Re: Need some ideas about clitoral pain

[Guest guest]

Are you able to get a second opinion from a different PT? I go see my PT but I don't know if its any good.emsuc02 wrote: I am very stumped about what could be causing my clitoral pain. I went to PT today for the first time and she did not think my problem was my pelvic floor muscles. This has left me completely clueless because I don't know what else to try. I've been tested for YI under the hood, had blood work done for lyme and glucose, and have been evaluated by a PT. I'm on 600mg gabapentin each day along with 10mg elavil. To make matters worse, I had been feeling a little better lately as I had been avoiding the area and things were calming down a bit- I was able to live a semi-normal life, just no exercise, sex, sitting for long periods of time w/ pressure directly on the area, and no

tight jeans. However, now after the PT exam and she pressed directly on the area it feels like I am going to flare again and will be back at square one. I would love to hear if you guys had any thoughts/ideas as I am out.**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS**Our HOME page is http://groups.yahoo.com/group/VulvarDisordersto search our archives, files, articles, etc.***

[Guest guest]

Are you able to get a second opinion from a different PT? I go see my PT but I don't know if its any good.emsuc02 wrote: I am very stumped about what could be causing my clitoral pain. I went to PT today for the first time and she did not think my problem was my pelvic floor muscles. This has left me completely clueless because I don't know what else to try. I've been tested for YI under the hood, had blood work done for lyme and glucose, and have been evaluated by a PT. I'm on 600mg gabapentin each day along with 10mg elavil. To make matters worse, I had been feeling a little better lately as I had been avoiding the area and things were calming down a bit- I was able to live a semi-normal life, just no exercise, sex, sitting for long periods of time w/ pressure directly on the area, and no

tight jeans. However, now after the PT exam and she pressed directly on the area it feels like I am going to flare again and will be back at square one. I would love to hear if you guys had any thoughts/ideas as I am out.**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS**Our HOME page is http://groups.yahoo.com/group/VulvarDisordersto search our archives, files, articles, etc.***

[Guest guest]

Are you able to get a second opinion from a different PT? I go see my PT but I don't know if its any good.emsuc02 wrote: I am very stumped about what could be causing my clitoral pain. I went to PT today for the first time and she did not think my problem was my pelvic floor muscles. This has left me completely clueless because I don't know what else to try. I've been tested for YI under the hood, had blood work done for lyme and glucose, and have been evaluated by a PT. I'm on 600mg gabapentin each day along with 10mg elavil. To make matters worse, I had been feeling a little better lately as I had been avoiding the area and things were calming down a bit- I was able to live a semi-normal life, just no exercise, sex, sitting for long periods of time w/ pressure directly on the area, and no

tight jeans. However, now after the PT exam and she pressed directly on the area it feels like I am going to flare again and will be back at square one. I would love to hear if you guys had any thoughts/ideas as I am out.**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS**Our HOME page is http://groups.yahoo.com/group/VulvarDisordersto search our archives, files, articles, etc.***

[Guest guest]

I feel the same way. I went to PT the last time I had vulva pain and it

seemed to make things flare up. After a year pain free, I have been in pain

for the last year and a half. My doctor is again recommending PT. I am not

thrilled, but I too am feeling like I am out of options.

>

>Reply-To: VulvarDisorders

>To: VulvarDisorders

>Subject: Re: Need some ideas about clitoral pain

>Date: Tue, 2 Jan 2007 19:14:42 -0500 (EST)

>

>Are you able to get a second opinion from a different PT? I go see my PT

>but I don't know if its any good.

>

>emsuc02 wrote: I am very stumped about what could be

>causing my clitoral pain. I went

>to PT today for the first time and she did not think my problem was my

>pelvic floor muscles. This has left me completely clueless because I

>don't know what else to try. I've been tested for YI under the hood,

>had blood work done for lyme and glucose, and have been evaluated by a

>PT. I'm on 600mg gabapentin each day along with 10mg elavil. To make

>matters worse, I had been feeling a little better lately as I had been

>avoiding the area and things were calming down a bit- I was able to

>live a semi-normal life, just no exercise, sex, sitting for long

>periods of time w/ pressure directly on the area, and no tight jeans.

>However, now after the PT exam and she pressed directly on the area it

>feels like I am going to flare again and will be back at square one. I

>would love to hear if you guys had any thoughts/ideas as I am out.

>

>

>

>**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS**

>

>Our HOME page is http://groups.yahoo.com/group/VulvarDisorders

>to search our archives, files, articles, etc.

>

>***

[Guest guest]

You should consider that it is neuropathy--nerve

damage--autoimmune attacks on your nerves there. If it

isn't obvious disease,--infection, tumor, past injury,

I would guess that you have some undiagnosed problem

(like most of us I think) that causes an attack on

your nervous system (and probably more).

You might try a gluten sensitivity test at

http://www.Enterolab.com by mail at this lab with its

new state of the art tests can test for gluten

sensitivity which attacks the nervous system. It is

the only one as far as I know that can diagnose this

kind of sensitivityand knows what they are doing. The

blood test the doctors give don't diagnose gluten

sensitivity.

My extreme clitoral pain went away when I stopped

eating gluten and has never returned.

I hope you find your answers.

Arline

--- emsuc02 wrote:

> I am very stumped about what could be causing my

> clitoral pain. I went

> to PT today for the first time and she did not think

> my problem was my

> pelvic floor muscles. This has left me completely

> clueless because I

> don't know what else to try. I've been tested for

> YI under the hood,

> had blood work done for lyme and glucose, and have

> been evaluated by a

> PT. I'm on 600mg gabapentin each day along with

> 10mg elavil. To make

> matters worse, I had been feeling a little better

> lately as I had been

> avoiding the area and things were calming down a

> bit- I was able to

> live a semi-normal life, just no exercise, sex,

> sitting for long

> periods of time w/ pressure directly on the area,

> and no tight jeans.

> However, now after the PT exam and she pressed

> directly on the area it

> feels like I am going to flare again and will be

> back at square one. I

> would love to hear if you guys had any

> thoughts/ideas as I am out.

>

>

__________________________________________________

[Guest guest]

I feel that you really need to go see a good one. Especially with your past experience. I would make the effort as hard as it is to go see Rhonda in Chicago or Liz or in San Francisco, and there is a new good one I just heard about in New York. You can join the happypelvis site and compare notes about PT. I know that the first PT I went to made me much much worse. I think that she was just aggravating my pelvic floor because she didn't know what she was doing and she wasn't being aggressive enough. Then the next five I saw didn't hurt me but didn't help either. Then I went to and that's when I started to get well. Unfortunately the majority of PTs don't know what they're doing. love, Molly Galvagni wrote: I feel the same way. I went to PT the last time I had vulva pain and it seemed to make things flare up. After a year pain free, I have been in pain for the last year and a half. My doctor is again recommending PT. I am not thrilled, but I too am feeling like I am out of options.>From: m bremaud <health2500yahoo (DOT) ca>>Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: Re:

Need some ideas about clitoral pain>Date: Tue, 2 Jan 2007 19:14:42 -0500 (EST)>>Are you able to get a second opinion from a different PT? I go see my PT >but I don't know if its any good.>>emsuc02 <emsuc02> wrote: I am very stumped about what could be >causing my clitoral pain. I went>to PT today for the first time and she did not think my problem was my>pelvic floor muscles. This has left me completely clueless because I>don't know what else to try. I've been tested for YI under the hood,>had blood work done for lyme and glucose, and have been evaluated by a>PT. I'm on 600mg gabapentin each day along with 10mg elavil. To make>matters worse, I had been feeling a little better lately as I had been>avoiding the area and things were calming down a bit- I was able to>live a semi-normal life, just no exercise,

sex, sitting for long>periods of time w/ pressure directly on the area, and no tight jeans.>However, now after the PT exam and she pressed directly on the area it>feels like I am going to flare again and will be back at square one. I>would love to hear if you guys had any thoughts/ideas as I am out.>>>>**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS**>>Our HOME page is http://groups.yahoo.com/group/VulvarDisorders>to search our archives, files, articles, etc.>>***

[Guest guest]

, It sounds like if the PT helped the first time that it will be worth it the second time. When you were pain free were you doing any maintenance therapy to keep it from coming back? I've talked to a few women who have said that they are pain free and still do some of the exercises to keep it from coming back. Just out of curiosity, what are your symptoms and where do you live? Galvagni wrote: I feel the same way. I went

to PT the last time I had vulva pain and it seemed to make things flare up. After a year pain free, I have been in pain for the last year and a half. My doctor is again recommending PT. I am not thrilled, but I too am feeling like I am out of options.>From: m bremaud <health2500yahoo (DOT) ca>>Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: Re: Need some ideas about clitoral pain>Date: Tue, 2 Jan 2007 19:14:42 -0500 (EST)>>Are you able to get a second opinion from a different PT? I go see my PT >but I don't know if its any good.>>emsuc02 <emsuc02> wrote: I am very stumped about what could be >causing

my clitoral pain. I went>to PT today for the first time and she did not think my problem was my>pelvic floor muscles. This has left me completely clueless because I>don't know what else to try. I've been tested for YI under the hood,>had blood work done for lyme and glucose, and have been evaluated by a>PT. I'm on 600mg gabapentin each day along with 10mg elavil. To make>matters worse, I had been feeling a little better lately as I had been>avoiding the area and things were calming down a bit- I was able to>live a semi-normal life, just no exercise, sex, sitting for long>periods of time w/ pressure directly on the area, and no tight jeans.>However, now after the PT exam and she pressed directly on the area it>feels like I am going to flare again and will be back at square one. I>would love to hear if you guys had any thoughts/ideas as I am out.>>>>**IF REPLYING

TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS**>>Our HOME page is http://groups.yahoo.com/group/VulvarDisorders>to search our archives, files, articles, etc.>>***

[Guest guest]

, It sounds like if the PT helped the first time that it will be worth it the second time. When you were pain free were you doing any maintenance therapy to keep it from coming back? I've talked to a few women who have said that they are pain free and still do some of the exercises to keep it from coming back. Just out of curiosity, what are your symptoms and where do you live? Galvagni wrote: I feel the same way. I went

to PT the last time I had vulva pain and it seemed to make things flare up. After a year pain free, I have been in pain for the last year and a half. My doctor is again recommending PT. I am not thrilled, but I too am feeling like I am out of options.>From: m bremaud <health2500yahoo (DOT) ca>>Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: Re: Need some ideas about clitoral pain>Date: Tue, 2 Jan 2007 19:14:42 -0500 (EST)>>Are you able to get a second opinion from a different PT? I go see my PT >but I don't know if its any good.>>emsuc02 <emsuc02> wrote: I am very stumped about what could be >causing

my clitoral pain. I went>to PT today for the first time and she did not think my problem was my>pelvic floor muscles. This has left me completely clueless because I>don't know what else to try. I've been tested for YI under the hood,>had blood work done for lyme and glucose, and have been evaluated by a>PT. I'm on 600mg gabapentin each day along with 10mg elavil. To make>matters worse, I had been feeling a little better lately as I had been>avoiding the area and things were calming down a bit- I was able to>live a semi-normal life, just no exercise, sex, sitting for long>periods of time w/ pressure directly on the area, and no tight jeans.>However, now after the PT exam and she pressed directly on the area it>feels like I am going to flare again and will be back at square one. I>would love to hear if you guys had any thoughts/ideas as I am out.>>>>**IF REPLYING

TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS**>>Our HOME page is http://groups.yahoo.com/group/VulvarDisorders>to search our archives, files, articles, etc.>>***

[Guest guest]

