Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 I'm a mom of 3 and they all attend speech therapy. My 6 year old has been in speech for 3 years, my 4 year old has been in speech for almost 2 years and my 2 yr old has been in speech for 7 months. My middle child has 2 different speech therapist and they both say he has verbal apraxia. At age 3 he had a 15 month old speech level. June 10th we have to travel to Indianapolis to have my oldest and middle child evaluated. I'm very nervous and worried about the tests they will do but most of all, I'm very concerned about the results. I've been reading lots of posts lately and would like to thank everyone for sharing their story. I feel much better knowing we're not alone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 , M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 , M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 Hi My daughter has just gone into her first cast, and I too had BIG reservations! Different concerns, as she is 5yo, but still I worried that I was/am doing the right thing. The hospital trip was a very positive experience for her. I knew she had been worried when we tried to talk about it, but the Doctors and Nurses treated her like a princess! She handled the anesthetic well, and by lunch time she was up and around and eating a grilled cheese sandwich! The doctor found her spine to be very flexible and they have gotten great correction in this first cast. She has some difficulties sitting comfortably, as well as with balance but she is slowly figuring it out! They think that she will only need one more cast in 8-10 weeks, and then a brace for a while then.... who knows..... I do worry that she must be hot! And we have had to adapt our summer plans so they don't include swimming, water parks etc. but I figure its a small price to pay for a straight back. Good Luck to you and (and your baby on the way!). Don't ever worry about your posts sounding whiny! Everyone is here to listen and help each other out when ever we can. Jacki > Hi! I posted for the first time not too long ago. My daughter, > , has infantile scoliosis as well as Prader-Willi Syndrome. > Currently her curve is at 57 degrees. It has been there since > January. We finally got an appointment to see Dr. in Erie. > We are scheduled to go on July 12th for a clinic visit. If Dr. > agrees with 's local orthopedic and determines that > she needs to be put in a cast, we are scheduled for July 13th. > > I have spent these past few months researching and know that this is > our last chance to hold her back from getting any worse. But now > that it is scheduled - I am very nervous about this. I am so > concerned about how she will deal with it. She is so bright and > such a happy child. She is not yet walking (low muscle tone from > syndrome) but she is very mobile crawling. She is sooooo happy > getting around and I am so scared she will not be able to get around > any longer. She was so miserable in the TLSO - she did not even try > to get around. I know that her mobility is secondary to the > importance of getting the curve progession stopped. I am just > hoping that some of you can tell me how your children responded to > casting. Where they walking yet? > > Sorry for such a whinning email. We have just found out we are > expecting our second child so my emoitions are not very stable right > now! > > Thanks for listening. > > Mayes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 Hi My daughter has just gone into her first cast, and I too had BIG reservations! Different concerns, as she is 5yo, but still I worried that I was/am doing the right thing. The hospital trip was a very positive experience for her. I knew she had been worried when we tried to talk about it, but the Doctors and Nurses treated her like a princess! She handled the anesthetic well, and by lunch time she was up and around and eating a grilled cheese sandwich! The doctor found her spine to be very flexible and they have gotten great correction in this first cast. She has some difficulties sitting comfortably, as well as with balance but she is slowly figuring it out! They think that she will only need one more cast in 8-10 weeks, and then a brace for a while then.... who knows..... I do worry that she must be hot! And we have had to adapt our summer plans so they don't include swimming, water parks etc. but I figure its a small price to pay for a straight back. Good Luck to you and (and your baby on the way!). Don't ever worry about your posts sounding whiny! Everyone is here to listen and help each other out when ever we can. Jacki > Hi! I posted for the first time not too long ago. My daughter, > , has infantile scoliosis as well as Prader-Willi Syndrome. > Currently her curve is at 57 degrees. It has been there since > January. We finally got an appointment to see Dr. in Erie. > We are scheduled to go on July 12th for a clinic visit. If Dr. > agrees with 's local orthopedic and determines that > she needs to be put in a cast, we are scheduled for July 13th. > > I have spent these past few months researching and know that this is > our last chance to hold her back from getting any worse. But now > that it is scheduled - I am very nervous about this. I am so > concerned about how she will deal with it. She is so bright and > such a happy child. She is not yet walking (low muscle tone from > syndrome) but she is very mobile crawling. She is sooooo happy > getting around and I am so scared she will not be able to get around > any longer. She was so miserable in the TLSO - she did not even try > to get around. I know that her mobility is secondary to the > importance of getting the curve progession stopped. I am just > hoping that some of you can tell me how your children responded to > casting. Where they walking yet? > > Sorry for such a whinning email. We have just found out we are > expecting our second child so my emoitions are not very stable right > now! > > Thanks for listening. > > Mayes Quote Link to comment Share on other sites More sharing options...
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