Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 To all the fellow Floridians and founder of Late Talker Network Kim Vallen, Tammy Ingram West Coast of Florida support and Lyon Florida support group. (and founder of Children's Apraxia Network of PA Mauri Blefeld who will be leaving Pennsylvania and moving to Florida to join us this July) If you are interested in us working together with the Upledger Institute in some way for 'apraxic' children -I was called by them and know they are interested in working with our population of kids. Even though we have lots of 'support contact' people here in Florida -including me -not sure if we have a 'population' of kids here however -so please contact me if you are interested so we can possibly pursue this as a group. I'll be looking into this more this summer. It would be great to work direct with Dr. Upledger with a group of our children just to see what we see this summer! (in addition to trying out other 'alternatives when school is out 'therapies' like drama camp due to my theory about speech impaired actors - due to memory? scripts? -or why acting may be a great activity for our kids!... and perhaps some dolphin therapy...and of course ongoing 'ride therapy, and not to forget good ol' speech therapy and fish oil every day too of course) If you don't know who Dr. Upledger and cranial sacral therapy is... http://www.upledger.com/home.htm or you can read the one (of many) articles about it below. I believe cranial sacral therapy is worth exploring. My boys loved it so I can tell you for sure it doesn't hurt to have it done. In fact both of my boys would fall asleep during it -even my ADHD son Dakota! I found Tanner's speech to be quicker and smoother right after and it lasted for a day or so for some reason. In general I noticed more positive changes with Tanner than Dakota -but they both love it. Why not change this article to " A Gentle Touch The Key To " ...speech? " (or is this because it's May otherwise known as the 12th month of the year of Better " assume all speech impaired kids are either learning disabled or autistic " speech and hearing month again?) A Gentle Touch The Key To Autism? A CBS 2 Special Report May 19, 2004 11:00 pm US/Eastern NEW YORK (CBS) Thousands of American children are born autistic, a developmental brain disorder that can impact social and communication skills. CBS 2's Calvi reports on a controversial treatment that incorporates gentle touching. You're looking at the most controversial treatment for autistic children. " I can feel his cerebral spinal fluids, " the practitioner said while giving a very gentle massage. With a touch no heavier than a nickel, practitioners claim this gentle massage can ease autistic symptoms, lessen temper tantrums and even improve a child's communication skills. The alternative therapy has evolved quickly into a grassroots movement across the tri-state area. " When a family sees a child getting better I think that's all the proof a family needs. And I'm not going to get into the proof issue because as I say, every child is different, " says Dr. Upledger. It is called CranioSacral Therapy, or CST. CBS 2 traveled to West Palm Beach, Florida, to interview Dr. Upledger, one of its developers. While many are critical of the therapy, those who have experienced it say it works. " It's a devastating diagnosis to get and then you find out there's no help. So to have something where there is a possibility that it might work, you'll go for it, " explains Pelham, who has an autistic son. Two years ago, Pelham took her son Dorian to the Upledger Institute. While Dorian has always been high-functioning, she says nothing controlled his sporadic tantrums until he started CranioSacral Therapy. " It's so subtle. But it could be that he sleeps better, or that his concentration is better. Mostly, its the lack of the autistic temper tantrums, " Pelham says. CST has been around since the 1930s but it was only recently that practitioners began using it on autistic children. Dr. Upledger, an osteopathic physician, was one of the first and in 2001, was recognized by Time Magazine as one of the 100 innovators for his work in alternative medicine. " When you come up with a new idea in medicine, it takes about 25 years to be accepted and this is about the 26th year, " Dr. Upledger says. Upledger believes autism is caused by fluids in the brain not circulating properly. He also believes the emotional outbursts of autistic children are caused by the membrane outgrowing the skull -- the child, in essence, is irritable. He says his therapy gets the cerebral fluids moving and adjusts the skull bones so the child is more comfortable and stable. " Yes, the medical community does need to change their views. And science can study what we've studied and see it. " " They basically have made up a system that doesn't exist, " Dr. Barrett counters. Dr. Barrett has spent the last ten years investigating CST. He says there are no peer-reviewed studies to show this therapy works. He calls Upledger irresponsible for selling this form of therapy to desperate parents. " Skull bones don't move. In adults, they're stuck together. They don't move. Secondly, there is no evidence that the fluid moves. " The traditional medical community still doesn't know what causes autism, though researchers have recently identified genes that appear more often in autistic children. But Pelham says she doesn't need any medical textbooks to tell her what does or doesn't work. She tells CBS 2 the proof stands beside her. " He's the proof. He's easier to live with. It's manageable now. It was out of control before. It was a nightmare. Now he's a joy to be around. " http://cbsnewyork.com/investigates/local_story_140152059.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Count me in ! I will post this information on my Florida list ok? Jennie Mom to Lindsey- almost 8! