question

June 17, 2007

Last week a sewage tanker leaked raw sewage all over Bradley beach NJ.

By day's end with no clean up they said the water tested " within

acceptable limits of the state standard. " I am beginning to question the

toxicity parameters for metal. If everyone with seemingly " normal " range

goes up do they even take notice or simply up the parameters and then

question why so many folks have autism, bipolar, add, dyslexia,

parkinsons, alzheimers? NUTS!

Janice wrote:

>I hear that all of the new 'environmentally conscious' light bulbs are loaded

with mercury. It may be that chelation is something we all have to do to avoid

all of the nasty diseases such as Alzheimers, parkinsons, ALS, et.

>

>Kind of scary, this world we are building...

>

>Janice

>

> [sPAM] Re: [ ] Re: Question

>

> Yeah, my 9 mercury fillings, one that leaked last year, are at issue.

>

> bigcheech91 wrote:

>

> >I'm not sure about the heavy metal toxicity of the items you listed,

> >but metals can definitely be a problem for some kids. We haven't

> >gone that route, but chelation is a popular DAN treatment.

> >

> >You don't hear this a lot, but I think we absorb more mercury from

> >our amalgam fillings than from our diet or environment. My teeth are

> >genetically rotten (both parents have awful teeth). My parents

> >invested so much effort into protecting my teeth, and it was all for

> >nothing. They look very nice, but I've had many cavities, six root

> >canals, and two or three minor oral surgeries. I must be loaded with

> >mercury... Yuck.

> >

> > in NJ

> >

> >>Drank decaf iced tea like crazy during pregnancy with son and quite

> >>

> >a

> >

> >>bit with daughter. Ate too much chocolate then too. Took extra

> >>

> >strength

> >

> >>tylenol a lot then too for back and kidney pain. Drank flouridated

> >>

> >water

> >

> >>the entire time. Who knows what is in the town water heavy metal

> >>

> >wise

> >

> >>(showers)?

> >>

> >>While I am following through with celiac testing I am curious about

> >>

> >this:

> >

> >>Could too much heavy metal from this stuff, *maybe* even further

> >>

> >trapped

> >

> >>by the tylenol, be part of this? The reading I have done tells me

> >>

> >that

> >

> >>heavy metal toxicity may cause food allergies and celiac-like

> >>

> >stuff. If

> >

> >>the genetic stuff comes back negative I would be curious. Once

> >>

> >again I

> >

> >>am over my head. Anyone know about the plausibility of this?

> >>

> >>As always you guys are my filter before heading to the doc. Any

> >>

> >thoughts?

> >

June 17, 2007

A school can not diagnose or un-diagnose Asperger's Syndrome. WTF? I never heard of such a thing in my life! There have been times that kids tested out of the learning disabled diagnoses and were removed from the highest level of care to a lower level of care but NO WAY does a school have the right to remove a medical diagnosis under any circumstances. Go get yourself an Educational Attorney and kick their butts!!

~Val~

Join us on Wednesday nights from 8 to 9pm EDT for our Blogtalk Radio Show

Naked Soma: Riff On This!!! http://www.blogtalkradio.com/nakedsoma (listen to the replay right now!)

********************************************************************

"If you're not happy without it, you'll never be happy with it." ~ Candy

June 17, 2007

This was supposed to be a private email to my sis-in-law that accidentally got

sent here to the boards! Sorry, as this obviously makes no sense!

-------------- Original message --------------

From: julieobradovic@...

Sorry, it's Zavala...

Happy Father's Day

-------------- Original message --------------

From: Liz <lizlaw@...>

Yeah, my 9 mercury fillings, one that leaked last year, are at issue.

bigcheech91 wrote:

>I'm not sure about the heavy metal toxicity of the items you listed,

>but metals can definitely be a problem for some kids. We haven't

>gone that route, but chelation is a popular DAN treatment.

>

>You don't hear this a lot, but I think we absorb more mercury from

>our amalgam fillings than from our diet or environment. My teeth are

>genetically rotten (both parents have awful teeth). My parents

>invested so much effort into protecting my teeth, and it was all for

>nothing. They look very nice, but I've had many cavities, six root

>canals, and two or three minor oral surgeries. I must be loaded with

>mercury... Yuck.

