Re: Exercise & Neurosarcoidosis

[Guest guest]

Toni,

Keep doing what you can-- and what you enjoy. You may notice that you are more tired, even with exercising, so that is a sign that you need to rest.

One of the biggest challenges we all face, whether we've just been diagnosed or have been battling this for a long time, is to learn to listen more to our bodies. For so many of us, the fatigue is overwhelming, and if not addressed, will knock you on your ass.

Myself, I use a modified Yoga-- like for elderly (ok guys, I know I gave you a chance here)- and have gone thru Pulmonary Rehab and am looking at starting a Physical Therapy program after the 1st of the year. Since my NS has been active for a very long time, I'm finding that I have more and more leg and extremity weakness than I used to have. Also, since my lungs are involved, I desaturate very quickly, so have to use oxygen supplementation when I do exert myself. I tell myself that it could be worse, I could be totally unable to do any of it --

Tracie

[Guest guest]

Toni,

Keep doing what you can-- and what you enjoy. You may notice that you are more tired, even with exercising, so that is a sign that you need to rest.

One of the biggest challenges we all face, whether we've just been diagnosed or have been battling this for a long time, is to learn to listen more to our bodies. For so many of us, the fatigue is overwhelming, and if not addressed, will knock you on your ass.

Myself, I use a modified Yoga-- like for elderly (ok guys, I know I gave you a chance here)- and have gone thru Pulmonary Rehab and am looking at starting a Physical Therapy program after the 1st of the year. Since my NS has been active for a very long time, I'm finding that I have more and more leg and extremity weakness than I used to have. Also, since my lungs are involved, I desaturate very quickly, so have to use oxygen supplementation when I do exert myself. I tell myself that it could be worse, I could be totally unable to do any of it --

Tracie

[Guest guest]

Howdy Toni..I'm fairly new to this group and the "sarc monster" but I am sure you should exercise as long as you are able too...If you don't use it you will lose it..in muscle and mind...I'm sorry we met like this but this is a great group. Your friend from Texas!From: Toni To: Neurosarcoidosis Date: Fri, 19 Dec 2003 22:55:37 +1000Subject: Exercise & NeurosarcoidosisHi Everybody I am a new diagnosee, so to speak, and was wondering if it is OK to continue exercising. I was always fit and a bit of a gym junkie and that has all gone out the window now, but was wondering what sort of exercise has been recommended to those of you who are more experienced with this illness than I am. Thanks in advanceToni~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

toni,

my name is nicole also known as carrots at times on the list. i got sick

at 16 and am now goin on 21. in high school i was a full blown athlete, all

year around in sports. it was hard at first because of all the meds and how

i was feeling but now i find that when i run and work out at LEAST three

times a week , i do feel better overall. keep doing what u can but dont

push urself too hard. what kind of working out do u do?

nicole

>

>Reply-To: Neurosarcoidosis

>To: <Neurosarcoidosis >

>Subject: Exercise & Neurosarcoidosis

>Date: Fri, 19 Dec 2003 22:55:37 +1000

>

>Hi Everybody

>

>I am a new diagnosee, so to speak, and was wondering if it is OK to

>continue exercising. I was always fit and a bit of a gym junkie and that

>has all gone out the window now, but was wondering what sort of exercise

>has been recommended to those of you who are more experienced with this

>illness than I am.

>

>Thanks in advance

>Toni

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[Guest guest]

Hi Toni.

I have had sarcoid for almost a year now. Before that I used to

work out on a Total Gym 1000 at least 5 times a week. I was a " gym

junkie " too. But since I've been sick I haven't been able to use my

exercise machine at all. I am too weak and get tired and out of

breath really fast. I also pay for it the next day because my

muscles and joints hurt after. (Believe me, I stare at it every day

in my room wanting so much to use it again. All the muscle I had is

turning to flab!) I still try to do short sets on one part of the

body here and there, but I pay for it after.

Like Tracie said, Yoga and possibly Pilates is the way to go now.

