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Hi Gretchen -

We use cornstarch, is this relatively the same thing?

-- In RSS-Support@y..., " Mark & Gretchen Canning " <canning@w...>

wrote:

> Hi!

> I cant believe none of your doctors have suggested this to you.

Polycose is a glucose based supplement. It looks just like sugar. You

can add it to anything. I put it in all of sage's bottles, veggies,

fruit and cereal. I bought it at CVS in the US. You didnt need a

prescription to get it but if you had one it was cheaper. You should

definetely start using it, its an easy way to add extra calories.

Hope this helps!

>

> Gretchen

> Mum to Chloe 3.8yrs and Sage 8.5 months (IUGR - 13.8lbs 26in)

>

> > RSS-Support@y... " jjfazzolari " <jjfazzolari@y...>Date: Fri, 25

Jan 2002 15:47:19 -0000

> > Hi Gretchen -what is polycose?Reply-To: RSS-

Support@y...

> >

> >Hi Gretchen,

> >I am glad you are staying on the listserve b/c we all have so much

to

> >learn from one another. I bet you are somewhat relieved finally

> >knowing what the exact medical condition of Sage is. I wish you

> >well. I have a question about the polycose. What is this and

where

> >do you buy it? I need to find some more ideas to add calories to

> >Dom's dies so this may be something I could use. THanks.

> >

> > (mom to Dominic, RSS, almost 17lbs)

> >

> >-- In RSS-Support@y..., " Jodi Zwain " <magicrss@h...> wrote:

> >> Gretchen,

> >>

> >> I'm glad that you finally have a treatment plan in effect and

that

> >Sage is doing so well. Please stay with the group, as you have

> >decided to do. We are all here to support each other, even if all

of

> >our kids don't have RSS. There are so many similar issues that

IUGR

> >kids face! That's why Dr. H. has suggested on numerous occasions

to

> >include IUGR and SGA kids in the RSS Division of MAGIC.

> >>

> >> Keep reading, keep posting and together we will all get through

> >this.

> >>

> >> Jodi

> >> Sage isnt RSS but Im staying on this

> >listserve

> >>

> >>

> >> Hi everyone

> >>

> >> I thought I would let everyone know that we went to Boston on

the

> >31st of December for 2 weeks to have numerous doctors to see

Sage.She

> >saw a genetisist, a GI specialist, a nutrionalist & a urologist.

She

> >had lots of tests performed, lots of blood work, urine work, and

> >stool tests. She had a upper GI and a gastric emptying scheme done

> >and ultra-sounds, and bone x rays. The genetisist didnt think it

was

> >necessary at this point for her to see a endocronologist as she

> >believes by looking at Sage and examining her that she doesnt have

> >any kind of syndrome but had a GI problem. The other thing that

came

> >back was that she has pretty bad gastro reflux. So we had her

formula

> >switched to similac and the nutritionalist gave me some recipes to

> >make it at 30 calories per ounce with adding polycose to it.Sage

is

> >almost 14 pounds and is 8.5 months. She measures 26 in. THe GI

doctor

> >told us that because she was IUGR she will probably be a difficult

> >feeder for her first 3 years, and he also!

> >> believes that she will always be on the smaller side. He

doesnt

> >believe she will ever need anything like GH but he said it her

eating

> >doesnt improve then maybe her will try some periactin. Ironically

> >since we have been home she has not vomitted at all and has been

> >drinking her bottles and eating her veggies very well. I am still

so

> >worried about her slow growth though, and would like to remain a

part

> >of the listserve for ideas and support. Thanks for listening.

> >>

> >> Gretchen

> >> Mum to Chloe 3.8yrs & Sage 8.5 months (IUGR - 13.8lbs and 26

in)

> >from Bermuda

> >>

> >>

> >>

> >> ------------------------------------------------------------

> >> WWW.COM - Where the Web Begins! http://www.www.com

> >>

> >>

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To be honest, I am not sure. Can someone else answer that?

> RSS-Support " jjfazzolari " Date: Mon, 28

Jan 2002 16:44:38 -0000

> We use cornstarch - is that the same?Reply-To:

RSS-Support

>

>Hi Gretchen -

>We use cornstarch, is this relatively the same thing?

>

>

>

>-- In RSS-Support@y..., " Mark & Gretchen Canning " <canning@w...>

>wrote:

>> Hi!

>> I cant believe none of your doctors have suggested this to you.

>Polycose is a glucose based supplement. It looks just like sugar. You

>can add it to anything. I put it in all of sage's bottles, veggies,

>fruit and cereal. I bought it at CVS in the US. You didnt need a

>prescription to get it but if you had one it was cheaper. You should

>definetely start using it, its an easy way to add extra calories.

>Hope this helps!

>>

>> Gretchen

>> Mum to Chloe 3.8yrs and Sage 8.5 months (IUGR - 13.8lbs 26in)

>>

>> > RSS-Support@y... " jjfazzolari " <jjfazzolari@y...>Date: Fri, 25

>Jan 2002 15:47:19 -0000

>> > Hi Gretchen -what is polycose?Reply-To: RSS-

>Support@y...

>> >

>> >Hi Gretchen,

>> >I am glad you are staying on the listserve b/c we all have so much

>to

>> >learn from one another. I bet you are somewhat relieved finally

>> >knowing what the exact medical condition of Sage is. I wish you

>> >well. I have a question about the polycose. What is this and

>where

>> >do you buy it? I need to find some more ideas to add calories to

>> >Dom's dies so this may be something I could use. THanks.

