Re: Hysterical thats me!

[Guest guest]

Oh Ging, Ging, Ging....

You are not alone. When I've been covered with hives I felt like I

was going nuts. I seriously almost screamed down the hallway at work

more than a few times. A person can only take so much and these

darned hives heap on a ton of misery. Don't feel bad...and you are

NOT a wimp!

You said in your last e-mail that you have Hashimoto's but you aren't

on any meds for it. Is that because your doc is waiting for you to go

hypothyroid before putting you on meds? There have been several

clinical studies that have shown that some people with CU who have

subclinical (not hypo yet) Hashimoto's can benefit greatly by taking

thyroid supplements. I have never been truly hypothyroid, but my hives

have improved by taking thyroid supplements. In fact, my

endocrinologist and I have determined that my TSH levels need to be at

the very low end of the " normal " range in order to alleviate my hives.

I'm also on the low histamine diet, which has improved my hives

immensely. Have you tried this diet yet?

I sincerely hope that the medrol kicks in in the next few hours and

you are comfortable SOON. Steroids have their downsides, but they are

miraculous when you are suffering like hell and really need them.

Take care.

> Hi Guys,

> Am I an awful wimp, but I'm covered in these bastards today, and I

finally

> got hysterical. I

> started Medrol, and I'm better already. I just got off Pred, and I'm

flaring

> again. So different

> name drug, but still a steroid. Metabolizes a bit differently that's

all.

> Seriously,does anyone

> cry over this when their covered all over and itching, and not

sleeping?

> Please tell me I'm not the only wimp around. My poor hubby,He looks

at my

> bod and tells me he wishes he could take it from me. He has enough

on his

> plate with Prostate cancer. He just took some important tests

yesterday, and

> we're holding our breath that they come back negative. He is full of

> vitality, and feels well. I hope he feels like this forever. The

BEST guy!I

> need to feel better for him, that's

> what I pray for. Everyone have a good week-end. Love ya, one and

all. Ging

[Guest guest]

Hi Ging. Same here - I cry whenever it gets to be too much. Between the itch

and the headaches/dizziness and the tummy troubles and the bone pain, some

days it's more than I can handle. Biggest drag is when I cry then my eyes

swell shut, headache gets worse, sometimes throat decides it's a fine time

to act up as well, so then the chest pains come.... So much for a good cry

making ya feel better, huh? Geez, what a life.

Hang in there, girl. We'll get through this, we always do. At least we all

have each other's cyber-shoulder to cry on.

Can you imagine all of us together in the same room? What a sight that would

be - many of us overweight thanks to steroids, sounds like many of us are

'well-endowed' (yeah, I got more than my share up top too) and the whole

group itching, swelling, and crying together. But it would be a room full of

more love, compassion, and friendship than most people would ever get to see

in a lifetime. Pass the prednisone.....

Love and air hugs,

Jackie

Life is tough, but I'm tougher.

----Original Message Follows----

Reply-To: urticaria

To: <urticaria >

Subject: Hysterical thats me!

Date: Thu, 13 Dec 2001 17:13:20 -0500

Hi Guys,

Am I an awful wimp, but I'm covered in these bastards today, and I finally

got hysterical. I

started Medrol, and I'm better already. I just got off Pred, and I'm flaring

again. So different

name drug, but still a steroid. Metabolizes a bit differently that's all.

Seriously,does anyone

cry over this when their covered all over and itching, and not sleeping?

Please tell me I'm not the only wimp around. My poor hubby,He looks at my

bod and tells me he wishes he could take it from me. He has enough on his

plate with Prostate cancer. He just took some important tests yesterday, and

we're holding our breath that they come back negative. He is full of

vitality, and feels well. I hope he feels like this forever. The BEST guy!I

need to feel better for him, that's

what I pray for. Everyone have a good week-end. Love ya, one and all. Ging

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

If you do wish to unsubscribe then you can click on the following link:

urticaria-unsubscribe

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria. Information provided in this forum is not to be taken

as medical advice. Always consult your health professional before trying

anything new.

Any posting that is off the main topic of Chronic Urticaria, we post with a

prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

[Guest guest]

Hi Ging. Same here - I cry whenever it gets to be too much. Between the itch

and the headaches/dizziness and the tummy troubles and the bone pain, some

days it's more than I can handle. Biggest drag is when I cry then my eyes

swell shut, headache gets worse, sometimes throat decides it's a fine time

to act up as well, so then the chest pains come.... So much for a good cry

making ya feel better, huh? Geez, what a life.

Hang in there, girl. We'll get through this, we always do. At least we all

have each other's cyber-shoulder to cry on.

Can you imagine all of us together in the same room? What a sight that would

be - many of us overweight thanks to steroids, sounds like many of us are

'well-endowed' (yeah, I got more than my share up top too) and the whole

group itching, swelling, and crying together. But it would be a room full of

more love, compassion, and friendship than most people would ever get to see

in a lifetime. Pass the prednisone.....

Love and air hugs,

Jackie

Life is tough, but I'm tougher.

----Original Message Follows----

Reply-To: urticaria

To: <urticaria >

Subject: Hysterical thats me!

Date: Thu, 13 Dec 2001 17:13:20 -0500

Hi Guys,

Am I an awful wimp, but I'm covered in these bastards today, and I finally

got hysterical. I

started Medrol, and I'm better already. I just got off Pred, and I'm flaring

again. So different

name drug, but still a steroid. Metabolizes a bit differently that's all.

Seriously,does anyone

cry over this when their covered all over and itching, and not sleeping?

