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Medicaid Waiver

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WHat state are you in?

Rita

> Hello everyone. My daugher is 6 years old and was recommemded for a

communication device. I was told that we should apply for a Medicaid Waiver. I

filled out the questionnaire and received a call today from the psychologist

that my daughter qualifies for Medicaid services. I am mostly interested in

Service Coordination, recreation and possibly respite services.

>

> I would like to hear from anyone using Medicaid services. I have one friend

who is also getting Medicaid services for her children. What services are you

getting and how oftern? Thanks in advance for your help. You can e-mail me

privately.

>

>

>

>

>

>

>

> ---------------------------------

> Start your day with - make it your home page

>

>

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Guest guest

Hello everyone. My daugher is 6 years old and was recommemded for a

communication device. I was told that we should apply for a Medicaid Waiver. I

filled out the questionnaire and received a call today from the psychologist

that my daughter qualifies for Medicaid services. I am mostly interested in

Service Coordination, recreation and possibly respite services.

I would like to hear from anyone using Medicaid services. I have one friend who

is also getting Medicaid services for her children. What services are you

getting and how oftern? Thanks in advance for your help. You can e-mail me

privately.

---------------------------------

Start your day with - make it your home page

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Guest guest

I am in New York state.

rdbadge@... wrote:

WHat state are you in?

Rita

> Hello everyone. My daugher is 6 years old and was recommemded for a

communication device. I was told that we should apply for a Medicaid Waiver. I

filled out the questionnaire and received a call today from the psychologist

that my daughter qualifies for Medicaid services. I am mostly interested in

Service Coordination, recreation and possibly respite services.

>

> I would like to hear from anyone using Medicaid services. I have one friend

who is also getting Medicaid services for her children. What services are you

getting and how oftern? Thanks in advance for your help. You can e-mail me

privately.

>

>

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  • 3 years later...
Guest guest

, sorry for the hassle you are going through. A few weeks ago, I posted

on how we lost our respite funding because of the waiver funding, so I know what

you are going through. Our respite was in the form of funding to allow us to

pay for services workers and then get reimbursed.

ajojoga <promom11@...> wrote: I have been

admiring from afar, all you are doing to help your

children. Thank you for all the wisdom you have shared.

We were halted from our respite once the state had notified the

respite agency of our medicaid waiver funding. The respite agency

refused to pay our workers from June 1st, even though they did not

notify us of ceasing our funding until the second week of July....to

the tune of $615. We are stuck in a paperwork holding pen while we

get going with Access.

I am trying not to be discouraged, and we are trying to privately pay

to hang on to our workers, so we do not have to start from scratch in

looking for new people.

I wanted to share this story as in a previous post, someone had

stated the intentions of the services, going one from the other, were

to be seamless, but the paperwork to " terminate one before the other "

creates an abyss.

We will keep on keeping on!

Finato

www.AngelSpeaks.com

www.wegrowdreams.org

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I will pass this on to the folks who might be interested in knowing this,

. I am so sorry this has happened to you...big bummer!

Ellen

Ellen Garber Bronfeld

egskb@...

Medicaid waiver

I have been admiring from afar, all you are doing to help your

children. Thank you for all the wisdom you have shared.

We were halted from our respite once the state had notified the

respite agency of our medicaid waiver funding. The respite agency

refused to pay our workers from June 1st, even though they did not

notify us of ceasing our funding until the second week of July....to

the tune of $615. We are stuck in a paperwork holding pen while we

get going with Access.

I am trying not to be discouraged, and we are trying to privately pay

to hang on to our workers, so we do not have to start from scratch in

looking for new people.

I wanted to share this story as in a previous post, someone had

stated the intentions of the services, going one from the other, were

to be seamless, but the paperwork to " terminate one before the other "

creates an abyss.

We will keep on keeping on!

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Guest guest

You are not alone!!!!

So much confusion, so many mininformed, uniformed professionals!!

In my personal case with my son, I received so much wrong information

that in the end, we were done out money for the month of April to our

caregivers and I paid this out of my pocket. We cancelled the respid

care, as we were told to do initially as soon as we received the

award letter, FIRST MISTAKE. DO NOT CANCEL ANY PROGRAM UNTIL THE

OTHER IS IN PLACE.

I had a difficult time finding a service facilitator to take on the

case, and trouble getting a hold of someone at ACES$ to get papers

completed. I was told, DONT WORRY, does not matter when the papers

are completed, everything will be retroactive, SECOND MISTAKE. THE

TRUTH IS, services for the waiver cannot start until you get the

federal number and that is assigned once the papers are completed and

filed by ACES$.

I think in this journey we have asked a lot of questions, and made a

lot of people accountable to find out correct information, I dont

give up easily. Infact my so called service facilitator is learning a

lot too!!!!!

Time is of the essence! Once you or anyone you know gets the award

letter, they need to contact ACES$ and find a service facilitator

IMMEDIATELY to get the ball rolling.