>

> in NJ

>

>>Drank decaf iced tea like crazy during pregnancy with son and quite

>>

>a

>

>>bit with daughter. Ate too much chocolate then too. Took extra

>>

>strength

>

>>tylenol a lot then too for back and kidney pain. Drank flouridated

>>

>water

>

>>the entire time. Who knows what is in the town water heavy metal

>>

>wise

>

>>(showers)?

>>

>>While I am following through with celiac testing I am curious about

>>

>this:

>

>>Could too much heavy metal from this stuff, *maybe* even further

>>

>trapped

>

>>by the tylenol, be part of this? The reading I have done tells me

>>

>that

>

>>heavy metal toxicity may cause food allergies and celiac-like

>>

>stuff. If

>

>>the genetic stuff comes back negative I would be curious. Once

>>

>again I

>

>>am over my head. Anyone know about the plausibility of this?

>>

>>As always you guys are my filter before heading to the doc. Any

>>

>thoughts?

>

June 18, 2007

Dear Professor Val,

The biggest problem we seem to run into is the

loophole in the law that lets a school district take

kids who are diagnosed autistic (ironclad, in my kid's

case, it was through an entire neuropsych eval done by

a TEAM of doctors at a university)...You can have the

diagnosis of autism in whatever form you have it, but

the school district then has the right to decide if

autism affects educational performance. We had to go

through an " Autism Resource Committee " . Parents are

not allowed to be present even though it is a

multidisciplinary team. My child's unlicensed intern

teacher who had known her for six weeks and who had

not yet had ONE certification course was allowed in

the meeting where she pontificated that my child was

" emotionally disturbed " due to her " behaviors " . Not

that my child has behaviors consistent with being an

autistic child! We had to threaten a lawsuit just to

get the eligibility of autism for her IEP. But that

did not really help us. The quality of this autism

program (with the unlicensed teacher) was completely

dismal. At this point, even though her eligibility is

autism, I have to fight the war because they want her

in an emotionally disturbed classroom. Because they

do not understand autism even in their " autism

program " . It is very very frustrating. That's why at

this point I GIVE UP and will educate her myself.

Kaye

--- Professor Val <professorval@...> wrote:

> A school can not diagnose or un-diagnose Asperger's

> Syndrome. WTF? I never

> heard of such a thing in my life! There have been

> times that kids tested

> out of the learning disabled diagnoses and were

> removed from the highest

> level of care to a lower level of care but NO WAY

> does a school have the

> right to remove a medical diagnosis under any

> circumstances. Go get

> yourself an Educational Attorney and kick their

> butts!!

>

> ~Val~

>

> Join us on Wednesday nights from 8 to 9pm EDT for

> our Blogtalk Radio Show

> Naked Soma: Riff On This!!!

> http://www.blogtalkradio.com/nakedsoma (listen

> to the replay right now!)

>

********************************************************************

>

> " If you're not happy without it, you'll never be

> happy with it. " ~

> Candy

>

________________________________________________________________________________\

____

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June 18, 2007

Wow, that is awful. Are you in the USA? They can't use money as a reason to remove services here. Well, I should say that they aren't supposed to but I'm sure it happens a lot.

That is exactly the problem. YOu said it much better than I was trying. If they compare the child to NT peers, you can see the problems easily. But when you compare the child to another child who has more behaviors or is an "outie" and not an "innie" - then they only see the problems of the most pressing or loudest child.

