meds, bad

gut, lots of health problems tells me you are a really

classic case of gluten sensitivity. Do you also have

anxiety and fatique??

Vestibulitis isn't a disease I am sure but it is a

symptom of some disease. Gluten Sensitivity is an

autoimmune disease that can be helped and controlled.

I believe that if you order online the gluten

sensitivity stool test at http://www.enterolab.com for

$99.00 plus postage you will find the basic cause of

most of your health problems. You will then be able to

deal with something specific instead of launching out

on this never ending doctor hopping, medication and

treatment mightmare. That is where you should start in

my opinion.

All that pain is not just from some vaginal problem

that you have I strongly suspect.

Hope this all helps you.

Arline

--- " (sari) Tesinsky "

wrote:

>

> Hi Arline.

> Thanks for responding. I am doing as much

> research as I can

> about VV. I have had awful luck with doctors or

> should I say in

> finding a good one that is. I have alot of health

> issues.

> (neuropathic dysmotility of the small bowel, stomach

>

> issues,inflammed bladder/urethra, burning throat

> issues for the last

> three years from possible neuralgia, Now

> VV,vulvodynia,) I swear the

> list seems to go on and on.

> As far as the metronidazole, well I stopped

> it. The nurse from

> my urogyne's office called and told me to stop it.

> She said that I

> need to clear the infection though. She wants me to

> try the

> metrogel, I guess the vaginal form of the

> metroniodazole. I hope it

> does not carry as many side affects as the oral one.

> I find it weird

> that he would put me on the same class of drug

> though knowing I was

> sensitive to the oral form which gave me this awful

> tongue burning.

> Is the vaginal form less likely to have the same

> side affects? I am

> sensitive to alot of meds(especially oral). I am

> still trying to

> learn as much as I can about these diseases. My

> quality of life has

> been just horrible due to all the pain issues I deal

> with daily. It

> is worse because I am so sensitive to alot of meds

> and cant take

> them. This makes it worse. And having a bad gut

> really makes it hard

> to tolerate anything.

> Anyhow, thank you for the info, I

> appreciate it. I am glad

> to have become a part of this group. I hope you are

> doing well. Big

> Hugs to you.

> Jen

>

________________________________________________________________________________\

____

Don't pick lemons.

See all the new 2007 cars at Yahoo! Autos.

http://autos.yahoo.com/new_cars.html

[Guest guest]

Hi Jen,

Thanks for the email and I surely hope you find some

answers soon.

It is quite likely that the vaginal form doesn't

absorb into the rest of the body. (hopefully) Recently

I used some steroid nose spray that the doctor told me

only stayed in the nasal passages. That was a surprise

to me as I figure most things are absorbed into the

body but what do I know??? It gave me a headache??

I don't think you will find much about cures for

vestibulitis. You will get some ideas for treatments,

pain killers, maybe physical therapy which is really

foreign to me for this problem????? Opportunites for

surgery where they remove the nerve endings. (Don't do

it--not year anyway). They just don't know much about

the cause. I don't know if anybody is looking besides

us. Again, this is my impression.

What you tell me about your other problems--stomach,

bowel, bladder, neuropathy, sensitivity to meds, bad

gut, lots of health problems tells me you are a really

classic case of gluten sensitivity. Do you also have

anxiety and fatique??

Vestibulitis isn't a disease I am sure but it is a

symptom of some disease. Gluten Sensitivity is an

autoimmune disease that can be helped and controlled.

I believe that if you order online the gluten

sensitivity stool test at http://www.enterolab.com for

$99.00 plus postage you will find the basic cause of

most of your health problems. You will then be able to

deal with something specific instead of launching out

on this never ending doctor hopping, medication and

treatment mightmare. That is where you should start in

my opinion.

All that pain is not just from some vaginal problem

that you have I strongly suspect.

Hope this all helps you.

Arline

--- " (sari) Tesinsky "

wrote:

>

> Hi Arline.

> Thanks for responding. I am doing as much

> research as I can

> about VV. I have had awful luck with doctors or

> should I say in

> finding a good one that is. I have alot of health

> issues.

> (neuropathic dysmotility of the small bowel, stomach

>

> issues,inflammed bladder/urethra, burning throat

> issues for the last

> three years from possible neuralgia, Now

> VV,vulvodynia,) I swear the

> list seems to go on and on.

> As far as the metronidazole, well I stopped

> it. The nurse from

> my urogyne's office called and told me to stop it.

> She said that I

> need to clear the infection though. She wants me to

> try the

> metrogel, I guess the vaginal form of the

> metroniodazole. I hope it

> does not carry as many side affects as the oral one.

> I find it weird

> that he would put me on the same class of drug

> though knowing I was

> sensitive to the oral form which gave me this awful

> tongue burning.

> Is the vaginal form less likely to have the same

> side affects? I am

> sensitive to alot of meds(especially oral). I am

> still trying to

> learn as much as I can about these diseases. My

> quality of life has

> been just horrible due to all the pain issues I deal

> with daily. It

> is worse because I am so sensitive to alot of meds

> and cant take

> them. This makes it worse. And having a bad gut

> really makes it hard

> to tolerate anything.

> Anyhow, thank you for the info, I

> appreciate it. I am glad

> to have become a part of this group. I hope you are

> doing well. Big

> Hugs to you.

> Jen

>

________________________________________________________________________________\

____

Don't pick lemons.

