Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 - Tina Yes I have been to a couple rhuematologist since getting the hives 2 yrs. ago. The first one after having severe joint pain [hip, knees, and feet.] The only thing that helped my hive was prednisone. Antihistamines did nothing at all. After a year and a half on pred. I decided not to take it because of the side effects I was dealing with. The rhuematologist ran a bunch of tests and did extensive blood work.All of witch was normal. I and my Dr. decided to use plaquinil and dapsone and wean off the pred. I had read here that it was sometimes used for urticaria. The fact that it has allowed me to come off the pred. and i now have a positive ANA now has sent me to the second rhumatologist. Plaquinil is a med used for Lupis and a positive ANA and other Lupis like symtems warrented looking closer but after more tests she says i don't have enough smptems to be diagnosed with Lupis but she can not rule it out completely. It is a great releaf to be off the pred. and pretty much hive free since Jan. first. I think seeing a rhumatologist is a wise choice and wish you well along with everyone on this list. - In urticaria@y..., tagevans@a... wrote: > I have been having hives for about 9 months now. But they don't seem > like your average hives. They only itch when they first come out. > They start out as very small red bumps, then increase in size to > about a half dollar and sometimes larger.(These are not joining with > another one) It can also be accompanied with a lot of angioedema. I > have swelling of the eyes, lips, mouth, throat and most recently the > ankles. I get the hives everywhere. Legs, arms, stomach, buttocks > and face(then i look like bride of frankenstein). But the hives are > never small bumps, they are always large red welt looking things. Is > this common? My doc wants me to see a Rheumatologist. Has anyone > else gone to see one? What was out come. I have also had every test > possible, and no allergies. What is up with this body of mine? Any > ideas? > > Thanks > Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 - Tina Yes I have been to a couple rhuematologist since getting the hives 2 yrs. ago. The first one after having severe joint pain [hip, knees, and feet.] The only thing that helped my hive was prednisone. Antihistamines did nothing at all. After a year and a half on pred. I decided not to take it because of the side effects I was dealing with. The rhuematologist ran a bunch of tests and did extensive blood work.All of witch was normal. I and my Dr. decided to use plaquinil and dapsone and wean off the pred. I had read here that it was sometimes used for urticaria. The fact that it has allowed me to come off the pred. and i now have a positive ANA now has sent me to the second rhumatologist. Plaquinil is a med used for Lupis and a positive ANA and other Lupis like symtems warrented looking closer but after more tests she says i don't have enough smptems to be diagnosed with Lupis but she can not rule it out completely. It is a great releaf to be off the pred. and pretty much hive free since Jan. first. I think seeing a rhumatologist is a wise choice and wish you well along with everyone on this list. - In urticaria@y..., tagevans@a... wrote: > I have been having hives for about 9 months now. But they don't seem > like your average hives. They only itch when they first come out. > They start out as very small red bumps, then increase in size to > about a half dollar and sometimes larger.(These are not joining with > another one) It can also be accompanied with a lot of angioedema. I > have swelling of the eyes, lips, mouth, throat and most recently the > ankles. I get the hives everywhere. Legs, arms, stomach, buttocks > and face(then i look like bride of frankenstein). But the hives are > never small bumps, they are always large red welt looking things. Is > this common? My doc wants me to see a Rheumatologist. Has anyone > else gone to see one? What was out come. I have also had every test > possible, and no allergies. What is up with this body of mine? Any > ideas? > > Thanks > Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Tina, My daughter saw a rhuemotologist and he was useless and told me Alena's emmotions were the cause of all of her hives. She was around 3 months old when they started so he was so full of crap. However, I do believe that a good one could be very useful. Best of Luck~~Alena's Mom CHRONIC AGGRAVATION > I have been having hives for about 9 months now. But they don't seem > like your average hives. They only itch when they first come out. > They start out as very small red bumps, then increase in size to > about a half dollar and sometimes larger.(These are not joining with > another one) It can also be accompanied with a lot of angioedema. I > have swelling of the eyes, lips, mouth, throat and most recently the > ankles. I get the hives everywhere. Legs, arms, stomach, buttocks > and face(then i look like bride of frankenstein). But the hives are > never small bumps, they are always large red welt looking things. Is > this common? My doc wants me to see a Rheumatologist. Has anyone > else gone to see one? What was out come. I have also had every test > possible, and no allergies. What is up with this body of mine? Any > ideas? > > Thanks > Tina > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Tina, My daughter saw a rhuemotologist and he was useless and told me Alena's emmotions were the cause of all of her hives. She was around 3 months old when they started so he was so full of crap. However, I do believe that a good one could be very useful. Best of Luck~~Alena's Mom CHRONIC AGGRAVATION > I have been having hives for about 9 months now. But they don't seem > like your average hives. They only itch when they first come out. > They start out as very small red bumps, then increase in size to > about a half dollar and sometimes larger.(These are not joining with > another one) It can also be accompanied with a lot of angioedema. I > have swelling of the eyes, lips, mouth, throat and most recently the > ankles. I get the hives everywhere. Legs, arms, stomach, buttocks > and face(then i look like bride of frankenstein). But the hives are > never small bumps, they are always large red welt looking things. Is > this common? My doc wants me to see a Rheumatologist. Has anyone > else gone to see one? What was out come. I have also had every test > possible, and no allergies. What is up with this body of mine? Any > ideas? > > Thanks > Tina > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Tina, My daughter saw a rhuemotologist and he was useless and told me Alena's emmotions were the cause of all of her hives. She was around 3 months old when they started so he was so full of crap. However, I do believe that a good one could be very useful. Best of Luck~~Alena's Mom CHRONIC AGGRAVATION > I have been having hives for about 9 months now. But they don't seem > like your average hives. They only itch when they first come out. > They start out as very small red bumps, then increase in size to > about a half dollar and sometimes larger.