Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Hi! My name is Annette, mom to Allie, 9.3 years old and Evan 12 years old. I haven't been involved in a RSS support group since it moved to this site back in early 1999. The only name I recognize is Ken M. Hi Ken! Allie was diagnosed with RSS by her endo when she was 6 years old, although the geneticist never agreed (she never came up with anything else, though). Allie weighs 40 lbs and is 45 inches tall. She is currently not taking any medications. Her doctor is still not too eager about doing anything for her. She has had numerous ear problems, resulting in 50% hearing loss in one ear and 20% in the other. She also has terrible teeth, we just recently started all of the orthodontia work. I've gone back and read quite a few of the postings and it appears that the majority of parents in this group have very young RSS children. Are there some parents in this group who have older RSS kids? Does anybody know of a good doctor in Northern California? Quote Link to comment Share on other sites More sharing options...
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