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Hi Kim in Gurnee,

I went through this when my oldest was your son's age. It seems like a century

ago, but the feelings you have are where I was 10 years ago. My daughter is now

a sophomore in high school and happy to say she has come out of her shell, but

still hesitates when someone confronts her. She still does not like to be the

center of attention and does not jump into things without first walking it

through.

Check out the link below, it helped me a great deal.

www.shakeyourshyness.com/parentingshychildren.htm

[ ] question about social milestones

Hello, I am wondering if anyone out there has a problem with their

apraxic child being really shy...or is aware of what the milestones

are for a 4 year old? Basially, I have seen this issue with my son

before, but it gets better/worse over time. My son is 4

years old and is doing great with speech. EFA's are truly amazing!

However, he does not engage with other kids still. When he was 2

and 3 years old, I was told, " Oh, its ok, he is only 3 years old " .

Well, when does that end? When is it no longer acceptable to

parallel play? Or to be alone most of the time? To his credit, he

does not avoid being around other kids. His teachers say that he is

social at school. But, this weekend, when he had the chance to play

with other boys in the neighborhood, he played by himself. The other

kids are around, just played " along " with them, not engaging

them. Is this normal for a 4 year old? Am I making too much out of

this?

One suggestion I had was to start a play group for the kids at home.

I work full time, and perhaps the other kids knew eachother more, and

felt " out of place " . I am also trying to sign him up for t-

ball with others around our house.

But, if anyone has any thoughts on this, or how you were able to help

your child overcome this, please let me know. THANKS!

Kim in Gurnee

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Kim--

Liz's experience with Madison was the sort of thing I was going to

mention also. I remember having a discussion with G. about

social skills with Dakota and Tanner, and how that affected them in

her choice of preschools for them. I remember her saying about

Tanner what you are saying about -- that Tanner was very aware

that verbally he couldn't keep up with the others, so he isolated

himself. Once he was in an environment where the pressure was off,

and he was around kids who had similar issues to himself and people

who knew how to be patient yet pull him out of his shell-- he

blossomed. Heck, now, if I recall, he's got a girlfriend and

everything! ;-) (Man, the kids start young now, huh? :-P)

I can also tell you that my sister, who had no speech problems or

other issues whatsoever, was painfully shy at that same age. She was

actually my mother's earliest talker of her 4 children, supposedly.

Anyway, was very shy, and would hide behind my parents,

especially my mother. But my mother would ease her into a situation,

and nudge her a lot to speak up and make friends, etc. Fast forward

30 years later-- you can't shut her up and she's the LAST person

you'd call shy. In fact, she's a professional actress/singer, doing

caberet work, teaching classes, etc. in NYC. She gets so in your

face and loud sometimes, even though it's in fun, that my son will

actually cover his ears if she's singing too loud!

So, I think like Liz said, you have to find that balance of

respecting their space and their issues and yet nudging them to get

out there too. I think the semi-parallel play is okay, as long as

you watch it, like she said, but still ONLY doing that is not good. I

think I remember that strict parallel play in normally developing

children usually tapers off by age 2.

I think Liz's suggestion of getting him on T-ball, or something like

that would be good too or soccer, or something like that, where not

that much talking is involved, but lots of teamwork and shouting

cheers is!

Take in the whole situation, and then figure out if he is just an

inherently shy kid who needs to be nudged out of his shell, or if

it's something more serious.

Hope this helps...

le (SAHM to Drew, 2.10 yrs. apraxia, DSI and hypotonia)

> Hello, I am wondering if anyone out there has a problem with their

> apraxic child being really shy...or is aware of what the milestones

> are for a 4 year old? Basially, I have seen this issue with my

son

> before, but it gets better/worse over time. My son is 4

> years old and is doing great with speech. EFA's are truly amazing!

>

> However, he does not engage with other kids still. When he was 2

> and 3 years old, I was told, " Oh, its ok, he is only 3 years old " .

> Well, when does that end? When is it no longer acceptable to

> parallel play? Or to be alone most of the time? To his credit,

he

> does not avoid being around other kids. His teachers say that he

is

> social at school. But, this weekend, when he had the chance to

play

> with other boys in the neighborhood, he played by himself. The

other

> kids are around, just played " along " with them, not

engaging

> them. Is this normal for a 4 year old? Am I making too much out

of

> this?