RoxannaAutism Happens

( ) question>>>>>> Hello,>> I haven't posted in a while due to being soooo>> busy. I wanted to ask>> if anyone knows of an organization with funds or>> grants to help with>> the expense of doctor/evaluations fees for>> (autism/aspergers)? you can>> e-mail me off line if you like and in 'subject'>> type aspergers.>> the school CSE changed my sons diagnosis because>> they said today he is>> doing much better, that his teacher doesn't see>> him as having aspergers>> anymore. hmmmmmm, but they said he still needs all>> the services,>> including resource, speech, social skills, life>> skills, but because he>> is improving, they changed his classification.>> now I'm back to the doctors.>> any information on organizations to help with the>> fees would be great.>> hugs.>>>>>>>>>>>> > __________________________________________________________ > ____________> You snooze, you lose. Get messages ASAP with AutoCheck> in the all-new Beta.> http://advision.webevents./mailbeta/newmail_html.html>>>

June 18, 2007

They don't really remove a medical dx. Schools use educational dx/classification. So even if someone has a disability, they don't automatically qualify for services unless they show a need for services.

RoxannaAutism Happens

Re: ( ) question

A school can not diagnose or un-diagnose Asperger's Syndrome. WTF? I never heard of such a thing in my life! There have been times that kids tested out of the learning disabled diagnoses and were removed from the highest level of care to a lower level of care but NO WAY does a school have the right to remove a medical diagnosis under any circumstances. Go get yourself an Educational Attorney and kick their butts!!

~Val~

Join us on Wednesday nights from 8 to 9pm EDT for our Blogtalk Radio Show

Naked Soma: Riff On This!!! http://www.blogtalkradio.com/nakedsoma (listen to the replay right now!)

********************************************************************

"If you're not happy without it, you'll never be happy with it." ~ Candy

June 18, 2007

Holy crap Kaye, that is awful. Where do you live? What credentials did the "Autism Committee" have?Kaye Bates <kcbates2003@...> wrote: Dear Professor Val, The biggest problem we seem to run into is theloophole in the law that lets a school district takekids who are diagnosed autistic (ironclad, in my kid'scase, it was through an entire neuropsych eval done bya TEAM of doctors at a university)...You can have thediagnosis of autism in whatever form you have it, butthe school

district then has the right to decide ifautism affects educational performance. We had to gothrough an "Autism Resource Committee". Parents arenot allowed to be present even though it is amultidisciplinary team. My child's unlicensed internteacher who had known her for six weeks and who hadnot yet had ONE certification course was allowed inthe meeting where she pontificated that my child was"emotionally disturbed" due to her "behaviors". Notthat my child has behaviors consistent with being anautistic child! We had to threaten a lawsuit just toget the eligibility of autism for her IEP. But thatdid not really help us. The quality of this autismprogram (with the unlicensed teacher) was completelydismal. At this point, even though her eligibility isautism, I have to fight the war because they want herin an emotionally disturbed classroom. Because theydo not understand autism even in their "autismprogram".

It is very very frustrating. That's why atthis point I GIVE UP and will educate her myself. Kaye--- Professor Val <professorvalgmail> wrote:> A school can not diagnose or un-diagnose Asperger's> Syndrome. WTF? I never> heard of such a thing in my life! There have been> times that kids tested> out of the learning disabled diagnoses and were> removed from the highest> level of care to a lower level of care but NO WAY> does a school have the> right to remove a medical diagnosis under any> circumstances. Go get> yourself an Educational Attorney and kick their> butts!! > > ~Val~ > > Join us on Wednesday nights from 8 to 9pm EDT for> our Blogtalk Radio Show > Naked Soma: Riff On This!!!> http://www.blogtalkradio.com/nakedsoma (listen> to the replay right now!)>********************************************************************> > > "If you're not happy without it, you'll never be> happy with it." ~> Candy > > __________________________________________________________Get the toolbar and be alerted to new email wherever you're surfing.http://new.toolbar./toolbar/features/mail/index.php

Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us.

June 18, 2007

I live in Albuquerque, New Mexico, I have a masters

degree in special ed with an emphasis in autism, I DO

NOT KNOW what credentials the Autism Committee has

because they will not reveal that to me.

It is doubly hard on me as I teach in the same

district I am fighting. The only way I know what

happened in the meeting is that the social worker from

the school where I teach and my child's former teacher

(also from my school) were present in the meeting,

were APPALLED and told me everything that went on. My

child went to school at my school and did fine, but

now she is in middle school. And they are NOT GOOD.

IT SUX. SCUSE ME.

