Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Thanks . Yes, I do agree with you there - the trade-off is worth it. The beautiful scenery and the time with my family will be one of those times I will never forget. Luv, Debbie PS I have no idea how you travelled for 4 weeks and 5000 miles!! Must have used a ton of bootstraps!rkelty@... wrote: As long as it is a sarc victim, he or she will always receive purple bootsraps (in recognition of the sarc purple ribbons). However, other colors are available to non sarc folks, and to sarc folks to be used with the purple. It is the purple that holds the strength for us.Sorry you are suffering the payback for a lovely vacation. Imagine how I felt after four weeks and 5000 road miles. Actually, I didn't suffer much at all, but enough that I know I would have been better off physically if I had stayed home, but the trade off ( like we make every day) is SOOOOO worth it.Take care,REneness, BSF--Life is a menu! Why not go gourmet! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Debbie, Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, we made the trip in the coolest set up. My in-laws drove up the previous spring and sold us this xtra large van, partially customized for a thousand. went out and purchased a small television and VCR (actually much nicer than the LCD screen that flips down in the new van that has the vcr under the right passenger seat. He and the kids also bought some kind of converterbox so that we could plug in the tv and vcr and the three of us could watch while drove and listened. There was only one bench seat in a van designed for three. We put in the middle and my husband jury rigged this awesome bed/storage area in the back. He made or found some palettes and put legs on them so that the pallete was just lower than the top of the bench seat in front off it. He took the two flip chairs from my sons' room (each flipped out to a twin bed with a pillowl, so together it was a king!) So dear old gimpy mom usually slept on that princess bed if there was any long night driving ahead (otherwise I sat in the front seat taking many movies). Also, below the pallete there was still room for my scooter--- I just had to remove the seat and put it upside down under me. There was also plenty of room for all of our comping gear (we have way too much), and, of course, I just slept on everyone's sleeping bags, unless the boys wanted to sleep -- one on the bench seat and one on the floor. We also had the campkitchen and cooler in the " hole in the middle " (behind the driving area, We rarely ate out, and did not have to stop for meals if we didn't want to. Good thing we had all that room because in Yellowstone EVERYTHING (even toothpaste) that came in contact with food had to be stored in the Van when not in use. We were able to camp just fine at Mt. Rushmore, but our tents only lasted three nights in Yellowstone because the last night there was snow (on June 10!). We woke up to eight inches, but we hearty campers still were able to make our morning meal! It made for a great vacation video! There was one last silver lining (other than we had one zero banlance charge card to help us with lodging for the next two weeks), That was that even thought the Yellowstone lodges didn't have tv, we had our own and plenty of videos for the VCR. Sad to say the following fall was when I nosedived and have never been off oxygen totally. When we want to " get back to nature " now, we just book two our three nights at one of the state park inns (just like a motel but better food and better scenery). Sorry for blathering on, but you helped me remember some of my last really fun times. I'm only on night ozygen right now, so if the humira starts working better, maybe we'll get to an inn yet this summer! Take care, WELLER, WELLER, WELLER, OY, OY, OY RENENES, BOOTSTRAP FAIRY. > Thanks . Yes, I do agree with you there - the trade-off is worth > it. The beautiful scenery and the time with my family will be one of > those times I will never forget. > Luv, Debbie > PS I have no idea how you travelled for 4 weeks and 5000 miles!! Must > have used a ton of bootstraps! > > rkelty@... wrote: > As long as it is a sarc victim, he or she will always receive purple > bootsraps (in recognition of the sarc purple ribbons). However, other > colors are available to non sarc folks, and to sarc folks to be used > with the purple. It is the purple that holds the strength for us. > > Sorry you are suffering the payback for a lovely vacation. Imagine how > I felt after four weeks and 5000 road miles. Actually, I didn't suffer > much at all, but enough that I know I would have been better off > physically if I had stayed home, but the trade off ( like we make > every day) is SOOOOO worth it. > > Take care, > REneness, BSF > > -- > Life is a menu! Why not go gourmet! > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Debbie, Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, we