New To The Group

[Guest guest]

nice to meet you welcome to the group...

jean henry

dr.zahn/ phoenix arizona

st. lukes hospital/ open rny

09-04-02

369/315/165 goal

> HI all,

> I am new to this group and will be interested in the threads of

conversations for GB people of all levels.

> Martha H

> Hill Ca

> RNY Proximal 1983

> 320/145

> RNY Distal Revision 11/29/01

> 327/187/Goal?

> 5'4 "

>

>

>

[Guest guest]

Welcome to the group, Martha! Glad to have you with us!

Love,

Trace in Va. Beach, VA

Dr. Schechner, Norfolk and Va. Beach, VA

Open RNY -- 9/5/02

Height -- 5' 9 1/2 "

Starting weight -- 351.2

Current weight -- 310

Minus -- 41 pounds gone!

Gal. 2:20

[Guest guest]

Welcome to the group, Martha! Glad to have you with us!

Love,

Trace in Va. Beach, VA

Dr. Schechner, Norfolk and Va. Beach, VA

Open RNY -- 9/5/02

Height -- 5' 9 1/2 "

Starting weight -- 351.2

Current weight -- 310

Minus -- 41 pounds gone!

Gal. 2:20

[Guest guest]

,

Welcome to the group. I have never heard of Megestrol but try a search on

the internet on google and you should find some info.

You sound like you have been through a lot. I was taking b/c pills for my

fibroids but they really couldn't help. I finally had a UAE and am better

now. I still take the b/c pills, but to prevent pregnancy now. I would

actually like to get off of them since I feel bloated on them all the time

and they keep extra weight on. Take care.

[Guest guest]

Welcome, The only time I heard a doctor say a myo is impossible is when it was

actually impossible for them to do it. 5cm and smaller are options for myos.

As you read the post and search the archives you will find that there have been

substantially larger fibroids removed. You have fellow-Michiganders posting

with you. At least in E. MI and 2 in the west. I am a patient of both doctors

the ladies have already seen. Both either have had, or will have myomectomies

done. Please search for a more compentant doctor. We see Drs. Dodds

and Young, who have offices in Kalamzoo and Grand Rapids - phone(616)

988-2229, and Drs. Arnold Advincula and Quint at the University of

Michigan Where abouts are you located? Good luck and I hope this

information was helpful. Do keep in touch. Jo

corona806 wrote:Hello

My name is , I'm new to this group. I've been reading the posts about a

month. I'm ready to share my story.

I'm 42 and I live in Michigan. My Story sarted in 1999. One day I sarted my

period and it did'nt stop for a month I knew this was'nt right so I went to my

PCP and she refered me to a gyno. I put all my trust in this DR. to help me. At

that time I thought He would. He said that before he could do anything the

bleeding had to be stopped so he put me on BC pills. Once the bleeding stopped I

went back for a exam. the Dr. did a vaginal U/S than thats when he told me I had

fibroids, of course he told me they were not cancerous and that the bleeding

could be controlled by BC pills. So I told him Ok no questions asked. How

gullable was I to put my trust in a Dr. and not ask questions. So I left out of

that office not knowing anything but the BC pill would contol the bleeding. I

did'nt Know the size, where It was located nothing. I could just kick my self.

Well anyway the BC pills worked for about two years. than the real problems

started happening. I called my Dr. up and told him I was having very bad cramps

so he perscribed 800mg of Ibuprofen. I eat that like candy. I would hurt even

before my period started than there was the heavy bleeding and the clots, and

the spotting constantly.The accidents at work which happen twice I had to go

Home. Im glade I have a nice boss. Going to the bathroom every half hr. to

change tampon and pad. I also have a leaky bladder. Its driving me nuts. But

when I started having lower back pain (located on the right side.) I told my

self that was enought. I would have this pain a week before my period and during

my period. The only thing about this pain I would only have it when I had to

walk. I could'nt do my job at work. A simple thing as walking became a chore. My

legs felt like jello was very weak in the legs. I turned white as a ghost and

felt as if I would pass out. This pain would double me over. I would have to

stop walking. The only way I can desribe this pain is like tention on a rubber

band the more walking I did the more tention on the rubber band.Than there was

the contractions. I've had two children so I know what they feel like.That

happen only when I used the toilet or when I got in my car to drive somewhere.