>

> One suggestion I had was to start a play group for the kids at

home.

> I work full time, and perhaps the other kids knew eachother more,

and

> felt " out of place " . I am also trying to sign him up for

t-

> ball with others around our house.

>

> But, if anyone has any thoughts on this, or how you were able to

help

> your child overcome this, please let me know. THANKS!

>

> Kim in Gurnee

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hi kim/

My son is the same age and yes he continues to play alone but his speech is

severely delayed. He does talk but not enough to have conversations. I think

this is the reason for his seperation. but I will say he will play with other

kids if they are doing what he likes to do. For example we were at a small

playground. It has slides which my son will go on but he will not climb

anything, he had height issues because of his poor gross motor and I think he

vestibular problems. He gets bored of that fast so he will roam around the

playground to do other things. He played with this one boy because he was not

on the playgound and roaming around as well.

they wanted to climb the trees( they just hung on the trees). I was soooo happy

and that is when I realized that the other kids have to do what he's doing. Its

not that he doesn't want to be with kids they are not doing what he wants to do.

Not that's great either, but I think its better than me thinking he has a social

issue.

What i try to do is not push the issue because it makes my son not want to do

it. I can't go ask because he can't do it. well he could if I helped him but I

don't him to be embarrassed. Which he does get embarrassed. He started to

almost cry and we went home because he couldn't climb up a ladder at this

playground. He saw all the children doing this, oh it was heart breaking.

I teach autistic children and one of specialties is to shadow children with

their typical peers. One of the techniques is to be their interpretor. I will

repeat what other children say and help the child to answer the other child(you

say your child can talk) another thing I do is play with other children to get

to come in our space and it kinda forces the other children to play next to and

eventually with the child I work with. OH by the way I am not saying your is

autistic. I guess I can take my own advice to help my child.

Its hard being a mom of special ed child then being a teacher to a special ed

child. I feel that i feel my sons pain more.

I went on so many tangents sorry, you hit a nerve with me because that is big

issue for me as well. I think with time and the better they talk they will gain

confidence. Because it is confidence that you get friends. Not caring what the

other kids think or going to say. Of course I say they are only 4 but I'm

around typical 4 and 5 year old and they pick up on people who are different

even if it is slight.

social issues are hard on adults i can't imagine how hard it is on children who

communcative problems. agian it brakes my heart when I see my son sometimes and

probably does you too. I understand

sorry sooo long\

chris

jacksonsmom12000 <kim.gill@...> wrote:

Hello, I am wondering if anyone out there has a problem with their

apraxic child being really shy...or is aware of what the milestones

are for a 4 year old? Basially, I have seen this issue with my son

before, but it gets better/worse over time. My son is 4

years old and is doing great with speech. EFA's are truly amazing!

However, he does not engage with other kids still. When he was 2

and 3 years old, I was told, " Oh, its ok, he is only 3 years old " .

Well, when does that end? When is it no longer acceptable to

parallel play? Or to be alone most of the time? To his credit, he

does not avoid being around other kids. His teachers say that he is

social at school. But, this weekend, when he had the chance to play

with other boys in the neighborhood, he played by himself. The other

kids are around, just played " along " with them, not engaging

them. Is this normal for a 4 year old? Am I making too much out of

this?

One suggestion I had was to start a play group for the kids at home.

I work full time, and perhaps the other kids knew eachother more, and

felt " out of place " . I am also trying to sign him up for t-

ball with others around our house.

But, if anyone has any thoughts on this, or how you were able to help

your child overcome this, please let me know. THANKS!

Kim in Gurnee

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Hi-

I wish I had some suggestions - I just have empathy. My son will be

5 this month, and has nowhere near the language of your daughter. I

see almost all parallel play with very little imaginative play at

all.

I was actually having my weekly cry over this issue last week. I was

just wondering who would call to play with you if you can't talk to

them? How can you show imagination if you can't talk? How do you

develop emotionally without words to express your feelings?

