Molly

[Guest guest]

Molly,

are you the molly that lives by me? Any way Augh my story

is, I started out with being told I had cervixcitis for a couple of

years. Thats when my pain originally started 8 years ago. I had pain

at my cervix and complained frequantly. They kept giving me creams.

Finally I had a coposcopy in 1998 and it showed hpv. I continued to

have cervix pain and while I was waiting to have my cervix coned I

started having stabbing pain on my right side lower abdomin. i would

end up in the hospital frequantly and a couple of times I was

treated for p.i.d and others told me to follow up with a gyno. I had

my cervix coned in july 1999.

I continued to have pain and I remember they treid to say I had an

infection after the conning. They gave me keflex and the pain

disappeared ( from my lyme group says thats key because I

probably had lyme then and thats why I got better with antibiotics)

When I finished the antibiotic;s the pain resumed. I had severe

stabbing pain on the lower right side, heavy period cramps, and pain

at my cervix. I was then told im fine to see a psycologist " I must

be up set with having my cervix coned, or i had a bad child hood

blha blha blha "

I begged to continue antibiotic's because it was the only thing that

stopped the pain they refused. I searched and went to multiple drs.

and found an o.b who believed I was in pain. So in dec of 1999 i had

a laporoscopy. It showed some adhesions around my right overy and

free fluid in the culda sac. She said she didnt see anything else.

She cauterized the adhesion and said I would be fine. I didnt get

better. In feb. of 2000 I begged for a hystorectomy. I was going to

loose my job of 3 years and I was constantly calling in. Pluse by

this time I was having 2 periods a month. I had a complete

hystorectomy in may 2000 I was 30 years old. The pathology report

came back I had Edenomyosis.

I thought I'll for sure get better there nothing left. Wrong, I got

worse. My back pain started in sept. 2 months after my hystorectomy.

i was still holding my job and I think they pittied me because it

was visible I was working with pain. Long story short lol I started

having severe vulvo burning, severe right leg pain, severe low back

pain. I had my first back surgery dec of ??? 2003 for a buldging

disk at L-5 a year later in 2004 july my disk ruptered I had my

second back surgery, Problems with glabrata yeast and everything was

in severe pain as far as low back, right leg, vuvla, in side the

vagina walls, heavy period craps.

I searched for pain clinic because I knew it was nerves that were

now involved. I started with nerve blocks onyl responding to the

anesthetic not steroids so they only lasted 12 hours. Than I found a

dr. who would do a riziotomy(cut the nerve) I had that done last

summer with 1 week of pain relief.

Than it all flaired up again. I started to have right arm pain,

right breast pain along with all that other pain. I search for

treatment and called Dr. Metzger. She wanted me to have the Lyme

test last dec.. but I didnt. I really didnt think I had Lyme. Dr. M

did a bunch of tests and came up with epstien barr, cmv and she

sent my stool to Entro Lab.

They said from my stool I had an over growth of glabrata yeast in my

intestins(hense the chronic yeast in infection's with glabrata) Um a

rare parisite, unbalanced flora and magnesium deficiancy and hormone

deficincy. I couldnt continue working with her because I couldnt

afford the long distance calls ($400) per phone consult. I seen a

story in the spring on TV. Mistery diagnosis. This girl had the same

problems she was 17 and she started having severe back pain and pain

all over. she went from dr. to dr. and her parents were rich and

sent her to Washington some neurology place who said she just wanted

attention.

Auhhhh The girl did have a lyme test early but negative. She ended

up meeting a girl at this place with the same symptoms and she had

lyme. The girl called home and they found a LLdr. the girl had lyme.

they interviewed her and she didnt say what meds. she was on but she

said she was completely pain free and all though she would have to

take meds. the rest of her life it's better then being bed ridden

with chronic pain. When I seen her story I went back to the folder

for Dr. M. and asked my family care dr. to write the blood drawn

thing. I had the paper for igenex but I needed something from him.

cant remember. He said I didnt have Lyme and did the western blot

and it was negative.

I gave him all the info. on IGenex and my paper work from dr. m and

I had the kit sent out and my blood went to Igenex. 2 weeks later

the result was in I had lyme. i talked to the owner and dr. forgot

his name too and he gave me a list of drs. in my state and said get

to a lyme literate dr. immediatly. You have lyme. He was very

seriouse. So Ive only been diagnosed since the end of july. im new

to it but Ive done much research. Theres my story in a nutt shell.

Kiond regards, Tami

> Hello,

> I Know, I Know I havnt been on here in a long time. Since

> recieving my Lyme Disease diagnosis in July. Ive turned all my

> focuse on that. Im Thankful because if it wasnt for Dr. Metzger

> wanting me tested I still wouldnt know the reason for my chronic

> pelvic, back, right breast and arm and now yes both legs. All

though

> the pain started with chronic pelvic pain and spread to my back

and

> so on the pelvic pain is the worst.

> I have gotten much worse lossing my short term memory, unable to

> complete sentences, word retrievel ect... Ive delt with chronic

pain

> for 8 years now but, loosing my brain is very difficult. Ive

learned

> to live around and with the pain. All the problems with brain

issues

> are new and tuff.

> Let me get to the good news though. My Dr. put me on Doxycyclin

> 100mg.2x a day. From much of my research and knowing Im in 3rd.

> stage Lyme I decided to up my Doxcy. to the appropriate dose which

> should be between 300-600mg. a day. I took 200mg. of doxy. in the

> morning and 200mg. of Doxcy. at night. The first freaken day by

the

> end all my pain was gone!I continued that pace for 3 days and I

went

> from 240mg. of Moriphin to none! All though I had a great 3 days I

> knew at that pace I would soon run out of antibiotic.

> I went to my Dr. and showed him my info. on the dosage for chronic

> Lyme patients and that I really should be on I.V ABX than doxy.

but

> was really pushing for the Doxcy. to be raised he wouldnt. I cant

> believe a Dr. would rather have a patient on large amounts of

> narcotics that by the way dont take away all the pain and make me

> sick than raise my antibiotic's and stop the narcotics. So now my

> fight is for proper antibiotic dosage for my chronic lyme. Um yes

I

> had vaginal sex pain free and it was great. A little tight after 8

> years of no sex due to the chronic pelvic pain but great other

wise.

> I'll keep you all updated as I Go. Sandi my other Lymie sister

keep

> up the fight girl. hope you read this.

> Love ya girls , Tami Yeah Dee will get better

> *smile*

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Nope - Tami - it's me the " other " Molly that lives by you! LOL

One of these days when I'm feeling better we have to get together.

I am feeling pretty bad again these days but not nearly as bad as my

first round of herxheimer reactions. Just wish it wasn't taking so

long. I just have to be patient.

Love

Molly (Mojo)

>

> Molly,

> are you the molly that lives by me? Any way Augh my story

> is, I started out with being told I had cervixcitis for a couple of

> years. Thats when my pain originally started 8 years ago. I had pain

>