When I had my yearly pap Sept. 2002. I told the Dr. all what was going on. I

still did'nt want a hyesterectomy but felt he needed to do something else. He

never offered any other options other than pills.So he said he would change my

Bc pill to a stronger one,but I would have to quit smoking so I agreed.(after

that pap smear I bleed for 21 days stright) I would do anything to stop the

heavy bleeding.First I would have to qiut smoking for a month before he even

give me the new pill. So I went on the patch. It took 6 days to quit. Smoke free

as of sept. 15 2002. The Dr gave me the new pill and said to come back in three

months. Well the heavy bleeding stopped but still had the back pain. I could'nt

take any more pain I was ready to have the uterus out. I went Back to the Dr. in

three months and told him I could'nt deal with the pain any more he did a U/S

Thats when he hit me with that the pain I was having was not associated with my

fibroids.He said he did'nt doubt I was having the pain.But the pain I was having

had to be caused by something else. He said the same thing about my bladder

problem not associated with my fibroids. He also said I have a tilted uterus.But

when he told me I was'nt a canidate for any kind of surgery,and I should try and

let this new BC pill to work....well guess what? I have a new Dr. I came

prepared with all sorts of questions. My fibroid is 5cm and have two other small

ones. The larger one is in the wall of the uterus.My Dr. said she has seen

larger. She said I cant do a myo cause it is to large.and I cant do ablation, I

think thats what its called where they take the lining out anyway she said i

cant do that because its in the wall of the uterus. So she has given me a option

of UAE or she recommends to use the less evasive method first. So she offered me

a drug called Megestrol. Has anyone heard of it? So i've been taking it for

about a month. It's suppose to stop my period. As of today i'm suppose to start,

we'll see how it goes. So far no back pain and i'm starting to feel like my old

self except for the leaky bladder, i guess i can live with that. My question is

to anyone out there have they used this drug? And if anyone knows of the long

term effects of taking it. I forgot to ask my doctor, i don't see her until

July. In the begining i said i was going to tell you my story, but it's probaby

a novel by now. All responces are welcome. Thanks in advance.

[Guest guest]

Welcome, The only time I heard a doctor say a myo is impossible is when it was

actually impossible for them to do it. 5cm and smaller are options for myos.

As you read the post and search the archives you will find that there have been

substantially larger fibroids removed. You have fellow-Michiganders posting

with you. At least in E. MI and 2 in the west. I am a patient of both doctors

the ladies have already seen. Both either have had, or will have myomectomies

done. Please search for a more compentant doctor. We see Drs. Dodds

and Young, who have offices in Kalamzoo and Grand Rapids - phone(616)

988-2229, and Drs. Arnold Advincula and Quint at the University of

Michigan Where abouts are you located? Good luck and I hope this

information was helpful. Do keep in touch. Jo

corona806 wrote:Hello

My name is , I'm new to this group. I've been reading the posts about a

month. I'm ready to share my story.

I'm 42 and I live in Michigan. My Story sarted in 1999. One day I sarted my

period and it did'nt stop for a month I knew this was'nt right so I went to my

PCP and she refered me to a gyno. I put all my trust in this DR. to help me. At

that time I thought He would. He said that before he could do anything the

bleeding had to be stopped so he put me on BC pills. Once the bleeding stopped I

went back for a exam. the Dr. did a vaginal U/S than thats when he told me I had

fibroids, of course he told me they were not cancerous and that the bleeding

could be controlled by BC pills. So I told him Ok no questions asked. How

gullable was I to put my trust in a Dr. and not ask questions. So I left out of

that office not knowing anything but the BC pill would contol the bleeding. I

did'nt Know the size, where It was located nothing. I could just kick my self.

Well anyway the BC pills worked for about two years. than the real problems

started happening. I called my Dr. up and told him I was having very bad cramps

so he perscribed 800mg of Ibuprofen. I eat that like candy. I would hurt even

before my period started than there was the heavy bleeding and the clots, and

the spotting constantly.The accidents at work which happen twice I had to go

Home. Im glade I have a nice boss. Going to the bathroom every half hr. to

change tampon and pad. I also have a leaky bladder. Its driving me nuts. But

when I started having lower back pain (located on the right side.) I told my

self that was enought. I would have this pain a week before my period and during

my period. The only thing about this pain I would only have it when I had to

walk. I could'nt do my job at work. A simple thing as walking became a chore. My

legs felt like jello was very weak in the legs. I turned white as a ghost and

felt as if I would pass out. This pain would double me over. I would have to

stop walking. The only way I can desribe this pain is like tention on a rubber

band the more walking I did the more tention on the rubber band.Than there was

the contractions. I've had two children so I know what they feel like.That

happen only when I used the toilet or when I got in my car to drive somewhere.

