Re: discouraged,looking for some answers

[Guest guest]

My first guesses would be naltrexone and Sensory Integration OT. Have you

ever tried either?

Holly

----- Original Message -----

> Hi everyone,

> I am now at a point where I don't know what to do anymore. I am reaching

out

> for advice once again. My son Sam is now 6.5. he is nonverbal, mouths

> things, pinches and bites but mostly pinches, he is functioning about 12 o

18

> months. not potty trained, has been in public school programs and learned

> nothing. his day consists of snacking nonstop. He is never full even

after

> a large meal. Jumping on the beds, running backi and forth listening to

story

> tapes or music. he hates the car. I have done the diet 100% for at

least 3

> months. he has been off dairy for 1.5 years anyway.

> He is soy free, egg free and orange also. But still i find him randomly

> banging his head. Very very hard also. He will first rock and then start

> banging his head. I have an apointmentr to see an allergist because I

don't

> know what to do. This has gone on for a couple of years. I can't point

to a

> real cause and I feel so frustrated. between the mouthing things off the

> floor, the pinching , the nonstop eating, the headbanging, one minute he

is

> tired and the next hyper. I am going nuts and feeling so discouraged. he

> will be starting a very good school next week but I know unless I figure

out

> what is cause all this he will have a bad year. I must say he is now

> sleeping through the night which I do not take for granted. He does take

> Zyrtec at night for what I think are seasonal allergies. Maybe that is

why

> he is sleeping better. But I can't take him anywhere there are other

> children because he could really hurt them. I know someof you have

similiar

> types of kids. I was wondering if you figured out something I have not/.

I

> go to a DAn dr. and she is not sure why he is not progressing. I know

that

> all these issues keep him from making the progress. If he felt good inside

he

> wouldn't do all these negative things. Sorry to go on and on. Any advice

> would be great.

>

[Guest guest]

My first guesses would be naltrexone and Sensory Integration OT. Have you

ever tried either?

Holly

----- Original Message -----

> Hi everyone,

> I am now at a point where I don't know what to do anymore. I am reaching

out

> for advice once again. My son Sam is now 6.5. he is nonverbal, mouths

> things, pinches and bites but mostly pinches, he is functioning about 12 o

18

> months. not potty trained, has been in public school programs and learned

> nothing. his day consists of snacking nonstop. He is never full even

after

> a large meal. Jumping on the beds, running backi and forth listening to

story

> tapes or music. he hates the car. I have done the diet 100% for at

least 3

> months. he has been off dairy for 1.5 years anyway.

> He is soy free, egg free and orange also. But still i find him randomly

> banging his head. Very very hard also. He will first rock and then start

> banging his head. I have an apointmentr to see an allergist because I

don't

> know what to do. This has gone on for a couple of years. I can't point

to a

> real cause and I feel so frustrated. between the mouthing things off the

> floor, the pinching , the nonstop eating, the headbanging, one minute he

is

> tired and the next hyper. I am going nuts and feeling so discouraged. he

> will be starting a very good school next week but I know unless I figure

out

> what is cause all this he will have a bad year. I must say he is now

> sleeping through the night which I do not take for granted. He does take

> Zyrtec at night for what I think are seasonal allergies. Maybe that is

why

> he is sleeping better. But I can't take him anywhere there are other

> children because he could really hurt them. I know someof you have

similiar

> types of kids. I was wondering if you figured out something I have not/.

I

> go to a DAn dr. and she is not sure why he is not progressing. I know

that

> all these issues keep him from making the progress. If he felt good inside

he

> wouldn't do all these negative things. Sorry to go on and on. Any advice

> would be great.

>

[Guest guest]

My first guesses would be naltrexone and Sensory Integration OT. Have you

ever tried either?

Holly

----- Original Message -----

> Hi everyone,

> I am now at a point where I don't know what to do anymore. I am reaching

out

> for advice once again. My son Sam is now 6.5. he is nonverbal, mouths

> things, pinches and bites but mostly pinches, he is functioning about 12 o

18

> months. not potty trained, has been in public school programs and learned

> nothing. his day consists of snacking nonstop. He is never full even

after

> a large meal. Jumping on the beds, running backi and forth listening to

story

> tapes or music. he hates the car. I have done the diet 100% for at

least 3

> months. he has been off dairy for 1.5 years anyway.

> He is soy free, egg free and orange also. But still i find him randomly

> banging his head. Very very hard also. He will first rock and then start

> banging his head. I have an apointmentr to see an allergist because I

don't

> know what to do. This has gone on for a couple of years. I can't point

to a

> real cause and I feel so frustrated. between the mouthing things off the

> floor, the pinching , the nonstop eating, the headbanging, one minute he

is

> tired and the next hyper. I am going nuts and feeling so discouraged. he

> will be starting a very good school next week but I know unless I figure

out

> what is cause all this he will have a bad year. I must say he is now

> sleeping through the night which I do not take for granted. He does take

> Zyrtec at night for what I think are seasonal allergies. Maybe that is

why

> he is sleeping better. But I can't take him anywhere there are other

> children because he could really hurt them. I know someof you have

similiar

> types of kids. I was wondering if you figured out something I have not/.

