Re: Need help about SDS{Kathy}

[Guest guest]

Greetings Kathy!

You wondered " When you said no surgery for MSA patients, did you mean

surgery for anything or for breathing problems? "

Mostly it was about sleep apnea surgery. The trache tube is one of the very

few surgeries that work. Assumptions here: MSA cripples the autonomic

nervous system and hampers the complex action of breathing during sleep.

Obstruction can result from failure to open esophagus or vocal cords.

Surgery to 'open' the airway does not prevent the cause (failure of the

system to coordinate breathing). And obstruction results from vocal cord

paralysis, surgery in back of the throat is painful and pointless. Here a

trache tube makes a huge difference. Otherwise a CPAP or BiPAP machine is a

much better alternative.

Also, both Dave and Anne related similar problems with surgery. For MSA

patients it can be touchy. Anne noted an IV started before surgery to help

maintain body fluid (thus BP) helps. Also, if MSA dulls the breathing

process, anesthesia {correctly spelled, so no forgiveness needed! ;-} only

makes it worse.

At least that's what I've seen from participating in a sleep disorder

newsgroup, and from members here in this group.

IMPORTANT: A pointer for anyone with MSA that faces surgery... always

discuss the MSA and it's impact during surgery with the surgeon and the

anesthesiologist. Don't let them ride roughshod over you. Be certain they

know the far reaching impact it can have. Most do not know, and are

surprised to learn the potential consequences. Also, if you use a

CPAP/BiPAP unit, be some breathing assistance is scheduled and available

during the recovery. It is EXTREMELY important to do this. It might not be

needed, but it's better to be prepared.

Sorry for the preaching. Hope that helps.

Regards,

=jbf=

B. Fisher

[Guest guest]

Greetings Kathy!

You wondered " When you said no surgery for MSA patients, did you mean

surgery for anything or for breathing problems? "

Mostly it was about sleep apnea surgery. The trache tube is one of the very

few surgeries that work. Assumptions here: MSA cripples the autonomic

nervous system and hampers the complex action of breathing during sleep.

Obstruction can result from failure to open esophagus or vocal cords.

Surgery to 'open' the airway does not prevent the cause (failure of the

system to coordinate breathing). And obstruction results from vocal cord

paralysis, surgery in back of the throat is painful and pointless. Here a

trache tube makes a huge difference. Otherwise a CPAP or BiPAP machine is a

much better alternative.

Also, both Dave and Anne related similar problems with surgery. For MSA

patients it can be touchy. Anne noted an IV started before surgery to help

maintain body fluid (thus BP) helps. Also, if MSA dulls the breathing

process, anesthesia {correctly spelled, so no forgiveness needed! ;-} only

makes it worse.

At least that's what I've seen from participating in a sleep disorder

newsgroup, and from members here in this group.

IMPORTANT: A pointer for anyone with MSA that faces surgery... always

discuss the MSA and it's impact during surgery with the surgeon and the

anesthesiologist. Don't let them ride roughshod over you. Be certain they

know the far reaching impact it can have. Most do not know, and are

surprised to learn the potential consequences. Also, if you use a

CPAP/BiPAP unit, be some breathing assistance is scheduled and available

during the recovery. It is EXTREMELY important to do this. It might not be

needed, but it's better to be prepared.

Sorry for the preaching. Hope that helps.

Regards,

=jbf=

B. Fisher

[Guest guest]

,

I have studied the treatment of sleep apnea, and found all the studies were

in agreement " surgery for sleep apnea does not help " its a waste of medical

dollars.

God Bless,

Jim Stark

Re: Need help about SDS{Kathy}

> Greetings Kathy!

>

> You wondered " When you said no surgery for MSA patients, did you mean

> surgery for anything or for breathing problems? "

>

> Mostly it was about sleep apnea surgery. The trache tube is one of the

very

> few surgeries that work. Assumptions here: MSA cripples the autonomic

> nervous system and hampers the complex action of breathing during sleep.

> Obstruction can result from failure to open esophagus or vocal cords.

> Surgery to 'open' the airway does not prevent the cause (failure of the

> system to coordinate breathing). And obstruction results from vocal cord

> paralysis, surgery in back of the throat is painful and pointless. Here a

> trache tube makes a huge difference. Otherwise a CPAP or BiPAP machine is

a

> much better alternative.

>

> Also, both Dave and Anne related similar problems with surgery. For MSA

> patients it can be touchy. Anne noted an IV started before surgery to

help

> maintain body fluid (thus BP) helps. Also, if MSA dulls the breathing

> process, anesthesia {correctly spelled, so no forgiveness needed! ;-}

only

> makes it worse.

>

> At least that's what I've seen from participating in a sleep disorder

> newsgroup, and from members here in this group.

