Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 I dont have LS, I have DV... my lyme was positive for IgM,,,only gosh how do we know what is what... sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 I was diagnosed with Lyme around 10 years ago. I was diagnosed with LS about 4years ago. When I was diagnosed with Lyme I was immediately given the right antibiotics and all my symptoms disappeared. I wish the LS was so easy. I have learned how to control the outbreaks for the most part, but because of incorrect diagnosis all my life the fusing is pretty severe. I never though that there would be any connection (other than maybe susceptibility?) because I had symptoms of LS long before. > > I dont have LS, I have DV... > > my lyme was positive for IgM,,,only > > gosh how do we know what is what... > > sarah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 I was diagnosed with Lyme around 10 years ago. I was diagnosed with LS about 4years ago. When I was diagnosed with Lyme I was immediately given the right antibiotics and all my symptoms disappeared. I wish the LS was so easy. I have learned how to control the outbreaks for the most part, but because of incorrect diagnosis all my life the fusing is pretty severe. I never though that there would be any connection (other than maybe susceptibility?) because I had symptoms of LS long before. > > I dont have LS, I have DV... > > my lyme was positive for IgM,,,only > > gosh how do we know what is what... > > sarah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 I did see where interstitial cystitis and lyme are linked, also IBS, fibro, etc... check out this link... although it does sound like lyme just completely wrecks the immune system from this list -http://www.canlyme.com/patsymptoms.html Sounds like it can manifest itself in a number of different ways. Lyme I dont have LS, I have DV...my lyme was positive for IgM,,,onlygosh how do we know what is what...sarah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 HI I apologize hon in thinking you had LS.... my mistake and thought it was from the LS group. No doubt those who've been tested, can maybe help with only the one test showing positive for IgM... I really don't know myself. I think Tami just went thru that didn't she? And ? hon though LS isn't supposedly associated in the USA with Lyme.... it might not be a bad idea to be tested for it with that bad bite you had hon... Not that it's a part of the LS but honestly having Lyme alone, the havoc that can if one has Lyme (regardless of LS or V pain) from brain fog to physical problems really can be serious. I sure don't mean to frighten you hon but might be worth a test if you've any other problems especially. hang in there. Hugs Dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 HI I apologize hon in thinking you had LS.... my mistake and thought it was from the LS group. No doubt those who've been tested, can maybe help with only the one test showing positive for IgM... I really don't know myself. I think Tami just went thru that didn't she? And ? hon though LS isn't supposedly associated in the USA with Lyme.... it might not be a bad idea to be tested for it with that bad bite you had hon... Not that it's a part of the LS but honestly having Lyme alone, the havoc that can if one has Lyme (regardless of LS or V pain) from brain fog to physical problems really can be serious. I sure don't mean to frighten you hon but might be worth a test if you've any other problems especially. hang in there. Hugs Dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 HI I apologize hon in thinking you had LS.... my mistake and thought it was from the LS group. No doubt those who've been tested, can maybe help with only the one test showing positive for IgM... I really don't know myself. I think Tami just went thru that didn't she? And ? hon though LS isn't supposedly associated in the USA with Lyme.... it might not be a bad idea to be tested for it with that bad bite you had hon... Not that it's a part of the LS but honestly having Lyme alone, the havoc that can if one has Lyme (regardless of LS or V pain) from brain fog to physical problems really can be serious. I sure don't mean to frighten you hon but might be worth a test if you've any other problems especially. hang in there. Hugs Dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 You betcha, , that's why it's called " The Great Imitator " Molly > > I did see where interstitial cystitis and lyme are linked, also