, It sounds like if the PT helped the first time that it will be worth it the second time. When you were pain free were you doing any maintenance therapy to keep it from coming back? I've talked to a few women who have said that they are pain free and still do some of the exercises to keep it from coming back. Just out of curiosity, what are your symptoms and where do you live? Galvagni wrote: I feel the same way. I went

to PT the last time I had vulva pain and it seemed to make things flare up. After a year pain free, I have been in pain for the last year and a half. My doctor is again recommending PT. I am not thrilled, but I too am feeling like I am out of options.>From: m bremaud <health2500yahoo (DOT) ca>>Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: Re: Need some ideas about clitoral pain>Date: Tue, 2 Jan 2007 19:14:42 -0500 (EST)>>Are you able to get a second opinion from a different PT? I go see my PT >but I don't know if its any good.>>emsuc02 <emsuc02> wrote: I am very stumped about what could be >causing

my clitoral pain. I went>to PT today for the first time and she did not think my problem was my>pelvic floor muscles. This has left me completely clueless because I>don't know what else to try. I've been tested for YI under the hood,>had blood work done for lyme and glucose, and have been evaluated by a>PT. I'm on 600mg gabapentin each day along with 10mg elavil. To make>matters worse, I had been feeling a little better lately as I had been>avoiding the area and things were calming down a bit- I was able to>live a semi-normal life, just no exercise, sex, sitting for long>periods of time w/ pressure directly on the area, and no tight jeans.>However, now after the PT exam and she pressed directly on the area it>feels like I am going to flare again and will be back at square one. I>would love to hear if you guys had any thoughts/ideas as I am out.>>>>**IF REPLYING

TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS**>>Our HOME page is http://groups.yahoo.com/group/VulvarDisorders>to search our archives, files, articles, etc.>>***

[Guest guest]

Arline, I would like to get that test done, but I don't know if my doctor will go for it. I feel bad "insisting" on things to try/test for when he's the doctor but I feel that at this point we should be trying anything. I just don't want to p*** him off because I've been through about 5 doctors and he seems to be the most knowledgeable and caring around here because there is no one else to try without having to drive 2 or 3 hours. I'm also afraid to go try things on my own because if they come back showing something then I'll have to say "well i went behind your back and did this...." I mentioned pudendal nerve entrapment and he didn't seem to think that was my problem because he said with that you usually have pain on one side. However with all my research I know that is not always true, not to mention, since the clitoris is small and there are so many nerves I feel that it

would be difficult to feel pain on only one side. However he did mention possibly trying some nerve blocks, so wouldn't that mean pudendal neuralgia? Do I have to go through my doctor to get that gluten test? BABB wrote: You should consider that it is neuropathy--nervedamage--autoimmune attacks on your nerves there. If itisn't obvious disease,--infection, tumor, past injury,I would guess that you have some undiagnosed

problem(like most of us I think) that causes an attack onyour nervous system (and probably more).You might try a gluten sensitivity test athttp://www.Enterolab.com by mail at this lab with itsnew state of the art tests can test for glutensensitivity which attacks the nervous system. It isthe only one as far as I know that can diagnose thiskind of sensitivityand knows what they are doing. Theblood test the doctors give don't diagnose glutensensitivity.My extreme clitoral pain went away when I stoppedeating gluten and has never returned.I hope you find your answers.Arline--- emsuc02 <emsuc02> wrote:> I am very stumped about what could be causing my> clitoral pain. I went > to PT today for the first time and she did not think> my problem was my > pelvic

floor muscles. This has left me completely> clueless because I > don't know what else to try. I've been tested for> YI under the hood, > had blood work done for lyme and glucose, and have> been evaluated by a > PT. I'm on 600mg gabapentin each day along with> 10mg elavil. To make > matters worse, I had been feeling a little better> lately as I had been > avoiding the area and things were calming down a> bit- I was able to > live a semi-normal life, just no exercise, sex,> sitting for long > periods of time w/ pressure directly on the area,> and no tight jeans. > However, now after the PT exam and she pressed> directly on the area it > feels like I am going to flare again and will be> back at square one. I > would love to hear if you guys had any> thoughts/ideas as I am out.> >

__________________________________________________

[Guest guest]

Arline, I would like to get that test done, but I don't know if my doctor will go for it. I feel bad "insisting" on things to try/test for when he's the doctor but I feel that at this point we should be trying anything. I just don't want to p*** him off because I've been through about 5 doctors and he seems to be the most knowledgeable and caring around here because there is no one else to try without having to drive 2 or 3 hours. I'm also afraid to go try things on my own because if they come back showing something then I'll have to say "well i went behind your back and did this...." I mentioned pudendal nerve entrapment and he didn't seem to think that was my problem because he said with that you usually have pain on one side. However with all my research I know that is not always true, not to mention, since the clitoris is small and there are so many nerves I feel that it

would be difficult to feel pain on only one side. However he did mention possibly trying some nerve blocks, so wouldn't that mean pudendal neuralgia? Do I have to go through my doctor to get that gluten test? BABB wrote: You should consider that it is neuropathy--nervedamage--autoimmune attacks on your nerves there. If itisn't obvious disease,--infection, tumor, past injury,I would guess that you have some undiagnosed

problem(like most of us I think) that causes an attack onyour nervous system (and probably more).You might try a gluten sensitivity test athttp://www.Enterolab.com by mail at this lab with itsnew state of the art tests can test for glutensensitivity which attacks the nervous system. It isthe only one as far as I know that can diagnose thiskind of sensitivityand knows what they are doing. Theblood test the doctors give don't diagnose glutensensitivity.My extreme clitoral pain went away when I stoppedeating gluten and has never returned.I hope you find your answers.Arline--- emsuc02 <emsuc02> wrote:> I am very stumped about what could be causing my> clitoral pain. I went > to PT today for the first time and she did not think> my problem was my > pelvic

floor muscles. This has left me completely> clueless because I > don't know what else to try. I've been tested for> YI under the hood, > had blood work done for lyme and glucose, and have> been evaluated by a > PT. I'm on 600mg gabapentin each day along with> 10mg elavil. To make > matters worse, I had been feeling a little better> lately as I had been > avoiding the area and things were calming down a> bit- I was able to > live a semi-normal life, just no exercise, sex,> sitting for long > periods of time w/ pressure directly on the area,> and no tight jeans. > However, now after the PT exam and she pressed> directly on the area it > feels like I am going to flare again and will be> back at square one. I > would love to hear if you guys had any> thoughts/ideas as I am out.> >

__________________________________________________

[Guest guest]

Arline, I would like to get that test done, but I don't know if my doctor will go for it. I feel bad "insisting" on things to try/test for when he's the doctor but I feel that at this point we should be trying anything. I just don't want to p*** him off because I've been through about 5 doctors and he seems to be the most knowledgeable and caring around here because there is no one else to try without having to drive 2 or 3 hours. I'm also afraid to go try things on my own because if they come back showing something then I'll have to say "well i went behind your back and did this...." I mentioned pudendal nerve entrapment and he didn't seem to think that was my problem because he said with that you usually have pain on one side. However with all my research I know that is not always true, not to mention, since the clitoris is small and there are so many nerves I feel that it

would be difficult to feel pain on only one side. However he did mention possibly trying some nerve blocks, so wouldn't that mean pudendal neuralgia? Do I have to go through my doctor to get that gluten test? BABB wrote: You should consider that it is neuropathy--nervedamage--autoimmune attacks on your nerves there. If itisn't obvious disease,--infection, tumor, past injury,I would guess that you have some undiagnosed

problem(like most of us I think) that causes an attack onyour nervous system (and probably more).You might try a gluten sensitivity test athttp://www.Enterolab.com by mail at this lab with itsnew state of the art tests can test for glutensensitivity which attacks the nervous system. It isthe only one as far as I know that can diagnose thiskind of sensitivityand knows what they are doing. Theblood test the doctors give don't diagnose glutensensitivity.My extreme clitoral pain went away when I stoppedeating gluten and has never returned.I hope you find your answers.Arline--- emsuc02 <emsuc02> wrote:> I am very stumped about what could be causing my> clitoral pain. I went > to PT today for the first time and she did not think> my problem was my > pelvic

floor muscles. This has left me completely> clueless because I > don't know what else to try. I've been tested for> YI under the hood, > had blood work done for lyme and glucose, and have> been evaluated by a > PT. I'm on 600mg gabapentin each day along with> 10mg elavil. To make > matters worse, I had been feeling a little better> lately as I had been > avoiding the area and things were calming down a> bit- I was able to > live a semi-normal life, just no exercise, sex,> sitting for long > periods of time w/ pressure directly on the area,> and no tight jeans. > However, now after the PT exam and she pressed> directly on the area it > feels like I am going to flare again and will be> back at square one. I > would love to hear if you guys had any> thoughts/ideas as I am out.> >

__________________________________________________

[Guest guest]

,

I wouldn't push your doctor. He will just convince you

that it is an internet scheme or something like that.

There is so little correct information on this subject

and the blood tests they use are almost hopeless in

the doctors' offices.

I am glad you have a kind and caring doctor but I

doubt he knows much about this subject. You don't have

to go through him. You can order the test or tests

online yourself. THey will send you a packet of

material and instructions. If you have good insurance

you can submit it yourself to the insurance company

with the paperwork from Enterolab has given you if you

ask and hope they they reimburse you. If your

insurance is not so good you will have to swallow the

bill.

If money is a big problem just order the gluten

sensitivity test. That is the crucial one which will

tell you a lot. KNowing that you are sensitive to

gluten is a BIG DEAL.

To me " Pudendal Neuralgia " is one of those words to

make patients think they know what is wrong with

themselves. Neuralgia is a pain along a nerve.

Pudendal Neuralgia is a pain along the pudendal nerve.

Big whoop!!!! (Sorry, I hate these misleading words).

Wherever there is nerve pain there is something nasty

going on and the cause if possible should be found.

Neurologists are beginning to be told that all their

patients with neuropathy should be tested for gluten

sensitivity problems and that is the easiest,

cheapest, and most obvious thing to try right away

before one starts paying out a lot of money or getting

shot up with anything if they think it is going to do

any lasting good results. If you have pain, maybe a

nerve block will help but it won't solve the problem

because nobody knows what the problem is caused by.

One can get nerve blocks anywhere on the body and not

just for the pudendal nerve. Don't ask your doctor if

it is all right to take this test but wait until you

get the results and if it is positive, tell him. heh

heh heh!!

Gluten antibodies attack nerves--anywhere. (So does

milk but gluten is the important one). Some kind of

antibody is attacking your body. I think since it is

so easy to take this or these tests, that is where one

should start.

I had a dentist appointment this morning and there was

a forty year old man there waiting to have his

appointment. In April he had his forty year old

physical exam and was told he was all right. Since

then he has been sick and the doc told him not to

worry about it. Finally the doc discovered that his

blood tests had shown in April that he was having

kidney failure. He had a biopsy and was diagnosed with

IgA Nepropathy, a kind of kidney failure caused by

certain kinds of antibodies called IgA. Apparently

they tested him with more blood tests to see if he had

Celiac Disease and said he didn't. I am having a fit

as I know he needs to have these stool tests done at

enterolab or he will likely not be living five years

from now. He needs to find out what foods are causing

these IgA reactions and depositing it in his kidneys.

I told him, I hope he calls the lab and talks to the

doctor, but I am sure he is not well and is

overwhelmed. Who am I but an old hysterical lady (but

I do know a few things ;O). The stool tests at

Enterolab are life savers. If gluten is causing your

pain, you need to know it. Whatever is causing it, you

need to know it if possible. This is so easy. You

don't have to drive three or four hours, or submit to

anything if you don't want to right now.

