Parent and Professional Conference in Pittsburgh

[Guest guest]

I am truly sorry if I offended anyone. It won't happen again. I was

simply repeating information. And since this group is monitored, I

assumed it would be removed if deemed offensive. The Conference did

not ask me to post that info, and they didn't know I was going to do

it ahead of time. It was my own idea to post it to other parents of

apraxic children. Obviously, that was a mistake.

Again, I apologize.

Sincerely,

Jayne

[Guest guest]

> I am truly sorry if I offended anyone. It won't happen again. I

was

> simply repeating information. And since this group is monitored, I

> assumed it would be removed if deemed offensive. The Conference

did

> not ask me to post that info, and they didn't know I was going to

do

> it ahead of time. It was my own idea to post it to other parents

of

> apraxic children. Obviously, that was a mistake.

> Again, I apologize.

> Sincerely,

> Jayne

Jayne,

I understand that you were just passing along the info. But many

people may not know that about the information that I posted,

regarding the Apraxia Kids Website. I just didn't think that it is

fair. If every organization the world lived in a glass bubble, and

didn't acknowledge other organizations or resources how small and sad

that would be for everyone who is trying to raise awareness for our

children and other parents/professionals. Jeanne

[Guest guest]

Hi Jayne,

I am glad that you and I were able to come to come to an

understanding off list. Thought others here may want to read this

summary of what I wrote to you:

" I was not the one that approved your message and most likely would

have questioned you offlist prior to posting if I did see it there.

You sound like a wonderful person who is supporting a cause you

believe in -what could be wrong with that? I would have just asked

you if you were aware there are 2 other conferences coming up for

apraxia. The majority of parents of special needs children do not

have much in the way of money. In some cases not even enough for

their own child's therapy. It's wonderful that CASANA has

the multi million dollar Hendrix Foundation behind them -most

grassroots groups do not.

There are around 10 moderators for the CHERAB grouplist and your

post was not offensive. The moderators know that I do not believe

in censorship so posts will go out whether I agree with them or

not. I am not here to rule -just to help guide the group. I

respect the intelligence of our group to make educated decisions

without censorship.

Since the message did get posted however -I needed to address it to

the group.

I again wanted to just remind parents that they can use the extra

monies they may have to attend two other conferences that are

happening prior to the one in PA, or not to feel guilty if they

can't afford to attend any conference no less donate. In addition I

wanted to point out that there are many other groups and websites

that exist only due to volunteer efforts, nonprofit groups like

CHERAB, and websites like Speechville which brings the founders of

various nonprofits for apraxia together http://www.speechville.com/about.html

that do not ask for money, and do not have

Foundations backing them -but in spite of this have done a great

deal of good in raising awareness and welcoming all groups to work

together. My quote was " If you as a parent, relative, friend,

professional, can attend any conference/s -or help any

organization/s in any way that's great. If you can't -don't feel

guilty about it, and just keep doing what you are doing to be there

for the child or children you care for.

Together we will make a difference. "

In all our group is very friendly and by allowing all schools of

thought to be discussed -we have more wisdom on how to best help our

own children.

Best to you and your family, "

=====