>

> IMPORTANT: A pointer for anyone with MSA that faces surgery... always

> discuss the MSA and it's impact during surgery with the surgeon and the

> anesthesiologist. Don't let them ride roughshod over you. Be certain

they

> know the far reaching impact it can have. Most do not know, and are

> surprised to learn the potential consequences. Also, if you use a

> CPAP/BiPAP unit, be some breathing assistance is scheduled and available

> during the recovery. It is EXTREMELY important to do this. It might not

be

> needed, but it's better to be prepared.

>

> Sorry for the preaching. Hope that helps.

>

>

> Regards,

> =jbf=

>

> B. Fisher

>

>

>

[Guest guest]

Are 'all the studies' reliable and valid?? How many studies did u read?

What was the criterion?? Mind u I am not agreeing or disagreeing

whether one needs surgery. The studies of sleep apnea are important.

What are some of the studies , so I can educate myself.

nancy m.

" D. Stark Jr. " wrote:

>

> ,

>

> I have studied the treatment of sleep apnea, and found all the studies were

> in agreement " surgery for sleep apnea does not help " its a waste of medical

> dollars.

>

> God Bless,

> Jim Stark

>

> Re: Need help about SDS{Kathy}

>

> > Greetings Kathy!

> >

> > You wondered " When you said no surgery for MSA patients, did you mean

> > surgery for anything or for breathing problems? "

> >

> > Mostly it was about sleep apnea surgery. The trache tube is one of the

> very

> > few surgeries that work. Assumptions here: MSA cripples the autonomic

> > nervous system and hampers the complex action of breathing during sleep.

> > Obstruction can result from failure to open esophagus or vocal cords.

> > Surgery to 'open' the airway does not prevent the cause (failure of the

> > system to coordinate breathing). And obstruction results from vocal cord

> > paralysis, surgery in back of the throat is painful and pointless. Here a

> > trache tube makes a huge difference. Otherwise a CPAP or BiPAP machine is

> a

> > much better alternative.

> >

> > Also, both Dave and Anne related similar problems with surgery. For MSA

> > patients it can be touchy. Anne noted an IV started before surgery to

> help

> > maintain body fluid (thus BP) helps. Also, if MSA dulls the breathing

> > process, anesthesia {correctly spelled, so no forgiveness needed! ;-}

> only

> > makes it worse.

> >

> > At least that's what I've seen from participating in a sleep disorder

> > newsgroup, and from members here in this group.

> >

> > IMPORTANT: A pointer for anyone with MSA that faces surgery... always

> > discuss the MSA and it's impact during surgery with the surgeon and the

> > anesthesiologist. Don't let them ride roughshod over you. Be certain

> they

> > know the far reaching impact it can have. Most do not know, and are

> > surprised to learn the potential consequences. Also, if you use a

> > CPAP/BiPAP unit, be some breathing assistance is scheduled and available

> > during the recovery. It is EXTREMELY important to do this. It might not

> be

> > needed, but it's better to be prepared.

> >

> > Sorry for the preaching. Hope that helps.

> >

> >

> > Regards,

> > =jbf=

> >

> > B. Fisher

> >

> >

> >

[Guest guest]

,

I don't have MSA, (I'm the caretaker) but I do have

sleep apnea. When I was diagnosed and treatment was

being discussed, the dr. told me that there was

surgery, but it was so seldom successful that he

wouldn't recommend it. If that is the case for

otherwise healthy people, imagine the lack of success

rate when the patient has complications like MSA. I

can't tell you why it seldom solves the problem, but

why bother when cpap or bipap work well and painlessly

(and probably less expensively, too). It takes a

little getting used to, but you feel so much better

even after the first night.

Gail

--- nancy wrote:

> Are 'all the studies' reliable and valid?? How many

> studies did u read?

> What was the criterion?? Mind u I am not agreeing

> or disagreeing

> whether one needs surgery. The studies of sleep

> apnea are important.

> What are some of the studies , so I can educate

=====

Gail

gsouthwick@...

__________________________________________________

[Guest guest]

,

I don't have MSA, (I'm the caretaker) but I do have

sleep apnea. When I was diagnosed and treatment was

being discussed, the dr. told me that there was

surgery, but it was so seldom successful that he

wouldn't recommend it. If that is the case for

otherwise healthy people, imagine the lack of success

rate when the patient has complications like MSA. I

can't tell you why it seldom solves the problem, but

why bother when cpap or bipap work well and painlessly

(and probably less expensively, too). It takes a

little getting used to, but you feel so much better

even after the first night.

Gail

--- nancy wrote:

> Are 'all the studies' reliable and valid?? How many

> studies did u read?

> What was the criterion?? Mind u I am not agreeing

> or disagreeing

> whether one needs surgery. The studies of sleep

> apnea are important.

> What are some of the studies , so I can educate

=====

Gail

gsouthwick@...

__________________________________________________

[Guest guest]

,

These studies were in medical journals and I must have read 15.

No, all studies are not valid. Some are published as reviews of current

literature because the institution the researcher works for requires them to

" publish or perish " .