>> >

>> > (mom to Dominic, RSS, almost 17lbs)

>> >

>> >-- In RSS-Support@y..., " Jodi Zwain " <magicrss@h...> wrote:

>> >> Gretchen,

>> >>

>> >> I'm glad that you finally have a treatment plan in effect and

>that

>> >Sage is doing so well. Please stay with the group, as you have

>> >decided to do. We are all here to support each other, even if all

>of

>> >our kids don't have RSS. There are so many similar issues that

>IUGR

>> >kids face! That's why Dr. H. has suggested on numerous occasions

>to

>> >include IUGR and SGA kids in the RSS Division of MAGIC.

>> >>

>> >> Keep reading, keep posting and together we will all get through

>> >this.

>> >>

>> >> Jodi

>> >> Sage isnt RSS but Im staying on this

>> >listserve

>> >>

>> >>

>> >> Hi everyone

>> >>

>> >> I thought I would let everyone know that we went to Boston on

>the

>> >31st of December for 2 weeks to have numerous doctors to see

>Sage.She

>> >saw a genetisist, a GI specialist, a nutrionalist & a urologist.

>She

>> >had lots of tests performed, lots of blood work, urine work, and

>> >stool tests. She had a upper GI and a gastric emptying scheme done

>> >and ultra-sounds, and bone x rays. The genetisist didnt think it

>was

>> >necessary at this point for her to see a endocronologist as she

>> >believes by looking at Sage and examining her that she doesnt have

>> >any kind of syndrome but had a GI problem. The other thing that

>came

>> >back was that she has pretty bad gastro reflux. So we had her

>formula

>> >switched to similac and the nutritionalist gave me some recipes to

>> >make it at 30 calories per ounce with adding polycose to it.Sage

>is

>> >almost 14 pounds and is 8.5 months. She measures 26 in. THe GI

>doctor

>> >told us that because she was IUGR she will probably be a difficult

>> >feeder for her first 3 years, and he also!

>> >> believes that she will always be on the smaller side. He

>doesnt

>> >believe she will ever need anything like GH but he said it her

>eating

>> >doesnt improve then maybe her will try some periactin. Ironically

>> >since we have been home she has not vomitted at all and has been

>> >drinking her bottles and eating her veggies very well. I am still

>so

>> >worried about her slow growth though, and would like to remain a

>part

>> >of the listserve for ideas and support. Thanks for listening.

>> >>

>> >> Gretchen

>> >> Mum to Chloe 3.8yrs & Sage 8.5 months (IUGR - 13.8lbs and 26

>in)

>> >from Bermuda

>> >>

>> >>

>> >>

>> >> ------------------------------------------------------------

>> >> WWW.COM - Where the Web Begins! http://www.www.com

>> >>

>> >>

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Share on other sites

Which is better and why?

F.

> > >> >> Gretchen,

> > >> >>

> > >> >> I'm glad that you finally have a treatment plan in effect

and

> > >that

> > >> >Sage is doing so well. Please stay with the group, as you

have

> > >> >decided to do. We are all here to support each other, even

if

> all

> > >of

> > >> >our kids don't have RSS. There are so many similar issues

that

> > >IUGR

> > >> >kids face! That's why Dr. H. has suggested on numerous

> occasions

> > >to

> > >> >include IUGR and SGA kids in the RSS Division of MAGIC.

> > >> >>

> > >> >> Keep reading, keep posting and together we will all get

> through

> > >> >this.

> > >> >>

> > >> >> Jodi

> > >> >> Sage isnt RSS but Im staying on

this

> > >> >listserve

> > >> >>

> > >> >>

> > >> >> Hi everyone

> > >> >>

> > >> >> I thought I would let everyone know that we went to

Boston

> on

> > >the

> > >> >31st of December for 2 weeks to have numerous doctors to see

> > >Sage.She

> > >> >saw a genetisist, a GI specialist, a nutrionalist & a

> urologist.

> > >She

> > >> >had lots of tests performed, lots of blood work, urine work,

> and

> > >> >stool tests. She had a upper GI and a gastric emptying scheme

> done

> > >> >and ultra-sounds, and bone x rays. The genetisist didnt think

> it

> > >was

> > >> >necessary at this point for her to see a endocronologist as

she

> > >> >believes by looking at Sage and examining her that she doesnt

> have

> > >> >any kind of syndrome but had a GI problem. The other thing

that

> > >came

> > >> >back was that she has pretty bad gastro reflux. So we had her

> > >formula

> > >> >switched to similac and the nutritionalist gave me some

recipes

> to

> > >> >make it at 30 calories per ounce with adding polycose to

> it.Sage

> > >is

> > >> >almost 14 pounds and is 8.5 months. She measures 26 in. THe

GI

> > >doctor

> > >> >told us that because she was IUGR she will probably be a

> difficult

> > >> >feeder for her first 3 years, and he also!

> > >> >> believes that she will always be on the smaller side. He

> > >doesnt

> > >> >believe she will ever need anything like GH but he said it

her

> > >eating

> > >> >doesnt improve then maybe her will try some periactin.

> Ironically

> > >> >since we have been home she has not vomitted at all and has

> been

> > >> >drinking her bottles and eating her veggies very well. I am

> still

> > >so

> > >> >worried about her slow growth though, and would like to

remain

> a

> > >part

> > >> >of the listserve for ideas and support. Thanks for listening.

> > >> >>

> > >> >> Gretchen

> > >> >> Mum to Chloe 3.8yrs & Sage 8.5 months (IUGR - 13.8lbs and

> 26

> > >in)

> > >> >from Bermuda

> > >> >>

> > >> >>

> > >> >>

> > >> >> ----------------------------------------------------------

--

> > >> >> WWW.COM - Where the Web Begins! http://www.www.com

> > >> >>

> > >> >>

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