See all the new 2007 cars at Yahoo! Autos.

http://autos.yahoo.com/new_cars.html

[Guest guest]

Hi Arline. Thanks again for replying. I do find it interesting about the gluten sensitivity. I did that gluten free diet a couple years back thinking that it may have been what was causing all my gut problems and throat burning, but my symptoms did not resolve. It is an idea though to look into to trying again. I also talked with my gastroenterologist about the possibility of celiacs disease, but his answer was that the biggest symptom of this would be diareaha, and this I never have. I am usually pretty normal, but tend to lean towards the constipated side if anything.i also had blood work done to check for this, and that was ok. So I just dont know. But like i said, I may look into it again, at least trying the diet. It cant hurt I guess. Just that it is VERY expensive to be on a gluten free diet as the food is soooo expensive. That is

terrible since I dont think people should have to pay more just because they are sick. I was also thinking that maybe all this vaginal pain and bladder/urethral pain could be because of the bacteria causing the bacterial vaginosis. This sucks because I cannot take the oral metrodinazole due to side affect.(severe burning tongue) Do you know of or have you heard of any natural remedies in treating bacterial vaginosis? I need to lick this, but dont see how I will since I cant take the one med that treats it, at least not orally.Also I have read that you have a greater risk of developing pelvic inflammatory disease. The doctor called in the metrogel(vaginal gel). I guess I will try it, but only a small bit at first just to see if I get any reactions from it. I also read that

clidamycin can help, but of course I am also allergic to clidamycin. I have read that these are the only two drugs that treat this. I cannot believe there are no other meds that treat this since it is so common. If you have any ideas please let me know. I would really appreciate it. As far as the VV, it is depressing that there are not many treatments available. I just am tired of being in all this pain from so many different things and yet have no answers really as to why or what is the cause. I did not think it was humanly possible to have so many things wrong at the same time. It is unbelieveable. Anyways, Thanks so much for all your insight on things. If you have any other ideas, please share with me. Big Hugs! Jen BABB wrote: Hi Jen,Thanks for the email and I surely hope you find someanswers soon.It is quite likely that the vaginal form doesn'tabsorb into the rest of the body. (hopefully) RecentlyI used some steroid nose spray that the doctor told meonly stayed in the nasal passages. That was a surpriseto me as I figure most things are absorbed into thebody but what do I know??? It gave me a headache??I don't think you will find much about cures forvestibulitis. You will get some ideas for treatments,pain killers, maybe physical therapy which is reallyforeign to me for this problem????? Opportunites forsurgery where they remove the nerve endings. (Don't doit--not year

anyway). They just don't know much aboutthe cause. I don't know if anybody is looking besidesus. Again, this is my impression.What you tell me about your other problems--stomach,bowel, bladder, neuropathy, sensitivity to meds, badgut, lots of health problems tells me you are a reallyclassic case of gluten sensitivity. Do you also haveanxiety and fatique??Vestibulitis isn't a disease I am sure but it is asymptom of some disease. Gluten Sensitivity is anautoimmune disease that can be helped and controlled.I believe that if you order online the glutensensitivity stool test at http://www.enterolab.com for$99.00 plus postage you will find the basic cause ofmost of your health problems. You will then be able todeal with something specific instead of launching outon this never ending doctor hopping, medication andtreatment mightmare. That is where you

should start inmy opinion.All that pain is not just from some vaginal problemthat you have I strongly suspect.Hope this all helps you.Arline--- " (sari) Tesinsky" <wakko711>wrote:> > Hi Arline.> Thanks for responding. I am doing as much> research as I can > about VV. I have had awful luck with doctors or> should I say in > finding a good one that is. I have alot of health> issues. > (neuropathic dysmotility of the small bowel, stomach> > issues,inflammed bladder/urethra, burning throat> issues for the last > three years from possible neuralgia, Now> VV,vulvodynia,) I swear the > list seems to go on and on. > As far as the metronidazole, well I stopped> it. The nurse from > my urogyne's office called and told me to stop

it.> She said that I > need to clear the infection though. She wants me to> try the > metrogel, I guess the vaginal form of the> metroniodazole. I hope it > does not carry as many side affects as the oral one.> I find it weird > that he would put me on the same class of drug> though knowing I was > sensitive to the oral form which gave me this awful> tongue burning. > Is the vaginal form less likely to have the same> side affects? I am > sensitive to alot of meds(especially oral). I am> still trying to > learn as much as I can about these diseases. My> quality of life has > been just horrible due to all the pain issues I deal> with daily. It > is worse because I am so sensitive to alot of meds> and cant take > them. This makes it worse. And having a bad gut> really makes it hard > to tolerate anything.

> Anyhow, thank you for the info, I> appreciate it. I am glad > to have become a part of this group. I hope you are> doing well. Big > Hugs to you.> Jen>__________________________________________________________Don't pick lemons.See all the new 2007 cars at Yahoo! Autos.http://autos.yahoo.com/new_cars.html

Everyone is raving about the all-new Yahoo! Mail beta.

