Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Hi all, I don't post often, but read the digests as much as I can. I am a fellow vv sufferer for 9 years or so. I ended up in the ER Friday night due to what I thought was my appendix - and may have possibly been a burst cyst and/ or related to gi issues. Anyway, my point is that I needed a pelvic exam and then they catheterized me to do a sonagram and both people who did those 2 procedures had no idea what I was talking about when I asked them to be gentle as I have vulvodynia. Apparently this is not talked about in emergency medicine? I was dis- heartened to discover this and just wanted to share... -Reesa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 My GYNECOLOGIST had never heard of vulvodynia. My mother-in-law is a retired ob/gyn, who had also never heard of vulvodynia or vestibulitis. We need to get the word out! > > Hi all, I don't post often, but read the digests as much as I can. I > am a fellow vv sufferer for 9 years or so. I ended up in the ER Friday > night due to what I thought was my appendix - and may have possibly > been a burst cyst and/ or related to gi issues. Anyway, my point is > that I needed a pelvic exam and then they catheterized me to do a > sonagram and both people who did those 2 procedures had no idea what I > was talking about when I asked them to be gentle as I have vulvodynia. > Apparently this is not talked about in emergency medicine? I was dis- > heartened to discover this and just wanted to share... > -Reesa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 I went to the ER with complaints of severe clitoral pain two weeks ago. The doctor told me in his 20 years of medicine he'd never heard of that. I was so upset. He gave me some percacet and sent me home :(Lindsey wrote: My GYNECOLOGIST had never heard of vulvodynia. My mother-in-law is a retired ob/gyn, who had also never heard of vulvodynia or vestibulitis. We need to get the word out!>> Hi all, I don't post often, but read the digests as much as I can. I > am a fellow vv sufferer for 9 years or so. I ended up in the ER Friday > night due to what I thought was my appendix - and may have possibly > been a burst cyst and/ or related to gi issues. Anyway, my point is > that I needed a pelvic exam and then they catheterized me to do a > sonagram and both people who did those 2 procedures had no idea what I > was talking about when I asked them to be gentle as I have vulvodynia. > Apparently this is not talked about in emergency medicine? I was dis-> heartened to discover this and just wanted to share...> -Reesa> The best gets better. See why everyone is raving about the All-new Yahoo! Mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 To all those who mailed in saying that their health provider had not heard of your condition, alas! and unfortunately welcome to the club! I have heard this so many times, it's unbelievable. One possible attenmpt to try redress the (im)balance is to send these folks some information. Now I realise that we all have possibly busy lives, or it's hard enough getting through day by day when you are in pain, or once you feel better you don't wish to re-visit that place emotionally - but it can and does work. My support group offers members help if they wish to write any letters after an unsatisfactory consulation - sometimes the best way is to send a letter detailing what you found upsetting, how you wished to have been treated and include some medically sound information. Sometimes they don't realise that they have treated us badly (for whatever reason - ignorance, lack of resources, tiredeness...)and this gives the physician a chance to respond. [i think it's important to be polite and professional when writing so that you are taken seriously.] If this doesn't work, in the UK we have a PALS team we can then contact if we wish to: Patient Advice and Liaison Services (PALS) provide information, advice and support to help patients, families and their carers. We are also involved in the midwifery curriculum at a local university and we have wonderful leaflets that we dish out too. Slowly, slowly catchee monkee...... I hope this helps in some small way, kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 To all those who mailed in saying that their health provider had not heard of your condition, alas! and unfortunately welcome to the club! I have heard this so many times, it's unbelievable. One possible attenmpt to try redress the (im)balance is to send these folks some information. Now I realise that we all have possibly busy lives, or it's hard enough getting through day by day when you are in pain, or once you feel better you don't wish to re-visit that place emotionally - but it can and does work. My support group offers members help if they wish to write any letters after an unsatisfactory consulation - sometimes the best way is to send a letter detailing what you found upsetting, how you wished to have been treated and include some medically sound information. Sometimes they don't realise that they have treated us badly (for whatever reason - ignorance, lack of resources, tiredeness...)and this gives the physician a chance to respond. [i think it's important to be polite and professional when writing so that you are taken seriously.] If this doesn't work, in the UK we have a PALS team we can then contact if we wish to: Patient Advice and Liaison Services (PALS) provide information, advice and support to help patients, families and their carers. We are also involved in the midwifery curriculum at a local university and we have wonderful leaflets that we dish out too. Slowly, slowly catchee monkee...... I hope this helps in some small way, kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 I went to the ER for an ear infection this summer and since I always write down vulvadynia as a preexisting condition, the doctor was really interested until half way through the conversation he said, How can you drive?, He thought I had said Bulbadynia, which I guess is pain in the facial area...he didn't know what it was, and the nurse didn't know how to spell it, anne --On Monday, November 6, 2006 4:37 PM +0000 mrswoodwoose wrote: > > > > > To all those who mailed in saying that their health provider had not > heard of your condition, alas! and unfortunately welcome to the club! > I have heard this so many times, it's unbelievable. > > One possible attenmpt to try redress