Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Dear Mark, You are in our prayers and our thoughts, I'm sure this is a scary time for you, but you seem like you are handling as well as you can, just know that anything is possible. Best wishes to you and your family, I know its hard on them too. Tell us about yourself, if you can, what did you do, where are you from, when did you get sick. What can we do to help give you and your family support? Hugs, -- Rituxin and Cladrabine I have Neurosarcoidosis and I have been on the above mentioned chemodrugs for the last 2 months, I see some positive results already, thesight in my right eye is slowly returning. The headaches are not asbad either, I have a mass of granuloma on the front of my brain. I wasoriginally diagnosed with Lymphoma, but it was sarcoid. I suffer fromsarcoid arthritis as well. A year of Prednisone and Methatrexate didnothing but cause me to gain 50lbs and cause my sugar level toincrease. I have lost the extra weight and I am on banannas and yogurtprimarily, and organic juices. I do feel better, but I also know mycondition can be fatal too. Keep me in your prayers...please.Mark s~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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