I have sleep apnea myself and read these studies for two reasons: 1. my job

as a pharmaceutical rep selling an asthma drug required me to keep up with

the topic. 2: for personal reasons as I was thinking of having the surgery

versus using the CPAP.

God Bless,

Jim Stark

Most of them were

Re: Need help about SDS{Kathy}

> >

> > > Greetings Kathy!

> > >

> > > You wondered " When you said no surgery for MSA patients, did you mean

> > > surgery for anything or for breathing problems? "

> > >

> > > Mostly it was about sleep apnea surgery. The trache tube is one of

the

> > very

> > > few surgeries that work. Assumptions here: MSA cripples the

autonomic

> > > nervous system and hampers the complex action of breathing during

sleep.

> > > Obstruction can result from failure to open esophagus or vocal cords.

> > > Surgery to 'open' the airway does not prevent the cause (failure of

the

> > > system to coordinate breathing). And obstruction results from vocal

cord

> > > paralysis, surgery in back of the throat is painful and pointless.

Here a

> > > trache tube makes a huge difference. Otherwise a CPAP or BiPAP

machine is

> > a

> > > much better alternative.

> > >

> > > Also, both Dave and Anne related similar problems with surgery. For

MSA

> > > patients it can be touchy. Anne noted an IV started before surgery to

> > help

> > > maintain body fluid (thus BP) helps. Also, if MSA dulls the breathing

> > > process, anesthesia {correctly spelled, so no forgiveness needed! ;-}

> > only

> > > makes it worse.

> > >

> > > At least that's what I've seen from participating in a sleep disorder

> > > newsgroup, and from members here in this group.

> > >

> > > IMPORTANT: A pointer for anyone with MSA that faces surgery... always

> > > discuss the MSA and it's impact during surgery with the surgeon and

the

> > > anesthesiologist. Don't let them ride roughshod over you. Be certain

> > they

> > > know the far reaching impact it can have. Most do not know, and are

> > > surprised to learn the potential consequences. Also, if you use a

> > > CPAP/BiPAP unit, be some breathing assistance is scheduled and

available

> > > during the recovery. It is EXTREMELY important to do this. It might

not

> > be

> > > needed, but it's better to be prepared.

> > >

> > > Sorry for the preaching. Hope that helps.

> > >

> > >

> > > Regards,

> > > =jbf=

> > >

> > > B. Fisher

> > >

> > >

> > >

[Guest guest]

,

These studies were in medical journals and I must have read 15.

No, all studies are not valid. Some are published as reviews of current

literature because the institution the researcher works for requires them to

" publish or perish " .

I have sleep apnea myself and read these studies for two reasons: 1. my job

as a pharmaceutical rep selling an asthma drug required me to keep up with

the topic. 2: for personal reasons as I was thinking of having the surgery

versus using the CPAP.

God Bless,

Jim Stark

Most of them were

Re: Need help about SDS{Kathy}

> >

> > > Greetings Kathy!

> > >

> > > You wondered " When you said no surgery for MSA patients, did you mean

> > > surgery for anything or for breathing problems? "

> > >

> > > Mostly it was about sleep apnea surgery. The trache tube is one of

the

> > very

> > > few surgeries that work. Assumptions here: MSA cripples the

autonomic

> > > nervous system and hampers the complex action of breathing during

sleep.

> > > Obstruction can result from failure to open esophagus or vocal cords.

> > > Surgery to 'open' the airway does not prevent the cause (failure of

the

> > > system to coordinate breathing). And obstruction results from vocal

cord

> > > paralysis, surgery in back of the throat is painful and pointless.

Here a

> > > trache tube makes a huge difference. Otherwise a CPAP or BiPAP

machine is

> > a

> > > much better alternative.

> > >

> > > Also, both Dave and Anne related similar problems with surgery. For

MSA

> > > patients it can be touchy. Anne noted an IV started before surgery to

> > help

> > > maintain body fluid (thus BP) helps. Also, if MSA dulls the breathing

> > > process, anesthesia {correctly spelled, so no forgiveness needed! ;-}

> > only

> > > makes it worse.

> > >

> > > At least that's what I've seen from participating in a sleep disorder

> > > newsgroup, and from members here in this group.

> > >

> > > IMPORTANT: A pointer for anyone with MSA that faces surgery... always

> > > discuss the MSA and it's impact during surgery with the surgeon and

the

> > > anesthesiologist. Don't let them ride roughshod over you. Be certain

> > they

> > > know the far reaching impact it can have. Most do not know, and are

> > > surprised to learn the potential consequences. Also, if you use a

> > > CPAP/BiPAP unit, be some breathing assistance is scheduled and

available

> > > during the recovery. It is EXTREMELY important to do this. It might

not

> > be

> > > needed, but it's better to be prepared.

> > >

> > > Sorry for the preaching. Hope that helps.

> > >

> > >

> > > Regards,

> > > =jbf=

> > >

> > > B. Fisher

> > >

> > >

> > >