Another way to get involved in spreading the word about vulvodynia

[Guest guest]

Hi all,

As some of you may know I am also a member of the American Pain

Foundation (and yes, there are Canadians that have access to the

site and the discussion boards thru another section of the site

called Pain Aid). I happened to be looking for something else

and came across the section of the site that says, " Get

Involved " . I clicked on the link and it takes the person to a

form to fill out if they want to get the print newsletters and

other publications as well as info about how to get involved

with helping the APF spread the word about chronic pain.

It also lists at this site the areas of interest the person is

interested in and one of the ones mentioned is vulvodynia.

If you are interested pls check out this link:

https://app.etapestry.com/hosted/AmericanPainFoundation/register.html

After you are done with filling out the form you can click on

the Homepage to see some of the other stuff. And go to the Pain

Aid section to register for the discussion boards. The

registration only takes a few minutes to do.

Also, in case you are wondering if there is a cost for

membership no there is not. It is free.

Also, check out the special notebook to keep track of your pain

so that you can share with your dr if you want to use it.

This is an amazing organization and they are trying very, very

hard to get the word out about chronic pain and also pushing for

legislation on the subject. The bill is H.R. 1020. You can

read about it there and it will also tell you about another link

that you can go to to have the APF send a message to your

congresspeople and Senators about this bill so that we can get

it passed and get everyone to realize that chronic pain is a

disease.

I do believe that if this thing passes real soon that the door

will open when it comes to the subjects of vulvodynia,

endometriosis, etc.

Kristy

________________________________________________________________________________\

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[Guest guest]

Hi Kristy,

That was interesting, I am wondering if there is anything like this for those of us living in European countries?

In Sweden, where I am, and where I have gotten the diagnosis vulodynia, I wasn't given any of the help that people in America and other places have, such as these therapies and medications that you all have mentioned many times in this group. So, I have no idea what's out there for those of us who aren't in America (or close to it) or who can't go there to visit with doctors and get any treatment. Is there any mention of any European Association like this one?

Just wondering if you had seen anything about it.

Best wishes

Another way to get involved in spreading the word about vulvodynia

Hi all,As some of you may know I am also a member of the American PainFoundation (and yes, there are Canadians that have access to thesite and the discussion boards thru another section of the sitecalled Pain Aid). I happened to be looking for something elseand came across the section of the site that says, "GetInvolved". I clicked on the link and it takes the person to aform to fill out if they want to get the print newsletters andother publications as well as info about how to get involvedwith helping the APF spread the word about chronic pain.It also lists at this site the areas of interest the person isinterested in and one of the ones mentioned is vulvodynia.If you are interested pls check out this link:https://app.etapestry.com/hosted/AmericanPainFoundation/register.htmlAfter you are done with filling out the form you can click onthe Homepage to see some of the other stuff. And go to the PainAid section to register for the discussion boards. Theregistration only takes a few minutes to do.Also, in case you are wondering if there is a cost formembership no there is not. It is free.Also, check out the special notebook to keep track of your painso that you can share with your dr if you want to use it.This is an amazing organization and they are trying very, veryhard to get the word out about chronic pain and also pushing forlegislation on the subject. The bill is H.R. 1020. You canread about it there and it will also tell you about another linkthat you can go to to have the APF send a message to yourcongresspeople and Senators about

this bill so that we can getit passed and get everyone to realize that chronic pain is adisease.I do believe that if this thing passes real soon that the doorwill open when it comes to the subjects of vulvodynia,endometriosis, etc.Kristy ____________________________________________________________________________________Yahoo! Music UnlimitedAccess over 1 million songs.http://music.yahoo.com/unlimited**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS**Our HOME page is http://groups.yahoo.com/group/VulvarDisordersto search our archives, files, articles, etc.***

[Guest guest]

Hi Kristy,

That was interesting, I am wondering if there is anything like this for those of us living in European countries?

In Sweden, where I am, and where I have gotten the diagnosis vulodynia, I wasn't given any of the help that people in America and other places have, such as these therapies and medications that you all have mentioned many times in this group. So, I have no idea what's out there for those of us who aren't in America (or close to it) or who can't go there to visit with doctors and get any treatment. Is there any mention of any European Association like this one?

