Re: Need some ideas about clitoral pain

January 4, 2007

Arline, Thanks for the info! I can't decide if I'm going to just do it on my own or try to talk to my doctor about it. I will let you know what I decide though. I figure, might as well rule as many things out as possible, right? That's the only way I'm going to figure out what is causing this.BABB wrote: ,My clitoral pain was an ache, swelling, soreness, evenirritated skin--all of those.If your results are

positive, you will need to learnwhat you can about this disease because it is alifetime thing. Learning to eat that way is not easybut is so rewarding.The first test is the best but it is the mostexpensive. It gives several tests in one includingtests for dairy and gluten sensitivity and gene tests,too. It is the "Gluten Sensitivity Stool and GenePanel Complete".If you can't get that one just get the "Stool Test forGluten Sensitivity" and go from there to find outinformation if it is postive.The results will come to you and to nobody else ifthat is the way you want it. If he ordered it, itwould go to him.The doctor there always explains what the test resultsmean. If it is negative, it is obvious. If it ispositive he will say so and explain a little what itmeans. There is a lot of information on his websiteabout the disease and a lot more on the internet plussupport groups which

are helpful. Bacially you need tostop eating gluten and with our food supply the way itis, that is a challenge as they put it in everythingalmost that is processed as flavors, binders,starches, thickeners, use wheat to keep things fromsticking together, etc. Fresh unprocessed foods arethe best and easiest.I don't know whether your clitoral pain is entrapmentor not but there is little doubt in my mind that thenerves have quite a lot to do with it.I had four neuromas in my feet years ago--the mostpainful thing I have ever had. That is nerveentrapment. They surgically removed three of them andsomehow forgot the fourth one. Miraculously yearslater after I stopped eating gluten, the pain in thatone totally stopped. That is pretty strange I willadmit.I had terrible low back pain and spasms for years andspent a fortune on chiropracters and physical therapywhich helped for the time being a

little bit is all. Igot so I could hardly leave the house because I wouldhave terrible spasms and couldn't stand or walk orsit. I thought and they thought I probably had abulging disc or something. After the diet it all wentaway along with other neuromuscular problems. Whensomething is attacking the nerves and muscles, asgluten can do, some pretty nasty things happen.I truly hope you are able to solve your problems. Youare certainly trying.Arline--- Sales <emsuc02> wrote:> Arline,> > Thanks for the reassurance and encouragement > Getting the enterolab test is definitely on the top> of my list of things to try. I had seen some of> what you were writing a few weeks ago about it and> did check out their website. My questions are:> > Which test would you think would be the best

to> have done? I tried figuring it out myself but> didn't really understand everything- I figured you> have a little bit more knowledge about the different> tests???....> > Would the results come to me or have to go to a> doctor? Would I be able to understand the results> if it came to me?> > If the test came back positive, what would that> mean? Simply changing my diet to try to eliminate> the bad stuff????> > Hopefully you can help me understand it a little> better. By the way, what was your clitoral pain> like? Mine is more with sitting with pressure> directly on the area and feels like an aching/sore> feeling kind of like something is gently squeezing> it. When I describe it like that, to me, it sounds> like some kind of nerve entrapment or> something....however my doc doesn't seem to think> so.....who the heck

knows.__________________________________________________

January 4, 2007

Arline, Thanks for the info! I can't decide if I'm going to just do it on my own or try to talk to my doctor about it. I will let you know what I decide though. I figure, might as well rule as many things out as possible, right? That's the only way I'm going to figure out what is causing this.BABB wrote: ,My clitoral pain was an ache, swelling, soreness, evenirritated skin--all of those.If your results are

positive, you will need to learnwhat you can about this disease because it is alifetime thing. Learning to eat that way is not easybut is so rewarding.The first test is the best but it is the mostexpensive. It gives several tests in one includingtests for dairy and gluten sensitivity and gene tests,too. It is the "Gluten Sensitivity Stool and GenePanel Complete".If you can't get that one just get the "Stool Test forGluten Sensitivity" and go from there to find outinformation if it is postive.The results will come to you and to nobody else ifthat is the way you want it. If he ordered it, itwould go to him.The doctor there always explains what the test resultsmean. If it is negative, it is obvious. If it ispositive he will say so and explain a little what itmeans. There is a lot of information on his websiteabout the disease and a lot more on the internet plussupport groups which