They are so incompetent that I will never probably use

my education to its full extent while I work for this

district. I do not want to be associated with them AT

ALL!!! I do teach autistic children (currently I am

teaching summer school, there are three in my class of

eight). But I will never EVER work in their so-called

AUTISM PROGRAMS because there are a bunch of fools

running it. AND HURTING CHILDREN. UGH. I guess I

should sit down and hush up now.

Kaye

--- er <hambonemcgee@...> wrote:

> Holy crap Kaye, that is awful. Where do you live?

> What credentials did the " Autism Committee " have?

>

> Kaye Bates <kcbates2003@...> wrote:

> Dear Professor Val,

>

> The biggest problem we seem to run into is the

> loophole in the law that lets a school district take

> kids who are diagnosed autistic (ironclad, in my

> kid's

> case, it was through an entire neuropsych eval done

> by

> a TEAM of doctors at a university)...You can have

> the

> diagnosis of autism in whatever form you have it,

> but

> the school district then has the right to decide if

> autism affects educational performance. We had to go

> through an " Autism Resource Committee " . Parents are

> not allowed to be present even though it is a

> multidisciplinary team. My child's unlicensed intern

> teacher who had known her for six weeks and who had

> not yet had ONE certification course was allowed in

> the meeting where she pontificated that my child was

> " emotionally disturbed " due to her " behaviors " . Not

> that my child has behaviors consistent with being an

> autistic child! We had to threaten a lawsuit just to

> get the eligibility of autism for her IEP. But that

> did not really help us. The quality of this autism

> program (with the unlicensed teacher) was completely

> dismal. At this point, even though her eligibility

> is

> autism, I have to fight the war because they want

> her

> in an emotionally disturbed classroom. Because they

> do not understand autism even in their " autism

> program " . It is very very frustrating. That's why at

> this point I GIVE UP and will educate her myself.

>

> Kaye

> --- Professor Val <professorval@...> wrote:

>

> > A school can not diagnose or un-diagnose

> Asperger's

> > Syndrome. WTF? I never

> > heard of such a thing in my life! There have been

> > times that kids tested

> > out of the learning disabled diagnoses and were

> > removed from the highest

> > level of care to a lower level of care but NO WAY

> > does a school have the

> > right to remove a medical diagnosis under any

> > circumstances. Go get

> > yourself an Educational Attorney and kick their

> > butts!!

> >

> > ~Val~

> >

> > Join us on Wednesday nights from 8 to 9pm EDT for

> > our Blogtalk Radio Show

> > Naked Soma: Riff On This!!!

> > http://www.blogtalkradio.com/nakedsoma (listen

> > to the replay right now!)

> >

>

********************************************************************

> >

> > " If you're not happy without it, you'll never be

> > happy with it. " ~

> > Candy

> >

>

__________________________________________________________

> Get the toolbar and be alerted to new email

> wherever you're surfing.

>

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>

> ---------------------------------

> Fussy? Opinionated? Impossible to please? Perfect.

> Join 's user panel and lay it on us.

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June 26, 2007

How frustrating. Breaking the law by not allowing the parents in the deicison making process as well. Too bad someone doesn't complain to the state. You should definitely ask for the qualifications of the autism resource committee in writing and get your refusal in writing as well. That would just be interesting to have, IMO. I would also want to know what criteria they use to make these decisions as well. NOt that I expect they actually have criteria, lol, but a good question anyway.

You hit the same wall I often do - once you get into the sacred programming, you find that people have no clue what they are doing. Or that they have only have the information they need.