I know that MANY kids love my son, but I sometimes think they look

at him more like a project than a friend. They try to teach him

words in a very tender and loving way, but of course this is far

from typical peer interaction.

Just one more thing that keeps me up at night...

> Hello, I am wondering if anyone out there has a problem with their

> apraxic child being really shy...or is aware of what the

milestones

> are for a 4 year old? Basially, I have seen this issue with my

son

> before, but it gets better/worse over time. My son is 4

> years old and is doing great with speech. EFA's are truly amazing!

>

> However, he does not engage with other kids still. When he was 2

> and 3 years old, I was told, " Oh, its ok, he is only 3 years

old " .

> Well, when does that end? When is it no longer acceptable to

> parallel play? Or to be alone most of the time? To his credit,

he

> does not avoid being around other kids. His teachers say that he

is

> social at school. But, this weekend, when he had the chance to

play

> with other boys in the neighborhood, he played by himself. The

other

> kids are around, just played " along " with them, not

engaging

> them. Is this normal for a 4 year old? Am I making too much out

of

> this?

>

> One suggestion I had was to start a play group for the kids at

home.

> I work full time, and perhaps the other kids knew eachother more,

and

> felt " out of place " . I am also trying to sign him up for

t-

> ball with others around our house.

>

> But, if anyone has any thoughts on this, or how you were able to

help

> your child overcome this, please let me know. THANKS!

>

> Kim in Gurnee

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Hi Kim,

My son is now 5.5. And I too worried about him last year when he was 4. When

I obseerved him, I also saw the same behavior. But, to my astonishment, when

he would go over my brothers house and he would be with his cousins, my SIL

said he was a total social butterfly,(when I wasn't there) a goof ball, dancing

singing, etc. So out of character for him I really had a hard time believing

it. Even his preschool teacher said when she met him first, she thought he would

be an observer, but he was the complete opposite while in school. He only

started preschool at 4, and now in in kindergarten, he is really coming into his

own, he gets " love letters " from some of the girls, he has two really good

friends that get along really well. His teacher says he is very kind to the

other

children, and helpful to her. So I think, that put them out there in places

where they feel really safe and are familiar, like with cousins, close friends,

leave him there and see what happens when you aren't around. He may surpirse

you like I was with my son. My son is one of the oldest in his class, and I

think that is a MAJOR player here. They feel confident and everything else just

falls into place. Good luck.

Colleen

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Kim,

My son who is 4 1/2 and severely apraxic and SDI. Just before he turn 4

he got a AAC device called the chat PC II. It is very portable and he wears it

all the time. We found once he got his devices it made the world of

difference in his playing and interacting with other children. He found it very

frustrating when he would sign to a child something a simple as share and they

had no

idea what he was trying to tell them, he would just play alone or parallel

with the group.

I do feel that being in a preschool program with both children with special

needs and reverse mainstreaming children has really made it easier for him to

learn how to play and interact with others. In fact we have just got a best

friend who is one of the children that is reversed mainstreamed. I have to say

it

was one of the nicest feelings seeing him have a playmate like his two older

siblings did.

I try to remember that his language delay has caused him to be delayed

socially. Even thought he is able to keep up academically with his age group he

is

still not ready socially. This is the main reason I have chose to keep him in a

preschool environment for another year instead of moving him to kindergarten

in the fall.

The best advice {from a wonderful OT} I received was that you need to find

something that your child can do well that they enjoy. This will help build up

there self confidence and aid in getting them use to socializing with other

children. This was very hard for the Mommy in me to do for fear that he was not

ready and I could not protect him. January we started him in KinderKarate

program at the studio that my 11 year old son has been going for over a year. I

went in and discussed with the instructor who was very willing to work with

.{ the studio has a few children with AD/HD and a Downs syndrome child }.

He is the only special needs child in this class of 4 and 5 years olds and it

has been great for him. He just start therapeutic riding which he loves and

is something no one else in the family does, so riding a horse is his special

extra curricular activity of his own, which he is very proud of.

