Re: Just popping in to try to help a bit!

[Guest guest]

Hi, You mentioned some doctors in the Worcester area...could you post their contact info? I am currently seeing a doctor in New Britain (CT) for clitoral pain, but would like a few other names of knowledgeable vulvodynia doctors incase he can't help me. Also, how difficult was if for you to get in with Dr. ? Thank you!xitalaux84 wrote: Hi everyone, I haven't actually logged in for quite some time because my internet has been

down-and it looks like there's a lot of new memebers. I noticed a bunch of posts back that someone had asked about doctors in the western MA area. I am from around worcester county which is round-about central MA but I've travelled all over to find help with Vulvodynia and Vulvar Vestibulitis. I did actually see Dr. and she is currently treating me at the moment with Diflucan and Lidocaine to manage symptoms. I have tried my best to stay as far away from antidepressants and the like. I have been suffering for two years now and thing at the moment are "OK". Someone had mentioned that they thought she was a bit cold. I was actually very disappointed after seeing her. I had seen many many doctors before her and although she is most likely the most knowledgable about it all, I felt she didnt ask me enough questions. Mostly I felt she could have been warmer. BUT, as of today I am better than in the past

so I would recommend seeing her. She is renowed in the area and in Boston as well as the country on the subject of vulvar health. There are also a couple doctors in the Worc County also if anyone needs those name later:)Lately I have been neglecting my diet, but I find eating things as close to nature/organic blah blah blah and drinking lots of water, while obviously being VERY gentle to the vulvar area works well for me. Knock on wood that I continue to feel better because I'm going on vacation next week to mexico! Hopefully the heat and moisture wont kill me!!! __________________________________________________

[Guest guest]

Hi, You mentioned some doctors in the Worcester area...could you post their contact info? I am currently seeing a doctor in New Britain (CT) for clitoral pain, but would like a few other names of knowledgeable vulvodynia doctors incase he can't help me. Also, how difficult was if for you to get in with Dr. ? Thank you!xitalaux84 wrote: Hi everyone, I haven't actually logged in for quite some time because my internet has been

down-and it looks like there's a lot of new memebers. I noticed a bunch of posts back that someone had asked about doctors in the western MA area. I am from around worcester county which is round-about central MA but I've travelled all over to find help with Vulvodynia and Vulvar Vestibulitis. I did actually see Dr. and she is currently treating me at the moment with Diflucan and Lidocaine to manage symptoms. I have tried my best to stay as far away from antidepressants and the like. I have been suffering for two years now and thing at the moment are "OK". Someone had mentioned that they thought she was a bit cold. I was actually very disappointed after seeing her. I had seen many many doctors before her and although she is most likely the most knowledgable about it all, I felt she didnt ask me enough questions. Mostly I felt she could have been warmer. BUT, as of today I am better than in the past

so I would recommend seeing her. She is renowed in the area and in Boston as well as the country on the subject of vulvar health. There are also a couple doctors in the Worc County also if anyone needs those name later:)Lately I have been neglecting my diet, but I find eating things as close to nature/organic blah blah blah and drinking lots of water, while obviously being VERY gentle to the vulvar area works well for me. Knock on wood that I continue to feel better because I'm going on vacation next week to mexico! Hopefully the heat and moisture wont kill me!!! __________________________________________________

[Guest guest]

To get into see Dr. , you have to call them and be pre-

registered. With me, they even checked my insurance while I waited

on the phone. After you are preregistered, your doctor has to fax

them a letter with your vulvadynia diagnosis and an explanation on

why you should be seen by Dr. . Also the doctor has to fax

them your medical files. After this, you wait until they call you to

set up an appointment. This was my experience only. I had to wait to

get in for six weeks and they told me I was an emergency case, and

would be put on the cancellation list (which didn't happen). Also, I

am seeing her associate, as Dr. is travelling for awhile. I

hear Dr 's associate is very nice, so I am anxious to see

her. Dr. is not known for her bed-side manner, and I don't

need that right now. I am going tomorrow for my first appointment.

nne

>

> Hi,

>

> You mentioned some doctors in the Worcester area...could you

post their contact info? I am currently seeing a doctor in New

Britain (CT) for clitoral pain, but would like a few other names of

knowledgeable vulvodynia doctors incase he can't help me. Also, how

difficult was if for you to get in with Dr. ? Thank you!

>

> xitalaux84 wrote:

> Hi everyone, I haven't actually logged in for quite some

time

> because my internet has been down-and it looks like there's a lot

of

> new memebers. I noticed a bunch of posts back that someone had

asked

> about doctors in the western MA area. I am from around worcester

> county which is round-about central MA but I've travelled all over

to

> find help with Vulvodynia and Vulvar Vestibulitis.