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Hi Let me know more!! We are free for the summer, in fact may be over your way towards the end of next week?? My kids are already out of school & we will be looking for things to do. Give me a call, I think I hear Typhoon Lagoon calling our names. Tammy > To all the fellow Floridians and founder of Late Talker Network Kim > Vallen, Tammy Ingram West Coast of Florida support and Lyon > Florida support group. (and founder of Children's Apraxia > Network of PA Mauri Blefeld who will be leaving Pennsylvania and > moving to Florida to join us this July) > > If you are interested in us working together with the Upledger > Institute in some way for 'apraxic' children -I was called by them > and know they are interested in working with our population of > kids. Even though we have lots of 'support contact' people here in > Florida -including me -not sure if we have a 'population' of kids here > however -so please contact me if you are interested so we can > possibly pursue this as a group. I'll be looking into this more > this summer. It would be great to work direct with Dr. Upledger > with a group of our children just to see what we see this summer! > (in addition to trying out other 'alternatives when school is out 'therapies' > like drama camp due to my theory about speech impaired actors - due to > memory? scripts? -or why acting may be a great activity for our > kids!... and perhaps some dolphin therapy...and of course > ongoing 'ride therapy, and not to forget good ol' speech therapy and > fish oil every day too of course) > > If you don't know who Dr. Upledger and cranial sacral therapy is... > http://www.upledger.com/home.htm > or you can read the one (of many) articles about it below. > > I believe cranial sacral therapy is worth exploring. My boys loved > it so I can tell you for sure it doesn't hurt to have it done. In > fact both of my boys would fall asleep during it -even my ADHD son > Dakota! I found Tanner's speech to be quicker and smoother right > after and it lasted for a day or so for some reason. In general I > noticed more positive changes with Tanner than Dakota -but they both > love it. > > Why not change this article to " A Gentle Touch The Key > To " ...speech? " (or is this because it's May otherwise known as the > 12th month of the year of Better " assume all speech impaired kids > are either learning disabled or autistic " speech and hearing month > again?) > > A Gentle Touch The Key To Autism? > A CBS 2 Special Report > > May 19, 2004 11:00 pm US/Eastern > NEW YORK (CBS) Thousands of American children are born autistic, a > developmental brain disorder that can impact social and > communication skills. CBS 2's Calvi reports on a controversial > treatment that incorporates gentle touching. > > You're looking at the most controversial treatment for autistic > children. " I can feel his cerebral spinal fluids, " the practitioner > said while giving a very gentle massage. > > With a touch no heavier than a nickel, practitioners claim this > gentle massage can ease autistic symptoms, lessen temper tantrums > and even improve a child's communication skills. > > The alternative therapy has evolved quickly into a grassroots > movement across the tri-state area. > > " When a family sees a child getting better I think that's all the > proof a family needs. And I'm not going to get into the proof issue > because as I say, every child is different, " says Dr. Upledger. > > It is called CranioSacral Therapy, or CST. > > CBS 2 traveled to West Palm Beach, Florida, to interview Dr. > Upledger, one of its developers. While many are critical of the > therapy, those who have experienced it say it works. > > " It's a devastating diagnosis to get and then you find out there's > no help. So to have something where there is a possibility that it > might work, you'll go for it, " explains Pelham, who has an > autistic son. > > Two years ago, Pelham took her son Dorian to the Upledger Institute. > While Dorian has always been high-functioning, she says nothing > controlled his sporadic tantrums until he started CranioSacral > Therapy. > > " It's so subtle. But it could be that he sleeps better, or that his > concentration is better. Mostly, its the lack of the autistic temper > tantrums, " Pelham says. > > CST has been around since the 1930s but it was only recently that > practitioners began using it on autistic children. > > Dr. Upledger, an osteopathic physician, was one of the first and in > 2001, was recognized by Time Magazine as one of the 100 innovators > for his work in alternative medicine. > > " When you come up with a new idea in medicine, it takes about 25 > years to be accepted and this is about the 26th year, " Dr. Upledger > says. > > Upledger believes autism is caused by fluids in the brain not > circulating properly. He also believes the emotional outbursts of > autistic children are caused by the membrane outgrowing the skull -- > the child, in essence, is irritable. > > He says his therapy gets the cerebral fluids moving and adjusts the > skull bones so the child is more comfortable and stable. " Yes, the > medical community does need to change their views. And science can > study what we've studied and see it. " > > " They basically have made up a system that doesn't exist, " Dr. > Barrett counters. > > Dr. Barrett has spent the last ten years investigating CST. He says > there are no peer-reviewed studies to show this therapy works. > > He calls Upledger irresponsible for selling this form of therapy to > desperate parents. " Skull bones don't move. In adults, they're stuck > together. They don't move. Secondly, there is no evidence that the > fluid moves. " > > The traditional medical community still doesn't know what causes > autism, though researchers have recently identified genes that > appear more often in autistic children. > > But Pelham says she doesn't need any medical textbooks to > tell her what does or doesn't work. > > She tells CBS 2 the proof stands beside her. " He's the proof. He's > easier to live with. It's manageable now. It was out of control > before. It was a nightmare. Now he's a joy to be around. " > http://cbsnewyork.com/investigates/local_story_140152059.html > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 I would be interested in trying the therapy. thanks Judy - mom to Dov 3.5 (Boca Raton, FL) kiddietalk <kiddietalk@...