Not the real " hard stuff " , but the yoga , yes , for the elderly. I

have a Yoga/Pilates DVD that I try and do also. But again as Tracie

said, you overdo it and you will know it. So you gotta take it slow.

Good luck and welcome to the group. You have found a very helpful

and supportive group of people here who have helped me tremendously

in the past year.

Debbie T. from NH

> Hi Everybody

>

> I am a new diagnosee, so to speak, and was wondering if it is OK

to continue exercising. I was always fit and a bit of a gym junkie

and that has all gone out the window now, but was wondering what

sort of exercise has been recommended to those of you who are more

experienced with this illness than I am.

>

> Thanks in advance

> Toni

[Guest guest]

Hi Toni.

I have had sarcoid for almost a year now. Before that I used to

work out on a Total Gym 1000 at least 5 times a week. I was a " gym

junkie " too. But since I've been sick I haven't been able to use my

exercise machine at all. I am too weak and get tired and out of

breath really fast. I also pay for it the next day because my

muscles and joints hurt after. (Believe me, I stare at it every day

in my room wanting so much to use it again. All the muscle I had is

turning to flab!) I still try to do short sets on one part of the

body here and there, but I pay for it after.

Like Tracie said, Yoga and possibly Pilates is the way to go now.

Not the real " hard stuff " , but the yoga , yes , for the elderly. I

have a Yoga/Pilates DVD that I try and do also. But again as Tracie

said, you overdo it and you will know it. So you gotta take it slow.

Good luck and welcome to the group. You have found a very helpful

and supportive group of people here who have helped me tremendously

in the past year.

Debbie T. from NH

> Hi Everybody

>

> I am a new diagnosee, so to speak, and was wondering if it is OK

to continue exercising. I was always fit and a bit of a gym junkie

and that has all gone out the window now, but was wondering what

sort of exercise has been recommended to those of you who are more

experienced with this illness than I am.

>

> Thanks in advance

> Toni

[Guest guest]

Hi Toni.

I have had sarcoid for almost a year now. Before that I used to

work out on a Total Gym 1000 at least 5 times a week. I was a " gym

junkie " too. But since I've been sick I haven't been able to use my

exercise machine at all. I am too weak and get tired and out of

breath really fast. I also pay for it the next day because my

muscles and joints hurt after. (Believe me, I stare at it every day

in my room wanting so much to use it again. All the muscle I had is

turning to flab!) I still try to do short sets on one part of the

body here and there, but I pay for it after.

Like Tracie said, Yoga and possibly Pilates is the way to go now.

Not the real " hard stuff " , but the yoga , yes , for the elderly. I

have a Yoga/Pilates DVD that I try and do also. But again as Tracie

said, you overdo it and you will know it. So you gotta take it slow.

Good luck and welcome to the group. You have found a very helpful

and supportive group of people here who have helped me tremendously

in the past year.

Debbie T. from NH

> Hi Everybody

>

> I am a new diagnosee, so to speak, and was wondering if it is OK

to continue exercising. I was always fit and a bit of a gym junkie

and that has all gone out the window now, but was wondering what

sort of exercise has been recommended to those of you who are more

experienced with this illness than I am.

>

> Thanks in advance

> Toni

[Guest guest]

Absolutely. Keep doing all that you can. Don't let this disease rob you of

your life. Just keep doing what you can when you can.

Hydrotherapy was recommended to me. Occupational therapy has been useful to

many. Physical therapy if done by hospital staff so they know you have an

illness can benefit, just be careful they don't overstrain you. Hydrotherapy

was the one that many kept recommending for me and no I never got there so I

can't tell you if it helped or not, but being in a pool with these hot days

sounds really good LOL.

Love Aisha.

-- Exercise & Neurosarcoidosis

Hi Everybody

I am a new diagnosee, so to speak, and was wondering if it is OK to continue

exercising. I was always fit and a bit of a gym junkie and that has all gone

out the window now, but was wondering what sort of exercise has been

recommended to those of you who are more experienced with this illness than

I am.

Thanks in advance

Toni