made the trip in the coolest set up. My in-laws drove up the previous spring and sold us this xtra large van, partially customized for a thousand. went out and purchased a small television and VCR (actually much nicer than the LCD screen that flips down in the new van that has the vcr under the right passenger seat. He and the kids also bought some kind of converterbox so that we could plug in the tv and vcr and the three of us could watch while drove and listened. There was only one bench seat in a van designed for three. We put in the middle and my husband jury rigged this awesome bed/storage area in the back. He made or found some palettes and put legs on them so that the pallete was just lower than the top of the bench seat in front off it. He took the two flip chairs from my sons' room (each flipped out to a twin bed with a pillowl, so together it was a king!) So dear old gimpy mom usually slept on that princess bed if there was any long night driving ahead (otherwise I sat in the front seat taking many movies). Also, below the pallete there was still room for my scooter--- I just had to remove the seat and put it upside down under me. There was also plenty of room for all of our comping gear (we have way too much), and, of course, I just slept on everyone's sleeping bags, unless the boys wanted to sleep -- one on the bench seat and one on the floor. We also had the campkitchen and cooler in the " hole in the middle " (behind the driving area, We rarely ate out, and did not have to stop for meals if we didn't want to. Good thing we had all that room because in Yellowstone EVERYTHING (even toothpaste) that came in contact with food had to be stored in the Van when not in use. We were able to camp just fine at Mt. Rushmore, but our tents only lasted three nights in Yellowstone because the last night there was snow (on June 10!). We woke up to eight inches, but we hearty campers still were able to make our morning meal! It made for a great vacation video! There was one last silver lining (other than we had one zero banlance charge card to help us with lodging for the next two weeks), That was that even thought the Yellowstone lodges didn't have tv, we had our own and plenty of videos for the VCR. Sad to say the following fall was when I nosedived and have never been off oxygen totally. When we want to " get back to nature " now, we just book two our three nights at one of the state park inns (just like a motel but better food and better scenery). Sorry for blathering on, but you helped me remember some of my last really fun times. I'm only on night ozygen right now, so if the humira starts working better, maybe we'll get to an inn yet this summer! Take care, WELLER, WELLER, WELLER, OY, OY, OY RENENES, BOOTSTRAP FAIRY. > Thanks . Yes, I do agree with you there - the trade-off is worth > it. The beautiful scenery and the time with my family will be one of > those times I will never forget. > Luv, Debbie > PS I have no idea how you travelled for 4 weeks and 5000 miles!! Must > have used a ton of bootstraps! > > rkelty@... wrote: > As long as it is a sarc victim, he or she will always receive purple > bootsraps (in recognition of the sarc purple ribbons). However, other > colors are available to non sarc folks, and to sarc folks to be used > with the purple. It is the purple that holds the strength for us. > > Sorry you are suffering the payback for a lovely vacation. Imagine how > I felt after four weeks and 5000 road miles. Actually, I didn't suffer > much at all, but enough that I know I would have been better off > physically if I had stayed home, but the trade off ( like we make > every day) is SOOOOO worth it. > > Take care, > REneness, BSF > > -- > Life is a menu! Why not go gourmet! > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 - Yeah, I know what you mean about remembering the great times "before worsening illness"! Those hit me once in awhile too. Thats okay about going on, I enjoyed the story of your trip. Your husband sounds like he loves you a lot and would do anything for you. You are very lucky. The way he fixed up the van and all - it sounds like you had it all! Sounds like a motor home! That trip must be a very fond memory etched in your mind. Luv, Debbie PS The 60 mgs of Pred and 40 mgs of Ritalin must have kept you PLENTY energized too! lol renee kelty wrote: Debbie,Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, we made the trip in the coolest set up. My in-laws drove up the previous spring and sold us this xtra large van, partially customized for a thousand. went out and purchased a small television and VCR (actually much nicer than the LCD screen that flips down in the new van that has the vcr under the right passenger seat.He and the kids also bought some kind of converterbox so that we could plug in the tv and vcr and the three of us could watch while drove and listened. There was only one bench