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Re: adrenal hyperplasia/Cindi

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Posted
Posted

,

Thanks for the info. I have some of the same things she did...along with

elevated testosterone and excess body hair (have to shave legs every day!) and

insomnia and some of the other. Maybe this is why the prednisolone is helping

me? Do you know exactly why the prednisone is given for this condition? And

is that the only thing she takes? And I'm still a little unsure how one obtains

a diagnosis on this? Thanks for info.

Cindi

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Posted
Posted

,

Thanks for the info. I have some of the same things she did...along with

elevated testosterone and excess body hair (have to shave legs every day!) and

insomnia and some of the other. Maybe this is why the prednisolone is helping

me? Do you know exactly why the prednisone is given for this condition? And

is that the only thing she takes? And I'm still a little unsure how one obtains

a diagnosis on this? Thanks for info.

Cindi

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In a message dated 9/19/2004 4:10:27 PM Eastern Standard Time,

jamyrogers@... writes:

> Pred seems to work best 2.5 seems to

> be the base amount for my friends as well

I guess prednisolone is as effective as prednisone? And I'm taking 5.0...and

it sure helps the way I feel.

Cindi

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Posted
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In a message dated 9/19/2004 4:10:27 PM Eastern Standard Time,

jamyrogers@... writes:

> Pred seems to work best 2.5 seems to

> be the base amount for my friends as well

I guess prednisolone is as effective as prednisone? And I'm taking 5.0...and

it sure helps the way I feel.

Cindi

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Posted
Posted

In a message dated 9/19/2004 4:10:27 PM Eastern Standard Time,

jamyrogers@... writes:

> One DR told nana

> that it is a miracle she survived to get treatment. How sad, huh?

>

>

yea. remember my mom was a suicide...never diagnosed hashimoto's and adrenal

hyperplasia on the autopsy...scary, huh?

cindi

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Posted
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Sure Cindi,

Her symptoms began at puberty age 10ish, Acne, insomnia, bone pain. Her worst

was the acne, nothing helped it...lots of doctors later I said check her

hormones & her DHEAs were sky high...testosterone too I think? The doctor didn't

have a clue! I never did get her test copies ...it took from age 10-age 19 to

get DX'd. The Dermatologist should have caught it since nothing had an effect on

her skin.

Her periods were/are like clock-work, she didn't get PMS ever, her height is

probably above average, she's 5'8 and of normal weight...she's always had a lot

of muscle mass & was/is very active and healthy. I thought that she had PCOS &

tried Pro-Gest cream on her for a few months...that did not help anything that

she could tell.

At age 20 she went to a health dept and got tested and they referred her to an

Endo at OHSU in Portland. She was really put through the tests and finally DX'd

with LOCAH & put on 2.5mg of Prednisone....her skin is clear & all healed up

beautifully...she feels great, but always felt well...her other symptom was

having a Moon-shaped face & excess body hair ...but she's olive complicated with

almost black hair, so I never thought much of that...but she was always

concerned about it.

I hope to get tested within the next month or so.

Best to you,

----- Original Message -----

this is interesting that this is being mentioned. I have considered that I

have late onset adrenal hyperplasia and that is why the Delta is helping me.

Can you tell me more about her symptoms? I also know my mom's autopsy showed

adrenal hyperplasia.

Cindi

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Posted
Posted

I know many people with Locah and Cah. Pred seems to work best 2.5 seems to

be the base amount for my friends as well. I may go up somewhat in dosage or

down. Very few Dr's really seem to understand the disease. My best friend

and her grandmother have been to any DR's over the years. One DR told nana

that it is a miracle she survived to get treatment. How sad, huh?

>

>Reply-To: NaturalThyroidHormones

>To: <NaturalThyroidHormones >

>Subject: Re: adrenal hyperplasia/Cindi

>Date: Sun, 19 Sep 2004 12:53:49 -0700

>

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Posted
Posted

I know many people with Locah and Cah. Pred seems to work best 2.5 seems to

be the base amount for my friends as well. I may go up somewhat in dosage or

down. Very few Dr's really seem to understand the disease. My best friend

and her grandmother have been to any DR's over the years. One DR told nana

that it is a miracle she survived to get treatment. How sad, huh?

>

>Reply-To: NaturalThyroidHormones

>To: <NaturalThyroidHormones >

>Subject: Re: adrenal hyperplasia/Cindi

>Date: Sun, 19 Sep 2004 12:53:49 -0700

>

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Posted
Posted

I know many people with Locah and Cah. Pred seems to work best 2.5 seems to

be the base amount for my friends as well. I may go up somewhat in dosage or

down. Very few Dr's really seem to understand the disease. My best friend

and her grandmother have been to any DR's over the years. One DR told nana

that it is a miracle she survived to get treatment. How sad, huh?

>

>Reply-To: NaturalThyroidHormones

>To: <NaturalThyroidHormones >

>Subject: Re: adrenal hyperplasia/Cindi

>Date: Sun, 19 Sep 2004 12:53:49 -0700

>

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Posted
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In a message dated 9/19/2004 8:31:34 PM Eastern Standard Time,

jamyrogers@... writes:

>

> it was a mispell and 5 is a high dose from all the people I know

>

that's interesting. high dose for adrenal hyperplasia but normal dose for

adrenal fatigue. geez...what to do now?