IBS, fibro, etc... > check out this link... although it does sound like lyme just completely wrecks the immune system from this list - > http://www.canlyme.com/patsymptoms.html > Sounds like it can manifest itself in a number of different ways. > > > Lyme > > > I dont have LS, I have DV... > > my lyme was positive for IgM,,,only > > gosh how do we know what is what... > > sarah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2006 Report Share Posted September 16, 2006 You betcha, , that's why it's called " The Great Imitator " Molly > > I did see where interstitial cystitis and lyme are linked, also IBS, fibro, etc... > check out this link... although it does sound like lyme just completely wrecks the immune system from this list - > http://www.canlyme.com/patsymptoms.html > Sounds like it can manifest itself in a number of different ways. > > > Lyme > > > I dont have LS, I have DV... > > my lyme was positive for IgM,,,only > > gosh how do we know what is what... > > sarah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Hey, I have a question for those of you with lyme... do you ever get this sort of buzzing sound going through your body? Weird... I was doing the intestinal cleanse and besides itching from head to toe and twitching (aack) my leg felt like it was electric... it kept buzzing... so odd. Just curious... : ) That's how I knew the cleansing was actually doing something. Re: ,Everything combined. all my pain has dimished to o and to 2 at the most and thats when I push myself, house cleaning, aron running, organizing files ect....Yeah I think everything else has helped but it's primarly the doxcy. I narrowed it down to doxcy. Last week I put myself up to 400mg of doxcy and seen result that night. I called my mom exstatic, no moriphin today. I did it for 3 days then I realized I'd soon run out at that pace so I went back down to 100mg. 2x a day. I woke up sat. with so much leg pain and back and pelvic pain, I was deciding wether to go to the hosptail. I tried to jump start my pain stopping by taking 180mg. of moriphin it barley touched it. New Years was sun. and i had plans so I said I dont want to be on pain meds. so I took 200mg. in the afternoon and 200mg. at night and enjoyed my weekend. Mon. I seen the dr. who agreed to raise it for a one month trial then he wanted to do blood work.Kind Regards, Tami>> Hi Tami--> > Do you mean you have minimal pain since going up to 400 mg of Doxy? Or just everything > combined?> > Also, what does the magnesium do? I keep hearing about it. > > I read your other post and I just wanted to tell ya that when all of my health problems > started 5 years ago they first told me I had cervicitis and then adenomyosis...> > It's amazing what we go through. > > I do have a copy of Burrascano's guidelines and that's why I first started thinking I needed > to be on a higher dose of Doxy. > > I'm so happy that you are having some relief and I hope it continues! > > I can really relate to your whole story...it has been such a maze and a mess for me to.> > I'm curious, what Lyme group are you on?> > Thanks for sharing everything, it means a lot.> > > > I have no to minimal pain on the concoction. Im waiting to see if it > > will continue? > Big hugs from michigan,Tami> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Hey, I have a question for those of you with lyme... do you ever get this sort of buzzing sound going through your body? Weird... I was doing the intestinal cleanse and besides itching from head to toe and twitching (aack) my leg felt like it was electric... it kept buzzing... so odd. Just curious... : ) That's how I knew the cleansing was actually doing something. Re: ,Everything combined. all my pain has dimished to o and to 2 at the most and thats when I push myself, house cleaning, aron running, organizing files ect....Yeah I think everything else has helped but it's primarly the doxcy. I narrowed it down to doxcy. Last week I put myself up to 400mg of doxcy and seen result that night. I called my mom exstatic, no moriphin today. I did it for 3 days then I realized I'd soon run out at that pace so I went back down to 100mg. 2x a day. I woke up sat. with so much leg pain and back and pelvic pain, I was deciding wether to go to the hosptail. I tried to jump start my pain stopping by taking 180mg. of moriphin it barley touched it. New Years was sun. and i had plans so I said I dont want to be on pain meds. so I took 200mg. in the afternoon and 200mg. at night and enjoyed my weekend. Mon. I seen the dr. who agreed to raise it for a one month trial then he wanted to do blood work.Kind Regards, Tami>> Hi Tami--> > Do you mean you have minimal pain since going up to 400 mg of Doxy? Or just everything > combined?