When I had my yearly pap Sept. 2002. I told the Dr. all what was going on. I

still did'nt want a hyesterectomy but felt he needed to do something else. He

never offered any other options other than pills.So he said he would change my

Bc pill to a stronger one,but I would have to quit smoking so I agreed.(after

that pap smear I bleed for 21 days stright) I would do anything to stop the

heavy bleeding.First I would have to qiut smoking for a month before he even

give me the new pill. So I went on the patch. It took 6 days to quit. Smoke free

as of sept. 15 2002. The Dr gave me the new pill and said to come back in three

months. Well the heavy bleeding stopped but still had the back pain. I could'nt

take any more pain I was ready to have the uterus out. I went Back to the Dr. in

three months and told him I could'nt deal with the pain any more he did a U/S

Thats when he hit me with that the pain I was having was not associated with my

fibroids.He said he did'nt doubt I was having the pain.But the pain I was having

had to be caused by something else. He said the same thing about my bladder

problem not associated with my fibroids. He also said I have a tilted uterus.But

when he told me I was'nt a canidate for any kind of surgery,and I should try and

let this new BC pill to work....well guess what? I have a new Dr. I came

prepared with all sorts of questions. My fibroid is 5cm and have two other small

ones. The larger one is in the wall of the uterus.My Dr. said she has seen

larger. She said I cant do a myo cause it is to large.and I cant do ablation, I

think thats what its called where they take the lining out anyway she said i

cant do that because its in the wall of the uterus. So she has given me a option

of UAE or she recommends to use the less evasive method first. So she offered me

a drug called Megestrol. Has anyone heard of it? So i've been taking it for

about a month. It's suppose to stop my period. As of today i'm suppose to start,

we'll see how it goes. So far no back pain and i'm starting to feel like my old

self except for the leaky bladder, i guess i can live with that. My question is

to anyone out there have they used this drug? And if anyone knows of the long

term effects of taking it. I forgot to ask my doctor, i don't see her until

July. In the begining i said i was going to tell you my story, but it's probaby

a novel by now. All responces are welcome. Thanks in advance.

[Guest guest]

>She said I cant do a myo cause it is to large.

, 5cm doesn't sound too large to me. Location is a factor in deciding

what kind of operation is best, but myo (laparoscopic or abdominal) is

definitely an option to consider. Did she say why it was too large?

Stopping smoking is a very good thing no matter what. It's also good that

you weren't pressed into hysterectomy. Things could have been a lot worse.

Sorry, I don't know about the drug.

Good luck!

Effie.

_________________________________________________________________

Tired of spam? Get advanced junk mail protection with MSN 8.

http://join.msn.com/?page=features/junkmail

[Guest guest]

>She said I cant do a myo cause it is to large.

, 5cm doesn't sound too large to me. Location is a factor in deciding

what kind of operation is best, but myo (laparoscopic or abdominal) is

definitely an option to consider. Did she say why it was too large?

Stopping smoking is a very good thing no matter what. It's also good that

you weren't pressed into hysterectomy. Things could have been a lot worse.

Sorry, I don't know about the drug.

Good luck!

Effie.

_________________________________________________________________

Tired of spam? Get advanced junk mail protection with MSN 8.

http://join.msn.com/?page=features/junkmail

[Guest guest]

> ,

>

> Welcome to the group. I have never heard of Megestrol but try a search on

> the internet on google and you should find some info.

> You sound like you have been through a lot. I was taking b/c pills for my

> fibroids but they really couldn't help. I finally had a UAE and am better

> now. I still take the b/c pills, but to prevent pregnancy now. I would

> actually like to get off of them since I feel bloated on them all the time

> and they keep extra weight on. Take care.

>

>

Thanks for the info. I'll look into the site.

Since I'm on this new med. and off the BC pills, I look less bloated. I think

thats where i got all my extra weight from. God bless,

[Guest guest]

> ,

>

> Welcome to the group. I have never heard of Megestrol but try a search on

> the internet on google and you should find some info.

