Guest guest Posted December 15, 2006 Report Share Posted December 15, 2006 Hi girls I was wondering if anyone else on here has this awful disease, I had a punch biopsy done and it came back as a mild licheoid reaction amongst other things ( rather large medical terms that i have no idea how to pronunce lol) and inflammation, they concluded i had Lichen Sclerosis. I can't help wondering though that as ive been also diagonsed with systemic candadia that this may be causing most of the pain and symtoms im feeling " down there " . The first time i took difulcan i was nearly pain free, it was bliss but then had to go on a series of very high dose antibiotcs and now my problem is at the worst its ever been. Has anyone else had or having a similar expereince? the mere thought of LS scares me to death, all the shrinking, fusing tearing and the no cure. Big hugs to you all Janelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2006 Report Share Posted December 15, 2006 > > > Hi girls > > I was wondering if anyone else on here has this awful disease, I had > a punch biopsy done and it came back as a mild licheoid reaction > amongst other things ( rather large medical terms that i have no > idea how to pronunce lol) and inflammation, they concluded i had > Lichen Sclerosis. > > I can't help wondering though that as ive been also diagonsed with > systemic candadia that this may be causing most of the pain and > symtoms im feeling " down there " . The first time i took difulcan i > was nearly pain free, it was bliss but then had to go on a series of > very high dose antibiotcs and now my problem is at the worst its > ever been. > > Has anyone else had or having a similar expereince? the mere > thought of LS scares me to death, all the shrinking, fusing tearing > and the no cure. > > Big hugs to you all > > Janelle Hi Janelle: I have Lichen Sclerosis, but it's " inactive " right now. I never fused or had tearing. However, I also have Vulvar Vestibulitis, so I have burning from that. The Clobetasol ointment has helped me a lot. I used to have burning 24/7, but now it's just once in awhile except for when I have a pelvic exam/pap and pain from having a transvaginal ultrasound. It's been several years since I've attempted sex b/c I haven't had any libido for quite awhile and b/c I'm afraid of the pain from intercourse. I'll be having my hormone levels tested in January. I use Estrace cream daily and it helps for the most part. There's no cure for Lichen Sclerosis, but it can be controlled with medication. I hope you find some pain relief. Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2006 Report Share Posted December 15, 2006 > > > Hi girls > > I was wondering if anyone else on here has this awful disease, I had > a punch biopsy done and it came back as a mild licheoid reaction > amongst other things ( rather large medical terms that i have no > idea how to pronunce lol) and inflammation, they concluded i had > Lichen Sclerosis. > > I can't help wondering though that as ive been also diagonsed with > systemic candadia that this may be causing most of the pain and > symtoms im feeling " down there " . The first time i took difulcan i > was nearly pain free, it was bliss but then had to go on a series of > very high dose antibiotcs and now my problem is at the worst its > ever been. > > Has anyone else had or having a similar expereince? the mere > thought of LS scares me to death, all the shrinking, fusing tearing > and the no cure. > > Big hugs to you all > > Janelle Hi Janelle: I have Lichen Sclerosis, but it's " inactive " right now. I never fused or had tearing. However, I also have Vulvar Vestibulitis, so I have burning from that. The Clobetasol ointment has helped me a lot. I used to have burning 24/7, but now it's just once in awhile except for when I have a pelvic exam/pap and pain from having a transvaginal ultrasound. It's been several years since I've attempted sex b/c I haven't had any libido for quite awhile and b/c I'm afraid of the pain from intercourse. I'll be having my hormone levels tested in January. I use Estrace cream daily and it helps for the most part. There's no cure for Lichen Sclerosis, but it can be controlled with medication. I hope you find some pain relief. Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2006 Report Share Posted December 15, 2006 Hi , Thanks for the email. I guess I am reassured to find out that they have mostly told you what you are being tested for--I think the baker's and the brewer's yeast are the most important because I never see anywhere else where there is any other edible yeast in an ingredient section (unless it is kefir grains or probiotics) or maybe other kinds of what seems to be more popular fermented foods (which I won't touch). I don't think anybody needs to be tested for candida as it is a fungus that everybody has in lessor or more degree. It is when it gets overgrown and we have an " infection " that keeps coming back that it is a problem. This of course might mean we have diabetes and there is constant glucose in the urine and system and it feeds the candida. In fact I don't know if there is such a thing as an allergy test for candida. That makes me curious and I am wondering if there is such a thing as a test for an IgA reaction to candida specifically since we who are sensitive to gluten have the same kind of autoimmune attack from candida that we have from eating gluten apparently. I doubt it though as the research saying the gluten and candida cross react is fairly new. I wish that somebody would really study this as it is so important for women especially I think in regard to gyn and urinary problems. If they can ever get to the bottom of this gluten and candida thing, I think a lot of problems will be solved. I don't have any confidence in allergy testing for foods for one reason because every doctor I ever asked about it told me that allergy testing for foods doesn't work. It doesn't work I think because they test for the wrong reactions. Since you are gluten sensitive you will probably test out for allergies to many foods which will be unhelpful as nobody can really do that deprivation. When the small intestine heals from gluten damage the allergies really often lessen and aren't very important. Another reason why I have no faith in allergy tests is because my son and I had many allergists test us, tell us all the things we were allergic to and none of it made any difference because nobody can cut so many things out of a diet. The main problems weren't identified--they were IgA reactions to gluten, dairy, baker's and brewer's yeast for the most severe and debilitating. I had to be sixty and got a computer before I finally figured it out for myself and found Enterolab. My son was 33 after a lifetime of sickness for both of us. The allergic reactions aren't the same thing as the IgA reactions. When I eat kefir which has saccaromyces cerevisiae I have instant and severe stomach pain. It certainly could cause different kinds of reactions. They seem to do different things to different people. Anyway, thanks for your answer. I guess it helps to talk about this stuff. It does me--sort of straightens a few things out. Arline --- Berry Home wrote: > Hi Arline, > I'm looking at the food testing sheet the allergist > gave me with a list of all of the possible food > allergies and the yeast I see here is saccharomyces > (yeast mix). I'm guessing that's the baker's and > brewer's yeast and maybe others too? I think those > would be edible yeasts though since this is a food > allergy test. I've never been tested for candida at > all that I'm aware of. I actually don't get many > yeast infections. But, > back months ago when I took that probiotic > supplement I had a very strong reaction to it... and > the baker's and brewer's yeast was in the probiotic > supplement. I think you suggested since I was gluten > intolerant I might have an allergy to this strain of > yeast as well. I did have a terrible flare when I > took the probiotic supplement so I'm trying to > pinpoint what might have caused that. > How would I go about being tested for candida? > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2006 Report Share Posted December 15, 2006 Hi , Thanks for the email. I guess I am reassured to find out that they have mostly told you what you are being tested for--I think the baker's and the brewer's yeast are the most important because I never see anywhere else where there is any other edible yeast in an ingredient section (unless it is kefir grains or probiotics) or maybe other kinds of what seems to be more popular fermented foods (which I won't touch). I don't think anybody needs to be tested for candida as it is a fungus that everybody has in lessor or more degree. It is when it gets overgrown and we have an " infection " that keeps coming back that it is a problem. This of course might mean we have diabetes and there is constant glucose in the urine and system and it feeds the candida. In fact I don't know if there is such a thing as an allergy test for candida. That makes me curious and I am wondering if there is such a thing as a test for an IgA reaction to candida specifically since we who are sensitive to gluten have the same kind of autoimmune attack from candida that we have from eating gluten apparently. I doubt it though as the research saying the gluten and candida cross react is fairly new. I wish that somebody would really study this as it is so important for women especially I think in regard to gyn and urinary problems. If they can ever get to the bottom of this gluten and candida thing, I think a lot of problems will be solved. I don't have any confidence in allergy testing for foods for one reason because every doctor I ever asked about it told me that allergy testing for foods doesn't work. It doesn't work I think because they test for the wrong reactions. Since you