> > Also, what does the magnesium do? I keep hearing about it. > > I read your other post and I just wanted to tell ya that when all of my health problems > started 5 years ago they first told me I had cervicitis and then adenomyosis...> > It's amazing what we go through. > > I do have a copy of Burrascano's guidelines and that's why I first started thinking I needed > to be on a higher dose of Doxy. > > I'm so happy that you are having some relief and I hope it continues! > > I can really relate to your whole story...it has been such a maze and a mess for me to.> > I'm curious, what Lyme group are you on?> > Thanks for sharing everything, it means a lot.> > > > I have no to minimal pain on the concoction. Im waiting to see if it > > will continue? > Big hugs from michigan,Tami> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Hey, I have a question for those of you with lyme... do you ever get this sort of buzzing sound going through your body? Weird... I was doing the intestinal cleanse and besides itching from head to toe and twitching (aack) my leg felt like it was electric... it kept buzzing... so odd. Just curious... : ) That's how I knew the cleansing was actually doing something. Re: ,Everything combined. all my pain has dimished to o and to 2 at the most and thats when I push myself, house cleaning, aron running, organizing files ect....Yeah I think everything else has helped but it's primarly the doxcy. I narrowed it down to doxcy. Last week I put myself up to 400mg of doxcy and seen result that night. I called my mom exstatic, no moriphin today. I did it for 3 days then I realized I'd soon run out at that pace so I went back down to 100mg. 2x a day. I woke up sat. with so much leg pain and back and pelvic pain, I was deciding wether to go to the hosptail. I tried to jump start my pain stopping by taking 180mg. of moriphin it barley touched it. New Years was sun. and i had plans so I said I dont want to be on pain meds. so I took 200mg. in the afternoon and 200mg. at night and enjoyed my weekend. Mon. I seen the dr. who agreed to raise it for a one month trial then he wanted to do blood work.Kind Regards, Tami>> Hi Tami--> > Do you mean you have minimal pain since going up to 400 mg of Doxy? Or just everything > combined?> > Also, what does the magnesium do? I keep hearing about it. > > I read your other post and I just wanted to tell ya that when all of my health problems > started 5 years ago they first told me I had cervicitis and then adenomyosis...> > It's amazing what we go through. > > I do have a copy of Burrascano's guidelines and that's why I first started thinking I needed > to be on a higher dose of Doxy. > > I'm so happy that you are having some relief and I hope it continues! > > I can really relate to your whole story...it has been such a maze and a mess for me to.> > I'm curious, what Lyme group are you on?> > Thanks for sharing everything, it means a lot.> > > > I have no to minimal pain on the concoction. Im waiting to see if it > > will continue? > Big hugs from michigan,Tami> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 I have a funny noise in my ears sometimes - it's the nuerotoxins (mainly ammonia) that the Lyme leaves in the body. Haven't heard of your situation but I wouldn't rule ANYthing out when it comes to Lyme. > > > > Hi Tami-- > > > > Do you mean you have minimal pain since going up to 400 mg of > Doxy? Or just everything > > combined? > > > > Also, what does the magnesium do? I keep hearing about it. > > > > I read your other post and I just wanted to tell ya that when all > of my health problems > > started 5 years ago they first told me I had cervicitis and then > adenomyosis... > > > > It's amazing what we go through. > > > > I do have a copy of Burrascano's guidelines and that's why I first > started thinking I needed > > to be on a higher dose of Doxy. > > > > I'm so happy that you are having some relief and I hope it > continues! > > > > I can really relate to your whole story...it has been such a maze > and a mess for me to. > > > > I'm curious, what Lyme group are you on? > > > > Thanks for sharing everything, it means a lot. > > > > > > > I have no to minimal pain on the concoction. Im waiting to see > if it > > > will continue? > Big