[Guest guest]

Hi Arline. Thanks again for replying. I do find it interesting about the gluten sensitivity. I did that gluten free diet a couple years back thinking that it may have been what was causing all my gut problems and throat burning, but my symptoms did not resolve. It is an idea though to look into to trying again. I also talked with my gastroenterologist about the possibility of celiacs disease, but his answer was that the biggest symptom of this would be diareaha, and this I never have. I am usually pretty normal, but tend to lean towards the constipated side if anything.i also had blood work done to check for this, and that was ok. So I just dont know. But like i said, I may look into it again, at least trying the diet. It cant hurt I guess. Just that it is VERY expensive to be on a gluten free diet as the food is soooo expensive. That is

terrible since I dont think people should have to pay more just because they are sick. I was also thinking that maybe all this vaginal pain and bladder/urethral pain could be because of the bacteria causing the bacterial vaginosis. This sucks because I cannot take the oral metrodinazole due to side affect.(severe burning tongue) Do you know of or have you heard of any natural remedies in treating bacterial vaginosis? I need to lick this, but dont see how I will since I cant take the one med that treats it, at least not orally.Also I have read that you have a greater risk of developing pelvic inflammatory disease. The doctor called in the metrogel(vaginal gel). I guess I will try it, but only a small bit at first just to see if I get any reactions from it. I also read that

clidamycin can help, but of course I am also allergic to clidamycin. I have read that these are the only two drugs that treat this. I cannot believe there are no other meds that treat this since it is so common. If you have any ideas please let me know. I would really appreciate it. As far as the VV, it is depressing that there are not many treatments available. I just am tired of being in all this pain from so many different things and yet have no answers really as to why or what is the cause. I did not think it was humanly possible to have so many things wrong at the same time. It is unbelieveable. Anyways, Thanks so much for all your insight on things. If you have any other ideas, please share with me. Big Hugs! Jen BABB wrote: Hi Jen,Thanks for the email and I surely hope you find someanswers soon.It is quite likely that the vaginal form doesn'tabsorb into the rest of the body. (hopefully) RecentlyI used some steroid nose spray that the doctor told meonly stayed in the nasal passages. That was a surpriseto me as I figure most things are absorbed into thebody but what do I know??? It gave me a headache??I don't think you will find much about cures forvestibulitis. You will get some ideas for treatments,pain killers, maybe physical therapy which is reallyforeign to me for this problem????? Opportunites forsurgery where they remove the nerve endings. (Don't doit--not year

anyway). They just don't know much aboutthe cause. I don't know if anybody is looking besidesus. Again, this is my impression.What you tell me about your other problems--stomach,bowel, bladder, neuropathy, sensitivity to meds, badgut, lots of health problems tells me you are a reallyclassic case of gluten sensitivity. Do you also haveanxiety and fatique??Vestibulitis isn't a disease I am sure but it is asymptom of some disease. Gluten Sensitivity is anautoimmune disease that can be helped and controlled.I believe that if you order online the glutensensitivity stool test at http://www.enterolab.com for$99.00 plus postage you will find the basic cause ofmost of your health problems. You will then be able todeal with something specific instead of launching outon this never ending doctor hopping, medication andtreatment mightmare. That is where you

should start inmy opinion.All that pain is not just from some vaginal problemthat you have I strongly suspect.Hope this all helps you.Arline--- " (sari) Tesinsky" <wakko711>wrote:> > Hi Arline.> Thanks for responding. I am doing as much> research as I can > about VV. I have had awful luck with doctors or> should I say in > finding a good one that is. I have alot of health> issues. > (neuropathic dysmotility of the small bowel, stomach> > issues,inflammed bladder/urethra, burning throat> issues for the last > three years from possible neuralgia, Now> VV,vulvodynia,) I swear the > list seems to go on and on. > As far as the metronidazole, well I stopped> it. The nurse from > my urogyne's office called and told me to stop

it.> She said that I > need to clear the infection though. She wants me to> try the > metrogel, I guess the vaginal form of the> metroniodazole. I hope it > does not carry as many side affects as the oral one.> I find it weird > that he would put me on the same class of drug> though knowing I was > sensitive to the oral form which gave me this awful> tongue burning. > Is the vaginal form less likely to have the same> side affects? I am > sensitive to alot of meds(especially oral). I am> still trying to > learn as much as I can about these diseases. My> quality of life has > been just horrible due to all the pain issues I deal> with daily. It > is worse because I am so sensitive to alot of meds> and cant take > them. This makes it worse. And having a bad gut> really makes it hard > to tolerate anything.

> Anyhow, thank you for the info, I> appreciate it. I am glad > to have become a part of this group. I hope you are> doing well. Big > Hugs to you.> Jen>__________________________________________________________Don't pick lemons.See all the new 2007 cars at Yahoo! Autos.http://autos.yahoo.com/new_cars.html

Everyone is raving about the all-new Yahoo! Mail beta.

[Guest guest]

Hi Arline. Thanks again for replying. I do find it interesting about the gluten sensitivity. I did that gluten free diet a couple years back thinking that it may have been what was causing all my gut problems and throat burning, but my symptoms did not resolve. It is an idea though to look into to trying again. I also talked with my gastroenterologist about the possibility of celiacs disease, but his answer was that the biggest symptom of this would be diareaha, and this I never have. I am usually pretty normal, but tend to lean towards the constipated side if anything.i also had blood work done to check for this, and that was ok. So I just dont know. But like i said, I may look into it again, at least trying the diet. It cant hurt I guess. Just that it is VERY expensive to be on a gluten free diet as the food is soooo expensive. That is