Please tell me I'm not the only wimp around. My poor hubby,He looks at my

bod and tells me he wishes he could take it from me. He has enough on his

plate with Prostate cancer. He just took some important tests yesterday, and

we're holding our breath that they come back negative. He is full of

vitality, and feels well. I hope he feels like this forever. The BEST guy!I

need to feel better for him, that's

what I pray for. Everyone have a good week-end. Love ya, one and all. Ging

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

If you do wish to unsubscribe then you can click on the following link:

urticaria-unsubscribe

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria. Information provided in this forum is not to be taken

as medical advice. Always consult your health professional before trying

anything new.

Any posting that is off the main topic of Chronic Urticaria, we post with a

prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

[Guest guest]

Dear Ging,

I've felt exactly as you're feeling - the level of itching/pain that

hives produce is just so intolerable, I've found that when I'm really

bad I just don't know what to do with myself. No-one could put up

with them and you're not a wimp at all.

I don't know as much about this as other people but it sounds as

though you could be having a rebound reaction to coming off the

prednisolone - when I came off it I went down to 2.5 mg and took a

homeopathic version of P which was supposed to act as an antidote (it

did seem to help).

It also sounds as though the Hashimoto's has a lot to do with your

hives. I saw a thyroid specialist last week (I have an overactive

thyroid) and I have now decided to have radioactive iodine treatment

to kill off my thyroid completely and then take thyroid hormone. The

specialist felt that this treatment could also be effective for

someone with Hashimoto's, even though Hashimoto's slowly kills the

thyroid gland anyway (the radioactive iodine shuts down the thyroid

in a matter of weeks whereas Hashimoto's takes years).

I hope you feel better soon.

Best wishes

Gill (London, UK)

> Hi Guys,

> Am I an awful wimp, but I'm covered in these bastards today, and I

finally

> got hysterical. I

> started Medrol, and I'm better already. I just got off Pred, and

I'm flaring

> again. So different

> name drug, but still a steroid. Metabolizes a bit differently

that's all.

> Seriously,does anyone

> cry over this when their covered all over and itching, and not

sleeping?

> Please tell me I'm not the only wimp around. My poor hubby,He looks

at my

> bod and tells me he wishes he could take it from me. He has enough

on his

> plate with Prostate cancer. He just took some important tests

yesterday, and

> we're holding our breath that they come back negative. He is full of

> vitality, and feels well. I hope he feels like this forever. The

BEST guy!I

> need to feel better for him, that's

> what I pray for. Everyone have a good week-end. Love ya, one and

all. Ging

[Guest guest]

I've cried plenty over theses hives. They scare me...am I going to have this awful disease forever? You are not a wimp. You are a strong person dealing with a very difficult situation that makes everything else in your life worse. I will pray for you and your husband. Please write more over the weekend. I think I have to get some rest now.

Tami (NJ)

[Guest guest]

I've cried plenty over theses hives. They scare me...am I going to have this awful disease forever? You are not a wimp. You are a strong person dealing with a very difficult situation that makes everything else in your life worse. I will pray for you and your husband. Please write more over the weekend. I think I have to get some rest now.

Tami (NJ)

[Guest guest]

I've cried plenty over theses hives. They scare me...am I going to have this awful disease forever? You are not a wimp. You are a strong person dealing with a very difficult situation that makes everything else in your life worse. I will pray for you and your husband. Please write more over the weekend. I think I have to get some rest now.

Tami (NJ)

[Guest guest]

Hi Ging -

I'm so sorry that you are suffering so both physically

and mentally. When I started to get hives from the

cold, I totally freaked out and was even afraid to

leave my house. I cried and stressed more over the

scariness of not being able to control my body and the

fear that this strange condition was going to somehow

kill me. The burning and itchiness was secondary to

my mental anguish. I fell into a deep depression and

was unable to function for a couple of months.

Ultimately I ended up going on Celexa (an

antidepressant) which helped me gain my clarity back

and allowed me to function in a normal fashion. I am

actually opening my own retail business next month - a

far cry from being afraid to leave the house.

Although I can't image how physically torturous it

must be to have the hives constantly (I get red, itchy

rashes primarily from cold), I do understand the

mental part and sympathize.

-Sheryl

PS - I hope everything works out well for your husband

--- gingeos@... wrote:

> Hi Guys,

> Am I an awful wimp, but I'm covered in these

> bastards today, and I finally

> got hysterical. I

> started Medrol, and I'm better already. I just got

> off Pred, and I'm flaring

> again. So different

> name drug, but still a steroid. Metabolizes a bit

> differently that's all.

> Seriously,does anyone

> cry over this when their covered all over and

> itching, and not sleeping?

> Please tell me I'm not the only wimp around. My poor

> hubby,He looks at my

> bod and tells me he wishes he could take it from me.

> He has enough on his

> plate with Prostate cancer. He just took some

> important tests yesterday, and

> we're holding our breath that they come back

> negative. He is full of

> vitality, and feels well. I hope he feels like this

> forever. The BEST guy!I

> need to feel better for him, that's

> what I pray for. Everyone have a good week-end. Love

> ya, one and all. Ging

>

>

__________________________________________________

[Guest guest]

NO Ging your not the only one who has cried over this condition. I think that we have all cried over it at one point and time. I must say though since i have found this site and all the wonderful information that you all have to provide that it has made my life easier and this awful condition easier for me to take and understand. Some of the members just blow me away with the amount of information they know and have. and hairhut my husband likes your info the most, and thats probably because he can remember your name the easiest..lol Im a hairdresser....lmao men are funny like that but he always looks for hairhut to see what she has to say today..but we all must find some humor in this or we will all be crazy. But there are still many days that i still want to cry. So we will all keep our chin up and stick together..

Janet