Jump to content
RemedySpot.com

question

Rate this topic


Guest guest

Recommended Posts

Guest guest

Hi Barbara

I'm pretty new to this group myself, joining it after having cancer

(uterine??cervical) found in

June 25th. I had a rad hyst. on 7/7/07, cancer removed. Being unwilling to

submit myself to

further medical treatments (i.e. radiation to my entire abdomin). I joined

this group to see what

other alternative methods of prevention I might be able to use.

From reading your post I feel like I missed something, did you have a cancer

previously,

and if so what kind of cancer.

I'm really sorry to hear your family is not handling this well, when they

should be surrounding

you with love and prayers. We need each other to get through the hard

times, sharing our pain

& joys with one another. There is a fear of you no longer being there with

them, and I

think that is what prevents them from staying close to you. I hope this

makes sense to you.

Just know there are many people here for when you need that extra bit of

support.

^._.^Oci^-_-^lady in So. Nevada^._.^Romans 10:13

It seems that the family has pushed away

> from me, my husband and children don't mention anything about my health.

They don't call or visit like they

> used to. Maybe this is their way of dealing with the situation, I'm not

> sure.

> Barbara

Link to comment
Share on other sites

  • 5 weeks later...

>

> See p. 9. Anyone have cord blood tested for these? I am contemplating

it

> later on down the road if we need it and are not destitute. I have no

> idea of cost.

>

>

https://www.autismeval.com/danwebcast/webcast_washdc/powerpoint/DC_06_Us

man.pdf

>

Liz,

I tried to do that with my kids. The thing was the blood center that I

contacted in town had a doctor who did it and he was not available

while I was in labor. Meanwhile my gyno didn't know how to do the

proceedure, and wouldn't do it with out the other doctor. Just putting

in my two cents. Jeanne

Link to comment
Share on other sites

  • 1 month later...

Your friend can order the Doctor's Data Hair Elements test through Direct Lab

Services. If (s)he mentions this groups they'll give her a discount. Make sure

she knows about the counting rules.

S S

QUESTION

Posted by: " Corinne Vela " corinnevela@... motherofbrent

Sat Oct 20, 2007 12:41 am (PST)

Does anyone have an address for a hair test for heavy metals that can be

done without a prescription??? I am inquiring for a friend, and have seem to

have mis placed all my information, thanks so much..

Corinne

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

Link to comment
Share on other sites

  • 2 weeks later...

Tina in NY -- the easy answer is - YES, it could be a new infection,

particularly if she was outside or in areas she could have been exposed - the

timing

is right. But it could also be that the first bout was undertreated (you

didn't indicate how long she was treated), or, it could be that there are

co-infections involved. Hip pain sounds to me like Babesia; also if she's had

multiple infections, you could be just beginning to get at the load - sometimes

it takes a while.

Our whole family has been infected - symptoms started in summer/fall 2005,

we weren't diagnosed until 2006 fall... and we've been on abx since then (about

a year) -- we have had to treat lyme, babesia and bartonella, and while we

are 80-90% better, we are still battling symptoms from the coinfections and

trying to get our immune systems to ramp back up and take over.

It is not that easy- I am sure that Dr. can work with you to use abx

that your insurance will cover -- most important thing from my perspective is

to make sure you're treating it long enough. It sounds like you may have

caught it earlier, rather than later, and it may be a matter of coinfections,

but who knows. Hang in there, and read as much as you can. See the different

lyme info websites -- ILADS, _www.ldapa.org_ (http://www.ldapa.org) , lymenet,

etc... Canada lyme is good. good luck - in PA Also - sounds like

you should get to that NY support group- there are a lot in NY... I would say

go!

************************************** See what's new at http://www.aol.com

Link to comment
Share on other sites

Hi Tina,

I'm just curious about what test at Igenex indicates that there is active Lyme

again- the IFA, the western blot?

Did she get tested for co-infections?

Thanks

[ ] Question

My daughter has had lyme in the past. She went into remission for a

year and in May we took her to DR again because she had a

constant low grade temp and her test from Igenex is showing she has

active lyme again!

