question

[Guest guest]

I have two large synovial cysts on my wrists, they don't hurt but look

awful...not that I really care but you know my kids are at that age where they

get embarrassed easily. I feel bad I'm their mother and I'm hunched over,

hobbling and my hands are a mess....I think people think I'm their grandmother

not mother. Anywho that's beside the point, I'm just wondering if those go away

on their own? My rheumy wants me to have surgery and I just don't want to go

there.

Thanks,

Sue

---- Eva Holloway <holloway-eva@...> wrote:

> Sally, Cooky

>

> since my RA and Dermatomyositis is going slowly into remission I notice that

my " dragon ridges " on my arms have decreases in size. I used to have a real big

one on the back of my elbow, that also has shrunk . The nodules were the first

one to appear about 7 years ago, but I wasn't sick then and they thought it was

some kind of allergy, If I had only known then that it was RA and I could get

into remission with antibiotic I would have started then.

> I am using Cal-Mag with Boron. Boron is supposed to help with Magnesium to get

into the bones.

> Eva

>

>

>

> From: Cooky Stonkey <cookee1@...>

> Subject: RE: rheumatic question

> rheumatic

> Date: Thursday, March 17, 2011, 4:05 PM

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> Sally, how long have you had this? Mine is still painful if I push on it

even a little but last week I could not even let a blanket cross over it. Yes I

read they are sort of rare. I hope it will go away soon…better yet I hope I

don’t I get anymore.

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> As for your bones. I’m not sure if they will straighten out. I want to say

yes because I have had fingers straighten and toes that did not. Now I am having

some (ankle knuckles and toes) that I don’t think are going to get better.

Humbling? NO just determined J))

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> Are you noticing anything since your IV’s?

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> Hugs

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> cooky

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> From: rheumatic [mailto:rheumatic ] On Behalf

Of mannasal@...

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> Sent: Thursday, March 17, 2011 4:46 PM

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> rheumatic

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> Subject: Re: rheumatic question

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>

> well Cookie, I can't help you, but unfortunately join you. A few inches down

frommy right elbow, I have a nodule about the size of a pea. For awhile, it was

getting smaller and softer, but now maintains the pea size and definately feel

the bone (or whatever a nodule is??) I read that with Ra, about 20% people will

get them. So maybe after awhile on AP, these will go away?? It is sad and scarey

watching the body change....bones in leg have buckled? and I look like I'm knock

kneed and other bones don't look or feel right. Can they untwist?

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> Humbling, isn't it..................sally

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> rheumatic question

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> Hi Everyone,

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> I know in my heart and subconscious that this will go away when AP kicks in

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> BUT..

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> I developed a bean size ? node that is painful to touch on the first little

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> joint of my big toe about 2 or so weeks ago. Thank goodness it is in a place

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> where it does not touch my shoe and I can walk. I had what I thot was a big

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> one( but it had no pain) on the top of my hand in 1998 and it went away

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> gradually. This one on my toe is getting a little flatter and bigger.

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> I just need some reassurance from someone who also has had a rheumatoid node

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> and it went away. Also tell me if you used anything on it. I am kinda

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> freaked out.

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> Thank you.

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> cooky

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[Guest guest]

This discussion came up before and I then designed a credit card size card for my husband to carry - stating the he was on 4.5mg Low Dose Naltexone and that opiod medication is not advised, etc. Also the attending oncologist and GP phone numbers if they are in the know about the LDN.

We did consider a bracelet, but space is limited therefore ID type card laminated would be better.

Hope this helps!

ED

[Guest guest]

I don't know the answer, but you asked the same question only a couple hours apart and in the middle of the night EST, so you need to let people have a chance to respond, in my opinion. Is there a problem right now with you or your husband that is worrying you? I think it would be important to contact your doctor if you suspect a serious problem and be sure to tell family members that you are on LDN so if you were incapacitated, someone could inform the doctors. You could wear an emergency alert bracelet if it would make you feel better about it...

 Niki

On Sat, Apr 23, 2011 at 12:40 AM, Boyd <jyboyd@...> wrote:

 

It has crossed my mind what happens if there was a sudden emergency of health in any one of us say a heart attack or the likes and we're all filled up on LDN will the drugs needed to handle such an ermergency actually work like the adrenaline and morphines and whatever I would just like to hear what you say out there as we are getting on 70 years and 63 years

[Guest guest]

You shouldn't have any problem with most drugs except morphine. That is one of the reasons one should take LDN at night going to bed as you are unlikely to suddenly need morphine in the middle of the night. Where as you could need it during the day following a car accident or something similar Regards Donnellywww.jde.ie Sent from my iPhoneOn 23 Apr 2011, at 05:40, " Boyd" <jyboyd@...> wrote:

It has crossed my mind what happens if there was a sudden emergency of health in any one of us say a heart attack or the likes and we're all filled up on LDN will the drugs needed to handle such an ermergency actually work like the adrenaline and morphines and whatever I would just like to hear what you say out there as we are getting on 70 years and 63 years

[Guest guest]

ED, the card you designed is a good idea, as is having ICE contact programmed into his cellphone (In Case of Emergency contact).