(Mother of 4 with apraxia/Sdi/hyponia/DD, 15 with ADD,

and Zac in the gift program at school}

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My son is very outgoing, despite his lack of language. It's funny.....he does

not see himself as different when around children, yet when he's around an

adult, he'll clam up immediately. I was visiting his preschool last week, and

one of the kids asked me why he " talks funny. " Difficult to explain this to a 4

year old, so I just simply said " well, he's trying...... " She smiled.

Yesterday I attempted to take Jordan to a pediatric neurologist (again), and per

usual, he would not respond. Clammed up immediately. Of course the doctor was

trying to test him with verbal questions, and after he answered him the first

time, the doctor's response was " you have to speak clearly, I can't understand

you " . WELL DUH.......This guy lost his paitence so quickly it just amazed me,

and then asked me to " come back in about a year when the child would be mature

enough for examination. " Mature enough to be examined???????? <sigh> We can

mark him off our ADHD referral list, for sure. And I think we should forget

about him for anything else that requires patient or parent interaction. I

never witnessed such unprofessional treatment in my life.

Guess it takes all kinds.

~Karyn

[ ] Re: question about social milestones

Hi-

I wish I had some suggestions - I just have empathy. My son will be

5 this month, and has nowhere near the language of your daughter. I

see almost all parallel play with very little imaginative play at

all.

I was actually having my weekly cry over this issue last week. I was

just wondering who would call to play with you if you can't talk to

them? How can you show imagination if you can't talk? How do you

develop emotionally without words to express your feelings?

I know that MANY kids love my son, but I sometimes think they look

at him more like a project than a friend. They try to teach him

words in a very tender and loving way, but of course this is far

from typical peer interaction.

Just one more thing that keeps me up at night...

> Hello, I am wondering if anyone out there has a problem with their

> apraxic child being really shy...or is aware of what the

milestones

> are for a 4 year old? Basially, I have seen this issue with my

son

> before, but it gets better/worse over time. My son is 4

> years old and is doing great with speech. EFA's are truly amazing!

>

> However, he does not engage with other kids still. When he was 2

> and 3 years old, I was told, " Oh, its ok, he is only 3 years

old " .

> Well, when does that end? When is it no longer acceptable to

> parallel play? Or to be alone most of the time? To his credit,

he

> does not avoid being around other kids. His teachers say that he

is

> social at school. But, this weekend, when he had the chance to

play

> with other boys in the neighborhood, he played by himself. The

other

> kids are around, just played " along " with them, not

engaging

> them. Is this normal for a 4 year old? Am I making too much out

of

> this?

>

> One suggestion I had was to start a play group for the kids at

home.

> I work full time, and perhaps the other kids knew eachother more,

and

> felt " out of place " . I am also trying to sign him up for

t-

> ball with others around our house.

>

> But, if anyone has any thoughts on this, or how you were able to

help

> your child overcome this, please let me know. THANKS!

>

> Kim in Gurnee

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Hi, Kim -

Terry Brazelton has a really good book called Touchstones - gives kind of

overall ideas of stages of development and talks about parallel play versus

interactive play, etc. The problem with Brazelton's book (and Penelope Leach's

book) is that you have to sort of account for any delays in that regard caused

by speech delays. There are no hard and fast rules as to when parallel play

will end - just a range when it occurs and a range of years when kids will ease

out of it. For our kids with apraxia, my personal believe is that we need to

gently push them a little more than other kids, help them by setting up

situations where interactive play can (should, and will) occur, etc. We're

having the same issues with Josh but he's getting the idea through playing some

basketball and soccer. We're also trying to work with him on social exchanges -

he'll talk with me and dh (because it's comfortable for him, we take the time to

figure out what he's telling us, etc.) but he won't engage

with other kids or most adults. I think a big part of that is that others

don't take the time or maybe have the patience to let him say what (and how) he

needs to say. It's hard to not jump in and interpret for him when he does try

to engage others but we, as parents need to help him learn to be more social.

I'm rambling, sorry about that - I guess the upshot here is that may

still feel uncomfortable trying to engage others - either at play or just

socially. He may not be mature enough yet, generally speaking, and you can

probably tell that. But, gentle " pushing, " I think is an OK thing - play dates,

karate lessons, etc. Good luck - it's hard helping your child find his wings

but it is so rewarding for him (and you) once he has them.

