Re: I have so many questions

[Guest guest]

hi,

I don't want to put words in the districts mouths but I think she won't need

spec ed does not mean that she won't get speech, ot and pt. those scores will

show she still needs services.

but don't get sooo ahead of yourself, take a day at a time. thats what I do or

try to do. its hard but.... breath. your doing the best that you can and god

bless.

chris

Bachman <susan3959@...> wrote:

Hi All,

I have posted a few questions in the past & everybody

is so helpful, not to mention knowledgeable.

I have so many questions, I am not really sure where

to begin. I am attempting to be informed & as

knowledgeable about her issues, but I am drowning in

information. I;ve read the Late Talker & The Out of

Sync Child, spent hours on the Internet ( speechville

etc.. ) I think I need help getting organized.

My daughter has recently been diagnosed with verbal &

oral dyspraxia, oral hypotonia, sensory integration

disorder. The neuro also stated static encephalopathy

in his eval. I adopted Callie 15 months ago from

China, so her genetics are totally unknown.

She has been in the EI program for 8 months, speech 2

& then upped to 3 x wk & she nows gets OT 2 x wk. She

has been taking 1/2 tsp of proefa for 7 wks, I''ve

seen so much progress, more verbal & a few new words (

bebe ( baby ) Hi & Dee ( the nickname of ehr nanny )

I imagine it's a combination of her theraopy

She is now 28 months old, so she will be in the ei

program for at least until Jan. 2005. I spoke w/ my

ongoing coordinator, she said Callie's annual review

will be in Sept. I asked her yesterday about what

happens after in home therapy after the ei program.

She said that Callie would been to be reevaluated in

all areas & she said that she felt Callie would not

qualify for spec. ed pre-school because of her

cognitive skills seem age appropriate. Does that mean

she will no longer get speech & OT & I will have to

pay for it myself?

I see many posts regarding problems with the IEP

meetings, & haven't come across that so far. I am

wondering shat I should be doing now to prepare for

that in the future. I have not been keeping a form log

of her words or her progress, should I be? I saw

Karyn's post about taping, it sound like a great idea.

Anyway, any help you can offer to help me better

understand & be better prepared for what I may face in

order to get her all the help she needs would be so

appreciated. I feel like I'm spinning in circles, know

I need to be doing something & don't know what & where

to start. I am a single mom, my friends have been very

supportive, but I'm on my own here.

Thanks so much

[Guest guest]

-

It sounds like your doing just fine. Taping was a great idea, wish I had

thought of that! We have kept a log of words that Josh adds to his vocabulary

and I think that is a good idea. Since Callie doesn't appear to have too many

words yet, starting one now would be good and you can add to it whenever a new

word appears. Most important, keep all paperwork from the school concerning her

educational programs, therapy reports, your letters or notes to the schools (we

have kept the daily notebook that goes back and forth for the past three years

since Josh started in developmental preschool in the public schools). Start a

file and just drop all the paperwork in folders based on whatever system you

find comfortable for you. We keep current paperwork in a briefcase, divided by

month, so that when we need to go to school, we can just pick up the briefcase

and go. When the year ends, we keep the last IEP in the briefcase (for

comparison to where Josh is at, whether he's met the

goals, etc., and to establish/compare to the new IEP), and clear out the rest

into a big RubberMaid bin that contains all the older paperwork (also divided

with folders by year and/or type of therapy). Just a thought, hope it helps.

Sherry

Bachman <susan3959@...> wrote:

Hi All,

I have posted a few questions in the past & everybody

is so helpful, not to mention knowledgeable.

I have so many questions, I am not really sure where

to begin. I am attempting to be informed & as

knowledgeable about her issues, but I am drowning in

information. I;ve read the Late Talker & The Out of

Sync Child, spent hours on the Internet ( speechville

etc.. ) I think I need help getting organized.

My daughter has recently been diagnosed with verbal &

oral dyspraxia, oral hypotonia, sensory integration

disorder. The neuro also stated static encephalopathy

in his eval. I adopted Callie 15 months ago from

China, so her genetics are totally unknown.

She has been in the EI program for 8 months, speech 2

& then upped to 3 x wk & she nows gets OT 2 x wk. She

has been taking 1/2 tsp of proefa for 7 wks, I''ve

seen so much progress, more verbal & a few new words (

bebe ( baby ) Hi & Dee ( the nickname of ehr nanny )

I imagine it's a combination of her theraopy

She is now 28 months old, so she will be in the ei

program for at least until Jan. 2005. I spoke w/ my

ongoing coordinator, she said Callie's annual review

will be in Sept. I asked her yesterday about what

happens after in home therapy after the ei program.

She said that Callie would been to be reevaluated in

all areas & she said that she felt Callie would not

qualify for spec. ed pre-school because of her

cognitive skills seem age appropriate. Does that mean

she will no longer get speech & OT & I will have to

pay for it myself?

I see many posts regarding problems with the IEP

meetings, & haven't come across that so far. I am

wondering shat I should be doing now to prepare for

that in the future. I have not been keeping a form log

of her words or her progress, should I be? I saw

Karyn's post about taping, it sound like a great idea.

Anyway, any help you can offer to help me better

understand & be better prepared for what I may face in

order to get her all the help she needs would be so

appreciated. I feel like I'm spinning in circles, know

I need to be doing something & don't know what & where

to start. I am a single mom, my friends have been very

supportive, but I'm on my own here.

Thanks so much

[Guest guest]

Sherry

thanks for all the helpful hints/ideas. I started her word book last

night.

Best

[Guest guest]

Any time - that's one of the best things about this email line - there are

always good hints from somebody about most anything!

Sherry

susan3959 <susan3959@...> wrote:

Sherry

thanks for all the helpful hints/ideas. I started her word book last

night.

Best