Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 please remove me from the list as soon as humanly possible. I can't deal with all the e-mail i'm getting. I'll just look at the website when I have time. thank you very much. adrienne spring > >Reply-To: urticaria >To: <urticaria > >Subject: Re: Fair complexion - Question on Angioedema >Date: Mon, 23 Apr 2001 18:04:39 +0100 > >Hi Irene, > >I'm so sorry to hear that your daughter is suffering like this. It's a >scary thing to happen, especially when you're so young. I think we all >agree here that it's one thing having this as an adult, but when it happens >to children it's terribly cruel. > >To answer your questions, I've had chronic urticaria for about eight years >now. I never had it as a kid, although I couldn't say that whatever >triggered it wasn't in my system when I was younger - that's something I'm >trying to find out. When it comes to alleviating the symptoms of a bad >angio attack, I'm afraid I can't seem to do much - I just tend to ride it >out in bed or walk around in a bathrobe most of the time and keep a beady >eye on impending anaphylaxsis, which does seem to accompany it in my own >case. I did used to take showers with water that matched the temperature of >my skin - anything hotter or colder and it went even more bananas - and it >did help for a while but the skin can get pretty hot with angio so it >wasn't a sensible long-term solution! I don't take prednisolone any more, >although I've got bottles of the stuff downstairs. It didn't help with the >itching and it couldn't stop the attacks coming, or do anything significant >for the swelling. I don't have the angio episodes anymore too much these >days, thank goodness, but I'm taking a lot of drugs (2 zyrtec, 4 zantac, 8 >nalcrom, plus inhaler and epipen, rarely) so even though they don't stop it >by any means, perhaps do stop it taking root more often to some extent. I >can often stop the straight hives coming with the drugs, and even something >as simple as going to the toilet can put an end to a hive attack, but angio >- never. That'll always come if it wants to. Actually, I only ever seem >to get the angio attacks these days when I have my period or a bad >cold/infection of some kind, and they will usually last for as long as my >period (or infection) does. With my period this can often be ten days, so >I get the three day non-stop-can't-do-anything-about-it to start with, and >then recurring attacks until I've stopped bleeding. I've also had five >(poss 6) miscarriages, and without exception I've had dreadful angio with >each of these, including fever and what seems like a permanent film of >something slimy covering my skin. Definately not sweat - maybe leaking >histamine or something! Sinus trouble is another one which always seems to >invite angio along for the ride. I'm looking into all of these things. >Also with the angio I get the 'hard' raised patches which are particularly >irritating on the face, because they itch like you-know-what and hurt and >sting like you-know-what, so you scratch them and they hurt, and you don't >scratch and they hurt anyway!!! AAAARGH! > >What's your daughter's doctor's take on everything she's going through >right now? Has she been put on any medication, and have they run any tests >yet? > > >Scotland > > Re: Fair complexion - Question on Angioedema > > > ! > > I know it's not to you, but it certainly is a relief to me that somebody >has > something so similar to my daughter's condition & is still writing to >tell > about it! What do you do to alleviate the symptoms? How often do you > experience these episodes? Has it gotten worse or better over time (how >long > in between episodes - how long do they last?) Did you have it as a >child? > (My daughter is not quite eleven). Question (Guys might not want to >read > this one) - but is it at all related to female hormone cycle? (She may >not > be eleven yet, but she is very tall & physically maturing, so I thought >maybe > this new on-slaught (advancing from hives to angioedema) might be >somehow > tied into the hormonal changes). > > Irene > > > > > Quote Link to comment Share on other sites More sharing options...
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