Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 Hi Gretchen - We use cornstarch, is this relatively the same thing? -- In RSS-Support@y..., " Mark & Gretchen Canning " <canning@w...> wrote: > Hi! > I cant believe none of your doctors have suggested this to you. Polycose is a glucose based supplement. It looks just like sugar. You can add it to anything. I put it in all of sage's bottles, veggies, fruit and cereal. I bought it at CVS in the US. You didnt need a prescription to get it but if you had one it was cheaper. You should definetely start using it, its an easy way to add extra calories. Hope this helps! > > Gretchen > Mum to Chloe 3.8yrs and Sage 8.5 months (IUGR - 13.8lbs 26in) > > > RSS-Support@y... " jjfazzolari " <jjfazzolari@y...>Date: Fri, 25 Jan 2002 15:47:19 -0000 > > Hi Gretchen -what is polycose?Reply-To: RSS- Support@y... > > > >Hi Gretchen, > >I am glad you are staying on the listserve b/c we all have so much to > >learn from one another. I bet you are somewhat relieved finally > >knowing what the exact medical condition of Sage is. I wish you > >well. I have a question about the polycose. What is this and where > >do you buy it? I need to find some more ideas to add calories to > >Dom's dies so this may be something I could use. THanks. > > > > (mom to Dominic, RSS, almost 17lbs) > > > >-- In RSS-Support@y..., " Jodi Zwain " <magicrss@h...> wrote: > >> Gretchen, > >> > >> I'm glad that you finally have a treatment plan in effect and that > >Sage is doing so well. Please stay with the group, as you have > >decided to do. We are all here to support each other, even if all of > >our kids don't have RSS. There are so many similar issues that IUGR > >kids face! That's why Dr. H. has suggested on numerous occasions to > >include IUGR and SGA kids in the RSS Division of MAGIC. > >> > >> Keep reading, keep posting and together we will all get through > >this. > >> > >> Jodi > >> Sage isnt RSS but Im staying on this > >listserve > >> > >> > >> Hi everyone > >> > >> I thought I would let everyone know that we went to Boston on the > >31st of December for 2 weeks to have numerous doctors to see Sage.She > >saw a genetisist, a GI specialist, a nutrionalist & a urologist. She > >had lots of tests performed, lots of blood work, urine work, and > >stool tests. She had a upper GI and a gastric emptying scheme done > >and ultra-sounds, and bone x rays. The genetisist didnt think it was > >necessary at this point for her to see a endocronologist as she > >believes by looking at Sage and examining her that she doesnt have > >any kind of syndrome but had a GI problem. The other thing that came > >back was that she has pretty bad gastro reflux. So we had her formula > >switched to similac and the nutritionalist gave me some recipes to > >make it at 30 calories per ounce with adding polycose to it.Sage is > >almost 14 pounds and is 8.5 months. She measures 26 in. THe GI doctor > >told us that because she was IUGR she will probably be a difficult > >feeder for her first 3 years, and he also! > >> believes that she will always be on the smaller side. He doesnt > >believe she will ever need anything like GH but he said it her eating > >doesnt improve then maybe her will try some periactin. Ironically > >since we have been home she has not vomitted at all and has been > >drinking her bottles and eating her veggies very well. I am still so > >worried about her slow growth though, and would like to remain a part > >of the listserve for ideas and support. Thanks for listening. > >> > >> Gretchen > >> Mum to Chloe 3.8yrs & Sage 8.5 months (IUGR - 13.8lbs and 26 in) > >from Bermuda > >> > >> > >> > >> ------------------------------------------------------------ > >> WWW.COM - Where the Web Begins! http://www.www.com > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 To be honest, I am not sure. Can someone else answer that? > RSS-Support " jjfazzolari " Date: Mon, 28 Jan 2002 16:44:38 -0000 > We use cornstarch - is that the same?Reply-To: RSS-Support > >Hi Gretchen - >We use cornstarch, is this relatively the same thing? > > > >-- In RSS-Support@y..., " Mark & Gretchen Canning " <canning@w...> >wrote: >> Hi! >> I cant believe none of your doctors have suggested this to you. >Polycose is a glucose based supplement. It looks just like sugar. You >can add it to anything. I put it in all of sage's bottles, veggies, >fruit and cereal. I bought it at CVS in the US. You didnt need a >prescription to get it but if you had one it was cheaper. You should >definetely start using it, its an easy way to add extra calories. >Hope this helps! >> >> Gretchen >> Mum to Chloe 3.8yrs and Sage 8.5 months (IUGR - 13.8lbs 26in) >> >> > RSS-Support@y... " jjfazzolari " <jjfazzolari@y...>Date: Fri, 25 >Jan 2002 15:47:19 -0000 >> > Hi Gretchen -what is polycose?Reply-To: RSS- >Support@y... >> > >> >Hi Gretchen, >> >I am glad you are staying on the listserve b/c we all have so much >to >> >learn from one another. I bet you are somewhat relieved finally >> >knowing what the exact medical condition of Sage is. I wish you >> >well. I have a question about the polycose. What is this and >where >> >do you buy it? I need to find some more ideas to add calories to >> >Dom's dies so this may be something I could use. THanks. >> > >> > (mom to Dominic, RSS, almost 17lbs) >> > >> >-- In RSS-Support@y..., " Jodi Zwain " <magicrss@h...