Just wondering if you had seen anything about it.

Best wishes

Another way to get involved in spreading the word about vulvodynia

Hi all,As some of you may know I am also a member of the American PainFoundation (and yes, there are Canadians that have access to thesite and the discussion boards thru another section of the sitecalled Pain Aid). I happened to be looking for something elseand came across the section of the site that says, "GetInvolved". I clicked on the link and it takes the person to aform to fill out if they want to get the print newsletters andother publications as well as info about how to get involvedwith helping the APF spread the word about chronic pain.It also lists at this site the areas of interest the person isinterested in and one of the ones mentioned is vulvodynia.If you are interested pls check out this link:https://app.etapestry.com/hosted/AmericanPainFoundation/register.htmlAfter you are done with filling out the form you can click onthe Homepage to see some of the other stuff. And go to the PainAid section to register for the discussion boards. Theregistration only takes a few minutes to do.Also, in case you are wondering if there is a cost formembership no there is not. It is free.Also, check out the special notebook to keep track of your painso that you can share with your dr if you want to use it.This is an amazing organization and they are trying very, veryhard to get the word out about chronic pain and also pushing forlegislation on the subject. The bill is H.R. 1020. You canread about it there and it will also tell you about another linkthat you can go to to have the APF send a message to yourcongresspeople and Senators about

this bill so that we can getit passed and get everyone to realize that chronic pain is adisease.I do believe that if this thing passes real soon that the doorwill open when it comes to the subjects of vulvodynia,endometriosis, etc.Kristy ____________________________________________________________________________________Yahoo! Music UnlimitedAccess over 1 million songs.http://music.yahoo.com/unlimited**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS**Our HOME page is http://groups.yahoo.com/group/VulvarDisordersto search our archives, files, articles, etc.***

[Guest guest]

Hi Kristy,

That was interesting, I am wondering if there is anything like this for those of us living in European countries?

In Sweden, where I am, and where I have gotten the diagnosis vulodynia, I wasn't given any of the help that people in America and other places have, such as these therapies and medications that you all have mentioned many times in this group. So, I have no idea what's out there for those of us who aren't in America (or close to it) or who can't go there to visit with doctors and get any treatment. Is there any mention of any European Association like this one?

Just wondering if you had seen anything about it.

Best wishes

Another way to get involved in spreading the word about vulvodynia

Hi all,As some of you may know I am also a member of the American PainFoundation (and yes, there are Canadians that have access to thesite and the discussion boards thru another section of the sitecalled Pain Aid). I happened to be looking for something elseand came across the section of the site that says, "GetInvolved". I clicked on the link and it takes the person to aform to fill out if they want to get the print newsletters andother publications as well as info about how to get involvedwith helping the APF spread the word about chronic pain.It also lists at this site the areas of interest the person isinterested in and one of the ones mentioned is vulvodynia.If you are interested pls check out this link:https://app.etapestry.com/hosted/AmericanPainFoundation/register.htmlAfter you are done with filling out the form you can click onthe Homepage to see some of the other stuff. And go to the PainAid section to register for the discussion boards. Theregistration only takes a few minutes to do.Also, in case you are wondering if there is a cost formembership no there is not. It is free.Also, check out the special notebook to keep track of your painso that you can share with your dr if you want to use it.This is an amazing organization and they are trying very, veryhard to get the word out about chronic pain and also pushing forlegislation on the subject. The bill is H.R. 1020. You canread about it there and it will also tell you about another linkthat you can go to to have the APF send a message to yourcongresspeople and Senators about

this bill so that we can getit passed and get everyone to realize that chronic pain is adisease.I do believe that if this thing passes real soon that the doorwill open when it comes to the subjects of vulvodynia,endometriosis, etc.Kristy ____________________________________________________________________________________Yahoo! Music UnlimitedAccess over 1 million songs.http://music.yahoo.com/unlimited**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, THANKS**Our HOME page is http://groups.yahoo.com/group/VulvarDisordersto search our archives, files, articles, etc.***