seat in a van designed for three. We put in the middle and my husband jury rigged this awesome bed/storage area in the back. He made or found some palettes and put legs on them so that the pallete was just lower than the top of the bench seat in front off it. He took the two flip chairs from my sons' room (each flipped out to a twin bed with a pillowl, so together it was a king!) So dear old gimpy mom usually slept on that princess bed if there was any long night driving ahead (otherwise I sat in the front seat taking many movies). Also, below the pallete there was still room for my scooter--- I just had to remove the seat and put it upside down under me. There was also plenty of room for all of our comping gear (we have way too much), and, of course, I just slept on everyone's sleeping bags, unless the boys wanted to sleep -- one on the bench seat and one on the floor. We also had the campkitchen and cooler in the "hole in the middle" (behind the driving area, We rarely ate out, and did not have to stop for meals if we didn't want to. Good thing we had all that room because in Yellowstone EVERYTHING (even toothpaste) that came in contact with food had to be stored in the Van when not in use. We were able to camp just fine at Mt. Rushmore, but our tents only lasted three nights in Yellowstone because the last night there was snow (on June 10!). We woke up to eight inches, but we hearty campers still were able to make our morning meal! It made for a great vacation video!There was one last silver lining (other than we had one zero banlance charge card to help us with lodging for the next two weeks), That was that even thought the Yellowstone lodges didn't have tv, we had our own and plenty of videos for the VCR.Sad to say the following fall was when I nosedived and have never been off oxygen totally. When we want to "get back to nature" now, we just book two our three nights at one of the state park inns (just like a motel but better food and better scenery).Sorry for blathering on, but you helped me remember some of my last really fun times. I'm only on night ozygen right now, so if the humira starts working better, maybe we'll get to an inn yet this summer!Take care,WELLER, WELLER, WELLER, OY, OY, OYRENENES, BOOTSTRAP FAIRY.> Thanks . Yes, I do agree with you there - the trade-off is worth > it. The beautiful scenery and the time with my family will be one of > those times I will never forget.> Luv, Debbie> PS I have no idea how you travelled for 4 weeks and 5000 miles!! Must > have used a ton of bootstraps!>> rkelty@... wrote:> As long as it is a sarc victim, he or she will always receive purple > bootsraps (in recognition of the sarc purple ribbons). However, other > colors are available to non sarc folks, and to sarc folks to be used > with the purple. It is the purple that holds the strength for us.>> Sorry you are suffering the payback for a lovely vacation. Imagine how > I felt after four weeks and 5000 road miles. Actually, I didn't suffer > much at all, but enough that I know I would have been better off > physically if I had stayed home, but the trade off ( like we make > every day) is SOOOOO worth it.>> Take care,> REneness, BSF>> --> Life is a menu! Why not go gourmet!>>>>>>>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community>> Live Group Chat:-> Mondays & Fridays 10pm EST USA> http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php>> Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 - Yeah, I know what you mean about remembering the great times "before worsening illness"! Those hit me once in awhile too. Thats okay about going on, I enjoyed the story of your trip. Your husband sounds like he loves you a lot and would do anything for you. You are very lucky. The way he fixed up the van and all - it sounds like you had it all! Sounds like a motor home! That trip must be a very fond memory etched in your mind. Luv, Debbie PS The 60 mgs of Pred and 40 mgs of Ritalin must have kept you PLENTY energized too! lol renee kelty wrote: Debbie,Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, we made the trip in the coolest set up. My in-laws drove up the previous spring and sold us this xtra large van, partially customized for a thousand. went out and purchased a small television and VCR (actually much nicer than the LCD screen that flips down in the new van that has the vcr under the right passenger seat.He and the kids also bought some kind of converterbox so that we could plug in the tv and vcr and the three of us could watch while drove and listened. There was only one bench seat in a van designed for three. We put in the middle and my husband jury rigged this awesome bed/storage area in the back. He made or found some palettes and put legs on them so that the pallete was just lower than the top of the bench seat in front off it. He took the two flip chairs from my sons' room (each flipped out to a twin bed with a pillowl, so