are gluten sensitive you will probably test out for allergies to many foods which will be unhelpful as nobody can really do that deprivation. When the small intestine heals from gluten damage the allergies really often lessen and aren't very important. Another reason why I have no faith in allergy tests is because my son and I had many allergists test us, tell us all the things we were allergic to and none of it made any difference because nobody can cut so many things out of a diet. The main problems weren't identified--they were IgA reactions to gluten, dairy, baker's and brewer's yeast for the most severe and debilitating. I had to be sixty and got a computer before I finally figured it out for myself and found Enterolab. My son was 33 after a lifetime of sickness for both of us. The allergic reactions aren't the same thing as the IgA reactions. When I eat kefir which has saccaromyces cerevisiae I have instant and severe stomach pain. It certainly could cause different kinds of reactions. They seem to do different things to different people. Anyway, thanks for your answer. I guess it helps to talk about this stuff. It does me--sort of straightens a few things out. Arline --- Berry Home wrote: > Hi Arline, > I'm looking at the food testing sheet the allergist > gave me with a list of all of the possible food > allergies and the yeast I see here is saccharomyces > (yeast mix). I'm guessing that's the baker's and > brewer's yeast and maybe others too? I think those > would be edible yeasts though since this is a food > allergy test. I've never been tested for candida at > all that I'm aware of. I actually don't get many > yeast infections. But, > back months ago when I took that probiotic > supplement I had a very strong reaction to it... and > the baker's and brewer's yeast was in the probiotic > supplement. I think you suggested since I was gluten > intolerant I might have an allergy to this strain of > yeast as well. I did have a terrible flare when I > took the probiotic supplement so I'm trying to > pinpoint what might have caused that. > How would I go about being tested for candida? > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Just wanted to say a HUGE thank you to everyone who replied but especially to Mara and Arline, you two have given me more help and more hope than most specialists i have seen, i'm definately going to be trying everything you have both suggested, life was looking really black but i can see the light at the end of the tunnel and have a really postive feeling i'm going to win this battle of the nether regions and win lol. Bless you all and i hope everyone wins their battles aswell Janelle > > > > > > Hi Arline, > > > I'm looking at the food testing sheet the > > allergist gave me with a > > list of all of the possible food allergies and the > > yeast I see here > > is saccharomyces (yeast mix). I'm guessing that's > > the baker's and > > brewer's yeast and maybe others too? I think those > > would be edible > > yeasts though since this is a food allergy test. > > I've never been > > tested for candida at all that I'm aware of. I > > actually don't get > > many yeast infections. But, > > > back months ago when I took that probiotic > > supplement I had a very > > strong reaction to it... and the baker's and > > brewer's yeast was in > > the probiotic supplement. I think you suggested > > since I was gluten > > intolerant I might have an allergy to this strain of > > yeast as well. > > I did have a terrible flare when I took the > > probiotic supplement so > > I'm trying to pinpoint what might have caused that. > > > How would I go about being tested for candida? > > > > > > Re: Re: Lichen Sclerosis > > > > > > > > > , (for Janelle, too) > > > > > > Can you tell us what kind of yeast you are being > > > tested for? There is so much confusion about > > > yeast--edible yeast (baker's and brewer's which > > is > > > also known as saccharomyces cerevisiae which is > > > believed by some to be responsible for crohn's > > > disease). There are other edible yeasts--many. > > My body > > > has an autoimmune reaction to this (IgA). > > > > > > There is of course the big troublemaker > > --candida--and > > > its various varieties that are not edible and > > many of > > > us have constant problems vaginally with (also > > > believed to cross react with gluten). Everybody > > should > > > be " allergic " to this. > > > > > > It is just a good idea to know what they are > > doing and > > > what kinds of yeast they are testing for and > > besides > > > that it will clear up perhaps the questions I > > have > > > always had about these " Yeast " allergies. > > > > > > I had what was diagnosed as Lichen Sclerosis > > after > > > twelve vulvar biopsies. It was a mess. I had the > > > classic whitened butterfly pattern of burning > > and > > > itching and excoriations. I knew that I had > > always had > > > vaginal yeast and in those days it was so > > difficult