> I did actually see Dr. and she is currently

> treating me at the moment with Diflucan and Lidocaine to manage

> symptoms. I have tried my best to stay as far away from

> antidepressants and the like. I have been suffering for two years

now

> and thing at the moment are " OK " . Someone had mentioned that they

> thought she was a bit cold. I was actually very disappointed after

> seeing her. I had seen many many doctors before her and although

she

> is most likely the most knowledgable about it all, I felt she

didnt

> ask me enough questions. Mostly I felt she could have been warmer.

> BUT, as of today I am better than in the past so I would recommend

> seeing her. She is renowed in the area and in Boston as well as

the

> country on the subject of vulvar health. There are also a couple

> doctors in the Worc County also if anyone needs those name later:)

> Lately I have been neglecting my diet, but I find eating things as

> close to nature/organic blah blah blah and drinking lots of water,

> while obviously being VERY gentle to the vulvar area works well

for

> me. Knock on wood that I continue to feel better because I'm going

on

> vacation next week to mexico! Hopefully the heat and moisture wont

> kill me!!!

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

To get into see Dr. , you have to call them and be pre-

registered. With me, they even checked my insurance while I waited

on the phone. After you are preregistered, your doctor has to fax

them a letter with your vulvadynia diagnosis and an explanation on

why you should be seen by Dr. . Also the doctor has to fax

them your medical files. After this, you wait until they call you to

set up an appointment. This was my experience only. I had to wait to

get in for six weeks and they told me I was an emergency case, and

would be put on the cancellation list (which didn't happen). Also, I

am seeing her associate, as Dr. is travelling for awhile. I

hear Dr 's associate is very nice, so I am anxious to see

her. Dr. is not known for her bed-side manner, and I don't

need that right now. I am going tomorrow for my first appointment.

nne

>

> Hi,

>

> You mentioned some doctors in the Worcester area...could you

post their contact info? I am currently seeing a doctor in New

Britain (CT) for clitoral pain, but would like a few other names of

knowledgeable vulvodynia doctors incase he can't help me. Also, how

difficult was if for you to get in with Dr. ? Thank you!

>

> xitalaux84 wrote:

> Hi everyone, I haven't actually logged in for quite some

time

> because my internet has been down-and it looks like there's a lot

of

> new memebers. I noticed a bunch of posts back that someone had

asked

> about doctors in the western MA area. I am from around worcester

> county which is round-about central MA but I've travelled all over

to

> find help with Vulvodynia and Vulvar Vestibulitis.

> I did actually see Dr. and she is currently

> treating me at the moment with Diflucan and Lidocaine to manage

> symptoms. I have tried my best to stay as far away from

> antidepressants and the like. I have been suffering for two years

now

> and thing at the moment are " OK " . Someone had mentioned that they

> thought she was a bit cold. I was actually very disappointed after

> seeing her. I had seen many many doctors before her and although

she

> is most likely the most knowledgable about it all, I felt she

didnt

> ask me enough questions. Mostly I felt she could have been warmer.

> BUT, as of today I am better than in the past so I would recommend

> seeing her. She is renowed in the area and in Boston as well as

the

> country on the subject of vulvar health. There are also a couple

> doctors in the Worc County also if anyone needs those name later:)

> Lately I have been neglecting my diet, but I find eating things as

> close to nature/organic blah blah blah and drinking lots of water,

> while obviously being VERY gentle to the vulvar area works well

for

> me. Knock on wood that I continue to feel better because I'm going

on

> vacation next week to mexico! Hopefully the heat and moisture wont

> kill me!!!

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

To get into see Dr. , you have to call them and be pre-

registered. With me, they even checked my insurance while I waited

on the phone. After you are preregistered, your doctor has to fax

them a letter with your vulvadynia diagnosis and an explanation on

why you should be seen by Dr. . Also the doctor has to fax

them your medical files. After this, you wait until they call you to

set up an appointment. This was my experience only. I had to wait to

get in for six weeks and they told me I was an emergency case, and

would be put on the cancellation list (which didn't happen). Also, I

am seeing her associate, as Dr. is travelling for awhile. I

hear Dr 's associate is very nice, so I am anxious to see

her. Dr. is not known for her bed-side manner, and I don't

need that right now. I am going tomorrow for my first appointment.

nne

>

> Hi,

>

> You mentioned some doctors in the Worcester area...could you

post their contact info? I am currently seeing a doctor in New

Britain (CT) for clitoral pain, but would like a few other names of

knowledgeable vulvodynia doctors incase he can't help me. Also, how

difficult was if for you to get in with Dr. ? Thank you!

>

> xitalaux84 wrote:

> Hi everyone, I haven't actually logged in for quite some

time

> because my internet has been down-and it looks like there's a lot

of

> new memebers. I noticed a bunch of posts back that someone had

asked

> about doctors in the western MA area. I am from around worcester

> county which is round-about central MA but I've travelled all over

to

> find help with Vulvodynia and Vulvar Vestibulitis.

