Back on the Prednisone again :(

[Guest guest]

CURRENT STATUS

So after just a little over a month of tapering off of 20 mg of

Prednisone, I went a week without Prednisone and started 4.5 LDN seven

days ago and things have gotten worse. BMs started to increase and

for the last three days I have felt fluish and fatigued I am so

limited on foods it's not even funny. I keep a food journal and now

it seems just about everything is irritating my system. Seven visits

to the loo since midnight with bleeding and " tissue " I reluctantly

choked down 5 mg of Prednisone and took a Canasa suppository. It

really feels like the immune system does not want to quiet down in

spite of what I do. Most of my issues are between 6 pm and 1 am. I am

really surprised that 2.5-5 mg of Prednisone can make so much of a

differerence and mask so much - I was up to about 30 items on my food

list where as now it's seven!!!

STRATEGY:

In a nutshell my daily staples will be, brined chicken with garlic,

pork loin (salt pepper seasoning only), Salmon (olive oil, salt and

pepper only)ripe banana and pureed zucchini...I will hold off on week

coffee for several days even though I drink in the morning and do not

seem to have issue with it. My problems come at night afet 6pm and I

drink coffee usually between 8-10 (one to two cups). From here I will

do slow introductions. I am holding off on the yogurt because I think

this also was causing a problem and need to intro again slowly to see

if I notice a change. All foods are screened for illegals and contain

none.

QUESTION: Any other suggestions? Has anyone else experienced such a

challenge at six months into the diet - it sure would be comforting to

know that this is not uncommon and the duration of almost a two month,

intense flare is " normal " at six months

MEDICINE

Just started the LDN - no improvement noted - actually symptoms got

worse but I think due to completely dropping the Prednisone. Will give

the LDN a shot for two months.

QUESTION: What has been other's experience of improvement on LDN and

the time frame to get there?

I am on the Prednisone for 5 mg and will try to taper as soon as

possible - with a luck on the further limitations I am putting into my

diet I am hoping that will be within a week. A had a really bad flare

pre-scd while taking an on going Asacol med at 400 mg/day and then

increasing to 800 mg a day when things got really bad. so i question

of it helps at all I contemplate getting back on this as it has

illegal binders in it? I am allergic to the Asulfasene that dr.

Present suggests - even the slow into of this drug I ended up getting

hives.

QUESTION Have others had success taking Asacol while on SCD at least a

first? Will this really hinder the healing process? I am told that a

compounding pharmacy cannot sparate the binders.

Someone also mentioned Entocort – an alternative to Prednizone?

QUESTION? Does anyone have experience with this drug?

FYI: Just for giggles I am going in for a CDif test to rule out any

remote possibility that there is some sort of bacterial issue. I also

just finished a monthly cycle. While I have heard periods can

intensify a flare I would have expected them to calm down after " aunt

flow " left.

Any other suggestions to help in this struggle - I am doing everything

I can religiously and I am still having such issues. (Big Sigh)

Thanks advance for your help

aiazeen

SCD 6 mo

UC 5.75 yrs

Prednisone 5 mg

LDN 7 day newby 4.5 mg/night