Sandi

[Guest guest]

Sandi,

Giggle, Lot's of questions my dear friend *smile*. Geese Ive

just responded to a couple of posts and I know I sent out my

protocol but, cant remember if i did on this group? Isnt that

something? Cant remember what Ive sent and who Ive sent stuff to in

the last hour *smile* I have a whole table full of bottles *augh* I

think I forgot a few in my lyme group post. I went from 3 vulvo

groups down to two and when i got the lyme diagnosis I kept only one

vulvo group (This one of course, my favorite girls) and im on a Lyme

support group. Ok concerning your questions: When I called in my

refill im pretty good friends with my pharmacist not to mention shes

a female and really supportive. She told me since the problem lies

with the medical ins. companies to ask the dr. if i could just get a

script for doxcy. 100mg 2x a day. it's 445 a month and that way I

get my 400 mg.

but the insurance companie only pays half. She agreed. So im on

200mg. of doxcy. in am. (Yes I have to eat and sit up for a half an

hour after taking my meds)200mg. in the pm. I just started 1800mg.

of neuroniton. I was on 600mg. Omacor which is prescription Omega-3-

acid, Magnesium citrate, celebrex 200mg. 1x a day, Estradiol 1mg.

daily, Fluconazole 200mg. 1x a day (she says it helps with all the

brain fogginess, my problem with word retrievel, incomplete

sentences ect...) and it has my speech is much better. I could

hardly finish a sentence before because I would for get every day

simple words and spelling.

B 12 Losenges and I dropped the cats claw in dec. I also ordered a

book to help with any stomach problems. im currently waiting to get

it. She's a Dr. her name is (The H.O.P.E Formula The

Ultimate Health Secrete) It deals with all stmoch problems, leaky

gut, chrons, acid reflux, over growth of yeast in stomach an skin,

She says we should be on at least 5-6 billion of culter a day

(probiotic) she said look for deliver system. Um she tells you in

the book excatly which products and what to do. I seen her on a

infermercial at like 3am. on one of my sleepless nights she said to

have at least 35 grams of fiber and the omage 3. She said to get

good omega 3 oils it helps reduce inflammation and to have at least

2 grams a day.

She said the probiotic lowers the risk of pathogenic infection and

strengthens immune system. These are just the notes a took. Im

waiting for the book. She tells you exactly what to eat and im

looking forward to fixing all my stomach problems naturaly. When I

get it I'll give you specific's. I have not tried Samento or

Benicar. i never heard of that? I do herx but, only a couple of

days. I am nauses periodically because im trying to adjust to all

these meds.

I have no to minimal pain on the concoction. Im waiting to see if it

will continue? I have made an apt. in nov and its coming up here in

a week or two to go to the Michigan Institute of ????? Neurology.

When I made my apt. i told them i had lyme and to schedule me with

someone who would be willing to work with me so will see what

happens there? It's nice to be off all the moriphin yuck! Ive traded

it for all these other meds. but im happy to be off them so far.

Im currently getting my daughter tested for Lyme. she's neurotic

right now. He said she has fibromyalgia but im not sure? My stomcah

definitly needs attention and im gonna seek a homapatghic way for

that. Im hoping after a while of this pace of meds. I'll go into

remission or be able to lesson my dosage? I'll keep you posted my

dear friend.

Big hugs from michigan,Tami

> Hello,

> I Know, I Know I havnt been on here in a long time. Since

> recieving my Lyme Disease diagnosis in July. Ive turned all my

> focuse on that. Im Thankful because if it wasnt for Dr. Metzger

> wanting me tested I still wouldnt know the reason for my chronic

> pelvic, back, right breast and arm and now yes both legs. All

though

> the pain started with chronic pelvic pain and spread to my back

and

> so on the pelvic pain is the worst.

> I have gotten much worse lossing my short term memory, unable to

> complete sentences, word retrievel ect... Ive delt with chronic

pain

> for 8 years now but, loosing my brain is very difficult. Ive

learned

> to live around and with the pain. All the problems with brain

issues

> are new and tuff.

> Let me get to the good news though. My Dr. put me on Doxycyclin

> 100mg.2x a day. From much of my research and knowing Im in 3rd.

> stage Lyme I decided to up my Doxcy. to the appropriate dose which

> should be between 300-600mg. a day. I took 200mg. of doxy. in the

> morning and 200mg. of Doxcy. at night. The first freaken day by

the

> end all my pain was gone!I continued that pace for 3 days and I

went

> from 240mg. of Moriphin to none! All though I had a great 3 days I

> knew at that pace I would soon run out of antibiotic.

> I went to my Dr. and showed him my info. on the dosage for chronic

> Lyme patients and that I really should be on I.V ABX than doxy.

but

> was really pushing for the Doxcy. to be raised he wouldnt. I cant

> believe a Dr. would rather have a patient on large amounts of

> narcotics that by the way dont take away all the pain and make me

> sick than raise my antibiotic's and stop the narcotics. So now my

> fight is for proper antibiotic dosage for my chronic lyme. Um yes

I

> had vaginal sex pain free and it was great. A little tight after 8

> years of no sex due to the chronic pelvic pain but great other

wise.

> I'll keep you all updated as I Go. Sandi my other Lymie sister

keep

> up the fight girl. hope you read this.

> Love ya girls , Tami Yeah Dee will get better

> *smile*

>

>

>

>

>

> __________________________________________________

>