Re: UC flare question

[Guest guest]

>

>

> Cutting dairy down significantly or out altogether will help

> get rid of the mucous.

This is interesting and something I hadn't considered. I also

experienced a big increase in upper respiratory mucous production about

the same time that the bleeding started - so I wonder if there is a

connection. I know Elaine always said that it wasn't uncommon to get an

upper respiratory infection after healing started. I have been eating a

lot of yogurt, cheese, cheesecake, ice cream and do use quite a bit of

butter. I'll have to give that a try.

> However, IME, LDN helps a lot more

> and just generally makes you feel better. You might consider trying

> that if you are going to resume medication.

Sulfasalazine worked great for me at initial diagnosis and I didn't have

any side effects at all. Since I still have a giant bottle full of it,

I'd probably just give it a try to see what happens if the diet

modifications don't help.

>

> Also, IME, and I think Kim M. has mentioned something similar,

> for the first few years, some cyclical flaring may occur - the

> thing to remember is that these flares are much less bad than

> ones that occurred before SCD.

>

> So even when you were symptom free, you may have retained

> some level of the disease deep in your tissues. Or perhaps

> the genetic factor kicked in and even though you had entirely

> licked it, genetic factors kicked back into gear once your gut

> ecology got somewhat unbalanced.

>

This is the kind of information that gives me some perspective. It

doesn't seem like it's too bad - I just know that in the past when I had

my symptom of loose stools, recognizing the source and changing it would

fix the symptom really quickly. I feel like this is taking longer - but

perhaps I'm continuing to feed some of the bad guys unintentionally.

I also know that I didn't follow Elaine's directions for waiting an

entire year of being completely symptom-free before introducing non-SCD

foods. That probably would have helped with any residual disease. She

was so smart. Sigh*.

Thanks Mara.

[Guest guest]

I would definitely give the no dairy thing a try. My brother had life threatening asthma when he was little, life threatening mainly because of all the mucous in his lungs. When we took him off of dairy, he had miraculous improvements and much less mucous. I did just want to mention something about butter though. In some other diets and protocols I've tried for my UC, absolutely NO dairy was allowed, meaning cheese, yogurt, etc... all EXEPT for butter, which was allowed. I think the reason was because of the three parts of milk (sugar, protein, and fat) butter was basically all fat, which most IBD people didn't have a problem digesting. I'm also going through a flare, and the only dairy I'm having is butter and goat yogurt. I'm hoping that everything I'm doing with my diet will be enough to keep me off of meds!!!Alyssa>>> Cutting dairy down significantly or out altogether will help> get rid of the mucous.This is interesting and something I hadn't considered. I alsoexperienced a big increase in upper respiratory mucous production aboutthe same time that the bleeding started - so I wonder if there is aconnection. I know Elaine always said that it wasn't uncommon to get anupper respiratory infection after healing started. I have been eating alot of yogurt, cheese, cheesecake, ice cream and do use quite a bit ofbutter. I'll have to give that a try.> However, IME, LDN helps a lot more> and just generally makes you feel better. You might consider trying> that if you are going to resume medication.Sulfasalazine worked great for me at initial diagnosis and I didn't haveany side effects at all. Since I still have a giant bottle full of it,I'd probably just give it a try to see what happens if the dietmodifications don't help.>> Also, IME, and I think Kim M. has mentioned something similar,> for the first few years, some cyclical flaring may occur - the> thing to remember is that these flares are much less bad than> ones that occurred before SCD.>> So even when you were symptom free, you may have retained> some level of the disease deep in your tissues. Or perhaps> the genetic factor kicked in and even though you had entirely> licked it, genetic factors kicked back into gear once your gut> ecology got somewhat unbalanced.>This is the kind of information that gives me some perspective. Itdoesn't seem like it's too bad - I just know that in the past when I hadmy symptom of loose stools, recognizing the source and changing it wouldfix the symptom really quickly. I feel like this is taking longer - butperhaps I'm continuing to feed some of the bad guys unintentionally.I also know that I didn't follow Elaine's directions for waiting anentire year of being completely symptom-free before introducing non-SCDfoods. That probably would have helped with any residual disease. Shewas so smart. Sigh*.Thanks Mara.

[Guest guest]

I would definitely give the no dairy thing a try. My brother had life threatening asthma when he was little, life threatening mainly because of all the mucous in his lungs. When we took him off of dairy, he had miraculous improvements and much less mucous. I did just want to mention something about butter though. In some other diets and protocols I've tried for my UC, absolutely NO dairy was allowed, meaning cheese, yogurt, etc... all EXEPT for butter, which was allowed. I think the reason was because of the three parts of milk (sugar, protein, and fat) butter was basically all fat, which most IBD people didn't have a problem digesting. I'm also going through a flare, and the only dairy I'm having is butter and goat yogurt. I'm hoping that everything I'm doing with my diet will be enough to keep me off of meds!!!Alyssa>>> Cutting dairy down significantly or out altogether will help> get rid of the mucous.This is interesting and something I hadn't considered. I alsoexperienced a big increase in upper respiratory mucous production aboutthe same time that the bleeding started - so I wonder if there is aconnection. I know Elaine always said that it wasn't uncommon to get anupper respiratory infection after healing started. I have been eating alot of yogurt, cheese, cheesecake, ice cream and do use quite a bit ofbutter. I'll have to give that a try.> However, IME, LDN helps a lot more> and just generally makes you feel better. You might consider trying> that if you are going to resume medication.Sulfasalazine worked great for me at initial diagnosis and I didn't haveany side effects at all. Since I still have a giant bottle full of it,I'd probably just give it a try to see what happens if the dietmodifications don't help.>> Also, IME, and I think Kim M. has mentioned something similar,> for the first few years, some cyclical flaring may occur - the> thing to remember is that these flares are much less bad than> ones that occurred before SCD.>> So even when you were symptom free, you may have retained> some level of the disease deep in your tissues. Or perhaps> the genetic factor kicked in and even though you had entirely> licked it, genetic factors kicked back into gear once your gut> ecology got somewhat unbalanced.>This is the kind of information that gives me some perspective. Itdoesn't seem like it's too bad - I just know that in the past when I hadmy symptom of loose stools, recognizing the source and changing it wouldfix the symptom really quickly. I feel like this is taking longer - butperhaps I'm continuing to feed some of the bad guys unintentionally.I also know that I didn't follow Elaine's directions for waiting anentire year of being completely symptom-free before introducing non-SCDfoods. That probably would have helped with any residual disease. Shewas so smart. Sigh*.Thanks Mara.