So, after that little lecture, please consider

ordering the test for 99.00 plus postage and find out.

>then I'll have to say " well i went

> behind your back and did this.... " >

If the man is worth his medical degree he will be glad

you discovered it and try to learn something. You

aren't going behind anybody's back. This is your

life!!!! Not his. He doesn't have a reservation on

your attempts to stop your pain and get well. You

don't have to tell him anything. Sometimes it is

smarter not to tell them things but that is up to you.

He probably has some contract with labs that he has to

use and wouldn't be able to refer you to this anyway.

Whatever you decide I wish you well in your efforts to

solve this mystery that is so painful for you.

Arline

>

--- Sales wrote:

> Arline,

>

> I would like to get that test done, but I don't

> know if my doctor will go for it. I feel bad

> " insisting " on things to try/test for when he's the

> doctor but I feel that at this point we should be

> trying anything. I just don't want to p*** him off

> because I've been through about 5 doctors and he

> seems to be the most knowledgeable and caring around

> here because there is no one else to try without

> having to drive 2 or 3 hours. I'm also afraid to go

> try things on my own because if they come back

> showing something then I'll have to say " well i went

> behind your back and did this.... "

>

> I mentioned pudendal nerve entrapment and he

> didn't seem to think that was my problem because he

> said with that you usually have pain on one side.

> However with all my research I know that is not

> always true, not to mention, since the clitoris is

> small and there are so many nerves I feel that it

> would be difficult to feel pain on only one side.

> However he did mention possibly trying some nerve

> blocks, so wouldn't that mean pudendal neuralgia?

>

> Do I have to go through my doctor to get that

> gluten test?

__________________________________________________

[Guest guest]

,

I wouldn't push your doctor. He will just convince you

that it is an internet scheme or something like that.

There is so little correct information on this subject

and the blood tests they use are almost hopeless in

the doctors' offices.

I am glad you have a kind and caring doctor but I

doubt he knows much about this subject. You don't have

to go through him. You can order the test or tests

online yourself. THey will send you a packet of

material and instructions. If you have good insurance

you can submit it yourself to the insurance company

with the paperwork from Enterolab has given you if you

ask and hope they they reimburse you. If your

insurance is not so good you will have to swallow the

bill.

If money is a big problem just order the gluten

sensitivity test. That is the crucial one which will

tell you a lot. KNowing that you are sensitive to

gluten is a BIG DEAL.

To me " Pudendal Neuralgia " is one of those words to

make patients think they know what is wrong with

themselves. Neuralgia is a pain along a nerve.

Pudendal Neuralgia is a pain along the pudendal nerve.

Big whoop!!!! (Sorry, I hate these misleading words).

Wherever there is nerve pain there is something nasty

going on and the cause if possible should be found.

Neurologists are beginning to be told that all their

patients with neuropathy should be tested for gluten

sensitivity problems and that is the easiest,

cheapest, and most obvious thing to try right away

before one starts paying out a lot of money or getting

shot up with anything if they think it is going to do

any lasting good results. If you have pain, maybe a

nerve block will help but it won't solve the problem

because nobody knows what the problem is caused by.

One can get nerve blocks anywhere on the body and not

just for the pudendal nerve. Don't ask your doctor if

it is all right to take this test but wait until you

get the results and if it is positive, tell him. heh

heh heh!!

Gluten antibodies attack nerves--anywhere. (So does

milk but gluten is the important one). Some kind of

antibody is attacking your body. I think since it is

so easy to take this or these tests, that is where one

should start.

I had a dentist appointment this morning and there was

a forty year old man there waiting to have his

appointment. In April he had his forty year old

physical exam and was told he was all right. Since

then he has been sick and the doc told him not to

worry about it. Finally the doc discovered that his

blood tests had shown in April that he was having

kidney failure. He had a biopsy and was diagnosed with

IgA Nepropathy, a kind of kidney failure caused by

certain kinds of antibodies called IgA. Apparently

they tested him with more blood tests to see if he had

Celiac Disease and said he didn't. I am having a fit

as I know he needs to have these stool tests done at

enterolab or he will likely not be living five years

from now. He needs to find out what foods are causing

these IgA reactions and depositing it in his kidneys.

I told him, I hope he calls the lab and talks to the

doctor, but I am sure he is not well and is

overwhelmed. Who am I but an old hysterical lady (but

I do know a few things ;O). The stool tests at

Enterolab are life savers. If gluten is causing your

pain, you need to know it. Whatever is causing it, you

need to know it if possible. This is so easy. You

don't have to drive three or four hours, or submit to

anything if you don't want to right now.

So, after that little lecture, please consider

ordering the test for 99.00 plus postage and find out.

>then I'll have to say " well i went

> behind your back and did this.... " >

If the man is worth his medical degree he will be glad

you discovered it and try to learn something. You

aren't going behind anybody's back. This is your

life!!!! Not his. He doesn't have a reservation on

your attempts to stop your pain and get well. You

don't have to tell him anything. Sometimes it is

smarter not to tell them things but that is up to you.

He probably has some contract with labs that he has to

use and wouldn't be able to refer you to this anyway.

Whatever you decide I wish you well in your efforts to

solve this mystery that is so painful for you.

Arline

>

--- Sales wrote:

> Arline,

>

> I would like to get that test done, but I don't

> know if my doctor will go for it. I feel bad

> " insisting " on things to try/test for when he's the

> doctor but I feel that at this point we should be

> trying anything. I just don't want to p*** him off

> because I've been through about 5 doctors and he

> seems to be the most knowledgeable and caring around

> here because there is no one else to try without

> having to drive 2 or 3 hours. I'm also afraid to go

> try things on my own because if they come back

> showing something then I'll have to say " well i went

> behind your back and did this.... "

>

> I mentioned pudendal nerve entrapment and he

> didn't seem to think that was my problem because he

> said with that you usually have pain on one side.

> However with all my research I know that is not

> always true, not to mention, since the clitoris is

> small and there are so many nerves I feel that it

> would be difficult to feel pain on only one side.

> However he did mention possibly trying some nerve

> blocks, so wouldn't that mean pudendal neuralgia?

>

> Do I have to go through my doctor to get that

> gluten test?

__________________________________________________

[Guest guest]

,

I wouldn't push your doctor. He will just convince you

that it is an internet scheme or something like that.

There is so little correct information on this subject

and the blood tests they use are almost hopeless in

the doctors' offices.

I am glad you have a kind and caring doctor but I

doubt he knows much about this subject. You don't have

to go through him. You can order the test or tests

online yourself. THey will send you a packet of

material and instructions. If you have good insurance

you can submit it yourself to the insurance company

with the paperwork from Enterolab has given you if you

ask and hope they they reimburse you. If your

insurance is not so good you will have to swallow the

bill.

If money is a big problem just order the gluten

sensitivity test. That is the crucial one which will

tell you a lot. KNowing that you are sensitive to

gluten is a BIG DEAL.

To me " Pudendal Neuralgia " is one of those words to

make patients think they know what is wrong with

themselves. Neuralgia is a pain along a nerve.

Pudendal Neuralgia is a pain along the pudendal nerve.

Big whoop!!!! (Sorry, I hate these misleading words).

Wherever there is nerve pain there is something nasty

going on and the cause if possible should be found.

Neurologists are beginning to be told that all their

patients with neuropathy should be tested for gluten

sensitivity problems and that is the easiest,

cheapest, and most obvious thing to try right away

before one starts paying out a lot of money or getting

shot up with anything if they think it is going to do

any lasting good results. If you have pain, maybe a

nerve block will help but it won't solve the problem

because nobody knows what the problem is caused by.

One can get nerve blocks anywhere on the body and not

just for the pudendal nerve. Don't ask your doctor if

it is all right to take this test but wait until you

get the results and if it is positive, tell him. heh

heh heh!!

Gluten antibodies attack nerves--anywhere. (So does

milk but gluten is the important one). Some kind of

antibody is attacking your body. I think since it is

so easy to take this or these tests, that is where one

should start.

I had a dentist appointment this morning and there was

a forty year old man there waiting to have his

appointment. In April he had his forty year old

physical exam and was told he was all right. Since

then he has been sick and the doc told him not to

worry about it. Finally the doc discovered that his

blood tests had shown in April that he was having

kidney failure. He had a biopsy and was diagnosed with

IgA Nepropathy, a kind of kidney failure caused by

certain kinds of antibodies called IgA. Apparently

they tested him with more blood tests to see if he had

Celiac Disease and said he didn't. I am having a fit

as I know he needs to have these stool tests done at

enterolab or he will likely not be living five years

from now. He needs to find out what foods are causing

these IgA reactions and depositing it in his kidneys.

I told him, I hope he calls the lab and talks to the

doctor, but I am sure he is not well and is

overwhelmed. Who am I but an old hysterical lady (but

I do know a few things ;O). The stool tests at

Enterolab are life savers. If gluten is causing your

pain, you need to know it. Whatever is causing it, you

need to know it if possible. This is so easy. You

don't have to drive three or four hours, or submit to

anything if you don't want to right now.

So, after that little lecture, please consider

ordering the test for 99.00 plus postage and find out.

>then I'll have to say " well i went

> behind your back and did this.... " >

If the man is worth his medical degree he will be glad

you discovered it and try to learn something. You

aren't going behind anybody's back. This is your

life!!!! Not his. He doesn't have a reservation on

your attempts to stop your pain and get well. You

don't have to tell him anything. Sometimes it is

smarter not to tell them things but that is up to you.

He probably has some contract with labs that he has to

use and wouldn't be able to refer you to this anyway.

Whatever you decide I wish you well in your efforts to

solve this mystery that is so painful for you.

Arline

>

--- Sales wrote:

> Arline,

>

> I would like to get that test done, but I don't

> know if my doctor will go for it. I feel bad

> " insisting " on things to try/test for when he's the

> doctor but I feel that at this point we should be

> trying anything. I just don't want to p*** him off

> because I've been through about 5 doctors and he

> seems to be the most knowledgeable and caring around

> here because there is no one else to try without

> having to drive 2 or 3 hours. I'm also afraid to go

> try things on my own because if they come back

> showing something then I'll have to say " well i went

> behind your back and did this.... "

>

> I mentioned pudendal nerve entrapment and he

> didn't seem to think that was my problem because he

> said with that you usually have pain on one side.

> However with all my research I know that is not

> always true, not to mention, since the clitoris is

> small and there are so many nerves I feel that it

> would be difficult to feel pain on only one side.

> However he did mention possibly trying some nerve

> blocks, so wouldn't that mean pudendal neuralgia?

>

> Do I have to go through my doctor to get that

> gluten test?

__________________________________________________

[Guest guest]

Arline,

I've been reading some stuff online about leaky gut syndrome... and the stuff I read is interesting because it basically says leaky gut syndrome causes a lot of food allergies and intolerances... apparently, a whole lot of people have it and don't know it. I've never been tested either. It could be that's what was going on with the guy you mentioned below too....

does the gluten intolerance cause the leaky gut or the other way around?

I found this yesterday..

Leaky gut syndrome, or intestinal permeability, is a condition in which the intestinal lining is more permeable than normal, which means there are unusually large pores or spaces between the cells that make up the intestinal wall. This additional space allows toxic substances such as bacteria, viruses, parasites, and other harmful factors to enter the bloodstream and reach every part of the body. In a healthy gut, these toxins are eliminated.

One feature of leaky gut syndrome is that undigested fats and proteins can escape into the intestinal wall, resulting in allergic responses by the body. Food allergies develop from a leaky gut when the large protein molecules (from food with protein/amino acids) pass through the intestinal wall and are absorbed before they are completely metabolized. The immune system recognizes these proteins as invaders and creates antibodies against them. Eventually, whenever you eat that particular food, the body attacks the protein, and a food allergy is born.