RoxannaAutism Happens

Re: ( ) question

Dear Professor Val, The biggest problem we seem to run into is theloophole in the law that lets a school district takekids who are diagnosed autistic (ironclad, in my kid'scase, it was through an entire neuropsych eval done bya TEAM of doctors at a university)...You can have thediagnosis of autism in whatever form you have it, butthe school district then has the right to decide ifautism affects educational performance. We had to gothrough an "Autism Resource Committee". Parents arenot allowed to be present even though it is amultidisciplinary team. My child's unlicensed internteacher who had known her for six weeks and who hadnot yet had ONE certification course was allowed inthe meeting where she pontificated that my child was"emotionally disturbed" due to her "behaviors". Notthat my child has behaviors consistent with being anautistic child! We had to threaten a lawsuit just toget the eligibility of autism for her IEP. But thatdid not really help us. The quality of this autismprogram (with the unlicensed teacher) was completelydismal. At this point, even though her eligibility isautism, I have to fight the war because they want herin an emotionally disturbed classroom. Because theydo not understand autism even in their "autismprogram". It is very very frustrating. That's why atthis point I GIVE UP and will educate her myself. Kaye--- Professor Val <professorvalgmail> wrote:> A school can not diagnose or un-diagnose Asperger's> Syndrome. WTF? I never> heard of such a thing in my life! There have been> times that kids tested> out of the learning disabled diagnoses and were> removed from the highest> level of care to a lower level of care but NO WAY> does a school have the> right to remove a medical diagnosis under any> circumstances. Go get> yourself an Educational Attorney and kick their> butts!! > > ~Val~ > > Join us on Wednesday nights from 8 to 9pm EDT for> our Blogtalk Radio Show > Naked Soma: Riff On This!!!> http://www.blogtalkradio.com/nakedsoma (listen> to the replay right now!)>********************************************************************> > > "If you're not happy without it, you'll never be> happy with it." ~> Candy > > __________________________________________________________Get the toolbar and be alerted to new email wherever you're surfing.http://new.toolbar./toolbar/features/mail/index.php

June 28, 2007

Hi ,

Hopefully it will go just fine. I think you should ask them what meds they will be using and if they will be putting you to sleep.

Hopefully someone that knows about these types of tests will be able to help you further.

I will send you a list of "what not to take with LDN"

My best

Aletha

[low dose naltrexone] question

Started taking LDN a few months ago for m.s. I'm having a cerebral angiogram done in a few days to study a recently diagnosed brain aneurysm and need to know if I should discontinue the LDN for a period of time or the day before/after the procedure? I asked at the surgeon's office, but got no response. Thanks for any info. Stressed beyond belief,

June 28, 2007

if its any help I went in for an Embolisation on my friboids I stopped the LDN the night before and started again 2 days after

lyn

[low dose naltrexone] question

Started taking LDN a few months ago for m.s. I'm having a cerebral

angiogram done in a few days to study a recently diagnosed brain

aneurysm and need to know if I should discontinue the LDN for a period

of time or the day before/after the procedure? I asked at the

surgeon's office, but got no response. Thanks for any info.

Stressed beyond belief,

Get a FREE AOL Email account with 2GB of storage. Plus, share and store photos and experience exclusively recorded live music Sessions from your favourite artists. Click Here for more information.

June 28, 2007

>

> Started taking LDN a few months ago for m.s. I'm having a cerebral

> angiogram done in a few days to study a recently diagnosed brain

> aneurysm and need to know if I should discontinue the LDN for a

period

> of time or the day before/after the procedure? I asked at the

> surgeon's office, but got no response. Thanks for any info.

> Stressed beyond belief,

>

-----------

Skip LDN the night before the procedure. If you need any narcotic

pain med afterwards stay off LDN until off the narcotic.

July 10, 2007

Dona,

I had asthma (also counts as a type of COPD)before Lyme and Lyme often made

it worse. I have heard of other people having breathing problems with Lyme

too, since it is something your nervous system controls. It can never hurt to

get checked.

Dagmar

************************************** See what's free at http://www.aol.com.

July 10, 2007

Hi, Dona-

I have spoken to a few people over the years, from your neck of the woods, and

they say it really is a horrible situation in Australia.

I am so sorry to hear that it is a problem. I can't recall, do you guys have

government healthcare?

The people in Europe/Canada that suffer from these diseases are desperate. It is

so funny...many Americans that suffer from Lyme, etc... think if they could only

have the healthcare of Europe we would all be happy as clams, but when I speak

to family friends and Lyme sufferers in Canada and Europe, they tell me how

horrible it is, and those with money fly here for care. I guess people just

think the grass is always greener on the other side.