together it was a king!) So dear old gimpy mom usually slept on that princess bed if there was any long night driving ahead (otherwise I sat in the front seat taking many movies). Also, below the pallete there was still room for my scooter--- I just had to remove the seat and put it upside down under me. There was also plenty of room for all of our comping gear (we have way too much), and, of course, I just slept on everyone's sleeping bags, unless the boys wanted to sleep -- one on the bench seat and one on the floor. We also had the campkitchen and cooler in the "hole in the middle" (behind the driving area, We rarely ate out, and did not have to stop for meals if we didn't want to. Good thing we had all that room because in Yellowstone EVERYTHING (even toothpaste) that came in contact with food had to be stored in the Van when not in use. We were able to camp just fine at Mt. Rushmore, but our tents only lasted three nights in Yellowstone because the last night there was snow (on June 10!). We woke up to eight inches, but we hearty campers still were able to make our morning meal! It made for a great vacation video!There was one last silver lining (other than we had one zero banlance charge card to help us with lodging for the next two weeks), That was that even thought the Yellowstone lodges didn't have tv, we had our own and plenty of videos for the VCR.Sad to say the following fall was when I nosedived and have never been off oxygen totally. When we want to "get back to nature" now, we just book two our three nights at one of the state park inns (just like a motel but better food and better scenery).Sorry for blathering on, but you helped me remember some of my last really fun times. I'm only on night ozygen right now, so if the humira starts working better, maybe we'll get to an inn yet this summer!Take care,WELLER, WELLER, WELLER, OY, OY, OYRENENES, BOOTSTRAP FAIRY.> Thanks . Yes, I do agree with you there - the trade-off is worth > it. The beautiful scenery and the time with my family will be one of > those times I will never forget.> Luv, Debbie> PS I have no idea how you travelled for 4 weeks and 5000 miles!! Must > have used a ton of bootstraps!>> rkelty@... wrote:> As long as it is a sarc victim, he or she will always receive purple > bootsraps (in recognition of the sarc purple ribbons). However, other > colors are available to non sarc folks, and to sarc folks to be used > with the purple. It is the purple that holds the strength for us.>> Sorry you are suffering the payback for a lovely vacation. Imagine how > I felt after four weeks and 5000 road miles. Actually, I didn't suffer > much at all, but enough that I know I would have been better off > physically if I had stayed home, but the trade off ( like we make > every day) is SOOOOO worth it.>> Take care,> REneness, BSF>> --> Life is a menu! Why not go gourmet!>>>>>>>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community>> Live Group Chat:-> Mondays & Fridays 10pm EST USA> http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php>> Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 So I dragged/drug? myself to s and bought myself a decent easel. And I got blessed again cuz it was 40 percent off. So instead of $100 I only paid $60!! Dear Bitchy Princess, the above is the jewel in the lotus! Really made me smile! It's MOST IMPORTANT to notice the exquisite moments! That said, I do sympathize! The no good sorry son of a bitch ought to treat you better!! I know you'll make beautiful music with paint on your new easel! I hope you'll take digital pics of it and share them! As I told Toni in Brisbane: Ranting Vents R Us! LOTS of LOVE, Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 Debbie, Before you get that June Cleaver image burned into you brain, I didn't mention that the majority of our trip was tainted by my eldest son who was rebelling like mad -- everything we suggested was a " drag,' and he really, really hated walking alongside of his gimpy mom riding her lame scooter. He ran away from home just four months later (and broke my heart beyond recover). We managed (well, I managed) to find out that he was on the greyhound headed for NYC. The papers had to go through, so we could not have him removed from the bus until Columbus, Ohio. He refused to come back and live with me. Instead he lived with my brother for four months (his wife assured me they would get him to come home). Finally after my brother complained that this sixteen year old genius was developing all sorts of talents best represented in jail, I let the boy go live with his father. I don't want to get into the mess he had to go through, but I am pleased that he figured out why I divorced his father in a few months. He wouldn't come home, though... said he had made his bed and had to live in it. Luckily he stayed in the advanced track at school, and was a stellar honors student (if you can overlook his constant