Just to clarify, though, re the ID bracelets or necklaces. My son (who does not yet carry a wallet) has one from Medic Alert, I believe it lists his condition, has an ID# and an 800# on it. I keep the company updated with his diagnosis, doctors and contact info, medications, dosages, supplements he takes, allergies, our contact info, etc. In case of an emergency where he is unable to speak, emergency responders are trained to look for these IDs. They can call the 800# and get all the info they need. We were also able to list that he is Roman Catholic, and to please call a Priest if things are serious, which is important to us as he would receive Last Rites if needed. We pay a small annual fee for this service and it is easy to update info online.

The bracelets are available with a variety of funky, fun straps or in silver or gold, or as a watch, as well as a dog tag like ID and necklaces, so most tastes and budgets can be accomodated. I have no financial interest in this company!

We have never actually had such an emergency, thank God, but glad to have it just in case.

HTHs!

Taz

[Guest guest]

, lots of people are probably away or busy this weekend, it being Easter so there are not so many people around to help with your questions. None of us are "experts" as such anyway, just other sick people that use LDN.

You should pose your question to a pharmacist (such as Skips) for a true answer but otherwise people say it varies from a few hours to two weeks. Of course in an emergency that doesnt help but all you can do is share the fact that your husband is on LDN and ask the ER people to make sure they check out that info before administering meds. On the whole, people seem to prefer to take a chance and use LDN to help with their diseases and that is a daily even whereas an accident, is hopefully, a one off event.Bev

low dose naltrexone From: jyboyd@...Date: Sat, 23 Apr 2011 06:32:31 +0000Subject: [low dose naltrexone] question

I think my question is an important factor and can't understand why you don't reply as there are a lot of people relying on correct information thanks

[Guest guest]

, I asked a similar question not too long ago and like you never received an answer!

Beverly

[Guest guest]

I did have a situation a while back where I did have to go to the Emergency Room the morning after taking LDN. I explained to the doctor that I was taking LDN (Naltrexone). She looked it up and they brought me a pill to take. At the time I was in quite a bit of pain so I took the pill without even asking what it was. It did start working though and when she came in about 45 minutes later, I asked what she gave me. She said it was Tramadol and that she had looked it up and that it isn’t contraindicated with Naltrexone. She also prescribed me some to take home and I took another one that evening before I went to bed and again when I woke up. I did not take the LDN that night, but I did the following night with no problems. All I know is that it did work. I also asked the pharmacist when I picked up the prescription and he looked it up and said he couldn’t find any reason not to take the Tramadol either.

So I would say that it should be okay to take Tramadol if any pain medicines are needed. Just be sure that the doctor knows all of the drugs you are taking and why. You can take LDN with any other class of drugs with no problem.

Judy HTo Health Through KnowledgeStarted taking Low Dose Naltrexone on January 20, 2009 for Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOSLDNforFibro/

On Sat, Apr 23, 2011 at 12:40 AM, Boyd <jyboydaapt (DOT) net.au> wrote:>>> It has crossed my mind what happens if there was a sudden emergency of> health in any one of us say a heart attack or the likes and we're all filled> up on LDN will the drugs needed to handle such an ermergency actually work> like the adrenaline and morphines and whatever I would just like to hear> what you say out there as we are getting on 70 years and 63 years>> >

[Guest guest]

, my husband on LDN, DID have a heart attack 2 weeks ago Thursday.

In the ER they wanted to give him morphine. Before I got there he had already

told them about LDN, and of course the doctor didn't know anything about it and

said we shouldn't be taking it. I arrived, had the same conversation with the

doc and I said 'when you pry it from our cold, dead hands; then we'll stop

taking it'. I tried to tell him more about it, and he looked it up on his

i-phone, but was, of course, looking at " Naltrexone " .

I patiently explained the 4.5 mg dosage and he decided to try the morphine,

which worked better as that day and subsequent days in cardiac ICU proceeded.

Later, upstairs, the cardiac specialist visited with us and decided to

life-flight to OHSU immediately. We went out in the hall to talk privately

and he mentioned the LDN. I said I was, for all intents and purposes,

bed-ridden prior to LDN, and that the ER doc needed to be educated. He said " I

bet the LDN made you well, didn't it?! "

Right on!

ended up having angioplasty with a stint, and is fine now, back to normal

as far as activities. Of course his diet has changed (I had been trying to get

him to change it for at least 3 years!) He's lost 9 pounds - mostly abdominal

fat.

d

> It has crossed my mind what happens if there was a sudden emergency >of health

in any one of us say a heart attack or the likes and we're all >filled up on LDN

will the drugs needed to handle such an ermergency >actually work like the

adrenaline and morphines and whatever I would >just like to hear what you say

out there as we are getting on 70 years >and 63 years