> I did actually see Dr. and she is currently

> treating me at the moment with Diflucan and Lidocaine to manage

> symptoms. I have tried my best to stay as far away from

> antidepressants and the like. I have been suffering for two years

now

> and thing at the moment are " OK " . Someone had mentioned that they

> thought she was a bit cold. I was actually very disappointed after

> seeing her. I had seen many many doctors before her and although

she

> is most likely the most knowledgable about it all, I felt she

didnt

> ask me enough questions. Mostly I felt she could have been warmer.

> BUT, as of today I am better than in the past so I would recommend

> seeing her. She is renowed in the area and in Boston as well as

the

> country on the subject of vulvar health. There are also a couple

> doctors in the Worc County also if anyone needs those name later:)

> Lately I have been neglecting my diet, but I find eating things as

> close to nature/organic blah blah blah and drinking lots of water,

> while obviously being VERY gentle to the vulvar area works well

for

> me. Knock on wood that I continue to feel better because I'm going

on

> vacation next week to mexico! Hopefully the heat and moisture wont

> kill me!!!

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Don't be afraid to tell your MD you want to see a specialist. I had seen a gyn who was really great but had never diagnosed vulvodynia before. He was helpful but could only do so much. I went and paid out of pocket to see Dr. Metzger and my condition improved greatly. When I went back to my regular gyn I was afraid he would be pissy with me, but instead he was so excited that I was feeling better and incredibly interested in the treatment protocol because, "I don't want another one of my patients to have to go through this." A good doc will use it as a learning experience, a bad doc might be pissed but you don't want to be under their care, anyways. Hugs, Lindsey __________________________________________________

[Guest guest]

Hi again, I agree to never be afraid to tell doctors exactly how

you feel and think (in a respectful manner:)) and also to let all of

your doctors know who you are seeing and for what you are seeing them

for and the outcomes.

In reference to another post, Dr. 's associate if very

nice; I found her to be very gentile and supportive.

In the Worcester area in MA, there are a fwe doctors at UMASS

Memorial in the Women's Center that may be worth talking to. Dr.

Peskin and Br. Barre (sp?) are quite good to talk to. I found that

while they may not have such an extensive background as compared to

Dr. s's, they were quite knowledgable, and very kind and

thorough. Dr. Peskin even asked to speak with my boyfriend and how we

could all tailor a regimen that would hope to help us. Both doctors,

I found, were focused a good deal on the emotional side of things as

well. I think with any of the Harvard Vangard doctors at s

office or the Doctors at UMASS Memorial, a person can at least get

soooome relief.

This is quite a hard disorder to deal with, and I at times still

feel down because it is easy to feel " broken " or like " damaged

goods " , but with support and also a change in lifestyle, I do think

it can get better. I certainly hope someday someone can find a cure.

Until then I'll just keep on keepin on, and always keep my trusty

lidocaine handy;)

One last thing, I find that washing after I pee or do anything, or

just a bunch of times a day, helps calm things down a little. I like

cool water that I keep in a squeezy bottle near my sink is good. I

use (non used!!) hair dye bottle with a tapered nozzle so that I can

have any amount of pressure desired. Keeping things cool and dry is

what I'm all about. I agree that yeast is a huge factor...and also

antibiotics arfe the devil to me, never gonna take them again if I

dont absolutely have to. I agree as well that birth control pills

play into this disorder as a catalyst, too. I was on ortho tri for

about five years and I wish I had just always used a condom to this

day!

[Guest guest]

Hi, did either of the two doctors you saw at UMass help you with

physical symptoms?

>

> Hi again, I agree to never be afraid to tell doctors exactly

how

> you feel and think (in a respectful manner:)) and also to let all

of

> your doctors know who you are seeing and for what you are seeing

them

> for and the outcomes.

> In reference to another post, Dr. 's associate if very

> nice; I found her to be very gentile and supportive.

> In the Worcester area in MA, there are a fwe doctors at UMASS

> Memorial in the Women's Center that may be worth talking to. Dr.

> Peskin and Br. Barre (sp?) are quite good to talk to. I found that

> while they may not have such an extensive background as compared

to

> Dr. s's, they were quite knowledgable, and very kind and

> thorough. Dr. Peskin even asked to speak with my boyfriend and how

we

> could all tailor a regimen that would hope to help us. Both

doctors,

> I found, were focused a good deal on the emotional side of things

as

> well. I think with any of the Harvard Vangard doctors at s

> office or the Doctors at UMASS Memorial, a person can at least get

> soooome relief.

> This is quite a hard disorder to deal with, and I at times

still

> feel down because it is easy to feel " broken " or like " damaged

> goods " , but with support and also a change in lifestyle, I do

think

> it can get better. I certainly hope someday someone can find a

cure.