> wrote: >> >> Gretchen, >> >> >> >> I'm glad that you finally have a treatment plan in effect and >that >> >Sage is doing so well. Please stay with the group, as you have >> >decided to do. We are all here to support each other, even if all >of >> >our kids don't have RSS. There are so many similar issues that >IUGR >> >kids face! That's why Dr. H. has suggested on numerous occasions >to >> >include IUGR and SGA kids in the RSS Division of MAGIC. >> >> >> >> Keep reading, keep posting and together we will all get through >> >this. >> >> >> >> Jodi >> >> Sage isnt RSS but Im staying on this >> >listserve >> >> >> >> >> >> Hi everyone >> >> >> >> I thought I would let everyone know that we went to Boston on >the >> >31st of December for 2 weeks to have numerous doctors to see >Sage.She >> >saw a genetisist, a GI specialist, a nutrionalist & a urologist. >She >> >had lots of tests performed, lots of blood work, urine work, and >> >stool tests. She had a upper GI and a gastric emptying scheme done >> >and ultra-sounds, and bone x rays. The genetisist didnt think it >was >> >necessary at this point for her to see a endocronologist as she >> >believes by looking at Sage and examining her that she doesnt have >> >any kind of syndrome but had a GI problem. The other thing that >came >> >back was that she has pretty bad gastro reflux. So we had her >formula >> >switched to similac and the nutritionalist gave me some recipes to >> >make it at 30 calories per ounce with adding polycose to it.Sage >is >> >almost 14 pounds and is 8.5 months. She measures 26 in. THe GI >doctor >> >told us that because she was IUGR she will probably be a difficult >> >feeder for her first 3 years, and he also! >> >> believes that she will always be on the smaller side. He >doesnt >> >believe she will ever need anything like GH but he said it her >eating >> >doesnt improve then maybe her will try some periactin. Ironically >> >since we have been home she has not vomitted at all and has been >> >drinking her bottles and eating her veggies very well. I am still >so >> >worried about her slow growth though, and would like to remain a >part >> >of the listserve for ideas and support. Thanks for listening. >> >> >> >> Gretchen >> >> Mum to Chloe 3.8yrs & Sage 8.5 months (IUGR - 13.8lbs and 26 >in) >> >from Bermuda >> >> >> >> >> >> >> >> ------------------------------------------------------------ >> >> WWW.COM - Where the Web Begins! http://www.www.com >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Which is better and why? F. > > >> >> Gretchen, > > >> >> > > >> >> I'm glad that you finally have a treatment plan in effect and > > >that > > >> >Sage is doing so well. Please stay with the group, as you have > > >> >decided to do. We are all here to support each other, even if > all > > >of > > >> >our kids don't have RSS. There are so many similar issues that > > >IUGR > > >> >kids face! That's why Dr. H. has suggested on numerous > occasions > > >to > > >> >include IUGR and SGA kids in the RSS Division of MAGIC. > > >> >> > > >> >> Keep reading, keep posting and together we will all get > through > > >> >this. > > >> >> > > >> >> Jodi > > >> >> Sage isnt RSS but Im staying on this > > >> >listserve > > >> >> > > >> >> > > >> >> Hi everyone > > >> >> > > >> >> I thought I would let everyone know that we went to Boston > on > > >the > > >> >31st of December for 2 weeks to have numerous doctors to see > > >Sage.She > > >> >saw a genetisist, a GI specialist, a nutrionalist & a > urologist. > > >She > > >> >had lots of tests performed, lots of blood work, urine work, > and > > >> >stool tests. She had a upper GI and a gastric emptying scheme > done > > >> >and ultra-sounds, and bone x rays. The genetisist didnt think > it > > >was > > >> >necessary at this point for her to see a endocronologist as she > > >> >believes by looking at Sage and examining her that she doesnt > have > > >> >any kind of syndrome but had a GI problem. The other thing that > > >came > > >> >back was that she has pretty bad gastro reflux. So we had her > > >formula > > >> >switched to similac and the nutritionalist gave me some recipes > to > > >> >make it at 30 calories per ounce with adding polycose to > it.Sage > > >is > > >> >almost 14 pounds and is 8.5 months. She measures 26 in. THe GI > > >doctor > > >> >told us that because she was IUGR she will probably be a > difficult > > >> >feeder for her first 3 years, and he also! > > >> >> believes that she will always be on the smaller side. He > > >doesnt > > >> >believe she will ever need anything like GH but he said it her > > >eating > > >> >doesnt improve then maybe her will try some periactin. > Ironically > > >> >since we have been home she has not vomitted at all and has > been > > >> >drinking her bottles and eating her veggies very well. I am > still > > >so > > >> >worried about her slow growth though, and would like to remain > a > > >part > > >> >of the listserve for ideas and support. Thanks for listening. > > >> >> > > >> >> Gretchen > > >> >> Mum to Chloe 3.8yrs & Sage 8.5 months (IUGR - 13.8lbs and > 26 > > >in) > > >> >from Bermuda > > >> >> > > >> >> > > >> >> > > >> >> ---------------------------------------------------------- -- > > >> >> WWW.COM - Where the Web Begins! http://www.www.com > > >> >> > > >> >> Quote Link to comment Share on other sites More sharing options...
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