She was on zithro and omnicef from May to July stop in August and

started back on in September. Now she is really sick and her knees and

hip hurt.

My question could this episode be a result form a new tick bite? We

have found ticks on our two dogs. On going?

And also, what antibiotics would Dr switch her to. I am

concerned because of our insurance.

Tina in NY

Link to comment
Share on other sites

>

> I have a question. How many of you have been cured of cancer by

> using natural things? I am not going to cut,burn, or poison myself.

> I need to know what therapies work and where to get it done. Also,

> are these therapies covered by insurance. I have heard of a clinic

> in Athens,Oh run by Dr. Knouse. Please, if anyone can answer

> my questions. I am needing help badly. Thanks.

>

Again Im mentioning that there is a man in Monte Negro, who is making

some liquid which helped many cancer sick people in this area ( Former

Yougoslav republics ). His name is Jovo, tel. 0038286235196, and its

alowed to call him till 13,00 h.

Good luck.

Link to comment
Share on other sites

I got relief from swelling almost immediately (not all but a significant

reduction in 24 hours) from Enbrel. Pain relief came much more gradually. So

gradually that I didn't notice it until I suddenly realized that I could get up

out of a chair without pain and that it was much easier walking. I've been on

it for just a little over 3 months and began to really notice a dramatic

difference at the end of the second month, though - as I said - the changes came

on gradually. I'm now back working out on the treadmill, elliptical, etc.

Really feel pretty darned good.

I'm not on either of the other two drugs you're taking but I've always heard

that prednisone works pretty quickly - possibly within as much as a few days.

If you don't notice a difference within a week or so, you might want to check

with the doctor.

Joanna Hoelscher

630-833-7361

[ ] QUESTION

I have been on Enbrel shots for 2 weeks now and also on 20mg of

methotrexate and 10mg a day of prednisone.

HOW LONG does it take for the Enbrel to kick?

My ankles are horrible and I have a stand up job. I can only do about

4 hours at the most right now and am in horrible pain the entire

time.I wear ankle supports but things aren't improving.

Link to comment
Share on other sites

Hi Clare,

I think that might be in relation to taking 50mg because when it was originally tested it was at 300mg and they noticed some elevated signs in the testing. I don't think you should worry about it at 3 to 4.5mg. Also, keep in mind that it was being used for people with drug and alcohol problems which typically have liver problems anyways.

My best

Aletha

[low dose naltrexone] question

Hi Group

I have been using ldn now for 10 weeks.I feel well and great improvement in my fatigue.Recently I met a lady whos e on it 5 years, she actually told me about it, but I forgot to ask her, I read somewhere that you should get your liver tested after 6 months on ldn.Any truth in this?

Clare Cork, Ireland.

Link to comment
Share on other sites

I usually do through my annual physical.

ldn/ms

[low dose naltrexone] question

>

>Hi Group

> I have been using ldn now for 10 weeks.I feel well and great

improvement in my fatigue.Recently I met a lady whos e on it 5 years, she

actually told me about it, but I forgot to ask her, I read somewhere that you

should get your liver tested after 6 months on ldn.Any truth in this?

> Clare Cork, Ireland.

Link to comment
Share on other sites

Many thanks for that Aletha. Clare.

[low dose naltrexone] question

Hi Group

I have been using ldn now for 10 weeks.I feel well and great improvement in my fatigue.Recently I met a lady whos e on it 5 years, she actually told me about it, but I forgot to ask her, I read somewhere that you should get your liver tested after 6 months on ldn.Any truth in this?

Clare Cork, Ireland.

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.27/1121 - Release Date: 09/11/2007 19:29

Link to comment
Share on other sites



Thank you. Clare.

[low dose naltrexone] question>>Hi Group> I have been using ldn now for 10 weeks.I feel well and great improvement in my fatigue.Recently I met a lady whos e on it 5 years, she actually told me about it, but I forgot to ask her, I read somewhere that you should get your liver tested after 6 months on ldn.Any truth in this?> Clare Cork, Ireland.