terrible since I dont think people should have to pay more just because they are sick. I was also thinking that maybe all this vaginal pain and bladder/urethral pain could be because of the bacteria causing the bacterial vaginosis. This sucks because I cannot take the oral metrodinazole due to side affect.(severe burning tongue) Do you know of or have you heard of any natural remedies in treating bacterial vaginosis? I need to lick this, but dont see how I will since I cant take the one med that treats it, at least not orally.Also I have read that you have a greater risk of developing pelvic inflammatory disease. The doctor called in the metrogel(vaginal gel). I guess I will try it, but only a small bit at first just to see if I get any reactions from it. I also read that

clidamycin can help, but of course I am also allergic to clidamycin. I have read that these are the only two drugs that treat this. I cannot believe there are no other meds that treat this since it is so common. If you have any ideas please let me know. I would really appreciate it. As far as the VV, it is depressing that there are not many treatments available. I just am tired of being in all this pain from so many different things and yet have no answers really as to why or what is the cause. I did not think it was humanly possible to have so many things wrong at the same time. It is unbelieveable. Anyways, Thanks so much for all your insight on things. If you have any other ideas, please share with me. Big Hugs! Jen BABB wrote: Hi Jen,Thanks for the email and I surely hope you find someanswers soon.It is quite likely that the vaginal form doesn'tabsorb into the rest of the body. (hopefully) RecentlyI used some steroid nose spray that the doctor told meonly stayed in the nasal passages. That was a surpriseto me as I figure most things are absorbed into thebody but what do I know??? It gave me a headache??I don't think you will find much about cures forvestibulitis. You will get some ideas for treatments,pain killers, maybe physical therapy which is reallyforeign to me for this problem????? Opportunites forsurgery where they remove the nerve endings. (Don't doit--not year

anyway). They just don't know much aboutthe cause. I don't know if anybody is looking besidesus. Again, this is my impression.What you tell me about your other problems--stomach,bowel, bladder, neuropathy, sensitivity to meds, badgut, lots of health problems tells me you are a reallyclassic case of gluten sensitivity. Do you also haveanxiety and fatique??Vestibulitis isn't a disease I am sure but it is asymptom of some disease. Gluten Sensitivity is anautoimmune disease that can be helped and controlled.I believe that if you order online the glutensensitivity stool test at http://www.enterolab.com for$99.00 plus postage you will find the basic cause ofmost of your health problems. You will then be able todeal with something specific instead of launching outon this never ending doctor hopping, medication andtreatment mightmare. That is where you

should start inmy opinion.All that pain is not just from some vaginal problemthat you have I strongly suspect.Hope this all helps you.Arline--- " (sari) Tesinsky" <wakko711>wrote:> > Hi Arline.> Thanks for responding. I am doing as much> research as I can > about VV. I have had awful luck with doctors or> should I say in > finding a good one that is. I have alot of health> issues. > (neuropathic dysmotility of the small bowel, stomach> > issues,inflammed bladder/urethra, burning throat> issues for the last > three years from possible neuralgia, Now> VV,vulvodynia,) I swear the > list seems to go on and on. > As far as the metronidazole, well I stopped> it. The nurse from > my urogyne's office called and told me to stop

it.> She said that I > need to clear the infection though. She wants me to> try the > metrogel, I guess the vaginal form of the> metroniodazole. I hope it > does not carry as many side affects as the oral one.> I find it weird > that he would put me on the same class of drug> though knowing I was > sensitive to the oral form which gave me this awful> tongue burning. > Is the vaginal form less likely to have the same> side affects? I am > sensitive to alot of meds(especially oral). I am> still trying to > learn as much as I can about these diseases. My> quality of life has > been just horrible due to all the pain issues I deal> with daily. It > is worse because I am so sensitive to alot of meds> and cant take > them. This makes it worse. And having a bad gut> really makes it hard > to tolerate anything.

> Anyhow, thank you for the info, I> appreciate it. I am glad > to have become a part of this group. I hope you are> doing well. Big > Hugs to you.> Jen>__________________________________________________________Don't pick lemons.See all the new 2007 cars at Yahoo! Autos.http://autos.yahoo.com/new_cars.html

Everyone is raving about the all-new Yahoo! Mail beta.

[Guest guest]

I think that you can use Boric Acid Suppositories for BV. They also work for

yeast (which you might get while treating the BV with antibiotics) and Strep B.

Sherri

-------------- Original message ----------------------

> Hi Arline.

> Thanks again for replying. I do find it interesting about the gluten

> sensitivity. I did that gluten free diet a couple years back thinking that it

> may have been what was causing all my gut problems and throat burning, but my

> symptoms did not resolve. It is an idea though to look into to trying again.

> I also talked with my gastroenterologist about the possibility of

> celiacs disease, but his answer was that the biggest symptom of this would be

> diareaha, and this I never have. I am usually pretty normal, but tend to lean

> towards the constipated side if anything.i also had blood work done to check

for

> this, and that was ok. So I just dont know. But like i said, I may look into

it

> again, at least trying the diet. It cant hurt I guess. Just that it is VERY

> expensive to be on a gluten free diet as the food is soooo expensive. That is

> terrible since I dont think people should have to pay more just because they

are

> sick.