Leady gut syndrome and the inflammation of the intestinal lining that accompanies it can be triggered by use of antibiotics, corticosteroids (e.g. prednisone), nonsteroidal anti-inflammatory drugs (NSAIDs, e.g. aspirin, ibuprofen), birth control pills, foods contaminated by parasites, molds, or bacteria (e.g., E. coli, Salmonella, Listeria), viruses (e.g., rotavirus, HIV), excessive intake of refined sugars, enzyme deficiency (e.g./ celiac disease), caffeine, alcohol, food additives, surgery, and a decrease in blood supply to the bowel. In the case of long-term use of antibiotics, for example, the good bacteria in the gut are destroyed, leaving the body's number one site for production of antibodies virtually unprotected. Incoming pathogen meet no resistance, and the resulting inflammation leads to leaky gut syndrome. Symptoms that often accompany leaky gut are intestinal cramps, diarrhea, constipation, fatigue, bloating, and gas.

A very common cause of GI injury is the use of NSAIDs. In a recent study, colostrum helped prevent GI injury in patients taking the NSAID indomethacin. This suggests that colostrum may also be effective in preventing GI damage caused by other NSAIDs, including aspirin and ibuprofen (e.g., Motrin, Advil).

Another feature of leaky gut syndrome and bowel inflammation is malabsorption of minerals, which leads to mineral deficiencies. These deficiencies occur because the special carrier proteins, which transport the minerals from your food and supplements from the intestine to the bloodstream, are damaged by the inflamed gut lining. A zinc deficiency caused by poor absorption, for example, can result in hair loss (alopecia areata), and magnesium deficiency is common among people with fibromyalgia, even when they take supplements of magnesium, because the gut allows the mineral to leak into the bloodstream. Mineral deficiencies can lead to osteoporosis, arthritis, heart disease, fatigue, memory loss, headache, inability to concentrate, and irritability.

The far arm of leaky gut syndrome reaches still further. The inflammation in the gut damages an immunoglobulin known as IgA, which works in the healthy gut to protect against infection. Without the help of IgA, pathogens can escape into the bloodstream and infect any part of the body. An overstressed liver can result in confusion, loss of concentration, and other mental and cognitive problems.

The article goes on to recommend something called Colustrum for leaky gut.

Any of you have this?

Re: Need some ideas about clitoral pain

,I wouldn't push your doctor. He will just convince youthat it is an internet scheme or something like that.There is so little correct information on this subjectand the blood tests they use are almost hopeless inthe doctors' offices.I am glad you have a kind and caring doctor but Idoubt he knows much about this subject. You don't haveto go through him. You can order the test or testsonline yourself. THey will send you a packet ofmaterial and instructions. If you have good insuranceyou can submit it yourself to the insurance companywith the paperwork from Enterolab has given you if youask and hope they they reimburse you. If yourinsurance is not so good you will have to swallow thebill.If money is a big problem just order the glutensensitivity test. That is the crucial one which willtell you a lot. KNowing that you are sensitive togluten is a BIG DEAL.To me "Pudendal Neuralgia" is one of those words tomake patients think they know what is wrong withthemselves. Neuralgia is a pain along a nerve.Pudendal Neuralgia is a pain along the pudendal nerve.Big whoop!!!! (Sorry, I hate these misleading words).Wherever there is nerve pain there is something nastygoing on and the cause if possible should be found.Neurologists are beginning to be told that all theirpatients with neuropathy should be tested for glutensensitivity problems and that is the easiest,cheapest, and most obvious thing to try right awaybefore one starts paying out a lot of money or gettingshot up with anything if they think it is going to doany lasting good results. If you have pain, maybe anerve block will help but it won't solve the problembecause nobody knows what the problem is caused by.One can get nerve blocks anywhere on the body and notjust for the pudendal nerve. Don't ask your doctor ifit is all right to take this test but wait until youget the results and if it is positive, tell him. hehheh heh!!Gluten antibodies attack nerves--anywhere. (So doesmilk but gluten is the important one). Some kind ofantibody is attacking your body. I think since it isso easy to take this or these tests, that is where oneshould start.I had a dentist appointment this morning and there wasa forty year old man there waiting to have hisappointment. In April he had his forty year oldphysical exam and was told he was all right. Sincethen he has been sick and the doc told him not toworry about it. Finally the doc discovered that hisblood tests had shown in April that he was havingkidney failure. He had a biopsy and was diagnosed withIgA Nepropathy, a kind of kidney failure caused bycertain kinds of antibodies called IgA. Apparentlythey tested him with more blood tests to see if he hadCeliac Disease and said he didn't. I am having a fitas I know he needs to have these stool tests done atenterolab or he will likely not be living five yearsfrom now. He needs to find out what foods are causingthese IgA reactions and depositing it in his kidneys.I told him, I hope he calls the lab and talks to thedoctor, but I am sure he is not well and isoverwhelmed. Who am I but an old hysterical lady (butI do know a few things ;O). The stool tests atEnterolab are life savers. If gluten is causing yourpain, you need to know it. Whatever is causing it, youneed to know it if possible. This is so easy. Youdon't have to drive three or four hours, or submit toanything if you don't want to right now.So, after that little lecture, please considerordering the test for 99.00 plus postage and find out.>then I'll have to say "well i went> behind your back and did this....">If the man is worth his medical degree he will be gladyou discovered it and try to learn something. Youaren't going behind anybody's back. This is yourlife!!!! Not his. He doesn't have a reservation onyour attempts to stop your pain and get well. Youdon't have to tell him anything. Sometimes it issmarter not to tell them things but that is up to you.He probably has some contract with labs that he has touse and wouldn't be able to refer you to this anyway.Whatever you decide I wish you well in your efforts tosolve this mystery that is so painful for you.Arline> --- Sales <emsuc02> wrote:> Arline,> > I would like to get that test done, but I don't> know if my doctor will go for it. I feel bad> "insisting" on things to try/test for when he's the> doctor but I feel that at this point we should be> trying anything. I just don't want to p*** him off> because I've been through about 5 doctors and he> seems to be the most knowledgeable and caring around> here because there is no one else to try without> having to drive 2 or 3 hours. I'm also afraid to go> try things on my own because if they come back> showing something then I'll have to say "well i went> behind your back and did this...."> > I mentioned pudendal nerve entrapment and he> didn't seem to think that was my problem because he> said with that you usually have pain on one side. > However with all my research I know that is not> always true, not to mention, since the clitoris is> small and there are so many nerves I feel that it> would be difficult to feel pain on only one side. > However he did mention possibly trying some nerve> blocks, so wouldn't that mean pudendal neuralgia?> > Do I have to go through my doctor to get that> gluten test? __________________________________________________

[Guest guest]

Arline,

I've been reading some stuff online about leaky gut syndrome... and the stuff I read is interesting because it basically says leaky gut syndrome causes a lot of food allergies and intolerances... apparently, a whole lot of people have it and don't know it. I've never been tested either. It could be that's what was going on with the guy you mentioned below too....

does the gluten intolerance cause the leaky gut or the other way around?

I found this yesterday..

Leaky gut syndrome, or intestinal permeability, is a condition in which the intestinal lining is more permeable than normal, which means there are unusually large pores or spaces between the cells that make up the intestinal wall. This additional space allows toxic substances such as bacteria, viruses, parasites, and other harmful factors to enter the bloodstream and reach every part of the body. In a healthy gut, these toxins are eliminated.

One feature of leaky gut syndrome is that undigested fats and proteins can escape into the intestinal wall, resulting in allergic responses by the body. Food allergies develop from a leaky gut when the large protein molecules (from food with protein/amino acids) pass through the intestinal wall and are absorbed before they are completely metabolized. The immune system recognizes these proteins as invaders and creates antibodies against them. Eventually, whenever you eat that particular food, the body attacks the protein, and a food allergy is born.

Leady gut syndrome and the inflammation of the intestinal lining that accompanies it can be triggered by use of antibiotics, corticosteroids (e.g. prednisone), nonsteroidal anti-inflammatory drugs (NSAIDs, e.g. aspirin, ibuprofen), birth control pills, foods contaminated by parasites, molds, or bacteria (e.g., E. coli, Salmonella, Listeria), viruses (e.g., rotavirus, HIV), excessive intake of refined sugars, enzyme deficiency (e.g./ celiac disease), caffeine, alcohol, food additives, surgery, and a decrease in blood supply to the bowel. In the case of long-term use of antibiotics, for example, the good bacteria in the gut are destroyed, leaving the body's number one site for production of antibodies virtually unprotected. Incoming pathogen meet no resistance, and the resulting inflammation leads to leaky gut syndrome. Symptoms that often accompany leaky gut are intestinal cramps, diarrhea, constipation, fatigue, bloating, and gas.

A very common cause of GI injury is the use of NSAIDs. In a recent study, colostrum helped prevent GI injury in patients taking the NSAID indomethacin. This suggests that colostrum may also be effective in preventing GI damage caused by other NSAIDs, including aspirin and ibuprofen (e.g., Motrin, Advil).

Another feature of leaky gut syndrome and bowel inflammation is malabsorption of minerals, which leads to mineral deficiencies. These deficiencies occur because the special carrier proteins, which transport the minerals from your food and supplements from the intestine to the bloodstream, are damaged by the inflamed gut lining. A zinc deficiency caused by poor absorption, for example, can result in hair loss (alopecia areata), and magnesium deficiency is common among people with fibromyalgia, even when they take supplements of magnesium, because the gut allows the mineral to leak into the bloodstream. Mineral deficiencies can lead to osteoporosis, arthritis, heart disease, fatigue, memory loss, headache, inability to concentrate, and irritability.

The far arm of leaky gut syndrome reaches still further. The inflammation in the gut damages an immunoglobulin known as IgA, which works in the healthy gut to protect against infection. Without the help of IgA, pathogens can escape into the bloodstream and infect any part of the body. An overstressed liver can result in confusion, loss of concentration, and other mental and cognitive problems.

The article goes on to recommend something called Colustrum for leaky gut.

Any of you have this?

