Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 Hi , This is your old friend Ron. I saw a post from you and it brought back memories of the Sarc Conference where we met for the first time. So I just wanted to drop you a line to say HELLO my dear friend and so nice to know that you are still keeping the struggle alive. How is Aisha doing, does anyone know? I have gone from " Oyster-Man " to " Clam-Man " . Thats why I don't talk much anymore. Ha! Ha! Ha! " Okay! Clam it! See ya, The New and Improved, " Clam Man " Tootles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Hey Ron, I'm Sooo glad to hear from you. We've been missing you, I'm glad to see you've converted from a mountain oyster to a clam, I can deal with clams. ROFL....I keep in regular contact with Aisha weekly a couple of times. She's doing OK.. nothing to write home about. you can write to her at fairysparkle@... she would be thrilled to hear from you and any of you that want to see how she is. She's retired from the group but she loves each and every one of you. She's trying to concentrate on getting better herself, without having the worry of running the list, which at times can be a not so easy job. But anyway. or you can check out her live journal, you don't have to be a member to leave her a message.. just write you name at the bottom of your message. her address is http://www.livejournal.com/users/aisha click on the link and it will take you right there. Hugs, and please don't be a stranger. Love, -- HELLO Reneness! Hi ,This is your old friend Ron. I saw a post from you and it brought back memories of the Sarc Conference where we met for the first time.So I just wanted to drop you a line to say HELLO my dear friend and so nice to know that you are still keeping the struggle alive.How is Aisha doing, does anyone know?I have gone from "Oyster-Man" to "Clam-Man". Thats why I don't talk much anymore. Ha! Ha! Ha!"Okay! Clam it!See ya,The New and Improved,"Clam Man"Tootles~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Hey Ron, I'm Sooo glad to hear from you. We've been missing you, I'm glad to see you've converted from a mountain oyster to a clam, I can deal with clams. ROFL....I keep in regular contact with Aisha weekly a couple of times. She's doing OK.. nothing to write home about. you can write to her at fairysparkle@... she would be thrilled to hear from you and any of you that want to see how she is. She's retired from the group but she loves each and every one of you. She's trying to concentrate on getting better herself, without having the worry of running the list, which at times can be a not so easy job. But anyway. or you can check out her live journal, you don't have to be a member to leave her a message.. just write you name at the bottom of your message. her address is http://www.livejournal.com/users/aisha click on the link and it will take you right there. Hugs, and please don't be a stranger. Love, -- HELLO Reneness! Hi ,This is your old friend Ron. I saw a post from you and it brought back memories of the Sarc Conference where we met for the first time.So I just wanted to drop you a line to say HELLO my dear friend and so nice to know that you are still keeping the struggle alive.How is Aisha doing, does anyone know?I have gone from "Oyster-Man" to "Clam-Man". Thats why I don't talk much anymore. Ha! Ha! Ha!"Okay! Clam it!See ya,The New and Improved,"Clam Man"Tootles~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Ron, I'm so glad to hear from you again. I was also very glad to get to know you at the conference. After the first meeting at my house where I through personal beliefs into a mix where it didn't belong. I am still very sorry, but very glad we were able to mingle at the conference. Well, clam man, I am not talking much either, as my dysphasia and aphasia, along with some weird problem where I have absolutely no control over the pitch of each word, making my sentences even harder to decipher. It's been creeping up since the winter -- that's how my immuno Dr. (at IU med center but not at the sarc center. I guess they have one now, but they didn't when I transferred down there, and so this doc was the best answer to treat someone like us who have so many systems affected). I don't know what's up with Aisha. I sent her a new message, but I got a reply that said to communicate with her at the livejournal website, and I've been just too tired to load all that up on my new laptop, but I will soon. as soon as I hear from her, I will let you knowl. Love, like the ocean reaching out to the horizon, like the sunset that wraps around you in a gently hug of yellow, orange, pink, purple, and red, like the air -- the fresh sea air which makes one want to swallow rather than breathe... it is so soulful and filled with nourishment. This is the love I have for you and all who have suffered the indiscribable and endured with grace to this day. I love you, I am proud of you, and I am so humbled by all that you do and all that you are. WELLER, WELLER, WELLER, OY, OY, OY RENENESS, GODDESS OF THE MEMORY OF ALL WE HAVE DONE AND ALL WE WILL DO. > Hi , > > This is your old friend Ron. I saw a post from you and it brought > back memories of the Sarc Conference where we met for the first time. > > So I just wanted to drop you a line to say HELLO my dear friend and > so nice to know that you are still keeping the struggle alive. > > How is Aisha doing, does anyone know? > > I have gone from " Oyster-Man " to " Clam-Man " . Thats why I don't talk > much anymore. Ha! Ha! Ha! > > " Okay! Clam it! > > See ya, > The New and Improved, > " Clam Man " > Tootles > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Ron, I'm so glad to hear from you again. I was also very glad to get to know you at the conference. After the first meeting at my house where I through personal beliefs into a mix where it didn't belong. I am still very sorry, but very glad we were able to mingle at the conference. Well, clam man, I am not talking much either, as my dysphasia and aphasia, along with some weird problem where I have absolutely no control over the pitch of each word, making my sentences even harder to decipher. It's been creeping up since the winter -- that's how my immuno Dr. (at IU med center but not at the sarc center. I guess they have one now, but they didn't when I transferred down there, and so this doc was the best answer to treat someone like us who have so many systems affected). I don't know what's up with Aisha. I sent her a new message, but I got a reply that said to communicate with her at the livejournal website, and I've been just too tired to load all that up on my new laptop, but I will soon. as soon as I hear from her, I will let you knowl. Love, like the ocean reaching out to the horizon, like the sunset that wraps around you in a gently hug of yellow, orange, pink, purple, and red, like the air -- the fresh sea air which makes one want to swallow rather than breathe... it is so soulful and filled with nourishment. This is the love I have for you and all who have suffered the indiscribable and endured with grace to this day. I love you, I am proud of you, and I am so humbled by all that you do and all that you are. WELLER, WELLER, WELLER, OY, OY, OY RENENESS, GODDESS OF THE MEMORY OF ALL WE HAVE DONE AND ALL WE WILL DO. > Hi , > > This is your old friend Ron. I saw a post from you and it brought > back memories of the Sarc Conference where we met for the first time. > > So I just wanted to drop you a line to say HELLO my dear friend and > so nice to know that you are still keeping the struggle alive. > > How is Aisha doing, does anyone know? > > I have gone from " Oyster-Man " to " Clam-Man " . Thats why I don't talk > much anymore. Ha! Ha! Ha! > > " Okay! Clam it! > > See ya, > The New and Improved, > " Clam Man " > Tootles > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
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