hugs from > michigan,Tami > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 I have a funny noise in my ears sometimes - it's the nuerotoxins (mainly ammonia) that the Lyme leaves in the body. Haven't heard of your situation but I wouldn't rule ANYthing out when it comes to Lyme. > > > > Hi Tami-- > > > > Do you mean you have minimal pain since going up to 400 mg of > Doxy? Or just everything > > combined? > > > > Also, what does the magnesium do? I keep hearing about it. > > > > I read your other post and I just wanted to tell ya that when all > of my health problems > > started 5 years ago they first told me I had cervicitis and then > adenomyosis... > > > > It's amazing what we go through. > > > > I do have a copy of Burrascano's guidelines and that's why I first > started thinking I needed > > to be on a higher dose of Doxy. > > > > I'm so happy that you are having some relief and I hope it > continues! > > > > I can really relate to your whole story...it has been such a maze > and a mess for me to. > > > > I'm curious, what Lyme group are you on? > > > > Thanks for sharing everything, it means a lot. > > > > > > > I have no to minimal pain on the concoction. Im waiting to see > if it > > > will continue? > Big hugs from > michigan,Tami > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 I have a funny noise in my ears sometimes - it's the nuerotoxins (mainly ammonia) that the Lyme leaves in the body. Haven't heard of your situation but I wouldn't rule ANYthing out when it comes to Lyme. > > > > Hi Tami-- > > > > Do you mean you have minimal pain since going up to 400 mg of > Doxy? Or just everything > > combined? > > > > Also, what does the magnesium do? I keep hearing about it. > > > > I read your other post and I just wanted to tell ya that when all > of my health problems > > started 5 years ago they first told me I had cervicitis and then > adenomyosis... > > > > It's amazing what we go through. > > > > I do have a copy of Burrascano's guidelines and that's why I first > started thinking I needed > > to be on a higher dose of Doxy. > > > > I'm so happy that you are having some relief and I hope it > continues! > > > > I can really relate to your whole story...it has been such a maze > and a mess for me to. > > > > I'm curious, what Lyme group are you on? > > > > Thanks for sharing everything, it means a lot. > > > > > > > I have no to minimal pain on the concoction. Im waiting to see > if it > > > will continue? > Big hugs from > michigan,Tami > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 I was a little concerned it might be me reacting to the wormwood too... they put wormwood in lots of those cleanses and even though the naturopaths say it's safe in small doses, I'm not convinced. Either way, I stopped the cleansing; Check this out: http://www.cfsan.fda.gov/~dms/fdsuppch.html Herbal Ingredient: WormwoodPossible Health Hazards: neurological symptoms, characterized by numbness of legs and arms, loss of intellect, delirium, and paralysis But, the lyme and also some of the nasty worms and other bacteria and bugs all release ammonia, I think... so, I think any kind of detox would release the ammonia too... maybe that's it. Also, I believe someone on the list was doing a cleanse with germanium so maybe check out it's safety too.. Herbal Ingredient: Germanium (a nonessential mineral)Possible Health Hazards: kidney damage, possibly death This was released by the FDA.... Re: lyme I have a funny noise in my ears sometimes - it's the nuerotoxins (mainly ammonia) that the Lyme leaves in the body. Haven't heard of your situation but I wouldn't rule ANYthing out when it comes to Lyme.> >> > Hi Tami--> > > > Do you mean you have minimal pain since going up to 400 mg of > Doxy? Or just everything > > combined?> > > > Also, what does the magnesium do? I keep hearing about it. > > > > I read your other post and I just wanted to tell ya that when all > of my health problems > > started 5 years ago they first told me I had cervicitis and then > adenomyosis...> > > > It's amazing what we go through. > > > > I do have a copy of Burrascano's guidelines and that's why I first > started thinking I needed > > to be on a higher dose of Doxy. > > > > I'm so happy that you are having some relief and I hope it > continues! > > > > I can really relate to your whole story...it has been such a maze > and a mess for me to.> > > > I'm curious, what Lyme group are you on?> > > > Thanks for sharing everything, it means a lot.