Sherry

jacksonsmom12000 <kim.gill@...> wrote:

Hello, I am wondering if anyone out there has a problem with their

apraxic child being really shy...or is aware of what the milestones

are for a 4 year old? Basially, I have seen this issue with my son

before, but it gets better/worse over time. My son is 4

years old and is doing great with speech. EFA's are truly amazing!

However, he does not engage with other kids still. When he was 2

and 3 years old, I was told, " Oh, its ok, he is only 3 years old " .

Well, when does that end? When is it no longer acceptable to

parallel play? Or to be alone most of the time? To his credit, he

does not avoid being around other kids. His teachers say that he is

social at school. But, this weekend, when he had the chance to play

with other boys in the neighborhood, he played by himself. The other

kids are around, just played " along " with them, not engaging

them. Is this normal for a 4 year old? Am I making too much out of

this?

One suggestion I had was to start a play group for the kids at home.

I work full time, and perhaps the other kids knew eachother more, and

felt " out of place " . I am also trying to sign him up for t-

ball with others around our house.

But, if anyone has any thoughts on this, or how you were able to help

your child overcome this, please let me know. THANKS!

Kim in Gurnee

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Hi Karyn and Kim!

Karyn -I'm so sorry to hear about all you have been going through

with the school etc. ..even from when we last spoke. And I also

want to add that even though we all go through the occasional pity

party -your children are so incredibly lucky to have you as mothers!

Karyn you are such a strong and incredible person -and you will rise

above this.

Kim you are always searching for more ways to help your child!

What a loving mom you are!! We are all here for both of you.

About the " why does he talk funny? kind of question from another

child.

It's tough when a child asks an innocent question that cuts through

you. For me that moment was when Tanner was still just saying " mmm "

prior to 3 years old and a child asked his mom right in front of

us " Mommy what's wrong with him? " while pointing right at Tanner.

When I first wrote this experience for The Late Talker -and when I

first read it -tears ran down my face. For me that was my moment

of deep pain and worry. That child asked just what I had been

wondering -and saying it outloud I felt protective, embarrassed,

angry, hurt, and wanting to say something back to make it all OK.

That moment however was prior to me being ready -after that moment I

never again was shocked and as if on auto pilot would say " he's

learning to talk and he's doing great " . I used this statement for

years with Tanner -even with kids, and it always worked really

well. If a kid talked earlier then Tanner and pointed this out

(happened once on Halloween when we were trick or treating) -

" well 'you' are obviously very advanced for your age in talking "

and change the subject.

With kids I do believe the questions are innocent, and that even if

not -teasing comes from ignorance. The way you answered was great

with " he's trying " . Kids today from a young age are taught

compassion for others who have any type of special needs. Problem

is that with verbal disabilities -most don't view it as a disability

yet. But not talking like everyone else, not being understood when

you talk, that can happen to anybody -anybody at all. If someone

doesn't believe this (like the MD you saw) just tell them to pick

themselves up and fly to a country where nobody speaks the same

language they do. But to be like our kids there is one other thing -

they have to understand all the comments and ridicule said right in

front of them as if they didn't exist.

So to answer your question Kim -yes our kids are aware and can

withdraw from others. The trick is getting them through this with

their self esteems intact. I again suggest activities the child can

thrive in that do 'not' involve speech. Like for example here are

just a few -Nintendo, GameBoy and other games like this, (if you

watch kids that talk well play these games -for the most part all

they do is grunt) team sports like soccer, or solo activities such

as arts and crafts, model trains or swimming where talking is not

required, or solo sports like karate where even if talking is

required nobody notices if you don't, musical instruments where the

instrument is the voice, etc.

I don't know of any children with severe impairments of speech who

have average to above average intelligence who do not feel

frustration from time to time. To direct answer your question

however Kim -Tanner is aware of his impairment of speech and has

been since school age and he never hesitates to talk in front of

anyone -and is not afraid of being teased. When Tanner was in

preschool we taught him " everybody learns to talk " and stuck to that

for years until he was old enough where we knew we had to teach him

more. We've talked to Tanner about his speech, and about the

possibility of teasing just in case so he's never caught off guard.