Re: Need some ideas about clitoral pain

,I wouldn't push your doctor. He will just convince youthat it is an internet scheme or something like that.There is so little correct information on this subjectand the blood tests they use are almost hopeless inthe doctors' offices.I am glad you have a kind and caring doctor but Idoubt he knows much about this subject. You don't haveto go through him. You can order the test or testsonline yourself. THey will send you a packet ofmaterial and instructions. If you have good insuranceyou can submit it yourself to the insurance companywith the paperwork from Enterolab has given you if youask and hope they they reimburse you. If yourinsurance is not so good you will have to swallow thebill.If money is a big problem just order the glutensensitivity test. That is the crucial one which willtell you a lot. KNowing that you are sensitive togluten is a BIG DEAL.To me "Pudendal Neuralgia" is one of those words tomake patients think they know what is wrong withthemselves. Neuralgia is a pain along a nerve.Pudendal Neuralgia is a pain along the pudendal nerve.Big whoop!!!! (Sorry, I hate these misleading words).Wherever there is nerve pain there is something nastygoing on and the cause if possible should be found.Neurologists are beginning to be told that all theirpatients with neuropathy should be tested for glutensensitivity problems and that is the easiest,cheapest, and most obvious thing to try right awaybefore one starts paying out a lot of money or gettingshot up with anything if they think it is going to doany lasting good results. If you have pain, maybe anerve block will help but it won't solve the problembecause nobody knows what the problem is caused by.One can get nerve blocks anywhere on the body and notjust for the pudendal nerve. Don't ask your doctor ifit is all right to take this test but wait until youget the results and if it is positive, tell him. hehheh heh!!Gluten antibodies attack nerves--anywhere. (So doesmilk but gluten is the important one). Some kind ofantibody is attacking your body. I think since it isso easy to take this or these tests, that is where oneshould start.I had a dentist appointment this morning and there wasa forty year old man there waiting to have hisappointment. In April he had his forty year oldphysical exam and was told he was all right. Sincethen he has been sick and the doc told him not toworry about it. Finally the doc discovered that hisblood tests had shown in April that he was havingkidney failure. He had a biopsy and was diagnosed withIgA Nepropathy, a kind of kidney failure caused bycertain kinds of antibodies called IgA. Apparentlythey tested him with more blood tests to see if he hadCeliac Disease and said he didn't. I am having a fitas I know he needs to have these stool tests done atenterolab or he will likely not be living five yearsfrom now. He needs to find out what foods are causingthese IgA reactions and depositing it in his kidneys.I told him, I hope he calls the lab and talks to thedoctor, but I am sure he is not well and isoverwhelmed. Who am I but an old hysterical lady (butI do know a few things ;O). The stool tests atEnterolab are life savers. If gluten is causing yourpain, you need to know it. Whatever is causing it, youneed to know it if possible. This is so easy. Youdon't have to drive three or four hours, or submit toanything if you don't want to right now.So, after that little lecture, please considerordering the test for 99.00 plus postage and find out.>then I'll have to say "well i went> behind your back and did this....">If the man is worth his medical degree he will be gladyou discovered it and try to learn something. Youaren't going behind anybody's back. This is yourlife!!!! Not his. He doesn't have a reservation onyour attempts to stop your pain and get well. Youdon't have to tell him anything. Sometimes it issmarter not to tell them things but that is up to you.He probably has some contract with labs that he has touse and wouldn't be able to refer you to this anyway.Whatever you decide I wish you well in your efforts tosolve this mystery that is so painful for you.Arline> --- Sales <emsuc02> wrote:> Arline,> > I would like to get that test done, but I don't> know if my doctor will go for it. I feel bad> "insisting" on things to try/test for when he's the> doctor but I feel that at this point we should be> trying anything. I just don't want to p*** him off> because I've been through about 5 doctors and he> seems to be the most knowledgeable and caring around> here because there is no one else to try without> having to drive 2 or 3 hours. I'm also afraid to go> try things on my own because if they come back> showing something then I'll have to say "well i went> behind your back and did this...."> > I mentioned pudendal nerve entrapment and he> didn't seem to think that was my problem because he> said with that you usually have pain on one side. > However with all my research I know that is not> always true, not to mention, since the clitoris is> small and there are so many nerves I feel that it> would be difficult to feel pain on only one side. > However he did mention possibly trying some nerve> blocks, so wouldn't that mean pudendal neuralgia?> > Do I have to go through my doctor to get that> gluten test? __________________________________________________

[Guest guest]

Arline,

I've been reading some stuff online about leaky gut syndrome... and the stuff I read is interesting because it basically says leaky gut syndrome causes a lot of food allergies and intolerances... apparently, a whole lot of people have it and don't know it. I've never been tested either. It could be that's what was going on with the guy you mentioned below too....

does the gluten intolerance cause the leaky gut or the other way around?

I found this yesterday..

Leaky gut syndrome, or intestinal permeability, is a condition in which the intestinal lining is more permeable than normal, which means there are unusually large pores or spaces between the cells that make up the intestinal wall. This additional space allows toxic substances such as bacteria, viruses, parasites, and other harmful factors to enter the bloodstream and reach every part of the body. In a healthy gut, these toxins are eliminated.

One feature of leaky gut syndrome is that undigested fats and proteins can escape into the intestinal wall, resulting in allergic responses by the body. Food allergies develop from a leaky gut when the large protein molecules (from food with protein/amino acids) pass through the intestinal wall and are absorbed before they are completely metabolized. The immune system recognizes these proteins as invaders and creates antibodies against them. Eventually, whenever you eat that particular food, the body attacks the protein, and a food allergy is born.

Leady gut syndrome and the inflammation of the intestinal lining that accompanies it can be triggered by use of antibiotics, corticosteroids (e.g. prednisone), nonsteroidal anti-inflammatory drugs (NSAIDs, e.g. aspirin, ibuprofen), birth control pills, foods contaminated by parasites, molds, or bacteria (e.g., E. coli, Salmonella, Listeria), viruses (e.g., rotavirus, HIV), excessive intake of refined sugars, enzyme deficiency (e.g./ celiac disease), caffeine, alcohol, food additives, surgery, and a decrease in blood supply to the bowel. In the case of long-term use of antibiotics, for example, the good bacteria in the gut are destroyed, leaving the body's number one site for production of antibodies virtually unprotected. Incoming pathogen meet no resistance, and the resulting inflammation leads to leaky gut syndrome. Symptoms that often accompany leaky gut are intestinal cramps, diarrhea, constipation, fatigue, bloating, and gas.

A very common cause of GI injury is the use of NSAIDs. In a recent study, colostrum helped prevent GI injury in patients taking the NSAID indomethacin. This suggests that colostrum may also be effective in preventing GI damage caused by other NSAIDs, including aspirin and ibuprofen (e.g., Motrin, Advil).

Another feature of leaky gut syndrome and bowel inflammation is malabsorption of minerals, which leads to mineral deficiencies. These deficiencies occur because the special carrier proteins, which transport the minerals from your food and supplements from the intestine to the bloodstream, are damaged by the inflamed gut lining. A zinc deficiency caused by poor absorption, for example, can result in hair loss (alopecia areata), and magnesium deficiency is common among people with fibromyalgia, even when they take supplements of magnesium, because the gut allows the mineral to leak into the bloodstream. Mineral deficiencies can lead to osteoporosis, arthritis, heart disease, fatigue, memory loss, headache, inability to concentrate, and irritability.

The far arm of leaky gut syndrome reaches still further. The inflammation in the gut damages an immunoglobulin known as IgA, which works in the healthy gut to protect against infection. Without the help of IgA, pathogens can escape into the bloodstream and infect any part of the body. An overstressed liver can result in confusion, loss of concentration, and other mental and cognitive problems.

The article goes on to recommend something called Colustrum for leaky gut.

Any of you have this?

Re: Need some ideas about clitoral pain

,I wouldn't push your doctor. He will just convince youthat it is an internet scheme or something like that.There is so little correct information on this subjectand the blood tests they use are almost hopeless inthe doctors' offices.I am glad you have a kind and caring doctor but Idoubt he knows much about this subject. You don't haveto go through him. You can order the test or testsonline yourself. THey will send you a packet ofmaterial and instructions. If you have good insuranceyou can submit it yourself to the insurance companywith the paperwork from Enterolab has given you if youask and hope they they reimburse you. If yourinsurance is not so good you will have to swallow thebill.If money is a big problem just order the glutensensitivity test. That is the crucial one which willtell you a lot. KNowing that you are sensitive togluten is a BIG DEAL.To me "Pudendal Neuralgia" is one of those words tomake patients think they know what is wrong withthemselves. Neuralgia is a pain along a nerve.Pudendal Neuralgia is a pain along the pudendal nerve.Big whoop!!!! (Sorry, I hate these misleading words).Wherever there is nerve pain there is something nastygoing on and the cause if possible should be found.Neurologists are beginning to be told that all theirpatients with neuropathy should be tested for glutensensitivity problems and that is the easiest,cheapest, and most obvious thing to try right awaybefore one starts paying out a lot of money or gettingshot up with anything if they think it is going to doany lasting good results. If you have pain, maybe anerve block will help but it won't solve the problembecause nobody knows what the problem is caused by.One can get nerve blocks anywhere on the body and notjust for the pudendal nerve. Don't ask your doctor ifit is all right to take this test but wait until youget the results and if it is positive, tell him. hehheh heh!!Gluten antibodies attack nerves--anywhere. (So doesmilk but gluten is the important one). Some kind ofantibody is attacking your body. I think since it isso easy to take this or these tests, that is where oneshould start.I had a dentist appointment this morning and there wasa forty year old man there waiting to have hisappointment. In April he had his forty year oldphysical exam and was told he was all right. Sincethen he has been sick and the doc told him not toworry about it. Finally the doc discovered that hisblood tests had shown in April that he was havingkidney failure. He had a biopsy and was diagnosed withIgA Nepropathy, a kind of kidney failure caused bycertain kinds of antibodies called IgA. Apparentlythey tested him with more blood tests to see if he hadCeliac Disease and said he didn't. I am having a fitas I know he needs to have these stool tests done atenterolab or he will likely not be living five yearsfrom now. He needs to find out what foods are causingthese IgA reactions and depositing it in his kidneys.I told him, I hope he calls the lab and talks to thedoctor, but I am sure he is not well and isoverwhelmed. Who am I but an old hysterical lady (butI do know a few things ;O). The stool tests atEnterolab are life savers. If gluten is causing yourpain, you need to know it. Whatever is causing it, youneed to know it if possible. This is so easy. Youdon't have to drive three or four hours, or submit toanything if you don't want to right now.So, after that little lecture, please considerordering the test for 99.00 plus postage and find out.>then I'll have to say "well i went> behind your back and did this....">If the man is worth his medical degree he will be gladyou discovered it and try to learn something. Youaren't going behind anybody's back. This is yourlife!!!! Not his. He doesn't have a reservation onyour attempts to stop your pain and get well. Youdon't have to tell him anything. Sometimes it issmarter not to tell them things but that is up to you.He probably has some contract with labs that he has touse and wouldn't be able to refer you to this anyway.Whatever you decide I wish you well in your efforts tosolve this mystery that is so painful for you.Arline> --- Sales <emsuc02> wrote:> Arline,> > I would like to get that test done, but I don't> know if my doctor will go for it. I feel bad> "insisting" on things to try/test for when he's the> doctor but I feel that at this point we should be> trying anything. I just don't want to p*** him off> because I've been through about 5 doctors and he> seems to be the most knowledgeable and caring around> here because there is no one else to try without> having to drive 2 or 3 hours. I'm also afraid to go> try things on my own because if they come back> showing something then I'll have to say "well i went> behind your back and did this...."> > I mentioned pudendal nerve entrapment and he> didn't seem to think that was my problem because he> said with that you usually have pain on one side. > However with all my research I know that is not> always true, not to mention, since the clitoris is> small and there are so many nerves I feel that it> would be difficult to feel pain on only one side. > However he did mention possibly trying some nerve> blocks, so wouldn't that mean pudendal neuralgia?> > Do I have to go through my doctor to get that> gluten test? __________________________________________________

[Guest guest]