> Until then I'll just keep on keepin on, and always keep my trusty

> lidocaine handy;)

> One last thing, I find that washing after I pee or do anything,

or

> just a bunch of times a day, helps calm things down a little. I

like

> cool water that I keep in a squeezy bottle near my sink is good. I

> use (non used!!) hair dye bottle with a tapered nozzle so that I

can

> have any amount of pressure desired. Keeping things cool and dry

is

> what I'm all about. I agree that yeast is a huge factor...and also

> antibiotics arfe the devil to me, never gonna take them again if I

> dont absolutely have to. I agree as well that birth control pills

> play into this disorder as a catalyst, too. I was on ortho tri for

> about five years and I wish I had just always used a condom to

this

> day!

>

[Guest guest]

Hi, did either of the two doctors you saw at UMass help you with

physical symptoms?

>

> Hi again, I agree to never be afraid to tell doctors exactly

how

> you feel and think (in a respectful manner:)) and also to let all

of

> your doctors know who you are seeing and for what you are seeing

them

> for and the outcomes.

> In reference to another post, Dr. 's associate if very

> nice; I found her to be very gentile and supportive.

> In the Worcester area in MA, there are a fwe doctors at UMASS

> Memorial in the Women's Center that may be worth talking to. Dr.

> Peskin and Br. Barre (sp?) are quite good to talk to. I found that

> while they may not have such an extensive background as compared

to

> Dr. s's, they were quite knowledgable, and very kind and

> thorough. Dr. Peskin even asked to speak with my boyfriend and how

we

> could all tailor a regimen that would hope to help us. Both

doctors,

> I found, were focused a good deal on the emotional side of things

as

> well. I think with any of the Harvard Vangard doctors at s

> office or the Doctors at UMASS Memorial, a person can at least get

> soooome relief.

> This is quite a hard disorder to deal with, and I at times

still

> feel down because it is easy to feel " broken " or like " damaged

> goods " , but with support and also a change in lifestyle, I do

think

> it can get better. I certainly hope someday someone can find a

cure.

> Until then I'll just keep on keepin on, and always keep my trusty

> lidocaine handy;)

> One last thing, I find that washing after I pee or do anything,

or

> just a bunch of times a day, helps calm things down a little. I

like

> cool water that I keep in a squeezy bottle near my sink is good. I

> use (non used!!) hair dye bottle with a tapered nozzle so that I

can

> have any amount of pressure desired. Keeping things cool and dry

is

> what I'm all about. I agree that yeast is a huge factor...and also

> antibiotics arfe the devil to me, never gonna take them again if I

> dont absolutely have to. I agree as well that birth control pills

> play into this disorder as a catalyst, too. I was on ortho tri for

> about five years and I wish I had just always used a condom to

this

> day!

>

[Guest guest]

Hi, did either of the two doctors you saw at UMass help you with

physical symptoms?

>

> Hi again, I agree to never be afraid to tell doctors exactly

how

> you feel and think (in a respectful manner:)) and also to let all

of

> your doctors know who you are seeing and for what you are seeing

them

> for and the outcomes.

> In reference to another post, Dr. 's associate if very

> nice; I found her to be very gentile and supportive.

> In the Worcester area in MA, there are a fwe doctors at UMASS

> Memorial in the Women's Center that may be worth talking to. Dr.

> Peskin and Br. Barre (sp?) are quite good to talk to. I found that

> while they may not have such an extensive background as compared

to

> Dr. s's, they were quite knowledgable, and very kind and

> thorough. Dr. Peskin even asked to speak with my boyfriend and how

we

> could all tailor a regimen that would hope to help us. Both

doctors,

> I found, were focused a good deal on the emotional side of things

as

> well. I think with any of the Harvard Vangard doctors at s

> office or the Doctors at UMASS Memorial, a person can at least get

> soooome relief.

> This is quite a hard disorder to deal with, and I at times

still

> feel down because it is easy to feel " broken " or like " damaged

> goods " , but with support and also a change in lifestyle, I do

think

> it can get better. I certainly hope someday someone can find a

cure.

> Until then I'll just keep on keepin on, and always keep my trusty

> lidocaine handy;)

> One last thing, I find that washing after I pee or do anything,

or

> just a bunch of times a day, helps calm things down a little. I

like

> cool water that I keep in a squeezy bottle near my sink is good. I

> use (non used!!) hair dye bottle with a tapered nozzle so that I

can

> have any amount of pressure desired. Keeping things cool and dry

is

> what I'm all about. I agree that yeast is a huge factor...and also

> antibiotics arfe the devil to me, never gonna take them again if I

> dont absolutely have to. I agree as well that birth control pills

> play into this disorder as a catalyst, too. I was on ortho tri for

> about five years and I wish I had just always used a condom to

this

> day!

>