Re: amittriptyline and neurontin

[Guest guest]

<< I go to one of the top specialists in vulvodynia and she told me to

> increase the amitriptyine up to 150mg depending on how I felt. I

> increased slowly and did get to 150mg. This did help a lot.>>

That's great - I wish more doctors (well, certainly in the UK) were

aware of the higher dose some people need. I hear too many stories of

doctors who tell patients not to exceed 30mg/day and while a low dose

can help some people, not everyone responds in the same way.

<< I decided to add neurontin to see if I could get even more benefit

and she said I could go up to 3,000mg a day. I got up to 1,500 a day

and got a lot of benefit.>>

I also combined anti-D's and antio-C's and that made the most

difference to my life and my pain. I think it's one of the best ways

to deal with chronic pain. I was able, after 2 years, to taper off

completely and still reap the benefits.

<< My biggest problem is being dressed and wearing underwear. >>

Tough one this- for years I stuck to wearing skirts and in winter

added knee-high boots and petticoats. Then I started wearing very

loose trousers and finally doctored jeans by cutting out the middle

seam in a sort of eye or circle shape and patching it with soft jersey

material of a similar colour. Much more comfy and hardly anyone

notices. I now wear hold-ups and stockings (which can be very sexy!)

or cut the critch out of tights. Panties are an ongoing experiment: I

don't know how many pairs I have (many!) and some can be worn for a

short while, others a bit longer and a few pairs for even longer

still! I think many ladies go w/o if possible, or at least at home.

Perhaps as your meds keep working you will tolerate it for longer

periods, but you are already doing quite well - I recall when this

started I could not tolerate anything touching my vulva or pubic bone

for months and months and I was stuck in bed most of the time. I spent

years lying down before I managed to get a combo of meds to help me.

Good luck,

Kay

[Guest guest]

Hi,

I was wondering what anti-D's and antio-C's were? Especially since

they helped you so much.

> I also combined anti-D's and antio-C's and that made the most

> difference to my life and my pain. I think it's one of the best ways

> to deal with chronic pain. I was able, after 2 years, to taper off

> completely and still reap the benefits.

>

>