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.27/1121 - Release Date: 09/11/2007 19:29

Link to comment
Share on other sites

yeah, you should have a full blood workup with all the panels. I begged my doc to add T3, T4, T8 panels too (I think THEY call it the HIV panel). The whole thing, lots of vials.

I try to get one a year and compare them.

I haven't had one OOB reading on any bloodwork since 2002 except 2 readings that were really way way out there. Retesting showed the same result as all the other Good ones. One of them was my cholesterol... before LDN I couldn't get it below 230. Since, I've been 186-188, except one test showed 126. I bragged about it, but I Knew it was wrong. The next test showed 188.

But don't thank everyone who answers your post, in this group, we'll all assume you're thankful and don't need to see 8 "thanks" posts.

Thanks ;):) :)

[low dose naltrexone] question

Hi Group

I have been using ldn now for 10 weeks.I feel well and great improvement in my fatigue.Recently I met a lady whos e on it 5 years, she actually told me about it, but I forgot to ask her, I read somewhere that you should get your liver tested after 6 months on ldn.Any truth in this?

Clare Cork, Ireland.

Link to comment
Share on other sites

  • 2 weeks later...

Greetings,

No, I am not even close to grossed out, what could be more natural?

I do wonder though if it is not our modern child rearing methods that

have removed this natural prevention from our culture and therefore

raised the incidents of prostrate cancer. Have you even seen statistics

for a comparison of bachelors to married men, from say 100 yearsor more

ago on whom had prostrate cancer and who didn't? I doubt such

statistics exists, but they could be very illuminating.

Bright Blessings,

Kim

Ellen wrote:

> I recently posted that raw human milk has had a very positive effect on

> my immunoglobulins and has caused a man's prostate cancer to go away.

> Does no one have any questions about this for me? Are you all grossed

> out by the idea? The science behind it is irrefutable.

> Ellen

>

>

Link to comment
Share on other sites

  • 1 month later...

Go to the PROMPT Institute website there is a place you can put in

your zip code and they will send you a list of providers in your

area.

>

> Hi!

>

> My son was diagnosed with verbal apraxia in October. He

> received speech and ot services through EI from February 2007

through

> December 31. On January 2, he started at a local special needs

> preschool where he'll receive speech three times a week and ot

twice a

> week. My husband and I would like to find a speech therapist who

> specializes in prompt therapy. We would like for matthew to see

this

> person outside of the school setting so it would be funded by us.

Any

> ideas on how to find a therpist who specializes in prompt therapy?

> Also, any thoughts for or against bringing him to a therpaist

outside

> of the school setting?

>

> Thank you in advance and any responses!

> Jenn

>

Link to comment
Share on other sites

I actually got my school district to send a SLP to

PROMPT training. I pretty much let them know they had

to " get with the times " and have someone who knew it.

It was not easy tho- I had to get an expert opinion

that she had apraxia and then we even had a Marilyn

Agin eval and with the slp (very well known in our

state for apraxia)eval backed up by Agin's- they

finally gave in and have been supportive. I think they

just sent another SLP to PROMPT training.

Kathy

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Search.

http://tools.search./newsearch/category.php?category=shopping

Link to comment
Share on other sites

Gee Kathy, isn't it tough enough to have three kids, one with a lot

of issues and then on top of it to have to move mountains to get

warranted therapy? You are amazing!

>

> I actually got my school district to send a SLP to

> PROMPT training. I pretty much let them know they had

> to " get with the times " and have someone who knew it.

> It was not easy tho- I had to get an expert opinion

> that she had apraxia and then we even had a Marilyn

> Agin eval and with the slp (very well known in our

> state for apraxia)eval backed up by Agin's- they

> finally gave in and have been supportive. I think they

> just sent another SLP to PROMPT training.

> Kathy

>

>

>

______________________________________________________________________

______________

> Looking for last minute shopping deals?

> Find them fast with Search.

http://tools.search./newsearch/category.php?category=shopping

>

Link to comment
Share on other sites

Hi ,

This takes time for some. Some people on this site that reported that they have new things helped as far down the line as 6 to 9 months. Other things that seem to help along with LDN are diet, lack of stress, checking to make sure you don't have Candida and taking an assortment of supplements. Remember that LDN helps the immune system and if you also help the immune system with other items then you have a winning combination.