are helpful. Bacially you need tostop eating gluten and with our food supply the way itis, that is a challenge as they put it in everythingalmost that is processed as flavors, binders,starches, thickeners, use wheat to keep things fromsticking together, etc. Fresh unprocessed foods arethe best and easiest.I don't know whether your clitoral pain is entrapmentor not but there is little doubt in my mind that thenerves have quite a lot to do with it.I had four neuromas in my feet years ago--the mostpainful thing I have ever had. That is nerveentrapment. They surgically removed three of them andsomehow forgot the fourth one. Miraculously yearslater after I stopped eating gluten, the pain in thatone totally stopped. That is pretty strange I willadmit.I had terrible low back pain and spasms for years andspent a fortune on chiropracters and physical therapywhich helped for the time being a

little bit is all. Igot so I could hardly leave the house because I wouldhave terrible spasms and couldn't stand or walk orsit. I thought and they thought I probably had abulging disc or something. After the diet it all wentaway along with other neuromuscular problems. Whensomething is attacking the nerves and muscles, asgluten can do, some pretty nasty things happen.I truly hope you are able to solve your problems. Youare certainly trying.Arline--- Sales <emsuc02> wrote:> Arline,> > Thanks for the reassurance and encouragement > Getting the enterolab test is definitely on the top> of my list of things to try. I had seen some of> what you were writing a few weeks ago about it and> did check out their website. My questions are:> > Which test would you think would be the best

to> have done? I tried figuring it out myself but> didn't really understand everything- I figured you> have a little bit more knowledge about the different> tests???....> > Would the results come to me or have to go to a> doctor? Would I be able to understand the results> if it came to me?> > If the test came back positive, what would that> mean? Simply changing my diet to try to eliminate> the bad stuff????> > Hopefully you can help me understand it a little> better. By the way, what was your clitoral pain> like? Mine is more with sitting with pressure> directly on the area and feels like an aching/sore> feeling kind of like something is gently squeezing> it. When I describe it like that, to me, it sounds> like some kind of nerve entrapment or> something....however my doc doesn't seem to think> so.....who the heck

knows.__________________________________________________

January 5, 2007

--- Sales wrote:

> Arline,

>

> Thanks for the info! I can't decide if I'm going

> to just do it on my own or try to talk to my doctor

> about it. I will let you know what I decide though.

> I figure, might as well rule as many things out as

> possible, right? That's the only way I'm going to

> figure out what is causing this.

You do as you like. As long as you keep looking and

don't spend too much time wasting with usually useless

treatments without knowing what is wrong. I wish you

well.

Arline

__________________________________________________

January 5, 2007

--- Sales wrote:

> Arline,

>

> Thanks for the info! I can't decide if I'm going

> to just do it on my own or try to talk to my doctor

> about it. I will let you know what I decide though.

> I figure, might as well rule as many things out as

> possible, right? That's the only way I'm going to

> figure out what is causing this.

You do as you like. As long as you keep looking and

don't spend too much time wasting with usually useless

treatments without knowing what is wrong. I wish you

well.

Arline

__________________________________________________

January 5, 2007

--- Sales wrote:

> Arline,

>

> Thanks for the info! I can't decide if I'm going

> to just do it on my own or try to talk to my doctor

> about it. I will let you know what I decide though.

> I figure, might as well rule as many things out as

> possible, right? That's the only way I'm going to

> figure out what is causing this.

You do as you like. As long as you keep looking and

don't spend too much time wasting with usually useless

treatments without knowing what is wrong. I wish you

well.

Arline

__________________________________________________

January 19, 2007

>

> I am very stumped about what could be causing my clitoral pain. I

went

> to PT today for the first time and she did not think my problem was

my

> pelvic floor muscles. This has left me completely clueless because

I

> don't know what else to try. I've been tested for YI under the

hood,

> had blood work done for lyme and glucose, and have been evaluated

by a

> PT. I'm on 600mg gabapentin each day along with 10mg elavil. To

make

> matters worse, I had been feeling a little better lately as I had

been

> avoiding the area and things were calming down a bit- I was able to

> live a semi-normal life, just no exercise, sex, sitting for long

> periods of time w/ pressure directly on the area, and no tight

jeans.

> However, now after the PT exam and she pressed directly on the area

it

> feels like I am going to flare again and will be back at square

one. I

> would love to hear if you guys had any thoughts/ideas as I am out.

>

I am so sorry for your pain in the clitoris. Have you been checked

out for another condition called Lichen Planus or Lichen Scleroisis?

I had clitoral pain for decades and no one could find out what was

causing it. I finally found a vulvar specialist who did a biopsy of

the inner labia. The area was very red and the results came back as

Lichen Planus. Now I know what it is and that I am not crazy like I

had been told by so many doctors.

I keep the pain in check by applying a very strong steroid ointment

called clobetasol or Temovate. I can pretty much live a normal life

now. Please, have this checked out.

Good Luck!

January 21, 2007