> I was also thinking that maybe all this vaginal pain and

> bladder/urethral pain could be because of the bacteria causing the bacterial

> vaginosis. This sucks because I cannot take the oral metrodinazole due to side

> affect.(severe burning tongue)

> Do you know of or have you heard of any natural remedies in

treating

> bacterial vaginosis? I need to lick this, but dont see how I will since I cant

> take the one med that treats it, at least not orally.Also I have read that you

> have a greater risk of developing pelvic inflammatory disease. The doctor

called

> in the metrogel(vaginal gel). I guess I will try it, but only a small bit at

> first just to see if I get any reactions from it. I also read that clidamycin

> can help, but of course I am also allergic to clidamycin. I have read that

these

> are the only two drugs that treat this. I cannot believe there are no other

meds

> that treat this since it is so common. If you have any ideas please let me

know.

> I would really appreciate it.

> As far as the VV, it is depressing that there are not many

> treatments available.

> I just am tired of being in all this pain from so many different things and

> yet have no answers really as to why or what is the cause. I did not think it

> was humanly possible to have so many things wrong at the same time. It is

> unbelieveable.

> Anyways, Thanks so much for all your insight on things.

If

> you have any other ideas, please share with me. Big Hugs!

> Jen

>

>

>

>

>

>

>

>

>

>

>

> BABB wrote:

> Hi Jen,

>

> Thanks for the email and I surely hope you find some

> answers soon.

>

> It is quite likely that the vaginal form doesn't

> absorb into the rest of the body. (hopefully) Recently

> I used some steroid nose spray that the doctor told me

> only stayed in the nasal passages. That was a surprise

> to me as I figure most things are absorbed into the

> body but what do I know??? It gave me a headache??

>

> I don't think you will find much about cures for

> vestibulitis. You will get some ideas for treatments,

> pain killers, maybe physical therapy which is really

> foreign to me for this problem????? Opportunites for

> surgery where they remove the nerve endings. (Don't do

> it--not year anyway). They just don't know much about

> the cause. I don't know if anybody is looking besides

> us. Again, this is my impression.

>

> What you tell me about your other problems--stomach,

> bowel, bladder, neuropathy, sensitivity to meds, bad

> gut, lots of health problems tells me you are a really

> classic case of gluten sensitivity. Do you also have

> anxiety and fatique??

>

> Vestibulitis isn't a disease I am sure but it is a

> symptom of some disease. Gluten Sensitivity is an

> autoimmune disease that can be helped and controlled.

>

> I believe that if you order online the gluten

> sensitivity stool test at http://www.enterolab.com for

> $99.00 plus postage you will find the basic cause of

> most of your health problems. You will then be able to

> deal with something specific instead of launching out

> on this never ending doctor hopping, medication and

> treatment mightmare. That is where you should start in

> my opinion.

>

> All that pain is not just from some vaginal problem

> that you have I strongly suspect.

>

> Hope this all helps you.

>

> Arline

>

> --- " (sari) Tesinsky "

> wrote:

>

> >

> > Hi Arline.

> > Thanks for responding. I am doing as much

> > research as I can

> > about VV. I have had awful luck with doctors or

> > should I say in

> > finding a good one that is. I have alot of health

> > issues.

> > (neuropathic dysmotility of the small bowel, stomach

> >

> > issues,inflammed bladder/urethra, burning throat

> > issues for the last

> > three years from possible neuralgia, Now

> > VV,vulvodynia,) I swear the

> > list seems to go on and on.

> > As far as the metronidazole, well I stopped

> > it. The nurse from

> > my urogyne's office called and told me to stop it.

> > She said that I

> > need to clear the infection though. She wants me to

> > try the

> > metrogel, I guess the vaginal form of the

> > metroniodazole. I hope it

> > does not carry as many side affects as the oral one.

> > I find it weird

> > that he would put me on the same class of drug

> > though knowing I was

> > sensitive to the oral form which gave me this awful

> > tongue burning.

> > Is the vaginal form less likely to have the same

> > side affects? I am

> > sensitive to alot of meds(especially oral). I am

> > still trying to

> > learn as much as I can about these diseases. My

> > quality of life has

> > been just horrible due to all the pain issues I deal

> > with daily. It

> > is worse because I am so sensitive to alot of meds

> > and cant take

> > them. This makes it worse. And having a bad gut

> > really makes it hard

> > to tolerate anything.

> > Anyhow, thank you for the info, I

> > appreciate it. I am glad

> > to have become a part of this group. I hope you are

> > doing well. Big

> > Hugs to you.

> > Jen

> >

>

> __________________________________________________________

> Don't pick lemons.

> See all the new 2007 cars at Yahoo! Autos.

> http://autos.yahoo.com/new_cars.html

>

>

>

>

>

> ---------------------------------

Everyone is raving about the all-new Yahoo! Mail beta.

Hi Arline. Thanks again for replying. I do find it interesting about the gluten sensitivity. I did that gluten free diet a couple years back thinking that it may have been what was causing all my gut problems and throat burning, but my symptoms did not resolve. It is an idea though to look into to trying again. I also talked with my gastroenterologist about the possibility of celiacs disease, but his answer was that the biggest symptom of this would be diareaha, and this I never have. I am usually pretty normal, but tend to lean towards the constipated side if anything.i also had blood work done to check for this, and that was ok. So I just dont know. But like i said, I may look into it again, at least trying the diet. It cant hurt I guess. Just that it is VERY expensive to be on a gluten free diet as the food is soooo expensive. That is

terrible since I dont think people should have to pay more just because they are sick. I was also thinking that maybe all this vaginal pain and bladder/urethral pain could be because of the bacteria causing the bacterial vaginosis. This sucks because I cannot take the oral metrodinazole due to side affect.(severe burning tongue) Do you know of or have you heard of any natural remedies in treating bacterial vaginosis? I need to lick this, but dont see how I will since I cant take the one med that treats it, at least not orally.Also I have read that you have a greater risk of developing pelvic inflammatory disease. The doctor called in the metrogel(vaginal gel). I guess I will try it, but only a small bit at first just to see if I get any reactions from it. I also read that