Take care-

Torrey

LifeLyme of Texas

www.lifelyme.org<http://www.lifelyme.org/>

[ ] question

Hi

Im wondering if anyone can help me with a question I have.

A friend has chronic obstructive lung disease and there are so many

other factors happening in her life that makes me wonder if she would

benefit from being tested for lyme.

does anyone know of any instances where a lyme sufferer has this

condition?

Dona

July 10, 2007

Dagmar,

When you get an asthma attack, do you use an albuterol inhaler? I

get asthma when I get a cold. I believe albuterol is a steroid,

correct? And therefore not advised for Lyme sufferers. Not

breathing is not advisable either...

Be well,

Connie

>

> Dona,

>

> I had asthma (also counts as a type of COPD)before Lyme and Lyme

often made

> it worse. I have heard of other people having breathing problems

with Lyme

> too, since it is something your nervous system controls. It can

never hurt to

> get checked.

>

> Dagmar

>

> ************************************** See what's free at

http://www.aol.com.

>

July 10, 2007

Hi Dona,

I have COPD too and Lyme. Now that I away from the schools I worked in,

my copd is better, but I am also able to rest, etc more.

connie, michigan

>

> Hi

> Im wondering if anyone can help me with a question I have.

>

> A friend has chronic obstructive lung disease and there are so many

> other factors happening in her life that makes me wonder if she would

> benefit from being tested for lyme.

>

> does anyone know of any instances where a lyme sufferer has this

> condition?

>

> Dona

>

> The book, Confronting Lyme Disease: What Patient Stories Teach Us, is now

> available through Amazon and Booksurge Bookstores. Please visit the

> official website at http://www.confrontinglyme.com for more information.

>

July 10, 2007

Hello aynrandi@...,

In reference to your comment:

Dagmar,

When you get an asthma attack, do you use an albuterol inhaler? I

get asthma when I get a cold. I believe albuterol is a steroid,

correct? And therefore not advised for Lyme sufferers. Not

breathing is not advisable either...

Be well,

Connie

********Albuterol is NOT a steroid....

July 10, 2007

Hello dona44au@...,

In reference to your comment:

Hi

Im wondering if anyone can help me with a question I have.

A friend has chronic obstructive lung disease and there are so many

other factors happening in her life that makes me wonder if she would

benefit from being tested for lyme.

does anyone know of any instances where a lyme sufferer has this

condition?

********Dona.....I have asthma, emphysema and COPD, as well as Babesia and

(5) strains of Babesia....

I finally got it all under control.....it is a full time job to stay ahead

of it.....COPD is a battle in itself....one your fight daily, but I now have it

under control....

July 11, 2007

Hi

One good thing about Australia is that we do have a good government health care

system.. if a doctor prescribes a medication that is on the pharmaceuticals list

, it costs us $30. If we require long term medication , the doctor can

authorise a months supply for the $30 as well.

Our biggest problem is the lack of doctors.... I would say that around 90% of

doctors here dont even believe it exists here.

Around another 9.99 %percent acknowledge it exists but will not even attempt to

understand it or learn how to treat it....

The doctors that do know about it , keep it quiet so that the medical hierarchy

dont get on their backs and then go into a frenzy of trying to disprove it ,

resulting in patients being denied medications.

We absolutely do not have anywhere here that does the PCR testing .. which is a

total tragedy.. We did have a lab for a few years ,,(it was an unaccredited

lab), who was doing it but they stopped last year. If it wasnt for that lab my

family would still be undiagnosed. I dont know how others in our situation

are getting themselves diagnosed these days because testing is soooo

unreliable.

Dona

Doyle-Torrey <klcst@...> wrote: Hi,

Dona-

I have spoken to a few people over the years, from your neck of the woods, and

they say it really is a horrible situation in Australia.

I am so sorry to hear that it is a problem. I can't recall, do you guys have

government healthcare?