Arline, Thanks for the reassurance and encouragement Getting the enterolab test is definitely on the top of my list of things to try. I had seen some of what you were writing a few weeks ago about it and did check out their website. My questions are: Which test would you think would be the best to have done? I tried figuring it out myself but didn't really understand everything- I figured you have a little bit more knowledge about the different tests???.... Would the results come to me or have to go to a doctor? Would I be able to understand the results if it came to me? If the test came back positive, what would that mean? Simply changing my diet to try to eliminate the bad stuff???? Hopefully you can help me understand it a little better. By the way, what was your

clitoral pain like? Mine is more with sitting with pressure directly on the area and feels like an aching/sore feeling kind of like something is gently squeezing it. When I describe it like that, to me, it sounds like some kind of nerve entrapment or something....however my doc doesn't seem to think so.....who the heck knows. Thank you! Berry Home wrote: Arline, I've been reading some stuff online about leaky gut syndrome... and the stuff I read is interesting because it basically says leaky gut syndrome causes a lot of food allergies and intolerances... apparently, a whole lot of people have it and don't know it. I've never been tested either. It could be that's what was going on with the guy you mentioned below too.... does the gluten intolerance cause the leaky gut or the other way around? I found this yesterday.. Leaky gut syndrome, or intestinal permeability, is a condition in which the intestinal lining is more permeable than normal, which means there are unusually large pores or spaces between the cells that make up the intestinal wall. This additional space allows toxic substances such as bacteria, viruses,

parasites, and other harmful factors to enter the bloodstream and reach every part of the body. In a healthy gut, these toxins are eliminated. One feature of leaky gut syndrome is that undigested fats and proteins can escape into the intestinal wall, resulting in allergic responses by the body. Food allergies develop from a leaky gut when the large protein molecules (from food with protein/amino acids) pass through the intestinal wall and are absorbed before they are completely metabolized. The immune system recognizes these proteins as invaders and creates antibodies against them. Eventually, whenever you eat that particular food, the body attacks the protein, and a food allergy is born. Leady gut syndrome and the inflammation of the intestinal lining that accompanies it can be triggered by use of antibiotics, corticosteroids (e.g. prednisone), nonsteroidal anti-inflammatory drugs

(NSAIDs, e.g. aspirin, ibuprofen), birth control pills, foods contaminated by parasites, molds, or bacteria (e.g., E. coli, Salmonella, Listeria), viruses (e.g., rotavirus, HIV), excessive intake of refined sugars, enzyme deficiency (e.g./ celiac disease), caffeine, alcohol, food additives, surgery, and a decrease in blood supply to the bowel. In the case of long-term use of antibiotics, for example, the good bacteria in the gut are destroyed, leaving the body's number one site for production of antibodies virtually unprotected. Incoming pathogen meet no resistance, and the resulting inflammation leads to leaky gut syndrome. Symptoms that often accompany leaky gut are intestinal cramps, diarrhea, constipation, fatigue, bloating, and gas. A very common cause of GI injury is the use of NSAIDs. In a recent study, colostrum helped prevent GI injury in patients taking the NSAID indomethacin. This suggests that

colostrum may also be effective in preventing GI damage caused by other NSAIDs, including aspirin and ibuprofen (e.g., Motrin, Advil). Another feature of leaky gut syndrome and bowel inflammation is malabsorption of minerals, which leads to mineral deficiencies. These deficiencies occur because the special carrier proteins, which transport the minerals from your food and supplements from the intestine to the bloodstream, are damaged by the inflamed gut lining. A zinc deficiency caused by poor absorption, for example, can result in hair loss (alopecia areata), and magnesium deficiency is common among people with fibromyalgia, even when they take supplements of magnesium, because the gut allows the mineral to leak into the bloodstream. Mineral deficiencies can lead to osteoporosis, arthritis, heart disease, fatigue, memory loss, headache, inability to concentrate, and irritability. The far arm

of leaky gut syndrome reaches still further. The inflammation in the gut damages an immunoglobulin known as IgA, which works in the healthy gut to protect against infection. Without the help of IgA, pathogens can escape into the bloodstream and infect any part of the body. An overstressed liver can result in confusion, loss of concentration, and other mental and cognitive problems. The article goes on to recommend something called Colustrum for leaky gut. Any of you have this? Re: Need some ideas about clitoral pain ,I wouldn't push your doctor. He will just convince youthat it is an internet scheme or something like that.There is so little correct information on this subjectand the blood tests they use are almost hopeless inthe doctors' offices.I am glad you have a kind and caring doctor but Idoubt he knows much about this subject. You don't haveto go through him. You can order the test or testsonline yourself. THey will send you a packet ofmaterial and instructions. If you have good insuranceyou can submit it yourself to the insurance

companywith the paperwork from Enterolab has given you if youask and hope they they reimburse you. If yourinsurance is not so good you will have to swallow thebill.If money is a big problem just order the glutensensitivity test. That is the crucial one which willtell you a lot. KNowing that you are sensitive togluten is a BIG DEAL.To me "Pudendal Neuralgia" is one of those words tomake patients think they know what is wrong withthemselves. Neuralgia is a pain along a nerve.Pudendal Neuralgia is a pain along the pudendal nerve.Big whoop!!!! (Sorry, I hate these misleading words).Wherever there is nerve pain there is something nastygoing on and the cause if possible should be found.Neurologists are beginning to be told that all theirpatients with neuropathy should be tested for glutensensitivity problems and that is the easiest,cheapest, and most obvious thing to try right awaybefore one

starts paying out a lot of money or gettingshot up with anything if they think it is going to doany lasting good results. If you have pain, maybe anerve block will help but it won't solve the problembecause nobody knows what the problem is caused by.One can get nerve blocks anywhere on the body and notjust for the pudendal nerve. Don't ask your doctor ifit is all right to take this test but wait until youget the results and if it is positive, tell him. hehheh heh!!Gluten antibodies attack nerves--anywhere. (So doesmilk but gluten is the important one). Some kind ofantibody is attacking your body. I think since it isso easy to take this or these tests, that is where oneshould start.I had a dentist appointment this morning and there wasa forty year old man there waiting to have hisappointment. In April he had his forty year oldphysical exam and was told he was all right. Sincethen he has been

sick and the doc told him not toworry about it. Finally the doc discovered that hisblood tests had shown in April that he was havingkidney failure. He had a biopsy and was diagnosed withIgA Nepropathy, a kind of kidney failure caused bycertain kinds of antibodies called IgA. Apparentlythey tested him with more blood tests to see if he hadCeliac Disease and said he didn't. I am having a fitas I know he needs to have these stool tests done atenterolab or he will likely not be living five yearsfrom now. He needs to find out what foods are causingthese IgA reactions and depositing it in his kidneys.I told him, I hope he calls the lab and talks to thedoctor, but I am sure he is not well and isoverwhelmed. Who am I but an old hysterical lady (butI do know a few things ;O). The stool tests atEnterolab are life savers. If gluten is causing yourpain, you need to know it. Whatever is causing it, youneed to know

it if possible. This is so easy. Youdon't have to drive three or four hours, or submit toanything if you don't want to right now.So, after that little lecture, please considerordering the test for 99.00 plus postage and find out.>then I'll have to say "well i went> behind your back and did this....">If the man is worth his medical degree he will be gladyou discovered it and try to learn something. Youaren't going behind anybody's back. This is yourlife!!!! Not his. He doesn't have a reservation onyour attempts to stop your pain and get well. Youdon't have to tell him anything. Sometimes it issmarter not to tell them things but that is up to you.He probably has some contract with labs that he has touse and wouldn't be able to refer you to this anyway.Whatever you decide I wish you well in your efforts tosolve this mystery that is so painful for you.Arline>

--- Sales <emsuc02> wrote:> Arline,> > I would like to get that test done, but I don't> know if my doctor will go for it. I feel bad> "insisting" on things to try/test for when he's the> doctor but I feel that at this point we should be> trying anything. I just don't want to p*** him off> because I've been through about 5 doctors and he> seems to be the most knowledgeable and caring around> here because there is no one else to try without> having to drive 2 or 3 hours. I'm also afraid to go> try things on my own because if they come back> showing something then I'll have to say "well i went> behind your back and did this...."> > I mentioned pudendal nerve entrapment and he> didn't seem to think that was my problem because he> said with that you usually have pain on one

side. > However with all my research I know that is not> always true, not to mention, since the clitoris is> small and there are so many nerves I feel that it> would be difficult to feel pain on only one side. > However he did mention possibly trying some nerve> blocks, so wouldn't that mean pudendal neuralgia?> > Do I have to go through my doctor to get that> gluten test? __________________________________________________

[Guest guest]

Arline, Thanks for the reassurance and encouragement Getting the enterolab test is definitely on the top of my list of things to try. I had seen some of what you were writing a few weeks ago about it and did check out their website. My questions are: Which test would you think would be the best to have done? I tried figuring it out myself but didn't really understand everything- I figured you have a little bit more knowledge about the different tests???.... Would the results come to me or have to go to a doctor? Would I be able to understand the results if it came to me? If the test came back positive, what would that mean? Simply changing my diet to try to eliminate the bad stuff???? Hopefully you can help me understand it a little better. By the way, what was your

clitoral pain like? Mine is more with sitting with pressure directly on the area and feels like an aching/sore feeling kind of like something is gently squeezing it. When I describe it like that, to me, it sounds like some kind of nerve entrapment or something....however my doc doesn't seem to think so.....who the heck knows. Thank you! Berry Home wrote: Arline, I've been reading some stuff online about leaky gut syndrome... and the stuff I read is interesting because it basically says leaky gut syndrome causes a lot of food allergies and intolerances... apparently, a whole lot of people have it and don't know it. I've never been tested either. It could be that's what was going on with the guy you mentioned below too.... does the gluten intolerance cause the leaky gut or the other way around? I found this yesterday.. Leaky gut syndrome, or intestinal permeability, is a condition in which the intestinal lining is more permeable than normal, which means there are unusually large pores or spaces between the cells that make up the intestinal wall. This additional space allows toxic substances such as bacteria, viruses,

parasites, and other harmful factors to enter the bloodstream and reach every part of the body. In a healthy gut, these toxins are eliminated. One feature of leaky gut syndrome is that undigested fats and proteins can escape into the intestinal wall, resulting in allergic responses by the body. Food allergies develop from a leaky gut when the large protein molecules (from food with protein/amino acids) pass through the intestinal wall and are absorbed before they are completely metabolized. The immune system recognizes these proteins as invaders and creates antibodies against them. Eventually, whenever you eat that particular food, the body attacks the protein, and a food allergy is born. Leady gut syndrome and the inflammation of the intestinal lining that accompanies it can be triggered by use of antibiotics, corticosteroids (e.g. prednisone), nonsteroidal anti-inflammatory drugs

(NSAIDs, e.g. aspirin, ibuprofen), birth control pills, foods contaminated by parasites, molds, or bacteria (e.g., E. coli, Salmonella, Listeria), viruses (e.g., rotavirus, HIV), excessive intake of refined sugars, enzyme deficiency (e.g./ celiac disease), caffeine, alcohol, food additives, surgery, and a decrease in blood supply to the bowel. In the case of long-term use of antibiotics, for example, the good bacteria in the gut are destroyed, leaving the body's number one site for production of antibodies virtually unprotected. Incoming pathogen meet no resistance, and the resulting inflammation leads to leaky gut syndrome. Symptoms that often accompany leaky gut are intestinal cramps, diarrhea, constipation, fatigue, bloating, and gas. A very common cause of GI injury is the use of NSAIDs. In a recent study, colostrum helped prevent GI injury in patients taking the NSAID indomethacin. This suggests that

colostrum may also be effective in preventing GI damage caused by other NSAIDs, including aspirin and ibuprofen (e.g., Motrin, Advil). Another feature of leaky gut syndrome and bowel inflammation is malabsorption of minerals, which leads to mineral deficiencies. These deficiencies occur because the special carrier proteins, which transport the minerals from your food and supplements from the intestine to the bloodstream, are damaged by the inflamed gut lining. A zinc deficiency caused by poor absorption, for example, can result in hair loss (alopecia areata), and magnesium deficiency is common among people with fibromyalgia, even when they take supplements of magnesium, because the gut allows the mineral to leak into the bloodstream. Mineral deficiencies can lead to osteoporosis, arthritis, heart disease, fatigue, memory loss, headache, inability to concentrate, and irritability. The far arm