to > > > get treatment as one trip to the doc gave me one > > > prescription for creams when I needed constant > > > treatment. I also become very allergic to the > > creams. > > > Finally a lady urologist gave me a handfull of > > > diflucan samples and some prescriptions for > > refill > > > where I could take it for awhile. I consider > > that > > > Diflucan saved my life. As I took it I could see > > the > > > whiteness slowly disappearing and since then > > (about > > > six years ago) my mission in life is to see that > > I > > > have enough oral antifungals to treat my chronic > > yeast > > > which I expect I will never totally get rid of > > as I > > > often have to take antibiotics. It is hard as > > the docs > > > don't want to prescribe this for some reason. > > There is > > > that belief that the little ladies who think > > they have > > > yeast are slightly bent because they often can't > > see > > > it. Fortunately at that time I also discovered I > > was > > > gluten sensitive and the combo of oral > > antifungals and > > > no gluten made my vulvar problems go totally > > away--no > > > lichen sclerosis at all--no itching, burning, > > clitoral > > > nerve pain, no problems. The estrace at the end > > of the > > > whole process almostly immediately took away the > > last > > > vestiges of burning. It is a healing miracle but > > one > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Just wanted to say a HUGE thank you to everyone who replied but especially to Mara and Arline, you two have given me more help and more hope than most specialists i have seen, i'm definately going to be trying everything you have both suggested, life was looking really black but i can see the light at the end of the tunnel and have a really postive feeling i'm going to win this battle of the nether regions and win lol. Bless you all and i hope everyone wins their battles aswell Janelle > > > > > > Hi Arline, > > > I'm looking at the food testing sheet the > > allergist gave me with a > > list of all of the possible food allergies and the > > yeast I see here > > is saccharomyces (yeast mix). I'm guessing that's > > the baker's and > > brewer's yeast and maybe others too? I think those > > would be edible > > yeasts though since this is a food allergy test. > > I've never been > > tested for candida at all that I'm aware of. I > > actually don't get > > many yeast infections. But, > > > back months ago when I took that probiotic > > supplement I had a very > > strong reaction to it... and the baker's and > > brewer's yeast was in > > the probiotic supplement. I think you suggested > > since I was gluten > > intolerant I might have an allergy to this strain of > > yeast as well. > > I did have a terrible flare when I took the > > probiotic supplement so > > I'm trying to pinpoint what might have caused that. > > > How would I go about being tested for candida? > > > > > > Re: Re: Lichen Sclerosis > > > > > > > > > , (for Janelle, too) > > > > > > Can you tell us what kind of yeast you are being > > > tested for? There is so much confusion about > > > yeast--edible yeast (baker's and brewer's which > > is > > > also known as saccharomyces cerevisiae which is > > > believed by some to be responsible for crohn's > > > disease). There are other edible yeasts--many. > > My body > > > has an autoimmune reaction to this (IgA). > > > > > > There is of course the big troublemaker > > --candida--and > > > its various varieties that are not edible and > > many of > > > us have constant problems vaginally with (also > > > believed to cross react with gluten). Everybody > > should > > > be " allergic " to this. > > > > > > It is just a good idea to know what they are > > doing and > > > what kinds of yeast they are testing for and > > besides > > > that it will clear up perhaps the questions I > > have > > > always had about these " Yeast " allergies. > > > > > > I had what was diagnosed as Lichen Sclerosis > > after > > > twelve vulvar biopsies. It was a mess. I had the > > > classic whitened butterfly pattern of burning > > and > > > itching and excoriations. I knew that I had > > always had > > > vaginal yeast and in those days it was so > > difficult to > > > get treatment as one trip to the doc gave me one > > > prescription for creams when I needed constant > > > treatment. I also become very allergic to the > > creams. > > > Finally a lady urologist gave me a handfull of > > > diflucan samples and some prescriptions for > > refill > > > where I could take it for awhile. I consider > > that > > > Diflucan saved my life. As I took it I could see > > the > > > whiteness slowly disappearing and since then > > (about > > > six years ago) my mission in life is to see that > > I > > > have enough oral antifungals to treat my chronic > > yeast > > > which I expect I will never totally get rid of > > as I > > > often have to take antibiotics. It is hard as > > the docs > > > don't want to prescribe