We let him know that people or kids that tease don't feel good about

themselves -or perhaps something bad just happened to them.

After seeing the new Scooby movie -Tanner left laughing about a line

from the movie he found funny. " Talking is for wimps " He kept

saying at first " Talkin 'enfa' wimps " but after a bit of practice

which Tanner does by himself now -he's already saying it correctly.

(Actually I really do think that Scooby Dooby Doo has apraxia. In

this latest movie the longer the sentence he had to say -the more he

broke down -really! Scooby for mascot!)

So Kim as you know -I sheltered Tanner when young -and then didn't

have to at all by the time he entered kindergarten...at 6. And

again -still doing great.

Age to start kindergarten as you know has come up over and over.

Bottom line is that it's up to you. I would recommend reading all

the research.

Even without any type of developmental delays in a child there are

heated debates on the best age to start a child in kindergarten.

The bottom line is that if the child is ready in all areas,

including maturity, then start him at 5. Not many articles out

there on what age to start a child in kindergarten when they are

still in intensive therapy. I for just one am thrilled that I

didn't start Tanner in kindergarten until 6.

" studies have shown that many children, even those who have attended

pre-kindergarten, would benefit from starting kindergarten at the

age of six rather than five. In private schools, headmasters often

delay a child's entry into kindergarten until the age of six because

educators deem that such a program will benefit that particular

child. This strategy is particularly true for boys, who experience

language delays more frequently than girls. "

http://www.gothamgazette.com/article/feature-commentary/20040316/202/913

If however the plan by anyone is to start a child in kindergarten

with the notion that " if he doesn't do well we can just have him

repeat kindergarten " may want to wait until 6. The research is in

on this and those kids do not do as well.

" Research Link / When Children Aren't Ready for Kindergarten

H. Holloway

How can schools promote the achievement of children who are old

enough to enroll in kindergarten but who are not developmentally

ready to succeed? Two approaches that parents and schools commonly

use are delaying the child's entry into kindergarten and retaining

the child in kindergarten for an extra year.

Giving children an extra year, whether through delayed entry or

kindergarten retention, makes sense in view of the ample research

suggesting that the youngest children tend to lag behind their

classmates. West, Denton, and Reaney (2000) found that in the spring

of their kindergarten year, younger children had lower reading and

mathematics knowledge and skills on average than did their older

counterparts. These researchers also found that older kindergartners

were more likely to persist at tasks, more eager to learn, and

better able to pay attention.

Delayed Entry Versus Kindergarten Retention

To avoid the disadvantage suffered by younger students, some parents

choose to delay the entry of their children into kindergarten. Zill,

Loomis, and West (1997) found that children whose kindergarten entry

was delayed so that they started kindergarten when they were older

performed better than their younger classmates in grades 1 and 2.

These researchers concluded that the extra year before starting

kindergarten does not harm the children who are held out and may

help most of them.

In contrast, the researchers discovered that children who repeated

kindergarten were doing worse than their younger classmates on most

school performance indicators by 1st or 2nd grade. For instance, two-

thirds of the retained students had received some negative feedback

from teachers compared with less than half of the nonretained

students. The retained students were also much more likely to have

problems concentrating, to perform below their capabilities, and to

act up and disrupt the class. Zill, Loomis, and West concluded that

repeating kindergarten had not helped those children and may have

actually made matters worse.

Reasons for the Differences

What explains the difference between the school performance of

delayed-entry children and those who repeat kindergarten? Both

groups of students are older than most of their classmates, so why

don't the beneficial effects of being older apply to both groups?

Some possible answers are that

The underlying developmental problems of the two groups may differ.

The two groups may have different socioeconomic backgrounds.

Parents who choose to delay their children's school entry may have a

higher level of awareness and involvement.

The stigmatizing effect of being required to repeat a grade may harm

children's academic progress.

(read full article)

http://www.ascd.org/publications/ed_lead/200304/holloway.html

or if you have awhile may want to read

http://nces.ed.gov/pubs2000/2000039.pdf

http://nces.ed.gov/pubs98/98097.pdf

and my son Tanner's page

http://www.cherab.org/information/familiesrelate/letter.html

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