> You sound like you have been through a lot. I was taking b/c pills for my

> fibroids but they really couldn't help. I finally had a UAE and am better

> now. I still take the b/c pills, but to prevent pregnancy now. I would

> actually like to get off of them since I feel bloated on them all the time

> and they keep extra weight on. Take care.

>

>

Thanks for the info. I'll look into the site.

Since I'm on this new med. and off the BC pills, I look less bloated. I think

thats where i got all my extra weight from. God bless,

[Guest guest]

> Welcome, The only time I heard a doctor say a myo is impossible is when it

was actually impossible for them to do it. 5cm and smaller are options for

myos. As you read the post and search the archives you will find that there

have been substantially larger fibroids removed. You have fellow-Michiganders

posting with you. At least in E. MI and 2 in the west. I am a patient of both

doctors the ladies have already seen. Both either have had, or will have

myomectomies done. Please search for a more compentant doctor. We see Drs.

Dodds and Young, who have offices in Kalamzoo and Grand Rapids -

phone, and Drs. Arnold Advincula and Quint at the

University of Michigan Where abouts are you located? Good luck and

I hope this information was helpful. Do keep in touch. Jo

Thanks Jo for the info. I live in Ypsilanti, Ann Arbor is a hop, skip, and a

jump to me. I would have to look into if these doctors take BCN insuance I will

keep it in mind Thanks again,

[Guest guest]

> Welcome, The only time I heard a doctor say a myo is impossible is when it

was actually impossible for them to do it. 5cm and smaller are options for

myos. As you read the post and search the archives you will find that there

have been substantially larger fibroids removed. You have fellow-Michiganders

posting with you. At least in E. MI and 2 in the west. I am a patient of both

doctors the ladies have already seen. Both either have had, or will have

myomectomies done. Please search for a more compentant doctor. We see Drs.

Dodds and Young, who have offices in Kalamzoo and Grand Rapids -

phone, and Drs. Arnold Advincula and Quint at the

University of Michigan Where abouts are you located? Good luck and

I hope this information was helpful. Do keep in touch. Jo

Thanks Jo for the info. I live in Ypsilanti, Ann Arbor is a hop, skip, and a

jump to me. I would have to look into if these doctors take BCN insuance I will

keep it in mind Thanks again,

[Guest guest]

> Welcome, The only time I heard a doctor say a myo is impossible is when it

was actually impossible for them to do it. 5cm and smaller are options for

myos. As you read the post and search the archives you will find that there

have been substantially larger fibroids removed. You have fellow-Michiganders

posting with you. At least in E. MI and 2 in the west. I am a patient of both

doctors the ladies have already seen. Both either have had, or will have

myomectomies done. Please search for a more compentant doctor. We see Drs.

Dodds and Young, who have offices in Kalamzoo and Grand Rapids -

phone, and Drs. Arnold Advincula and Quint at the

University of Michigan Where abouts are you located? Good luck and

I hope this information was helpful. Do keep in touch. Jo

Thanks Jo for the info. I live in Ypsilanti, Ann Arbor is a hop, skip, and a

jump to me. I would have to look into if these doctors take BCN insuance I will

keep it in mind Thanks again,

[Guest guest]

" Effie Andree Wiltens " <eaaaw@h...> wrote:

>

> , 5cm doesn't sound too large to me. Location is a factor in deciding

> what kind of operation is best, but myo (laparoscopic or abdominal) is

> definitely an option to consider. Did she say why it was too large?

>

> Stopping smoking is a very good thing no matter what. It's also good that

> you weren't pressed into hysterectomy. Things could have been a lot worse.

hello Effie

Not really sure why my doctor said that it was to large? I will need to ask her.

Yes I know smoking is bad for you, I'm smoke free 7 month now

[Guest guest]

" Effie Andree Wiltens " <eaaaw@h...> wrote:

>

> , 5cm doesn't sound too large to me. Location is a factor in deciding

> what kind of operation is best, but myo (laparoscopic or abdominal) is

> definitely an option to consider. Did she say why it was too large?

>

> Stopping smoking is a very good thing no matter what. It's also good that

> you weren't pressed into hysterectomy. Things could have been a lot worse.

hello Effie

Not really sure why my doctor said that it was to large? I will need to ask her.