the (im)balance is to send these > folks some information. Now I realise that we all have possibly busy > lives, or it's hard enough getting through day by day when you are in > pain, or once you feel better you don't wish to re-visit that place > emotionally - but it can and does work. > > My support group offers members help if they wish to write any letters > after an unsatisfactory consulation - sometimes the best way is to > send a letter detailing what you found upsetting, how you wished to > have been treated and include some medically sound information. > Sometimes they don't realise that they have treated us badly (for > whatever reason - ignorance, lack of resources, tiredeness...)and this > gives the physician a chance to respond. [i think it's important to be > polite and professional when writing so that you are taken seriously.] > > If this doesn't work, in the UK we have a PALS team we can then > contact if we wish to: Patient Advice and Liaison Services (PALS) > provide information, advice and support to help patients, families and > their carers. > > We are also involved in the midwifery curriculum at a local university > and we have wonderful leaflets that we dish out too. Slowly, slowly > catchee monkee...... > > I hope this helps in some small way, > kay > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 I went to the ER for an ear infection this summer and since I always write down vulvadynia as a preexisting condition, the doctor was really interested until half way through the conversation he said, How can you drive?, He thought I had said Bulbadynia, which I guess is pain in the facial area...he didn't know what it was, and the nurse didn't know how to spell it, anne --On Monday, November 6, 2006 4:37 PM +0000 mrswoodwoose wrote: > > > > > To all those who mailed in saying that their health provider had not > heard of your condition, alas! and unfortunately welcome to the club! > I have heard this so many times, it's unbelievable. > > One possible attenmpt to try redress the (im)balance is to send these > folks some information. Now I realise that we all have possibly busy > lives, or it's hard enough getting through day by day when you are in > pain, or once you feel better you don't wish to re-visit that place > emotionally - but it can and does work. > > My support group offers members help if they wish to write any letters > after an unsatisfactory consulation - sometimes the best way is to > send a letter detailing what you found upsetting, how you wished to > have been treated and include some medically sound information. > Sometimes they don't realise that they have treated us badly (for > whatever reason - ignorance, lack of resources, tiredeness...)and this > gives the physician a chance to respond. [i think it's important to be > polite and professional when writing so that you are taken seriously.] > > If this doesn't work, in the UK we have a PALS team we can then > contact if we wish to: Patient Advice and Liaison Services (PALS) > provide information, advice and support to help patients, families and > their carers. > > We are also involved in the midwifery curriculum at a local university > and we have wonderful leaflets that we dish out too. Slowly, slowly > catchee monkee...... > > I hope this helps in some small way, > kay > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 I went to the ER for an ear infection this summer and since I always write down vulvadynia as a preexisting condition, the doctor was really interested until half way through the conversation he said, How can you drive?, He thought I had said Bulbadynia, which I guess is pain in the facial area...he didn't know what it was, and the nurse didn't know how to spell it, anne --On Monday, November 6, 2006 4:37 PM +0000 mrswoodwoose wrote: > > > > > To all those who mailed in saying that their health provider had not > heard of your condition, alas! and unfortunately welcome to the club! > I have heard this so many times, it's unbelievable. > > One possible attenmpt to try redress the (im)balance is to send these > folks some information. Now I realise that we all have possibly busy > lives, or it's hard enough getting through day by day when you are in > pain, or once you feel better you don't wish to re-visit that place > emotionally - but it can and does work. > > My support group offers members help if they wish to write any letters > after an unsatisfactory consulation - sometimes the best way is to > send a letter detailing what you found upsetting, how you wished to > have been treated and include some medically sound information. > Sometimes they don't realise that they have treated us badly (for > whatever reason - ignorance, lack of resources, tiredeness...)and this > gives the physician a chance to respond. [i think it's important to be > polite and professional when writing so that you are taken seriously.] > > If this doesn't work, in the UK we have a PALS team we can then > contact if we wish to: Patient Advice and Liaison Services (PALS) > provide information, advice and support to help patients, families and > their carers. > > We are also involved in the midwifery curriculum at a local university > and we have wonderful leaflets that we dish out too. Slowly, slowly > catchee monkee...... > > I hope this helps in some small way, > kay > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2006 Report Share Posted November 16, 2006 I went to the ER once with severe back pain and UTI infection. When I said I had Vulvar Vestibulitis, the doctor asked me if I meant I had an EAR INFECTION. Needless to say...he was actually the nicest doctor out of all of then. Very cute too. Miranda > > Hi all, I don't post often, but read the digests as much as I can. I > am a fellow vv sufferer for 9 years or so. I ended up in the ER Friday > night due to what I thought was my appendix - and may have possibly > been a burst cyst and/ or related to gi issues. Anyway, my point is > that I needed a pelvic exam and then they catheterized me to do a > sonagram and both people who did those 2 procedures had no idea what I > was talking about when I asked them to be gentle as I have vulvodynia. > Apparently this is not talked about in emergency medicine? I was dis- > heartened to discover this and just wanted to share... > -Reesa > Quote Link to comment Share on other sites More sharing options...
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