truancy). He even managed to get accepted into the School of Business as a freshman at IU (unheard of -- students are usually accepted as juniors). He has his life together now (but drinks too much like his old man), but I still cry because I missed so much of his becoming a man. I used to cry to the point of wailing. Now I can control it after a few tears. Sorry about all that. But when he was finally pressed as to why he had to leave it was because he could no longer bear to see his mother disappearing more and more everyday. Heck. I couldn't even go to his graduation and see him recieve a double honor's diploma. It's just so sad. This disease has so many victims beyond those of us who house it in our bodies. I'm slipping some bootstraps under my own pillow tonight. WELLER, WELLER, WELLER, OY, OY, OY RENENES, BOOTSTRAP FAIRY. > - Yeah, I know what you mean about remembering the great times > " before worsening illness " ! Those hit me once in awhile too. Thats > okay about going on, I enjoyed the story of your trip. Your husband > sounds like he loves you a lot and would do anything for you. You are > very lucky. The way he fixed up the van and all - it sounds like you > had it all! Sounds like a motor home! That trip must be a very fond > memory etched in your mind. Luv, Debbie > PS The 60 mgs of Pred and 40 mgs of Ritalin must have kept you PLENTY > energized too! lol > > renee kelty wrote: > Debbie, > > Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, we > made the trip in the coolest set up. My in-laws drove up the previous > spring and sold us this xtra large van, partially customized for a > thousand. went out and purchased a small television and VCR > (actually much nicer than the LCD screen that flips down in the new > van > that has the vcr under the right passenger seat. > > He and the kids also bought some kind of converterbox so that we could > plug in the tv and vcr and the three of us could watch while > drove and listened. There was only one bench seat in a van designed > for three. We put in the middle and my husband jury rigged this > awesome bed/storage area in the back. He made or found some palettes > and put legs on them so that the pallete was just lower than the top > of > the bench seat in front off it. He took the two flip chairs from my > sons' room (each flipped out to a twin bed with a pillowl, so together > it was a king!) So dear old gimpy mom usually slept on that princess > bed if there was any long night driving ahead (otherwise I sat in the > front seat taking many movies). Also, below the pallete there was > still room for my scooter--- I just had to remove the seat and put it > upside down under me. There was also plenty of room for all of our > comping gear (we have way too much), and, of course, I just slept on > everyone's sleeping bags, unless the boys wanted to sleep -- one on > the > bench seat and one on the floor. We also had the campkitchen and > cooler in the " hole in the middle " (behind the driving area, We rarely > ate out, and did not have to stop for meals if we didn't want to. Good > thing we had all that room because in Yellowstone EVERYTHING (even > toothpaste) that came in contact with food had to be stored in the Van > when not in use. We were able to camp just fine at Mt. Rushmore, but > our tents only lasted three nights in Yellowstone because the last > night there was snow (on June 10!). We woke up to eight inches, but we > hearty campers still were able to make our morning meal! It made for a > great vacation video! > > There was one last silver lining (other than we had one zero banlance > charge card to help us with lodging for the next two weeks), That was > that even thought the Yellowstone lodges didn't have tv, we had our > own > and plenty of videos for the VCR. > > Sad to say the following fall was when I nosedived and have never been > off oxygen totally. When we want to " get back to nature " now, we just > book two our three nights at one of the state park inns (just like a > motel but better food and better scenery). > > Sorry for blathering on, but you helped me remember some of my last > really fun times. I'm only on night ozygen right now, so if the humira > starts working better, maybe we'll get to an inn yet this summer! > > Take care, > > > WELLER, WELLER, WELLER, OY, OY, OY > RENENES, BOOTSTRAP FAIRY. > > > > Thanks . Yes, I do agree with you there - the trade-off is > worth > > it. The beautiful scenery and the time with my family will be one > of > > those times I will never forget. > > Luv, Debbie > > PS I have no idea how you travelled for 4 weeks and 5000 miles!! > Must > > have used a ton of bootstraps! > > > > rkelty@... wrote: > > As long as it is a sarc victim, he or she will always receive purple > > bootsraps (in recognition of the sarc purple ribbons). However, > other > > colors are available to non sarc folks, and to sarc folks to be used > > with the purple. It is