Doctors!!! AARRGGHHH!!!!

[Guest guest]

Hi all,

Yesterday I had an appointment with a new Neurologist. The last one

left the medical group for greener pastures and I don't know where he

is.

Anyway, I had to use the snowblower on a 1000 foot driveway in order

to keep the appointment. To say that I was hurting when I got there (

about 20 minutes late), is quite an understatement!

I hate seeing doctors for the 1st time, but then I never really like

seeing doctors. My new Neurologist figures that he knows better then

the last hundred or so doctors that finally after years of

misdiagnosis have agreed that all or most of my symptoms are caused by

Neurosarcoidosis.

He asked me all the same damn questions and performed all the same

tests, ( I really hate the tests the Neurologists give. I thought

tuning forks were supposed to be to tune musical instruments, not my

body!)

He decides I should have a biopsy on one of the granulomas (please

excuse all the bad spelling, today I'm still flaring like crazy. I was

getting quite angry by now and started drilling him with questions

like he was doing to me! I asked what would he be able to do with this

information that wasn't already being done. The big answer for the day

was " I'm a Neuro-muscular expert " and I know.....

The end result, (after the pain was bringing me to the point of

tears), is that I can't afford to go to any of the centers that

perform this special biopsy and he ended up agreeing with the

diagnosis, the brain, (CNS), involvement, the neuropathies, arthritis,

etc.... All or most must be caused by Neurosarcoidosis. Everything

else that he could come up with was already tried and ruled out ( most

the hard way).

I asked him why he wasn't told to " please go over my records before I

got there " . He said he did. RIGHT!

By the time we were done he ended up feeling sorry for me and was

trying to come up with new ways to help treat the pain. Most

everything was already tried, but the " Lidocaine Patch " . He gave me

three samples to try. told me they were very expensive and he would

give me more in three months if they worked.

I don't want to try them, I'm afraid they might help and then I'll

know that there is something that will help me with the pain that I

can't afford!

Has anyone had any luck with the LIDOCAINE PATCH?

Thanks for listening. I'm sorry to be starting off so bad with the

group, all I seem to do is complain.

Someday I'll try to answer everyone's questions on my meds, etc.

BTW: I live in New York State not far from the border of NJ and PA.

thanks again,

the MadMystyk (frankE)