this for some reason. > > There is > > > that belief that the little ladies who think > > they have > > > yeast are slightly bent because they often can't > > see > > > it. Fortunately at that time I also discovered I > > was > > > gluten sensitive and the combo of oral > > antifungals and > > > no gluten made my vulvar problems go totally > > away--no > > > lichen sclerosis at all--no itching, burning, > > clitoral > > > nerve pain, no problems. The estrace at the end > > of the > > > whole process almostly immediately took away the > > last > > > vestiges of burning. It is a healing miracle but > > one > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Just wanted to say a HUGE thank you to everyone who replied but especially to Mara and Arline, you two have given me more help and more hope than most specialists i have seen, i'm definately going to be trying everything you have both suggested, life was looking really black but i can see the light at the end of the tunnel and have a really postive feeling i'm going to win this battle of the nether regions and win lol. Bless you all and i hope everyone wins their battles aswell Janelle > > > > > > Hi Arline, > > > I'm looking at the food testing sheet the > > allergist gave me with a > > list of all of the possible food allergies and the > > yeast I see here > > is saccharomyces (yeast mix). I'm guessing that's > > the baker's and > > brewer's yeast and maybe others too? I think those > > would be edible > > yeasts though since this is a food allergy test. > > I've never been > > tested for candida at all that I'm aware of. I > > actually don't get > > many yeast infections. But, > > > back months ago when I took that probiotic > > supplement I had a very > > strong reaction to it... and the baker's and > > brewer's yeast was in > > the probiotic supplement. I think you suggested > > since I was gluten > > intolerant I might have an allergy to this strain of > > yeast as well. > > I did have a terrible flare when I took the > > probiotic supplement so > > I'm trying to pinpoint what might have caused that. > > > How would I go about being tested for candida? > > > > > > Re: Re: Lichen Sclerosis > > > > > > > > > , (for Janelle, too) > > > > > > Can you tell us what kind of yeast you are being > > > tested for? There is so much confusion about > > > yeast--edible yeast (baker's and brewer's which > > is > > > also known as saccharomyces cerevisiae which is > > > believed by some to be responsible for crohn's > > > disease). There are other edible yeasts--many. > > My body > > > has an autoimmune reaction to this (IgA). > > > > > > There is of course the big troublemaker > > --candida--and > > > its various varieties that are not edible and > > many of > > > us have constant problems vaginally with (also > > > believed to cross react with gluten). Everybody > > should > > > be " allergic " to this. > > > > > > It is just a good idea to know what they are > > doing and > > > what kinds of yeast they are testing for and > > besides > > > that it will clear up perhaps the questions I > > have > > > always had about these " Yeast " allergies. > > > > > > I had what was diagnosed as Lichen Sclerosis > > after > > > twelve vulvar biopsies. It was a mess. I had the > > > classic whitened butterfly pattern of burning > > and > > > itching and excoriations. I knew that I had > > always had > > > vaginal yeast and in those days it was so > > difficult to > > > get treatment as one trip to the doc gave me one > > > prescription for creams when I needed constant > > > treatment. I also become very allergic to the > > creams. > > > Finally a lady urologist gave me a handfull of > > > diflucan samples and some prescriptions for > > refill > > > where I could take it for awhile. I consider > > that > > > Diflucan saved my life. As I took it I could see > > the > > > whiteness slowly disappearing and since then > > (about > > > six years ago) my mission in life is to see that > > I > > > have enough oral antifungals to treat my chronic > > yeast > > > which I expect I will never totally get rid of > > as I > > > often have to take antibiotics. It is hard as > > the docs > > > don't want to prescribe this for some reason. > > There is > > > that belief that the little ladies who think > > they have > > > yeast are slightly bent because they often can't > > see > > > it. Fortunately at that time I also discovered I > > was > > > gluten sensitive and the combo of oral > > antifungals and > > > no gluten made my vulvar problems go totally > > away--no > > > lichen sclerosis at all--no itching, burning, > > clitoral > > > nerve pain, no problems. The estrace at the end > > of the > > > whole process almostly immediately took away the > > last > > > vestiges of burning. It is a healing miracle but > > one > > > === message truncated === > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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