clidamycin can help, but of course I am also allergic to clidamycin. I have read that these are the only two drugs that treat this. I cannot believe there are no other meds that treat this since it is so common. If you have any ideas please let me know. I would really appreciate it. As far as the VV, it is depressing that there are not many treatments available. I just am tired of being in all this pain from so many different things and yet have no answers really as to why or what is the cause. I did not think it was humanly possible to have so many things wrong at the same time. It is unbelieveable. Anyways, Thanks so much for all your insight on things. If you have any other ideas, please share with me. Big Hugs! Jen BABB wrote: Hi Jen,Thanks for the email and I surely hope you find someanswers soon.It is quite likely that the vaginal form doesn'tabsorb into the rest of the body. (hopefully) RecentlyI used some steroid nose spray that the doctor told meonly stayed in the nasal passages. That was a surpriseto me as I figure most things are absorbed into thebody but what do I know??? It gave me a headache??I don't think you will find much about cures forvestibulitis. You will get some ideas for treatments,pain killers, maybe physical therapy which is reallyforeign to me for this problem????? Opportunites forsurgery where they remove the nerve endings. (Don't doit--not year

anyway). They just don't know much aboutthe cause. I don't know if anybody is looking besidesus. Again, this is my impression.What you tell me about your other problems--stomach,bowel, bladder, neuropathy, sensitivity to meds, badgut, lots of health problems tells me you are a reallyclassic case of gluten sensitivity. Do you also haveanxiety and fatique??Vestibulitis isn't a disease I am sure but it is asymptom of some disease. Gluten Sensitivity is anautoimmune disease that can be helped and controlled.I believe that if you order online the glutensensitivity stool test at http://www.enterolab.com for$99.00 plus postage you will find the basic cause ofmost of your health problems. You will then be able todeal with something specific instead of launching outon this never ending doctor hopping, medication andtreatment mightmare. That is where you

should start inmy opinion.All that pain is not just from some vaginal problemthat you have I strongly suspect.Hope this all helps you.Arline--- " (sari) Tesinsky" <wakko711>wrote:> > Hi Arline.> Thanks for responding. I am doing as much> research as I can > about VV. I have had awful luck with doctors or> should I say in > finding a good one that is. I have alot of health> issues. > (neuropathic dysmotility of the small bowel, stomach> > issues,inflammed bladder/urethra, burning throat> issues for the last > three years from possible neuralgia, Now> VV,vulvodynia,) I swear the > list seems to go on and on. > As far as the metronidazole, well I stopped> it. The nurse from > my urogyne's office called and told me to stop

it.> She said that I > need to clear the infection though. She wants me to> try the > metrogel, I guess the vaginal form of the> metroniodazole. I hope it > does not carry as many side affects as the oral one.> I find it weird > that he would put me on the same class of drug> though knowing I was > sensitive to the oral form which gave me this awful> tongue burning. > Is the vaginal form less likely to have the same> side affects? I am > sensitive to alot of meds(especially oral). I am> still trying to > learn as much as I can about these diseases. My> quality of life has > been just horrible due to all the pain issues I deal> with daily. It > is worse because I am so sensitive to alot of meds> and cant take > them. This makes it worse. And having a bad gut> really makes it hard > to tolerate anything.

> Anyhow, thank you for the info, I> appreciate it. I am glad > to have become a part of this group. I hope you are> doing well. Big > Hugs to you.> Jen>__________________________________________________________Don't pick lemons.See all the new 2007 cars at Yahoo! Autos.http://autos.yahoo.com/new_cars.html

Everyone is raving about the all-new Yahoo! Mail beta.

[Guest guest]

I also talked with my gastroenterologist about the

possibility of celiacs disease, but his answer was

that the biggest symptom of this would be diareaha,

and this I never have.

He is wrong. It depends where the body is attacked. If

it attacks the nerves you would have constipation. If

it attacks the small intestine you would likely have

diarrhea. The truth is you don't have to have either

symptom. You can have this thing all your life with

little or no symptoms and then your pancreas might

hemmorhage, thyroid die, destruction of some part of

your intestines, terrible nerve pain, osteoporosis,

etc. The doc is wrong. Very wrong. As I said, most of

them haven't a clue about this either.

You can't just " do a gluten free diet " . It is

complicated and requires a lot of study to know what

you are doing.

One must remember that Celiac and Gluten Sensitivity

are different. The docs don't know much about either.

As I said the blood work isn't accurate and doesn't

test for gluten sensitivity at all.

Unless you are tested, you won't have the motivation

to do the very complex diet.

Gluten Sensitivity messes up the intestines and causes

an imbalance in the bacteria which then migrates to

the vagina.

I am afraid the testing is my best shot. Otherwise you

will go from treatment to treatment and doctor to

doctor with this business. I hope I am wrong and you

quickly find a way to clear up this bacterial

infection and live happily and healthily forever after

by taking all the pills and treatments. There is much

more wrong with you than a bacterial infection. I

don't believe you have so many different things wrong

with you but probably one thing that causes it all.

People go for years with reoccurring vaginal bacterial

infections sometimes. I think you have to heal the gut

before they really go away permanently.

