Thanks

[Guest guest]

So glad to hear things are going well on your trip to Iowa. What a

blessing that you are there.. Isn't it great to meet other families

in a similar situation? I can imagine how encouraging it was to see

that little boy running around and doing so well..

Hope everything goes smoothly tomorrow. Keep us informed,

Best wishes,

> I just wanted to say thanks to everyone who gave and I

advice

> for our trip to Iowa. We saw Dr. Ponseti on Monday. He recasted

Drew

> and we have the re-do of the heel cord and recasting tomorrow at 10

> am. Then casts on for 3 weeks. The RMH has been great. We actually

> met a mom and son who were here for a follow up with Ponseti. The

> little boy is 23 months which worked out nicely with my 2 year old.

> It was also very reassurring to see a toddler running around that

had

> been thru what Drew is going thru. We are kicking ourselves for not

> coming out here sooner. It has been a wonderful experience.

[Guest guest]

So glad to hear things are going well on your trip to Iowa. What a

blessing that you are there.. Isn't it great to meet other families

in a similar situation? I can imagine how encouraging it was to see

that little boy running around and doing so well..

Hope everything goes smoothly tomorrow. Keep us informed,

Best wishes,

> I just wanted to say thanks to everyone who gave and I

advice

> for our trip to Iowa. We saw Dr. Ponseti on Monday. He recasted

Drew

> and we have the re-do of the heel cord and recasting tomorrow at 10

> am. Then casts on for 3 weeks. The RMH has been great. We actually

> met a mom and son who were here for a follow up with Ponseti. The

> little boy is 23 months which worked out nicely with my 2 year old.

> It was also very reassurring to see a toddler running around that

had

> been thru what Drew is going thru. We are kicking ourselves for not

> coming out here sooner. It has been a wonderful experience.

[Guest guest]

> Thanks to everyone who responded to my question regarding what to

> expect when you baby has a tenotomy. I understand that babies will

> react differently, and physicians may vary in their level of skill.

> I was just curious to see just how difficult you all found the

> procedure to be on both your baby and on you. Some of you

commented

> that your baby was prescribed RX strength tylenol, and I am not

sure

> if a 5 week old can take tylenol with codeine (if prescribed), so I

> will be sure to bring some infant tylenol. is having the

> tenotomy done pretty early in life, and hopefully it won't be too

> bad for him or mom and dad. Thanks again.

>

> Jo Anne

had his tenotomy after 3 sets of casts, he was just under 1

month old. The doctor gave me a prescription for a very low dose of

tylenol with codeine to give him 1/2 hour before the procedure. He

tolerated it beautifully, just fussed a tiny bit, but wasn't knocked

out from the medicine. ( Hard to tell, of course, with such a young

infant.) There was no bleeding through the casts. I gave him some

regular tylenol through the night, but I'm not even sure if he needed

it. I was not in the room while they did it, but came in immediately

after. I'm not sure I could take watching someone take a knife to my

baby's leg, and I'm an ER nurse who has seen it all. So, all in all,

it was a positive experience, and I had great faith in his doctor,

which helped a lot. PS - will be 1 year old on July 26th, and

his feet look beautiful. He crawls like a madman, pulls to standing,

and walks with hand holding. I hope to post some pics when I get a

spare second. Good luck, all will be well.

KC, mom to

Born 7/26, bilateral clubfeet

[Guest guest]

> Thanks to everyone who responded to my question regarding what to

> expect when you baby has a tenotomy. I understand that babies will

> react differently, and physicians may vary in their level of skill.

> I was just curious to see just how difficult you all found the

> procedure to be on both your baby and on you. Some of you

commented

> that your baby was prescribed RX strength tylenol, and I am not

sure

> if a 5 week old can take tylenol with codeine (if prescribed), so I

> will be sure to bring some infant tylenol. is having the

> tenotomy done pretty early in life, and hopefully it won't be too

> bad for him or mom and dad. Thanks again.

>

> Jo Anne

had his tenotomy after 3 sets of casts, he was just under 1

month old. The doctor gave me a prescription for a very low dose of

tylenol with codeine to give him 1/2 hour before the procedure. He

tolerated it beautifully, just fussed a tiny bit, but wasn't knocked

out from the medicine. ( Hard to tell, of course, with such a young

infant.) There was no bleeding through the casts. I gave him some

regular tylenol through the night, but I'm not even sure if he needed

it. I was not in the room while they did it, but came in immediately

after. I'm not sure I could take watching someone take a knife to my

baby's leg, and I'm an ER nurse who has seen it all. So, all in all,

it was a positive experience, and I had great faith in his doctor,

which helped a lot. PS - will be 1 year old on July 26th, and

his feet look beautiful. He crawls like a madman, pulls to standing,

and walks with hand holding. I hope to post some pics when I get a

spare second. Good luck, all will be well.

KC, mom to

Born 7/26, bilateral clubfeet

[Guest guest]

I want to thank everyone for helping me both on and off-list with guidance and

reassuring me about my colonoscopy!

It's a big deal for me since how I was traumatized by my first scope when I was

17 years old.

Anyway, you all mean so much to me and having this community helps me be brave

and strong.

So thank you my fellow SCD'ers.

Big hugs-

Jodi