Yes I know smoking is bad for you, I'm smoke free 7 month now

[Guest guest]

Thank you for your help I will check out the files etc. and get back

to you with what I have learned about myself.

> Hi. Welcome to the group. Many of us find two things. We are

undermedicated

> and not on the right meds to treat everything wrong with us. I am

on Armour

> which is natural desicated pig thyroid. It has both t3 and t4.

Synthroid

> only has t4. If you go to the files, there are tons of articles to

read.

> That is the best place to start. You might also want to post all

the tests

> that you have had done currently as well as the results and the

ranges of

> the results since all labs are different. Then tell us what you

feel is off

> in how you feel.

> >From: " magram43 " <magram43@h...>

> >Reply-To: NaturalThyroidHormones

> >To: NaturalThyroidHormones

> >Subject: new to the group

> >Date: Sun, 12 Sep 2004 19:56:31 -0000

> >

>

>

>

>

[Guest guest]

> What's the life span of this? Some one please respond..

....................................................

Don't think many folks can help with this, but a-fib in and of itself

is generally not life threatening. I also don't know about heavy

weight lifting. Ephedrine, tho' would be a big NO! Likewise,

caffeine, and alcohol....

I'm sure the folks here will give you a lot of encouragement.

Lee

[Guest guest]

> What's the life span of this? Some one please respond..

....................................................

Don't think many folks can help with this, but a-fib in and of itself

is generally not life threatening. I also don't know about heavy

weight lifting. Ephedrine, tho' would be a big NO! Likewise,

caffeine, and alcohol....

I'm sure the folks here will give you a lot of encouragement.

Lee

[Guest guest]

n-2-tha-world wrote:

<<What's the life span of this?>>

I've had afib for more than 15 years, since I was 45. My cardiologist

says it will have " zero " effect on my life span, as long as I take care

of it. (I.e., take asprin and go to the ER if it lasts longer than 24

hours and see him once a year.)

I too lift weights, though I would not characterize myself as " avid " . I

just like to do it and feel better for it. Doctor says go right ahead.

- OU alum in MI

[Guest guest]

n-2-tha-world wrote:

<<What's the life span of this?>>

I've had afib for more than 15 years, since I was 45. My cardiologist

says it will have " zero " effect on my life span, as long as I take care

of it. (I.e., take asprin and go to the ER if it lasts longer than 24

hours and see him once a year.)

I too lift weights, though I would not characterize myself as " avid " . I

just like to do it and feel better for it. Doctor says go right ahead.

- OU alum in MI

[Guest guest]

> Hi, I am a 32 year old male. For a year and a half I was having

> unexpainable symptoms.

>

> I am an avid weight lifter, and frequently used ephedrine to spike

my

The life span change due to afib is basically no change provided you

take the appropriate meds and follow the doc's directions.

What ephedrine may have done to your life span otherwise, I don't

know. If it causes heart damage other than fib or damage to other

organs, I assume your doc is scheduling you for the appropriate tests.

I used to work out with small weights, but since developing afib, I

can't. It triggers afib or multipple ectopics a minute starting a

few hours later.

[Guest guest]

n-2-tha-world

I am a 54 year male and was diagnosed last September with afib I have

been cardioverted three times.

My doctor told me the same thing that its not fatal but of course I

didn't beleive him.

But after finding this site it seems he is correct. There are people

on here who have had it for years.

This site has been my salvation ! The info shared is so important.

The kindness alone is keeping me grounded and just sharing with each

other has helped me !

Hope all is well

Pete Upstate NY

> Hi, I am a 32 year old male. For a year and a half I was having

> unexpainable symptoms.

>

> I am an avid weight lifter, and frequently used ephedrine to spike

my

> energy levels during work outs.

>

> Well, I've just been diagnosed with " A FIB " . They prescribed

Betapace

> and Asprin.

>

> I was like , " man, i'm too young to have this " . Needless to say Im

> afraid. The doctor tried to maintain a good and optimistic mood,

but

> I could see under neath that he was concerend.

>

> I don't know what the life span of some one with this condition is,

> nor am I well versed on the different drug treatments.

>

> I asked my doctor if I would die. He said I could live with it as

> long as I took the meds and maintained precaution.

>

> He also stated I could continue to lift weights and excersise.

>

> What's the life span of this? Some one please respond..

[Guest guest]

n-2-tha-world

I am a 54 year male and was diagnosed last September with afib I have

been cardioverted three times.