Hopefully you will have success..

Arline

--- Tesinsky wrote:

> Hi Arline.

> Thanks again for replying. I do find it

> interesting about the gluten sensitivity. I did that

> gluten free diet a couple years back thinking that

> it may have been what was causing all my gut

> problems and throat burning, but my symptoms did not

> resolve. It is an idea though to look into to trying

> again.

> I also talked with my gastroenterologist

> about the possibility of celiacs disease, but his

> answer was that the biggest symptom of this would be

> diareaha, and this I never have. I am usually pretty

> normal, but tend to lean towards the constipated

> side if anything.i also had blood work done to check

> for this, and that was ok. So I just dont know. But

> like i said, I may look into it again, at least

> trying the diet. It cant hurt I guess. Just that it

> is VERY expensive to be on a gluten free diet as the

> food is soooo expensive. That is terrible since I

> dont think people should have to pay more just

> because they are sick.

> I was also thinking that maybe all

> this vaginal pain and bladder/urethral pain could be

> because of the bacteria causing the bacterial

> vaginosis. This sucks because I cannot take the oral

> metrodinazole due to side affect.(severe burning

> tongue)

> Do you know of or have you heard of any

> natural remedies in treating bacterial vaginosis? I

> need to lick this, but dont see how I will since I

> cant take the one med that treats it, at least not

> orally.Also I have read that you have a greater risk

> of developing pelvic inflammatory disease. The

> doctor called in the metrogel(vaginal gel). I guess

> I will try it, but only a small bit at first just to

> see if I get any reactions from it. I also read that

> clidamycin can help, but of course I am also

> allergic to clidamycin. I have read that these are

> the only two drugs that treat this. I cannot believe

> there are no other meds that treat this since it is

> so common. If you have any ideas please let me know.

> I would really appreciate it.

> As far as the VV, it is depressing that

> there are not many treatments available.

> I just am tired of being in all this pain from so

> many different things and yet have no answers really

> as to why or what is the cause. I did not think it

> was humanly possible to have so many things wrong at

> the same time. It is unbelieveable.

> Anyways, Thanks so much for

> all your insight on things. If you have any other

> ideas, please share with me. Big Hugs!

>

> Jen

>

>

>

>

>

>

>

>

>

>

________________________________________________________________________________\

____

TV dinner still cooling?

Check out " Tonight's Picks " on Yahoo! TV.

http://tv.yahoo.com/

[Guest guest]

I also talked with my gastroenterologist about the

possibility of celiacs disease, but his answer was

that the biggest symptom of this would be diareaha,

and this I never have.

He is wrong. It depends where the body is attacked. If

it attacks the nerves you would have constipation. If

it attacks the small intestine you would likely have

diarrhea. The truth is you don't have to have either

symptom. You can have this thing all your life with

little or no symptoms and then your pancreas might

hemmorhage, thyroid die, destruction of some part of

your intestines, terrible nerve pain, osteoporosis,

etc. The doc is wrong. Very wrong. As I said, most of

them haven't a clue about this either.

You can't just " do a gluten free diet " . It is

complicated and requires a lot of study to know what

you are doing.

One must remember that Celiac and Gluten Sensitivity

are different. The docs don't know much about either.

As I said the blood work isn't accurate and doesn't

test for gluten sensitivity at all.

Unless you are tested, you won't have the motivation

to do the very complex diet.

Gluten Sensitivity messes up the intestines and causes

an imbalance in the bacteria which then migrates to

the vagina.

I am afraid the testing is my best shot. Otherwise you

will go from treatment to treatment and doctor to

doctor with this business. I hope I am wrong and you

quickly find a way to clear up this bacterial

infection and live happily and healthily forever after

by taking all the pills and treatments. There is much

more wrong with you than a bacterial infection. I

don't believe you have so many different things wrong

with you but probably one thing that causes it all.

People go for years with reoccurring vaginal bacterial

infections sometimes. I think you have to heal the gut

before they really go away permanently.

Hopefully you will have success..

Arline

--- Tesinsky wrote:

> Hi Arline.

> Thanks again for replying. I do find it

> interesting about the gluten sensitivity. I did that

> gluten free diet a couple years back thinking that

> it may have been what was causing all my gut

> problems and throat burning, but my symptoms did not

> resolve. It is an idea though to look into to trying

> again.

> I also talked with my gastroenterologist

> about the possibility of celiacs disease, but his

> answer was that the biggest symptom of this would be

> diareaha, and this I never have. I am usually pretty

> normal, but tend to lean towards the constipated

> side if anything.i also had blood work done to check

> for this, and that was ok. So I just dont know. But

> like i said, I may look into it again, at least

> trying the diet. It cant hurt I guess. Just that it

> is VERY expensive to be on a gluten free diet as the

> food is soooo expensive. That is terrible since I

> dont think people should have to pay more just

> because they are sick.

> I was also thinking that maybe all

> this vaginal pain and bladder/urethral pain could be

> because of the bacteria causing the bacterial

> vaginosis. This sucks because I cannot take the oral

> metrodinazole due to side affect.(severe burning

> tongue)

> Do you know of or have you heard of any

> natural remedies in treating bacterial vaginosis? I

> need to lick this, but dont see how I will since I

> cant take the one med that treats it, at least not

> orally.Also I have read that you have a greater risk

> of developing pelvic inflammatory disease. The

> doctor called in the metrogel(vaginal gel). I guess

> I will try it, but only a small bit at first just to

> see if I get any reactions from it. I also read that

> clidamycin can help, but of course I am also

> allergic to clidamycin. I have read that these are

> the only two drugs that treat this. I cannot believe

> there are no other meds that treat this since it is

> so common. If you have any ideas please let me know.