Cindi

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Posted
Posted

I don't know why exactly she takes the Prednisone. I haven't been able to go

with her to her Endo, yet.

Yes that's the only thing she takes...think it's been 2 years or more. I'd love

to see her lab results, lol...She had a lot of testing done, I don't know the

results or how he DX'd her...If I ever find out I'll let you know. I'm so

curious...she's young and doesn't really care...just takes her RX and does well

with it.

Re: adrenal hyperplasia/Cindi

,

Thanks for the info. I have some of the same things she did...along with

elevated testosterone and excess body hair (have to shave legs every day!) and

insomnia and some of the other. Maybe this is why the prednisolone is helping

me? Do you know exactly why the prednisone is given for this condition? And

is that the only thing she takes? And I'm still a little unsure how one

obtains

a diagnosis on this? Thanks for info.

Cindi

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Posted
Posted

Cindi go join the CAHSISTERS2 yahoo group and ask them, they are smart...the

ones that have posted to me seem to be sorta against self medicating <grin>

Believe me they will give you a lot of info to digest on CAH.

Re: adrenal hyperplasia/Cindi

In a message dated 9/19/2004 8:31:34 PM Eastern Standard Time,

jamyrogers@... writes:

>

> it was a mispell and 5 is a high dose from all the people I know

>

that's interesting. high dose for adrenal hyperplasia but normal dose for

adrenal fatigue. geez...what to do now?

Cindi

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Posted
Posted

Cindi go join the CAHSISTERS2 yahoo group and ask them, they are smart...the

ones that have posted to me seem to be sorta against self medicating <grin>

Believe me they will give you a lot of info to digest on CAH.

Re: adrenal hyperplasia/Cindi

In a message dated 9/19/2004 8:31:34 PM Eastern Standard Time,

jamyrogers@... writes:

>

> it was a mispell and 5 is a high dose from all the people I know

>

that's interesting. high dose for adrenal hyperplasia but normal dose for

adrenal fatigue. geez...what to do now?

Cindi

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Posted
Posted

Cindi go join the CAHSISTERS2 yahoo group and ask them, they are smart...the

ones that have posted to me seem to be sorta against self medicating <grin>

Believe me they will give you a lot of info to digest on CAH.

Re: adrenal hyperplasia/Cindi

In a message dated 9/19/2004 8:31:34 PM Eastern Standard Time,

jamyrogers@... writes:

>

> it was a mispell and 5 is a high dose from all the people I know

>

that's interesting. high dose for adrenal hyperplasia but normal dose for

adrenal fatigue. geez...what to do now?

Cindi

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Posted
Posted

In a message dated 9/20/2004 12:35:18 AM Eastern Standard Time,

Gipsi_Moon@... writes:

> they are smart...the ones that have posted to me seem to be sorta against

> self medicating <grin>

how can they be smart if they are against self-medicating? :)

cindi

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In a message dated 9/20/2004 9:56:33 AM Eastern Standard Time,

jamyrogers@... writes:

>

> what tests have you run for this>

>

nothing yet...but I know my mom had it...and I just can't figure if her

" adrenal hyperplasia " was late onset adrenal hyperplasia or was from never being

diagnosed with the Hashimoto's. So I'm just looking into it for now.

cindi

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In a message dated 9/20/2004 9:56:33 AM Eastern Standard Time,

jamyrogers@... writes:

>

> what tests have you run for this>

>

nothing yet...but I know my mom had it...and I just can't figure if her

" adrenal hyperplasia " was late onset adrenal hyperplasia or was from never being

diagnosed with the Hashimoto's. So I'm just looking into it for now.

cindi

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In a message dated 9/20/2004 10:10:42 AM Eastern Standard Time,

Gipsi_Moon@... writes:

> lol...okay I'll rephrase that they really have a lot of great info on

> Adrenal glands, DHEA, testosterone, etc.

>

lol. I know. and I thank you for the info.

Cindi

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Posted
Posted

In a message dated 9/20/2004 10:10:42 AM Eastern Standard Time,

Gipsi_Moon@... writes:

> lol...okay I'll rephrase that they really have a lot of great info on

> Adrenal glands, DHEA, testosterone, etc.

>

lol. I know. and I thank you for the info.

Cindi

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Posted
Posted

In a message dated 9/20/2004 10:10:42 AM Eastern Standard Time,

Gipsi_Moon@... writes:

> lol...okay I'll rephrase that they really have a lot of great info on

> Adrenal glands, DHEA, testosterone, etc.

>

lol. I know. and I thank you for the info.

Cindi

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Posted
Posted

They know their stuff and have great contacts for Cah and Locah as well as

what dosages and drugs do what

>

>Reply-To: NaturalThyroidHormones

>To: <NaturalThyroidHormones >

>Subject: Re: adrenal hyperplasia/Cindi

>Date: Sun, 19 Sep 2004 20:54:11 -0700

>Cindi go join the CAHSISTERS2 yahoo group and ask them, they are

>smart...the ones that have posted to me seem to be sorta against self

>medicating <grin> Believe me they will give you a lot of info to digest on

>CAH.

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