Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 I would consider calling the girls at beyond basics and ask who they recommend. I would also consider going to see them for an evaluation. www.beyondbasicsphysicaltherapy.com love, Molly wrote: I work on long island, but live in the bronx. CT isnt the closest, but if doctor takes my insurance I'm willing to drive.> Thank you all for your responses and support. As you know, I live in > New York, and for some reason CANNOT find a doctor whom I feel is not > dismissive...My current doctor only sees patients a few days a month so > is hard to get in touch with (Dr. Baker). I haven't seen him > since October, and everytime I call, I'm forced to speak with his > nurse. At first he put me on 10 miligrams of Neuretryptoline, then I > switched and went up to 50 miligrams of zoloft. I'm weaning myself off > the zoloft now since it only helped for about 5 weeks. Then he wants me > to go back onto 10 miligrams of the neurotrpy for a month, and then up > to 20 miligrams. So basically he's telling me I have to wait another 2 > months before I (MAY) get some relief. Meanwhile, my fiance and bf > during my three years of suffering, just doesnt get it, and wants to > screw and doesn't seem to mind that I can only stand it for 3 minutes, > while gritting my teeth the whole way through....All I can do is > laugh...I know there is no quick fix...but the fact that this doctor > doesnt even care to call me personally and has NO IDEA OF THE DEGREE OF > PAIN I'M IN, YET HAS NO QUALMS ABOUT TELLING ME, "SUFFER FOR TWO MONTHS > MORE, AND THEN WE'LL TRY SOMETHING NEW"...... > > > > > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2006 Report Share Posted December 22, 2006 Sandi, 10 years 24/7???!!!!! That is crazy. I truly am sorry for the pain you have been going through. Do your current docs have any new ideas? I don't know too much about Dr. Roy's expertise- I found him through the NVA and on the list it just said he specialized in vaginitis. I've only seen him twice but each time he was very compassionate and keeps telling me that we're going to get to the bottom of this. I've talked with another lady who has dealt with these problems for many years too and she said he is the best doctor she's seen yet. He did test me for yeast both times i went in there but he does not say that is what is causing my problems or try to treat for that. As of right now he has me started on elavil (10mg/day), weaning off my neurontin (i was at 600mg/day) and i'm going to start biofeedback. What PT's have you seen around here? I believe he wants me to go to one in Hartford at Saint Francis. That's great that you're going to get PT at that group- I've heard lots of wonderful things about them. Did you test for lyme through igenex? i was tested, but only through a lab up at uconn and am wondering if i should puruse igenex. have you been tested for gluten sensitivity? that is another thing i am considering. Where is the fibro and fatigue center? did you see any doctors in new york? Sandi Sharp wrote: Hi , 10 years of unbelievable 24/7 pain. I live in Stratford and saw Dr. Gibbons up in Hartford which is about an hour away. Stratford is right next to Bridgeport. I really miss Dr. Gibbons. He was like a father to me. I am now going to the Fibro and Fatigue Center and am doing somewhat better. I had a terrible flare a week ago that lasted for about 2 weeks. Today the pain is constant but at the annoying level, not the get me to the ER level. Actually I went grocery shopping just now and actually thought of my Christmas dinner planning and not my pain - which is a great thing. I will begin treatment for Lyme in January and see a new PT at Amy Strein's group in NYC. I have spent about a million dollars on this illness and trying to get better. Thank God insurance reimbursed for a good percentage of that. But I bet I have spent over 200K out of pocket. I have done almost everything. Is Dr. Roy as much of an infection expert as Dr. Horowitz? I saw him too but he kept pursuing yeast and whenever I treat for yeast I get MUCH worse. I think it is the herxheimer effect and neurotoxins. I get much worse with herbs and antibiotics too, Sandi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2006 Report Share Posted December 22, 2006 Sandi, 10 years 24/7???!!!!! That is crazy. I truly am sorry for the pain you have been going through. Do your current docs have any new ideas? I don't know too much about Dr. Roy's expertise- I found him through the NVA and on the list it just said he specialized in vaginitis. I've only seen him twice but each time he was very compassionate and keeps telling me that we're going to get to the bottom of this. I've talked with