(These are not joining with > another one) It can also be accompanied with a lot of angioedema. I > have swelling of the eyes, lips, mouth, throat and most recently the > ankles. I get the hives everywhere. Legs, arms, stomach, buttocks > and face(then i look like bride of frankenstein). But the hives are > never small bumps, they are always large red welt looking things. Is > this common? My doc wants me to see a Rheumatologist. Has anyone > else gone to see one? What was out come. I have also had every test > possible, and no allergies. What is up with this body of mine? Any > ideas? > > Thanks > Tina > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Dear Tina, My heart goes out to you. I have had hives off and on since 1987. I do believe a rheumotologist might be helpful, might not, depending on his insights. Doctors have different slants on diseases. Things that have helped me thorough the years, but not always effective for each outbreak are: lecithin, prednisone (bad, but it saves my sanity), kenalog shots after a prednisone course, a visit to a wonderful clinic in Arizona called ARC. They pattern their treatments after the findings of Edgar Cache. They were so kind to me and I felt wonderful after a week there. They did tests most Dr's don't i.e. blood tests to determine vitamin and minerals, hormonal levels, etc. I can tell you more about this if you are interested. Keep searching, there is a reason somewhat in your body. Love, Suzanne > >Reply-To: urticaria >To: <urticaria > >Subject: Re: CHRONIC AGGRAVATION >Date: Wed, 18 Apr 2001 16:14:21 -0400 > >Tina, My daughter saw a rhuemotologist and he was useless and told me >Alena's emmotions were the cause of all of her hives. She was around 3 >months old when they started so he was so full of crap. However, I do >believe that a good one could be very useful. Best of Luck~~Alena's >Mom > CHRONIC AGGRAVATION > > > > I have been having hives for about 9 months now. But they don't seem > > like your average hives. They only itch when they first come out. > > They start out as very small red bumps, then increase in size to > > about a half dollar and sometimes larger.(These are not joining with > > another one) It can also be accompanied with a lot of angioedema. I > > have swelling of the eyes, lips, mouth, throat and most recently the > > ankles. I get the hives everywhere. Legs, arms, stomach, buttocks > > and face(then i look like bride of frankenstein). But the hives are > > never small bumps, they are always large red welt looking things. Is > > this common? My doc wants me to see a Rheumatologist. Has anyone > > else gone to see one? What was out come. I have also had every test > > possible, and no allergies. What is up with this body of mine? Any > > ideas? > > > > Thanks > > Tina > > > > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > If you do wish to unsubscribe then you can click on the following link: > > <mailto:urticaria-unsubscribeegroups> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > > > This list is in the service of those who suffer from Chronic Urticaria >(hives). We strive to support and lift each other as a worldwide >cyber-family. > > > > We share whatever needs to be shared to help one another in our struggle >with Chronic Urticria. > > > > Any posting that is off the main topic of Chronic Urticaria, we post >with >a prefix of NCU -. This is done out of respect for those who do not wish >to >read such postings. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Dear Tina, My heart goes out to you. I have had hives off and on since 1987. I do believe a rheumotologist might be helpful, might not, depending on his insights. Doctors have different slants on diseases. Things that have helped me thorough the years, but not always effective for each outbreak are: lecithin, prednisone (bad, but it saves my sanity), kenalog shots after a prednisone course, a visit to a wonderful clinic in Arizona called ARC. They pattern their treatments after the findings of Edgar Cache. They were so kind to me and I felt wonderful after a week there. They did tests most Dr's don't i.e. blood tests to determine vitamin and minerals, hormonal levels, etc. I can tell you more about this if you are interested. Keep searching, there is a reason somewhat in your body. Love, Suzanne > >Reply-To: urticaria >To: <urticaria > >Subject: Re: CHRONIC AGGRAVATION >Date: Wed, 18 Apr 2001 16:14:21 -0400 > >Tina, My daughter saw a rhuemotologist and he was useless and told me >Alena's emmotions were the cause of all of her hives. She was around 3 >months old when they started so he was so full of crap. However, I do >believe that a good one could be very useful. Best of Luck~~Alena's >Mom > CHRONIC AGGRAVATION > > > > I have been having hives for about 9 months now. But they don't seem > > like your average hives. They only itch when they first come out. > > They start out as very small red bumps, then increase in size to > > about a half dollar and sometimes larger.(These are not joining with > > another one) It can also be accompanied with a lot of angioedema. I > > have swelling of the eyes, lips, mouth, throat and most recently the > > ankles. I get the hives everywhere. Legs, arms, stomach, buttocks > > and face(then i look like bride of frankenstein). But the hives are > > never small bumps, they are always large red welt looking things. Is > > this common? My doc wants me to see a Rheumatologist. Has anyone > > else gone to see one? What was out come. I have also had every test > > possible, and no allergies. What is up with this body of mine? Any > > ideas? > > > > Thanks > > Tina > > > > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > If you do wish to unsubscribe then you can click on the following link: > > <mailto:urticaria-unsubscribeegroups> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > > > This list is in the service of those who suffer from Chronic Urticaria >(hives). We strive to support and lift each other as a worldwide >cyber-family. > > > > We share whatever needs to be shared to help one another in our struggle >with Chronic Urticria. > > > > Any posting that is off the main topic of Chronic Urticaria, we post >with >a prefix of NCU -. This is done out of respect for those who do not wish >to >read such postings. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Tina, You have had every test possible? Would you share them with us? I'm collecting test info--don't have enough to do I guess. but, I do think this is a very key point in solving why Urticaria is a symptom. Thank you, Patti Quote Link to comment Share on other sites More sharing options...
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