The people in Europe/Canada that suffer from these diseases are desperate. It

is so funny...many Americans that suffer from Lyme, etc... think if they could

only have the healthcare of Europe we would all be happy as clams, but when I

speak to family friends and Lyme sufferers in Canada and Europe, they tell me

how horrible it is, and those with money fly here for care. I guess people just

think the grass is always greener on the other side.

Take care-

Torrey

LifeLyme of Texas

www.lifelyme.org<http://www.lifelyme.org/>

Re: [ ] ] question

Hi

thanks for that information..the mycoplasma is definately a thought .

unfortunately Im in Australia . We only have about 2 doctors here who are

lyme litterate....that I know of anyway.

We dont have anywhere here that does the PCR testing for Lyme either which

makes things very hard. Not a lot of progress happening here with Lyme.

Sometimes I think we could even be going backwards!

Dona.

---------------------------------

Pinpoint customers who are looking for what you sell.

July 11, 2007

Thanks Dagmar... I hope that I will be successful in trying to get my friend to

follow this up and get herself tested.

Dona

dlkh223@... wrote: Dona,

I had asthma (also counts as a type of COPD)before Lyme and Lyme often made

it worse. I have heard of other people having breathing problems with Lyme

too, since it is something your nervous system controls. It can never hurt to

get checked.

Dagmar

************************************** See what's free at http://www.aol.com.

July 11, 2007

Hi Connie

Can you please tell me what sort of treatment you are getting for the COPD?

My friend says her doctor tells her nothing and just feeds her chemotherapy.

I would be interested in finding out how you managed to improve your situation.

Thanks

Dona

Connie Siese <Cslyme@...> wrote: Hi

Dona,

I have COPD too and Lyme. Now that I away from the schools I worked in,

my copd is better, but I am also able to rest, etc more.

connie, michigan

>

> Hi

> Im wondering if anyone can help me with a question I have.

>

> A friend has chronic obstructive lung disease and there are so many

> other factors happening in her life that makes me wonder if she would

> benefit from being tested for lyme.

>

> does anyone know of any instances where a lyme sufferer has this

> condition?

>

> Dona

>

> The book, Confronting Lyme Disease: What Patient Stories Teach Us, is now

> available through Amazon and Booksurge Bookstores. Please visit the

> official website at http://www.confrontinglyme.com for more information.

>

July 11, 2007

> Hi Donna,

I did breathing treatments as much as I could tolerate, I also had to

get a handle on the yeast, that really fed my COPD. I did 3 different

inhalers every day. Finally when I retired and got out of the school

buildings things got a lot better. I only have a problem once in awhile.

Only use inhaler when needed and rarely used my breathing treatment machine.

I wouldn't have made it without using that. I used to come home on my 30

minute lunch and do a 12 minute treatment and rush back to school cuz I

couldn't breathe. Good Luck, hope this helps. My yeast is so much better.

OH I also took allergy shots fo 3-4 years to help.

hugs,

connie, michigan

> Can you please tell me what sort of treatment you are getting for the

> COPD?

> My friend says her doctor tells her nothing and just feeds her

> chemotherapy.

> I would be interested in finding out how you managed to improve your

> situation.

>

> Thanks

> Dona

>

> Connie Siese <Cslyme@...> wrote:

> Hi Dona,

> I have COPD too and Lyme. Now that I away from the schools I worked in,

> my copd is better, but I am also able to rest, etc more.

>

> connie, michigan

>

> >

> > Hi

> > Im wondering if anyone can help me with a question I have.

> >

> > A friend has chronic obstructive lung disease and there are so many

> > other factors happening in her life that makes me wonder if she would

> > benefit from being tested for lyme.

> >

> > does anyone know of any instances where a lyme sufferer has this

> > condition?

> >

> > Dona

> >

> > The book, Confronting Lyme Disease: What Patient Stories Teach Us, is

> > now

> > available through Amazon and Booksurge Bookstores. Please visit the

> > official website at http://www.confrontinglyme.com for more information.

> >

July 12, 2007

Hi Connie

When you say breathing treatment machine do you mean a nebuliser that is used

for asthma?

Actually I have wondered whether there is an allergic component to the disease.

Dona

Connie Siese <Cslyme@...> wrote: > Hi

Donna,