> > > > > > > I have no to minimal pain on the concoction. Im waiting to see > if it > > > will continue? > Big hugs from > michigan,Tami> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 I was a little concerned it might be me reacting to the wormwood too... they put wormwood in lots of those cleanses and even though the naturopaths say it's safe in small doses, I'm not convinced. Either way, I stopped the cleansing; Check this out: http://www.cfsan.fda.gov/~dms/fdsuppch.html Herbal Ingredient: WormwoodPossible Health Hazards: neurological symptoms, characterized by numbness of legs and arms, loss of intellect, delirium, and paralysis But, the lyme and also some of the nasty worms and other bacteria and bugs all release ammonia, I think... so, I think any kind of detox would release the ammonia too... maybe that's it. Also, I believe someone on the list was doing a cleanse with germanium so maybe check out it's safety too.. Herbal Ingredient: Germanium (a nonessential mineral)Possible Health Hazards: kidney damage, possibly death This was released by the FDA.... Re: lyme I have a funny noise in my ears sometimes - it's the nuerotoxins (mainly ammonia) that the Lyme leaves in the body. Haven't heard of your situation but I wouldn't rule ANYthing out when it comes to Lyme.> >> > Hi Tami--> > > > Do you mean you have minimal pain since going up to 400 mg of > Doxy? Or just everything > > combined?> > > > Also, what does the magnesium do? I keep hearing about it. > > > > I read your other post and I just wanted to tell ya that when all > of my health problems > > started 5 years ago they first told me I had cervicitis and then > adenomyosis...> > > > It's amazing what we go through. > > > > I do have a copy of Burrascano's guidelines and that's why I first > started thinking I needed > > to be on a higher dose of Doxy. > > > > I'm so happy that you are having some relief and I hope it > continues! > > > > I can really relate to your whole story...it has been such a maze > and a mess for me to.> > > > I'm curious, what Lyme group are you on?> > > > Thanks for sharing everything, it means a lot.> > > > > > > I have no to minimal pain on the concoction. Im waiting to see > if it > > > will continue? > Big hugs from > michigan,Tami> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 I was a little concerned it might be me reacting to the wormwood too... they put wormwood in lots of those cleanses and even though the naturopaths say it's safe in small doses, I'm not convinced. Either way, I stopped the cleansing; Check this out: http://www.cfsan.fda.gov/~dms/fdsuppch.html Herbal Ingredient: WormwoodPossible Health Hazards: neurological symptoms, characterized by numbness of legs and arms, loss of intellect, delirium, and paralysis But, the lyme and also some of the nasty worms and other bacteria and bugs all release ammonia, I think... so, I think any kind of detox would release the ammonia too... maybe that's it. Also, I believe someone on the list was doing a cleanse with germanium so maybe check out it's safety too.. Herbal Ingredient: Germanium (a nonessential mineral)Possible Health Hazards: kidney damage, possibly death This was released by the FDA.... Re: lyme I have a funny noise in my ears sometimes - it's the nuerotoxins (mainly ammonia) that the Lyme leaves in the body. Haven't heard of your situation but I wouldn't rule ANYthing out when it comes to Lyme.> >> > Hi Tami--> > > > Do you mean you have minimal pain since going up to 400 mg of > Doxy? Or just everything > > combined?> > > > Also, what does the magnesium do? I keep hearing about it. > > > > I read your other post and I just wanted to tell ya that when all > of my health problems > > started 5 years ago they first told me I had cervicitis and then > adenomyosis...> > > > It's amazing what we go through. > > > > I do have a copy of Burrascano's guidelines and that's why I first > started thinking I needed > > to be on a higher dose of Doxy. > > > > I'm so happy that you are having some relief and I hope it > continues! > > > > I can really relate to your whole story...it has been such a maze > and a mess for me to.> > > > I'm curious, what Lyme group are you on?> > > > Thanks for sharing everything, it means a lot.> > > > > > > I have no to minimal pain on the concoction. Im waiting to see > if it > > > will continue? > Big hugs from > michigan,Tami> >> Quote Link to comment Share on other sites More sharing options...
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