> I would really appreciate it.

> As far as the VV, it is depressing that

> there are not many treatments available.

> I just am tired of being in all this pain from so

> many different things and yet have no answers really

> as to why or what is the cause. I did not think it

> was humanly possible to have so many things wrong at

> the same time. It is unbelieveable.

> Anyways, Thanks so much for

> all your insight on things. If you have any other

> ideas, please share with me. Big Hugs!

>

> Jen

>

>

>

>

>

>

>

>

>

>

________________________________________________________________________________\

____

TV dinner still cooling?

Check out " Tonight's Picks " on Yahoo! TV.

http://tv.yahoo.com/

[Guest guest]

I also talked with my gastroenterologist about the

possibility of celiacs disease, but his answer was

that the biggest symptom of this would be diareaha,

and this I never have.

He is wrong. It depends where the body is attacked. If

it attacks the nerves you would have constipation. If

it attacks the small intestine you would likely have

diarrhea. The truth is you don't have to have either

symptom. You can have this thing all your life with

little or no symptoms and then your pancreas might

hemmorhage, thyroid die, destruction of some part of

your intestines, terrible nerve pain, osteoporosis,

etc. The doc is wrong. Very wrong. As I said, most of

them haven't a clue about this either.

You can't just " do a gluten free diet " . It is

complicated and requires a lot of study to know what

you are doing.

One must remember that Celiac and Gluten Sensitivity

are different. The docs don't know much about either.

As I said the blood work isn't accurate and doesn't

test for gluten sensitivity at all.

Unless you are tested, you won't have the motivation

to do the very complex diet.

Gluten Sensitivity messes up the intestines and causes

an imbalance in the bacteria which then migrates to

the vagina.

I am afraid the testing is my best shot. Otherwise you

will go from treatment to treatment and doctor to

doctor with this business. I hope I am wrong and you

quickly find a way to clear up this bacterial

infection and live happily and healthily forever after

by taking all the pills and treatments. There is much

more wrong with you than a bacterial infection. I

don't believe you have so many different things wrong

with you but probably one thing that causes it all.

People go for years with reoccurring vaginal bacterial

infections sometimes. I think you have to heal the gut

before they really go away permanently.

Hopefully you will have success..

Arline

--- Tesinsky wrote:

> Hi Arline.

> Thanks again for replying. I do find it

> interesting about the gluten sensitivity. I did that

> gluten free diet a couple years back thinking that

> it may have been what was causing all my gut

> problems and throat burning, but my symptoms did not

> resolve. It is an idea though to look into to trying

> again.

> I also talked with my gastroenterologist

> about the possibility of celiacs disease, but his

> answer was that the biggest symptom of this would be

> diareaha, and this I never have. I am usually pretty

> normal, but tend to lean towards the constipated

> side if anything.i also had blood work done to check

> for this, and that was ok. So I just dont know. But

> like i said, I may look into it again, at least

> trying the diet. It cant hurt I guess. Just that it

> is VERY expensive to be on a gluten free diet as the

> food is soooo expensive. That is terrible since I

> dont think people should have to pay more just

> because they are sick.

> I was also thinking that maybe all

> this vaginal pain and bladder/urethral pain could be

> because of the bacteria causing the bacterial

> vaginosis. This sucks because I cannot take the oral

> metrodinazole due to side affect.(severe burning

> tongue)

> Do you know of or have you heard of any

> natural remedies in treating bacterial vaginosis? I

> need to lick this, but dont see how I will since I

> cant take the one med that treats it, at least not

> orally.Also I have read that you have a greater risk

> of developing pelvic inflammatory disease. The

> doctor called in the metrogel(vaginal gel). I guess

> I will try it, but only a small bit at first just to

> see if I get any reactions from it. I also read that

> clidamycin can help, but of course I am also

> allergic to clidamycin. I have read that these are

> the only two drugs that treat this. I cannot believe

> there are no other meds that treat this since it is

> so common. If you have any ideas please let me know.

> I would really appreciate it.

> As far as the VV, it is depressing that

> there are not many treatments available.

> I just am tired of being in all this pain from so

> many different things and yet have no answers really

> as to why or what is the cause. I did not think it

> was humanly possible to have so many things wrong at

> the same time. It is unbelieveable.

> Anyways, Thanks so much for

> all your insight on things. If you have any other

> ideas, please share with me. Big Hugs!

>

> Jen

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[Guest guest]

Jen, Your story sounds so much like mine. They kept telling me I had bv. When I finally got a decent doc it wasn't bv, it was an overgrowth of good bacteria, which is very different. They diagnosed me with bv based on "clue cells" which look like an overgrowth of lactobacillus under the microscope. I feel that repeated metro gel made me worse. Boric acid supposotories will help with the bv, and in fact, I had a half-decent gyno that suggested them. I really recommend www.taoofherbs.com and their yeast arrest boric acid suppositories, because they come with directions on how to use them long-term. If you do indeed have repeated bv infections, my doc said they would be used daily for 14 days, then 1x per week for six months, then 2x per month for a while after that. Talk to a doc and see. Lindsey

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