Not everyone gets out of the wheel chair or gets full mobility back. The big thing here is to keep from progressing. It is rare to hear of anyone actually getting worse (after the initial period of adjustment).

I will send you some further posts.

My very best

Aletha

[low dose naltrexone] Question

Hello I have ms and started ldn awhile back i seen some minor results and then nothing so i gave up/ Im ready to try again. How long does it taketo see results in mobility ? any testimonals would be great. I also have chrones diease and am hoping it will help everything

Link to comment
Share on other sites

Hi ,

It can sometimes take weeks, months, or even a year or more for LDN to achieve

its maximum therapeutic potential. It took time for your health problems to

develop, and it will take time to overcome them. Also, sometimes the most that

can be accomplished is to halt the progression of your condition.

There is more to treating MS and Crohn's than just taking LDN.

In regard to MS, visit

http://tinyurl.com/grpm9

In regard to Crohn's, a good book to read is " The New Eating Right For A Bad

Gut. " It is available from Amazon.com through this link:

http://tinyurl.com/2y92c3

With best wishes,

Dudley Delany

dudley_delany

[low dose naltrexone] Question

Hello

I have ms and started ldn awhile back i seen some minor results and

then nothing so i gave up/ Im ready to try again. How long does it take

to see results in mobility ? any testimonals would be great. I also

have chrones diease and am hoping it will help everything

Link to comment
Share on other sites

,

LDN does not give everyone noticable results, just like the CRAB drugs

do not. I have been on LDN for over three years and my results showed

on my MRIs. NO DISEASE PROGRESSION!. That is good enough for me. You

might want to read up on CAP at www.cpnhelp.org.

>

> Hello

>

> I have ms and started ldn awhile back i seen some minor results and

> then nothing so i gave up/ Im ready to try again. How long does it

take

> to see results in mobility ? any testimonals would be great. I also

> have chrones diease and am hoping it will help everything

>

>

>

Link to comment
Share on other sites

>

> Hello

>

> I have ms and started ldn awhile back i seen some minor results and

> then nothing so i gave up/ Im ready to try again. How long does it

take

> to see results in mobility ? any testimonals would be great. I also

> have chrones diease and am hoping it will help everything

>

>

>

The only results that are supposed to occur is termination of disease

progression. Some people get some symptom relief but not everyone so

even if you see " nothing happening " you should try to just keep

taking it every night anyway. My husband who has MS has taken it for

nearly three years with no disease progression but he still has some

disability from the original attack.

Good luck!

Bev

Link to comment
Share on other sites

I hope this does not discourage anybody who is having a hard time seeing a difference in taking LDN but I had my first dose (3 mg) last night at 10 pm and didn't expect any differences because I don't consider that I have many problems but I startled from sleep at 4 am with feeling in my hand. I immediately noticed there was NO numbness in my right hand that has been numb since Jan/Feb 2005. It seemed so hard to believe that I laid there feeling my hand for about 20-30 minutes to be certain I wasn't crazy. There is now slight numbness this morning but it is markedly less than before last night's first dose. I also noticed the lack of urgency that I always have when I wake up during the night. I also noticed sensations in my right forearm that I didn't believe had any issues. I of course am anxious to see that these are only the first signs of a long pattern of proof but I'm very impressed so far. Thanks to all of you and your testimonials and inquiries that have helped me take this path.

Dave

On 1/7/08, brian.little <brian.little@...> wrote:

,LDN does not give everyone noticable results, just like the CRAB drugs do not. I have been on LDN for over three years and my results showed on my MRIs. NO DISEASE PROGRESSION!. That is good enough for me. You might want to read up on CAP at www.cpnhelp.org. >> Hello > > I have ms and started ldn awhile back i seen some minor results and > then nothing so i gave up/ Im ready to try again. How long does it take> to see results in mobility ? any testimonals would be great. I also > have chrones diease and am hoping it will help everything > > >

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...