of leaky gut syndrome reaches still further. The inflammation in the gut damages an immunoglobulin known as IgA, which works in the healthy gut to protect against infection. Without the help of IgA, pathogens can escape into the bloodstream and infect any part of the body. An overstressed liver can result in confusion, loss of concentration, and other mental and cognitive problems. The article goes on to recommend something called Colustrum for leaky gut. Any of you have this? Re: Need some ideas about clitoral pain ,I wouldn't push your doctor. He will just convince youthat it is an internet scheme or something like that.There is so little correct information on this subjectand the blood tests they use are almost hopeless inthe doctors' offices.I am glad you have a kind and caring doctor but Idoubt he knows much about this subject. You don't haveto go through him. You can order the test or testsonline yourself. THey will send you a packet ofmaterial and instructions. If you have good insuranceyou can submit it yourself to the insurance

companywith the paperwork from Enterolab has given you if youask and hope they they reimburse you. If yourinsurance is not so good you will have to swallow thebill.If money is a big problem just order the glutensensitivity test. That is the crucial one which willtell you a lot. KNowing that you are sensitive togluten is a BIG DEAL.To me "Pudendal Neuralgia" is one of those words tomake patients think they know what is wrong withthemselves. Neuralgia is a pain along a nerve.Pudendal Neuralgia is a pain along the pudendal nerve.Big whoop!!!! (Sorry, I hate these misleading words).Wherever there is nerve pain there is something nastygoing on and the cause if possible should be found.Neurologists are beginning to be told that all theirpatients with neuropathy should be tested for glutensensitivity problems and that is the easiest,cheapest, and most obvious thing to try right awaybefore one

starts paying out a lot of money or gettingshot up with anything if they think it is going to doany lasting good results. If you have pain, maybe anerve block will help but it won't solve the problembecause nobody knows what the problem is caused by.One can get nerve blocks anywhere on the body and notjust for the pudendal nerve. Don't ask your doctor ifit is all right to take this test but wait until youget the results and if it is positive, tell him. hehheh heh!!Gluten antibodies attack nerves--anywhere. (So doesmilk but gluten is the important one). Some kind ofantibody is attacking your body. I think since it isso easy to take this or these tests, that is where oneshould start.I had a dentist appointment this morning and there wasa forty year old man there waiting to have hisappointment. In April he had his forty year oldphysical exam and was told he was all right. Sincethen he has been

sick and the doc told him not toworry about it. Finally the doc discovered that hisblood tests had shown in April that he was havingkidney failure. He had a biopsy and was diagnosed withIgA Nepropathy, a kind of kidney failure caused bycertain kinds of antibodies called IgA. Apparentlythey tested him with more blood tests to see if he hadCeliac Disease and said he didn't. I am having a fitas I know he needs to have these stool tests done atenterolab or he will likely not be living five yearsfrom now. He needs to find out what foods are causingthese IgA reactions and depositing it in his kidneys.I told him, I hope he calls the lab and talks to thedoctor, but I am sure he is not well and isoverwhelmed. Who am I but an old hysterical lady (butI do know a few things ;O). The stool tests atEnterolab are life savers. If gluten is causing yourpain, you need to know it. Whatever is causing it, youneed to know

it if possible. This is so easy. Youdon't have to drive three or four hours, or submit toanything if you don't want to right now.So, after that little lecture, please considerordering the test for 99.00 plus postage and find out.>then I'll have to say "well i went> behind your back and did this....">If the man is worth his medical degree he will be gladyou discovered it and try to learn something. Youaren't going behind anybody's back. This is yourlife!!!! Not his. He doesn't have a reservation onyour attempts to stop your pain and get well. Youdon't have to tell him anything. Sometimes it issmarter not to tell them things but that is up to you.He probably has some contract with labs that he has touse and wouldn't be able to refer you to this anyway.Whatever you decide I wish you well in your efforts tosolve this mystery that is so painful for you.Arline>

--- Sales <emsuc02> wrote:> Arline,> > I would like to get that test done, but I don't> know if my doctor will go for it. I feel bad> "insisting" on things to try/test for when he's the> doctor but I feel that at this point we should be> trying anything. I just don't want to p*** him off> because I've been through about 5 doctors and he> seems to be the most knowledgeable and caring around> here because there is no one else to try without> having to drive 2 or 3 hours. I'm also afraid to go> try things on my own because if they come back> showing something then I'll have to say "well i went> behind your back and did this...."> > I mentioned pudendal nerve entrapment and he> didn't seem to think that was my problem because he> said with that you usually have pain on one

side. > However with all my research I know that is not> always true, not to mention, since the clitoris is> small and there are so many nerves I feel that it> would be difficult to feel pain on only one side. > However he did mention possibly trying some nerve> blocks, so wouldn't that mean pudendal neuralgia?> > Do I have to go through my doctor to get that> gluten test? __________________________________________________

[Guest guest]

Arline, Thanks for the reassurance and encouragement Getting the enterolab test is definitely on the top of my list of things to try. I had seen some of what you were writing a few weeks ago about it and did check out their website. My questions are: Which test would you think would be the best to have done? I tried figuring it out myself but didn't really understand everything- I figured you have a little bit more knowledge about the different tests???.... Would the results come to me or have to go to a doctor? Would I be able to understand the results if it came to me? If the test came back positive, what would that mean? Simply changing my diet to try to eliminate the bad stuff???? Hopefully you can help me understand it a little better. By the way, what was your

clitoral pain like? Mine is more with sitting with pressure directly on the area and feels like an aching/sore feeling kind of like something is gently squeezing it. When I describe it like that, to me, it sounds like some kind of nerve entrapment or something....however my doc doesn't seem to think so.....who the heck knows. Thank you! Berry Home wrote: Arline, I've been reading some stuff online about leaky gut syndrome... and the stuff I read is interesting because it basically says leaky gut syndrome causes a lot of food allergies and intolerances... apparently, a whole lot of people have it and don't know it. I've never been tested either. It could be that's what was going on with the guy you mentioned below too.... does the gluten intolerance cause the leaky gut or the other way around? I found this yesterday.. Leaky gut syndrome, or intestinal permeability, is a condition in which the intestinal lining is more permeable than normal, which means there are unusually large pores or spaces between the cells that make up the intestinal wall. This additional space allows toxic substances such as bacteria, viruses,

parasites, and other harmful factors to enter the bloodstream and reach every part of the body. In a healthy gut, these toxins are eliminated. One feature of leaky gut syndrome is that undigested fats and proteins can escape into the intestinal wall, resulting in allergic responses by the body. Food allergies develop from a leaky gut when the large protein molecules (from food with protein/amino acids) pass through the intestinal wall and are absorbed before they are completely metabolized. The immune system recognizes these proteins as invaders and creates antibodies against them. Eventually, whenever you eat that particular food, the body attacks the protein, and a food allergy is born. Leady gut syndrome and the inflammation of the intestinal lining that accompanies it can be triggered by use of antibiotics, corticosteroids (e.g. prednisone), nonsteroidal anti-inflammatory drugs

(NSAIDs, e.g. aspirin, ibuprofen), birth control pills, foods contaminated by parasites, molds, or bacteria (e.g., E. coli, Salmonella, Listeria), viruses (e.g., rotavirus, HIV), excessive intake of refined sugars, enzyme deficiency (e.g./ celiac disease), caffeine, alcohol, food additives, surgery, and a decrease in blood supply to the bowel. In the case of long-term use of antibiotics, for example, the good bacteria in the gut are destroyed, leaving the body's number one site for production of antibodies virtually unprotected. Incoming pathogen meet no resistance, and the resulting inflammation leads to leaky gut syndrome. Symptoms that often accompany leaky gut are intestinal cramps, diarrhea, constipation, fatigue, bloating, and gas. A very common cause of GI injury is the use of NSAIDs. In a recent study, colostrum helped prevent GI injury in patients taking the NSAID indomethacin. This suggests that

colostrum may also be effective in preventing GI damage caused by other NSAIDs, including aspirin and ibuprofen (e.g., Motrin, Advil). Another feature of leaky gut syndrome and bowel inflammation is malabsorption of minerals, which leads to mineral deficiencies. These deficiencies occur because the special carrier proteins, which transport the minerals from your food and supplements from the intestine to the bloodstream, are damaged by the inflamed gut lining. A zinc deficiency caused by poor absorption, for example, can result in hair loss (alopecia areata), and magnesium deficiency is common among people with fibromyalgia, even when they take supplements of magnesium, because the gut allows the mineral to leak into the bloodstream. Mineral deficiencies can lead to osteoporosis, arthritis, heart disease, fatigue, memory loss, headache, inability to concentrate, and irritability. The far arm

of leaky gut syndrome reaches still further. The inflammation in the gut damages an immunoglobulin known as IgA, which works in the healthy gut to protect against infection. Without the help of IgA, pathogens can escape into the bloodstream and infect any part of the body. An overstressed liver can result in confusion, loss of concentration, and other mental and cognitive problems. The article goes on to recommend something called Colustrum for leaky gut. Any of you have this? Re: Need some ideas about clitoral pain ,I wouldn't push your doctor. He will just convince youthat it is an internet scheme or something like that.There is so little correct information on this subjectand the blood tests they use are almost hopeless inthe doctors' offices.I am glad you have a kind and caring doctor but Idoubt he knows much about this subject. You don't haveto go through him. You can order the test or testsonline yourself. THey will send you a packet ofmaterial and instructions. If you have good insuranceyou can submit it yourself to the insurance

companywith the paperwork from Enterolab has given you if youask and hope they they reimburse you. If yourinsurance is not so good you will have to swallow thebill.If money is a big problem just order the glutensensitivity test. That is the crucial one which willtell you a lot. KNowing that you are sensitive togluten is a BIG DEAL.To me "Pudendal Neuralgia" is one of those words tomake patients think they know what is wrong withthemselves. Neuralgia is a pain along a nerve.Pudendal Neuralgia is a pain along the pudendal nerve.Big whoop!!!! (Sorry, I hate these misleading words).Wherever there is nerve pain there is something nastygoing on and the cause if possible should be found.Neurologists are beginning to be told that all theirpatients with neuropathy should be tested for glutensensitivity problems and that is the easiest,cheapest, and most obvious thing to try right awaybefore one

starts paying out a lot of money or gettingshot up with anything if they think it is going to doany lasting good results. If you have pain, maybe anerve block will help but it won't solve the problembecause nobody knows what the problem is caused by.One can get nerve blocks anywhere on the body and notjust for the pudendal nerve. Don't ask your doctor ifit is all right to take this test but wait until youget the results and if it is positive, tell him. hehheh heh!!Gluten antibodies attack nerves--anywhere. (So doesmilk but gluten is the important one). Some kind ofantibody is attacking your body. I think since it isso easy to take this or these tests, that is where oneshould start.I had a dentist appointment this morning and there wasa forty year old man there waiting to have hisappointment. In April he had his forty year oldphysical exam and was told he was all right. Sincethen he has been

sick and the doc told him not toworry about it. Finally the doc discovered that hisblood tests had shown in April that he was havingkidney failure. He had a biopsy and was diagnosed withIgA Nepropathy, a kind of kidney failure caused bycertain kinds of antibodies called IgA. Apparentlythey tested him with more blood tests to see if he hadCeliac Disease and said he didn't. I am having a fitas I know he needs to have these stool tests done atenterolab or he will likely not be living five yearsfrom now. He needs to find out what foods are causingthese IgA reactions and depositing it in his kidneys.I told him, I hope he calls the lab and talks to thedoctor, but I am sure he is not well and isoverwhelmed. Who am I but an old hysterical lady (butI do know a few things ;O). The stool tests atEnterolab are life savers. If gluten is causing yourpain, you need to know it. Whatever is causing it, youneed to know

it if possible. This is so easy. Youdon't have to drive three or four hours, or submit toanything if you don't want to right now.So, after that little lecture, please considerordering the test for 99.00 plus postage and find out.>then I'll have to say "well i went> behind your back and did this....">If the man is worth his medical degree he will be gladyou discovered it and try to learn something. Youaren't going behind anybody's back. This is yourlife!!!! Not his. He doesn't have a reservation onyour attempts to stop your pain and get well. Youdon't have to tell him anything. Sometimes it issmarter not to tell them things but that is up to you.He probably has some contract with labs that he has touse and wouldn't be able to refer you to this anyway.Whatever you decide I wish you well in your efforts tosolve this mystery that is so painful for you.Arline>

--- Sales <emsuc02> wrote:> Arline,> > I would like to get that test done, but I don't> know if my doctor will go for it. I feel bad> "insisting" on things to try/test for when he's the> doctor but I feel that at this point we should be> trying anything. I just don't want to p*** him off> because I've been through about 5 doctors and he> seems to be the most knowledgeable and caring around> here because there is no one else to try without> having to drive 2 or 3 hours. I'm also afraid to go> try things on my own because if they come back> showing something then I'll have to say "well i went> behind your back and did this...."> > I mentioned pudendal nerve entrapment and he> didn't seem to think that was my problem because he> said with that you usually have pain on one

side. > However with all my research I know that is not> always true, not to mention, since the clitoris is> small and there are so many nerves I feel that it> would be difficult to feel pain on only one side. > However he did mention possibly trying some nerve> blocks, so wouldn't that mean pudendal neuralgia?> > Do I have to go through my doctor to get that> gluten test? __________________________________________________

[Guest guest]

Hi ,

It is an interesting subject and the article is also.