I

> go to a DAn dr. and she is not sure why he is not progressing. I know

that

> all these issues keep him from making the progress. If he felt good inside

he

> wouldn't do all these negative things. Sorry to go on and on. Any advice

> would be great.

>

[Guest guest]

> Hi everyone,

> I am now at a point where I don't know what to do anymore. I am

reaching out

> for advice once again. My son Sam is now 6.5. he is nonverbal,

mouths

> things, pinches and bites but mostly pinches, he is functioning

about 12 o 18

> months. not potty trained, has been in public school programs and

learned

> nothing. his day consists of snacking nonstop. He is never full

even after

> a large meal. Jumping on the beds, running backi and forth

randomly

> banging his head. Very very hard also. He will first rock and

then start

> banging his head

Boy , does your little guy sound an awful lot like my little

guy!! I agree with all the advice you've gotten so far...we've used

naltoxene with some good results, and we also use prozac which has

helped somewhat with mood swings and anger...not 100% though.

In addition to an o.t. eval., I'd also suggest consulting a behavior

therapist/psychologist to help you develop a plan to deal with the

aggressive and self-injurious behaviors. And be very, very, very

consistent when following through. Our kids are very capable of

learning what behaviors are acceptable and what are not, but it takes

time, patience and consistency. It doesn't happen over night (we're

still workin' on it!), but his and your life can vastly improve...he

just needs to be shown how! Since he loves to snack (my guy too!)

you have some powerful reinforcers in food, and I bet once he

realizes he'll get treats if he does (or doesn't do) some behavior,

he'll learn very quickly!

I can relate to not learning in the public school system!

Unfortunately our kids don't generally learn in groups, or by

observation, and that's how schools are set up. In my case, I've

become convinced it's what we do at home is what's going to make the

difference...I think the best we can hope from school is maybe it'll

give them the opportunity to generalize what they learn at home.

Good luck,

Eileen, Fl.

[Guest guest]

> Hi everyone,

> I am now at a point where I don't know what to do anymore. I am

reaching out

> for advice once again. My son Sam is now 6.5. he is nonverbal,

mouths

> things, pinches and bites but mostly pinches, he is functioning

about 12 o 18

> months. not potty trained, has been in public school programs and

learned

> nothing. his day consists of snacking nonstop. He is never full

even after

> a large meal. Jumping on the beds, running backi and forth

randomly

> banging his head. Very very hard also. He will first rock and

then start

> banging his head

Boy , does your little guy sound an awful lot like my little

guy!! I agree with all the advice you've gotten so far...we've used

naltoxene with some good results, and we also use prozac which has

helped somewhat with mood swings and anger...not 100% though.

In addition to an o.t. eval., I'd also suggest consulting a behavior

therapist/psychologist to help you develop a plan to deal with the

aggressive and self-injurious behaviors. And be very, very, very

consistent when following through. Our kids are very capable of

learning what behaviors are acceptable and what are not, but it takes

time, patience and consistency. It doesn't happen over night (we're

still workin' on it!), but his and your life can vastly improve...he

just needs to be shown how! Since he loves to snack (my guy too!)

you have some powerful reinforcers in food, and I bet once he

realizes he'll get treats if he does (or doesn't do) some behavior,

he'll learn very quickly!

I can relate to not learning in the public school system!

Unfortunately our kids don't generally learn in groups, or by

observation, and that's how schools are set up. In my case, I've

become convinced it's what we do at home is what's going to make the

difference...I think the best we can hope from school is maybe it'll

give them the opportunity to generalize what they learn at home.

Good luck,

Eileen, Fl.

[Guest guest]

>> I am now at a point where I don't know what to do anymore.<<

,

He sounds a lot like my son used to be!

You're going to think I'm nuts, but have you heard of craniosacral

therapy?

Here is the web address of Upledger's presentation on autism and

craniosacral therapy: <http://www.upledger.com/Clinic/autism.htm>

Here is Upledger's web address:

<http://www.upledger.com>

Read this. You can email me privately if you wish to ask specific

questions:

friedli@...

Margaret

[Guest guest]

,

I just want to expound on craniosacral therapy. It is by no means a

cure, but I believe it helps take care of the underlying or base

problems. My son is 7.5 years old and has made more progress in the

last two weeks (2 treatments) than he has in years. He is considered

high fuctioning. All of his therapists and teachers have made

comments

about his rapid progress and I have asked them all to document. (I'm

a stickler for documentation.) I believe all the other therapies are

now benefitting him to the maximum.

I agree with all the other postings and think this might help in

addition to diet, vitamins, sensory inegration etc.

As always write or post with any questions.

Margaret

[Guest guest]

<< This diet eliminates salicylates and

everything artificial - colors, flavors, preservatives. >>

This is exactly the way I think that I need to go with my son. I have

noticed a huge difference in him just by eliminating juice with red coloring

in it. I am getting the feingold info and going to start on it soon.

Also, I think you are on target with going to an allergist. You may have

other food allergies to deal with too...sounds like it if he is craving

something...does he eat the same things all the time?