> wrote: To all the fellow Floridians and founder of Late Talker Network Kim Vallen, Tammy Ingram West Coast of Florida support and Lyon Florida support group. (and founder of Children's Apraxia Network of PA Mauri Blefeld who will be leaving Pennsylvania and moving to Florida to join us this July) If you are interested in us working together with the Upledger Institute in some way for 'apraxic' children -I was called by them and know they are interested in working with our population of kids. Even though we have lots of 'support contact' people here in Florida -including me -not sure if we have a 'population' of kids here however -so please contact me if you are interested so we can possibly pursue this as a group. I'll be looking into this more this summer. It would be great to work direct with Dr. Upledger with a group of our children just to see what we see this summer! (in addition to trying out other 'alternatives when school is out 'therapies' like drama camp due to my theory about speech impaired actors - due to memory? scripts? -or why acting may be a great activity for our kids!... and perhaps some dolphin therapy...and of course ongoing 'ride therapy, and not to forget good ol' speech therapy and fish oil every day too of course) If you don't know who Dr. Upledger and cranial sacral therapy is... http://www.upledger.com/home.htm or you can read the one (of many) articles about it below. I believe cranial sacral therapy is worth exploring. My boys loved it so I can tell you for sure it doesn't hurt to have it done. In fact both of my boys would fall asleep during it -even my ADHD son Dakota! I found Tanner's speech to be quicker and smoother right after and it lasted for a day or so for some reason. In general I noticed more positive changes with Tanner than Dakota -but they both love it. Why not change this article to " A Gentle Touch The Key To " ...speech? " (or is this because it's May otherwise known as the 12th month of the year of Better " assume all speech impaired kids are either learning disabled or autistic " speech and hearing month again?) A Gentle Touch The Key To Autism? A CBS 2 Special Report May 19, 2004 11:00 pm US/Eastern NEW YORK (CBS) Thousands of American children are born autistic, a developmental brain disorder that can impact social and communication skills. CBS 2's Calvi reports on a controversial treatment that incorporates gentle touching. You're looking at the most controversial treatment for autistic children. " I can feel his cerebral spinal fluids, " the practitioner said while giving a very gentle massage. With a touch no heavier than a nickel, practitioners claim this gentle massage can ease autistic symptoms, lessen temper tantrums and even improve a child's communication skills. The alternative therapy has evolved quickly into a grassroots movement across the tri-state area. " When a family sees a child getting better I think that's all the proof a family needs. And I'm not going to get into the proof issue because as I say, every child is different, " says Dr. Upledger. It is called CranioSacral Therapy, or CST. CBS 2 traveled to West Palm Beach, Florida, to interview Dr. Upledger, one of its developers. While many are critical of the therapy, those who have experienced it say it works. " It's a devastating diagnosis to get and then you find out there's no help. So to have something where there is a possibility that it might work, you'll go for it, " explains Pelham, who has an autistic son. Two years ago, Pelham took her son Dorian to the Upledger Institute. While Dorian has always been high-functioning, she says nothing controlled his sporadic tantrums until he started CranioSacral Therapy. " It's so subtle. But it could be that he sleeps better, or that his concentration is better. Mostly, its the lack of the autistic temper tantrums, " Pelham says. CST has been around since the 1930s but it was only recently that practitioners began using it on autistic children. Dr. Upledger, an osteopathic physician, was one of the first and in 2001, was recognized by Time Magazine as one of the 100 innovators for his work in alternative medicine. " When you come up with a new idea in medicine, it takes about 25 years to be accepted and this is about the 26th year, " Dr. Upledger says. Upledger believes autism is caused by fluids in the brain not circulating properly. He also believes the emotional outbursts of autistic children are caused by the membrane outgrowing the skull -- the child, in essence, is irritable. He says his therapy gets the cerebral fluids moving and adjusts the skull bones so the child is more comfortable and stable. " Yes, the medical community does need to change their views. And science can study what we've studied and see it. " " They basically have made up a system that doesn't exist, " Dr. Barrett counters. Dr. Barrett has spent the last ten years investigating CST. He says there are no peer-reviewed studies to show this therapy works. He calls Upledger irresponsible for selling this form of therapy to desperate parents. " Skull bones don't move. In adults, they're stuck together. They don't move. Secondly, there is no evidence that the fluid moves. " The traditional medical community still doesn't know what causes autism, though researchers have recently identified genes that appear more often in autistic children. But Pelham says she doesn't need any medical textbooks to tell her what does or doesn't work. She tells CBS 2 the proof stands beside her. " He's the proof. He's easier to live with. It's manageable now. It was out of control before. It was a nightmare. Now he's a joy to be around. " http://cbsnewyork.com/investigates/local_story_140152059.html ===== Quote Link to comment Share on other sites More sharing options...
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