There are several things involved here. With Celiac,

it is the disease that causes the holes in the small

intestine, apparently. The other things all have their

own little life and ways.

I think someday it will be realized that it is food

and reactions to it and the gut that are the causes of

so many diseases. This is a huge subject which hasn't

been even minutely studied. Too bad.

Keep looking for the answers. Thanks for the email.

Arline

> I've been reading some stuff online about leaky gut

> syndrome... and the stuff I read is interesting

> because it basically says leaky gut syndrome causes

> a lot of food allergies and intolerances...

> apparently, a whole lot of people have it and don't

> know it. I've never been tested either. It could be

> that's what was going on with the guy you mentioned

> below too....

> does the gluten intolerance cause the leaky gut or

> the other way around?

> I found this yesterday..

>

__________________________________________________

[Guest guest]

,

My clitoral pain was an ache, swelling, soreness, even

irritated skin--all of those.

If your results are positive, you will need to learn

what you can about this disease because it is a

lifetime thing. Learning to eat that way is not easy

but is so rewarding.

The first test is the best but it is the most

expensive. It gives several tests in one including

tests for dairy and gluten sensitivity and gene tests,

too. It is the " Gluten Sensitivity Stool and Gene

Panel Complete " .

If you can't get that one just get the " Stool Test for

Gluten Sensitivity " and go from there to find out

information if it is postive.

The results will come to you and to nobody else if

that is the way you want it. If he ordered it, it

would go to him.

The doctor there always explains what the test results

mean. If it is negative, it is obvious. If it is

positive he will say so and explain a little what it

means. There is a lot of information on his website

about the disease and a lot more on the internet plus

support groups which are helpful. Bacially you need to

stop eating gluten and with our food supply the way it

is, that is a challenge as they put it in everything

almost that is processed as flavors, binders,

starches, thickeners, use wheat to keep things from

sticking together, etc. Fresh unprocessed foods are

the best and easiest.

I don't know whether your clitoral pain is entrapment

or not but there is little doubt in my mind that the

nerves have quite a lot to do with it.

I had four neuromas in my feet years ago--the most

painful thing I have ever had. That is nerve

entrapment. They surgically removed three of them and

somehow forgot the fourth one. Miraculously years

later after I stopped eating gluten, the pain in that

one totally stopped. That is pretty strange I will

admit.

I had terrible low back pain and spasms for years and

spent a fortune on chiropracters and physical therapy

which helped for the time being a little bit is all. I

got so I could hardly leave the house because I would

have terrible spasms and couldn't stand or walk or

sit. I thought and they thought I probably had a

bulging disc or something. After the diet it all went

away along with other neuromuscular problems. When

something is attacking the nerves and muscles, as

gluten can do, some pretty nasty things happen.

I truly hope you are able to solve your problems. You

are certainly trying.

Arline

--- Sales wrote:

> Arline,

>

> Thanks for the reassurance and encouragement

> Getting the enterolab test is definitely on the top

> of my list of things to try. I had seen some of

> what you were writing a few weeks ago about it and

> did check out their website. My questions are:

>

> Which test would you think would be the best to

> have done? I tried figuring it out myself but

> didn't really understand everything- I figured you

> have a little bit more knowledge about the different

> tests???....

>

> Would the results come to me or have to go to a

> doctor? Would I be able to understand the results

> if it came to me?

>

> If the test came back positive, what would that

> mean? Simply changing my diet to try to eliminate

> the bad stuff????

>

> Hopefully you can help me understand it a little

> better. By the way, what was your clitoral pain

> like? Mine is more with sitting with pressure

> directly on the area and feels like an aching/sore

> feeling kind of like something is gently squeezing

> it. When I describe it like that, to me, it sounds

> like some kind of nerve entrapment or

> something....however my doc doesn't seem to think

> so.....who the heck knows.

__________________________________________________

[Guest guest]

,

My clitoral pain was an ache, swelling, soreness, even

irritated skin--all of those.

If your results are positive, you will need to learn

what you can about this disease because it is a

lifetime thing. Learning to eat that way is not easy

but is so rewarding.

The first test is the best but it is the most

expensive. It gives several tests in one including

tests for dairy and gluten sensitivity and gene tests,

too. It is the " Gluten Sensitivity Stool and Gene

Panel Complete " .

If you can't get that one just get the " Stool Test for

Gluten Sensitivity " and go from there to find out

information if it is postive.

The results will come to you and to nobody else if

that is the way you want it. If he ordered it, it

would go to him.

The doctor there always explains what the test results

mean. If it is negative, it is obvious. If it is

positive he will say so and explain a little what it

means. There is a lot of information on his website

about the disease and a lot more on the internet plus

support groups which are helpful. Bacially you need to

stop eating gluten and with our food supply the way it

is, that is a challenge as they put it in everything

almost that is processed as flavors, binders,

starches, thickeners, use wheat to keep things from

sticking together, etc. Fresh unprocessed foods are

the best and easiest.

I don't know whether your clitoral pain is entrapment

or not but there is little doubt in my mind that the

nerves have quite a lot to do with it.

I had four neuromas in my feet years ago--the most

painful thing I have ever had. That is nerve

entrapment. They surgically removed three of them and

somehow forgot the fourth one. Miraculously years

later after I stopped eating gluten, the pain in that

one totally stopped. That is pretty strange I will

admit.

I had terrible low back pain and spasms for years and

spent a fortune on chiropracters and physical therapy

which helped for the time being a little bit is all. I

got so I could hardly leave the house because I would

have terrible spasms and couldn't stand or walk or

sit. I thought and they thought I probably had a

bulging disc or something. After the diet it all went

away along with other neuromuscular problems. When

something is attacking the nerves and muscles, as

gluten can do, some pretty nasty things happen.

I truly hope you are able to solve your problems. You

are certainly trying. (For some reason I almost missed

your post. That is why it tooks so long. Sorry.)

Arline

--- Sales wrote:

> Arline,

>

> Thanks for the reassurance and encouragement

> Getting the enterolab test is definitely on the top

> of my list of things to try. I had seen some of

> what you were writing a few weeks ago about it and

> did check out their website. My questions are:

>

> Which test would you think would be the best to

> have done? I tried figuring it out myself but

> didn't really understand everything- I figured you

> have a little bit more knowledge about the different

> tests???....

>

> Would the results come to me or have to go to a

> doctor? Would I be able to understand the results

> if it came to me?

>

> If the test came back positive, what would that

> mean? Simply changing my diet to try to eliminate

> the bad stuff????

>

> Hopefully you can help me understand it a little

> better. By the way, what was your clitoral pain

> like? Mine is more with sitting with pressure

> directly on the area and feels like an aching/sore

> feeling kind of like something is gently squeezing

> it. When I describe it like that, to me, it sounds

> like some kind of nerve entrapment or

> something....however my doc doesn't seem to think

> so.....who the heck knows.

__________________________________________________

[Guest guest]

Arline, Thanks for the info! I can't decide if I'm going to just do it on my own or try to talk to my doctor about it. I will let you know what I decide though. I figure, might as well rule as many things out as possible, right? That's the only way I'm going to figure out what is causing this.BABB wrote: ,My clitoral pain was an ache, swelling, soreness, evenirritated skin--all of those.If your results are

positive, you will need to learnwhat you can about this disease because it is alifetime thing. Learning to eat that way is not easybut is so rewarding.The first test is the best but it is the mostexpensive. It gives several tests in one includingtests for dairy and gluten sensitivity and gene tests,too. It is the "Gluten Sensitivity Stool and GenePanel Complete".If you can't get that one just get the "Stool Test forGluten Sensitivity" and go from there to find outinformation if it is postive.The results will come to you and to nobody else ifthat is the way you want it. If he ordered it, itwould go to him.The doctor there always explains what the test resultsmean. If it is negative, it is obvious. If it ispositive he will say so and explain a little what itmeans. There is a lot of information on his websiteabout the disease and a lot more on the internet plussupport groups which

are helpful. Bacially you need tostop eating gluten and with our food supply the way itis, that is a challenge as they put it in everythingalmost that is processed as flavors, binders,starches, thickeners, use wheat to keep things fromsticking together, etc. Fresh unprocessed foods arethe best and easiest.I don't know whether your clitoral pain is entrapmentor not but there is little doubt in my mind that thenerves have quite a lot to do with it.I had four neuromas in my feet years ago--the mostpainful thing I have ever had. That is nerveentrapment. They surgically removed three of them andsomehow forgot the fourth one. Miraculously yearslater after I stopped eating gluten, the pain in thatone totally stopped. That is pretty strange I willadmit.I had terrible low back pain and spasms for years andspent a fortune on chiropracters and physical therapywhich helped for the time being a

little bit is all. Igot so I could hardly leave the house because I wouldhave terrible spasms and couldn't stand or walk orsit. I thought and they thought I probably had abulging disc or something. After the diet it all wentaway along with other neuromuscular problems. Whensomething is attacking the nerves and muscles, asgluten can do, some pretty nasty things happen.I truly hope you are able to solve your problems. Youare certainly trying.Arline--- Sales <emsuc02> wrote:> Arline,> > Thanks for the reassurance and encouragement > Getting the enterolab test is definitely on the top> of my list of things to try. I had seen some of> what you were writing a few weeks ago about it and> did check out their website. My questions are:> > Which test would you think would be the best

to> have done? I tried figuring it out myself but> didn't really understand everything- I figured you> have a little bit more knowledge about the different> tests???....> > Would the results come to me or have to go to a> doctor? Would I be able to understand the results> if it came to me?> > If the test came back positive, what would that> mean? Simply changing my diet to try to eliminate> the bad stuff????> > Hopefully you can help me understand it a little> better. By the way, what was your clitoral pain> like? Mine is more with sitting with pressure> directly on the area and feels like an aching/sore> feeling kind of like something is gently squeezing> it. When I describe it like that, to me, it sounds> like some kind of nerve entrapment or> something....however my doc doesn't seem to think> so.....who the heck

knows.__________________________________________________