another lady who has dealt with these problems for many years too and she said he is the best doctor she's seen yet. He did test me for yeast both times i went in there but he does not say that is what is causing my problems or try to treat for that. As of right now he has me started on elavil (10mg/day), weaning off my neurontin (i was at 600mg/day) and i'm going to start biofeedback. What PT's have you seen around here? I believe he wants me to go to one in Hartford at Saint Francis. That's great that you're going to get PT at that group- I've heard lots of wonderful things about them. Did you test for lyme through igenex? i was tested, but only through a lab up at uconn and am wondering if i should puruse igenex. have you been tested for gluten sensitivity? that is another thing i am considering. Where is the fibro and fatigue center? did you see any doctors in new york? Sandi Sharp wrote: Hi , 10 years of unbelievable 24/7 pain. I live in Stratford and saw Dr. Gibbons up in Hartford which is about an hour away. Stratford is right next to Bridgeport. I really miss Dr. Gibbons. He was like a father to me. I am now going to the Fibro and Fatigue Center and am doing somewhat better. I had a terrible flare a week ago that lasted for about 2 weeks. Today the pain is constant but at the annoying level, not the get me to the ER level. Actually I went grocery shopping just now and actually thought of my Christmas dinner planning and not my pain - which is a great thing. I will begin treatment for Lyme in January and see a new PT at Amy Strein's group in NYC. I have spent about a million dollars on this illness and trying to get better. Thank God insurance reimbursed for a good percentage of that. But I bet I have spent over 200K out of pocket. I have done almost everything. Is Dr. Roy as much of an infection expert as Dr. Horowitz? I saw him too but he kept pursuing yeast and whenever I treat for yeast I get MUCH worse. I think it is the herxheimer effect and neurotoxins. I get much worse with herbs and antibiotics too, Sandi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2006 Report Share Posted December 22, 2006 Sandi, 10 years 24/7???!!!!! That is crazy. I truly am sorry for the pain you have been going through. Do your current docs have any new ideas? I don't know too much about Dr. Roy's expertise- I found him through the NVA and on the list it just said he specialized in vaginitis. I've only seen him twice but each time he was very compassionate and keeps telling me that we're going to get to the bottom of this. I've talked with another lady who has dealt with these problems for many years too and she said he is the best doctor she's seen yet. He did test me for yeast both times i went in there but he does not say that is what is causing my problems or try to treat for that. As of right now he has me started on elavil (10mg/day), weaning off my neurontin (i was at 600mg/day) and i'm going to start biofeedback. What PT's have you seen around here? I believe he wants me to go to one in Hartford at Saint Francis. That's great that you're going to get PT at that group- I've heard lots of wonderful things about them. Did you test for lyme through igenex? i was tested, but only through a lab up at uconn and am wondering if i should puruse igenex. have you been tested for gluten sensitivity? that is another thing i am considering. Where is the fibro and fatigue center? did you see any doctors in new york? Sandi Sharp wrote: Hi , 10 years of unbelievable 24/7 pain. I live in Stratford and saw Dr. Gibbons up in Hartford which is about an hour away. Stratford is right next to Bridgeport. I really miss Dr. Gibbons. He was like a father to me. I am now going to the Fibro and Fatigue Center and am doing somewhat better. I had a terrible flare a week ago that lasted for about 2 weeks. Today the pain is constant but at the annoying level, not the get me to the ER level. Actually I went grocery shopping just now and actually thought of my Christmas dinner planning and not my pain - which is a great thing. I will begin treatment for Lyme in January and see a new PT at Amy Strein's group in NYC. I have spent about a million dollars on this illness and trying to get better. Thank God insurance reimbursed for a good percentage of that. But I bet I have spent over 200K out of pocket. I have done almost everything. Is Dr. Roy as much of an infection expert as Dr. Horowitz? I saw him too but he kept pursuing yeast and whenever I treat for yeast I get MUCH worse. I think it is the herxheimer effect and neurotoxins. I get much worse with herbs and antibiotics too, Sandi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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