My doctor told me the same thing that its not fatal but of course I

didn't beleive him.

But after finding this site it seems he is correct. There are people

on here who have had it for years.

This site has been my salvation ! The info shared is so important.

The kindness alone is keeping me grounded and just sharing with each

other has helped me !

Hope all is well

Pete Upstate NY

> Hi, I am a 32 year old male. For a year and a half I was having

> unexpainable symptoms.

>

> I am an avid weight lifter, and frequently used ephedrine to spike

my

> energy levels during work outs.

>

> Well, I've just been diagnosed with " A FIB " . They prescribed

Betapace

> and Asprin.

>

> I was like , " man, i'm too young to have this " . Needless to say Im

> afraid. The doctor tried to maintain a good and optimistic mood,

but

> I could see under neath that he was concerend.

>

> I don't know what the life span of some one with this condition is,

> nor am I well versed on the different drug treatments.

>

> I asked my doctor if I would die. He said I could live with it as

> long as I took the meds and maintained precaution.

>

> He also stated I could continue to lift weights and excersise.

>

> What's the life span of this? Some one please respond..

[Guest guest]

n-2-tha-world

I am a 54 year male and was diagnosed last September with afib I have

been cardioverted three times.

My doctor told me the same thing that its not fatal but of course I

didn't beleive him.

But after finding this site it seems he is correct. There are people

on here who have had it for years.

This site has been my salvation ! The info shared is so important.

The kindness alone is keeping me grounded and just sharing with each

other has helped me !

Hope all is well

Pete Upstate NY

> Hi, I am a 32 year old male. For a year and a half I was having

> unexpainable symptoms.

>

> I am an avid weight lifter, and frequently used ephedrine to spike

my

> energy levels during work outs.

>

> Well, I've just been diagnosed with " A FIB " . They prescribed

Betapace

> and Asprin.

>

> I was like , " man, i'm too young to have this " . Needless to say Im

> afraid. The doctor tried to maintain a good and optimistic mood,

but

> I could see under neath that he was concerend.

>

> I don't know what the life span of some one with this condition is,

> nor am I well versed on the different drug treatments.

>

> I asked my doctor if I would die. He said I could live with it as

> long as I took the meds and maintained precaution.

>

> He also stated I could continue to lift weights and excersise.

>

> What's the life span of this? Some one please respond..

[Guest guest]

Hi, glad you found this board. It has been very helpful and informative to

me. Afib is not life-threatening in and of itself. You need to take the

precautions your doctor told you about, and ask about being put on Coumadin

to prevent stroke. I am surprised you were not put on Coumadin, which is a

blood thinner. You are young to have afib, but it does tend to afflict men

more than women, and for some reason, is a condition seen in endurance

athletes. Ephedrine is not something you should continue to use, but did

not necessarily cause your afib. Caffeine and alcohol are other stimulants

that you should cut back on if you use them. There are lots of good theories

but no doctor will tell you that we know exactly why we develop afib. In

fact, many will say that, if you have to have a heart condition, this is

preferable over all the others. Not much consolation, but there are

treatments, both pharmacological and surgical. Some people benefit from

dietary adjustments. The surgical procedures can be done through catheters,

so there is no need to have your chest opened up. Most of us are treated by

electrophysiologists, cardiologists who specialize in ³electrical problems.²

There is a lot of good info on the Afib Support web site and other web

sites. The more you inform yourself, the more you can proactively

participate in your treatment. Don¹t despair and keep a positive attitude,

which is likely to help your heart!

--

Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg, baby

aspirin), , Mississippi

> Hi, I am a 32 year old male. For a year and a half I was having

> unexpainable symptoms.

>

> I am an avid weight lifter, and frequently used ephedrine to spike my

> energy levels during work outs.

>

> Well, I've just been diagnosed with " A FIB " . They prescribed Betapace

> and Asprin.

>

> I was like , " man, i'm too young to have this " . Needless to say Im

> afraid. The doctor tried to maintain a good and optimistic mood, but

> I could see under neath that he was concerend.

>

> I don't know what the life span of some one with this condition is,

> nor am I well versed on the different drug treatments.

>

> I asked my doctor if I would die. He said I could live with it as

> long as I took the meds and maintained precaution.

>

> He also stated I could continue to lift weights and excersise.

>

> What's the life span of this? Some one please respond..

>

>