Too many times people do not act promptly, and assume all will be

taken care of. No one will take care of it like you do!!!

We as parents need to help pass on information so that everyone is

treated fairly.

So dont feel alone, you have many, many people in the same boat just

at different points on the river!!

Kathy

>

> I have been admiring from afar, all you are doing to help your

> children. Thank you for all the wisdom you have shared.

>

> We were halted from our respite once the state had notified the

> respite agency of our medicaid waiver funding. The respite agency

> refused to pay our workers from June 1st, even though they did not

> notify us of ceasing our funding until the second week of

July....to

> the tune of $615. We are stuck in a paperwork holding pen while we

> get going with Access.

>

> I am trying not to be discouraged, and we are trying to privately

pay

> to hang on to our workers, so we do not have to start from scratch

in

> looking for new people.

>

> I wanted to share this story as in a previous post, someone had

> stated the intentions of the services, going one from the other,

were

> to be seamless, but the paperwork to " terminate one before the

other "

> creates an abyss.

>

> We will keep on keeping on!

>

>

>

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Guest guest

I found this to be true also, with my son moving into a group home. I

mistakenly thought we'd have a smooth transition. I've had to do their

job on getting his State ID changed, rep. payee., getting info on dr's

visits, (they wanted to change his docs to whom they use.) Am hoping

the stress level goes down soon.

Liz

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Guest guest

When our girl move into a ICF/DD I refused to change the rep. payee.

I left everything the same and I write them a check on the 2nd of the

month after it is deposited in her account.

The facility has there own doctors but we still take her to her previous

doctor. Medicaid pays for everything at the ICF/DD. Her own doctor is payed

by our private insurance with the co-pay being payed by Medicaid.

I refused to turn all things over to the facility. It's my understanding

that they need to do a IPP (Individual Personal Plan) with in 30 days of

moving into a facility. You can request various items to be written in the

plan.

Hope this helps

TED

--

www.mccannon.net

McCannon Enterprises

45W134 Rd.

Big Rock, IL 60511

630-556-3100

630-556-4FAX(4329)

---------------------- Original Message: ---------------------

From: " pacmomma2 " <pacmomma2@...>

IPADDUnite

Subject: Re: Medicaid waiver

Date: Thu, 7 Aug 2008 10:01:03 +0000

>

> I found this to be true also, with my son moving into a group home. I

> mistakenly thought we'd have a smooth transition. I've had to do their

> job on getting his State ID changed, rep. payee., getting info on dr's

> visits, (they wanted to change his docs to whom they use.) Am hoping

> the stress level goes down soon.

>

> Liz

>

>

>

>

>

>

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Guest guest

I agree Kathy!

Thanks for sharing your experience.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Medicaid waiver

You are not alone!!!!

So much confusion, so many mininformed, uniformed professionals!!

In my personal case with my son, I received so much wrong information

that in the end, we were done out money for the month of April to our

caregivers and I paid this out of my pocket. We cancelled the respid

care, as we were told to do initially as soon as we received the

award letter, FIRST MISTAKE. DO NOT CANCEL ANY PROGRAM UNTIL THE

OTHER IS IN PLACE.

I had a difficult time finding a service facilitator to take on the

case, and trouble getting a hold of someone at ACES$ to get papers

completed. I was told, DONT WORRY, does not matter when the papers

are completed, everything will be retroactive, SECOND MISTAKE. THE

TRUTH IS, services for the waiver cannot start until you get the

federal number and that is assigned once the papers are completed and

filed by ACES$.

I think in this journey we have asked a lot of questions, and made a

lot of people accountable to find out correct information, I dont

give up easily. Infact my so called service facilitator is learning a

lot too!!!!!

Time is of the essence! Once you or anyone you know gets the award

letter, they need to contact ACES$ and find a service facilitator

IMMEDIATELY to get the ball rolling.

Too many times people do not act promptly, and assume all will be

taken care of. No one will take care of it like you do!!!

We as parents need to help pass on information so that everyone is

treated fairly.

So dont feel alone, you have many, many people in the same boat just

at different points on the river!!

Kathy

>

> I have been admiring from afar, all you are doing to help your

> children. Thank you for all the wisdom you have shared.

>

> We were halted from our respite once the state had notified the

> respite agency of our medicaid waiver funding. The respite agency

> refused to pay our workers from June 1st, even though they did not

> notify us of ceasing our funding until the second week of

July....to

> the tune of $615. We are stuck in a paperwork holding pen while we

> get going with Access.

>

> I am trying not to be discouraged, and we are trying to privately

pay

> to hang on to our workers, so we do not have to start from scratch

in

> looking for new people.

>

> I wanted to share this story as in a previous post, someone had

> stated the intentions of the services, going one from the other,

were

> to be seamless, but the paperwork to " terminate one before the

other "

> creates an abyss.

>

> We will keep on keeping on!

>

>

>

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