Re: Pulmonary Fibrosis

[Guest guest]

have a look at:

http://www.greenwillowtree.com

and specifically for the SP-Zyme product. Works wonders.

No connection to the company.

Dave Felt

DFE Research

http://www.dfe.net

hamna_baker wrote:

> I a looking for natural remedies (pill form) for Pulmonary Fibrosis

> any suggestion?

>

>

>

[Guest guest]

Hi, I too have pulmonary fibrosis and have been on A/P for almost two years. If

you have been on Minocin only, for A/P treatment, it may be time to look at

other versions of A/P. After being on Minocin only A/P, I started today, my

first day, on M/P which is another version of A/P, but with pulsed Minocin and

Benicar. The original A/P that I think that Dr. Brown started was with IV

clindamycin and a combination of other things. That may be the one with a combo

of peroxide baths and taking aloe vera. I read about it recently under,

" Frequently Asked Questions About Antibiotic Therapy " Check out the different

protocols. It doesn't hurt to keep on trying. Whatever you do, keep your

immune system up and do not let anyone put you on immune suppressants. These

diseases are not easy to live with or control. I wish you well~~~~Dolores

2468 8462 <sandykayball@...> wrote: my most recent pulmonary

function tests show that the pulmonary fibrosis is

getting worse after being stable for 4 years.

would those of you who have pulmonary fibrosis share w/me what you have done

besides the AP (I've been on AP for 8 years)? E.G. diet changes,

supplements, breathing exercises, oxygen, walking, etc.?

I would appreciate all the help I can get. thx.

Sandy Decker

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[Guest guest]

HI, I am on a tx for pulmonary disease...not specifically fibrosis...but a lung

disease associated with my scleroderma...called Obliterative Bronchiolitis...I

also know of one patient on this board, who has SD and pulmonary fibrosis...and

she has received the photopheresis for 9 yrs,...and is doing very well

also...Photopheresis...you can read about it at www.therakos.com Mine was

ordered for me by my rheumy, DR. Hendriks Whitman...none of my local physicians

had heard of it...nor will willing to prescribe it...it works...my lungs are

stable...I am only on oxygen at night for sleeping..

Debbie

rheumatic Pulmonary Fibrosis

my most recent pulmonary function tests show that the pulmonary fibrosis is

getting worse after being stable for 4 years.

would those of you who have pulmonary fibrosis share w/me what you have done

besides the AP (I've been on AP for 8 years)? E.G. diet changes,

supplements, breathing exercises, oxygen, walking, etc.?

I would appreciate all the help I can get. thx.

Sandy Decker