the purple that holds the strength for us. > > > > Sorry you are suffering the payback for a lovely vacation. Imagine > how > > I felt after four weeks and 5000 road miles. Actually, I didn't > suffer > > much at all, but enough that I know I would have been better off > > physically if I had stayed home, but the trade off ( like we make > > every day) is SOOOOO worth it. > > > > Take care, > > REneness, BSF > > > > -- > > Life is a menu! Why not go gourmet! > > > > > > > > > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > The Neurosarcoidosis Community > > > > Live Group Chat:- > > Mondays & Fridays 10pm EST USA > > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > > > Message Archives:- > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > > > Members Database:- > > Listings of locations, phone numbers, and instant messengers. > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 Debbie, Before you get that June Cleaver image burned into you brain, I didn't mention that the majority of our trip was tainted by my eldest son who was rebelling like mad -- everything we suggested was a " drag,' and he really, really hated walking alongside of his gimpy mom riding her lame scooter. He ran away from home just four months later (and broke my heart beyond recover). We managed (well, I managed) to find out that he was on the greyhound headed for NYC. The papers had to go through, so we could not have him removed from the bus until Columbus, Ohio. He refused to come back and live with me. Instead he lived with my brother for four months (his wife assured me they would get him to come home). Finally after my brother complained that this sixteen year old genius was developing all sorts of talents best represented in jail, I let the boy go live with his father. I don't want to get into the mess he had to go through, but I am pleased that he figured out why I divorced his father in a few months. He wouldn't come home, though... said he had made his bed and had to live in it. Luckily he stayed in the advanced track at school, and was a stellar honors student (if you can overlook his constant truancy). He even managed to get accepted into the School of Business as a freshman at IU (unheard of -- students are usually accepted as juniors). He has his life together now (but drinks too much like his old man), but I still cry because I missed so much of his becoming a man. I used to cry to the point of wailing. Now I can control it after a few tears. Sorry about all that. But when he was finally pressed as to why he had to leave it was because he could no longer bear to see his mother disappearing more and more everyday. Heck. I couldn't even go to his graduation and see him recieve a double honor's diploma. It's just so sad. This disease has so many victims beyond those of us who house it in our bodies. I'm slipping some bootstraps under my own pillow tonight. WELLER, WELLER, WELLER, OY, OY, OY RENENES, BOOTSTRAP FAIRY. > - Yeah, I know what you mean about remembering the great times > " before worsening illness " ! Those hit me once in awhile too. Thats > okay about going on, I enjoyed the story of your trip. Your husband > sounds like he loves you a lot and would do anything for you. You are > very lucky. The way he fixed up the van and all - it sounds like you > had it all! Sounds like a motor home! That trip must be a very fond > memory etched in your mind. Luv, Debbie > PS The 60 mgs of Pred and 40 mgs of Ritalin must have kept you PLENTY > energized too! lol > > renee kelty wrote: > Debbie, > > Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, we > made the trip in the coolest set up. My in-laws drove up the previous > spring and sold us this xtra large van, partially customized for a > thousand. went out and purchased a small television and VCR > (actually much nicer than the LCD screen that flips down in the new > van > that has the vcr under the right passenger seat. > > He and the kids also bought some kind of converterbox so that we could > plug in the tv and vcr and the three of us could watch while > drove and listened. There was only one bench seat in a van designed > for three. We put in the middle and my husband jury rigged this > awesome bed/storage area in the back. He made or found some palettes > and put legs on them so that the pallete was just lower than the top > of > the bench seat in front off it. He took the two flip chairs from my > sons' room (each flipped out to a twin bed with a pillowl, so together > it was a king!) So dear old gimpy mom usually slept on that princess > bed if there was any long night driving ahead (otherwise I sat in the > front seat taking many movies). Also, below the pallete there was > still room for my scooter--- I just had to remove the seat and put it > upside down under me. There was also plenty of room for all of our > comping gear (we have way too much), and, of course, I just slept on > everyone's sleeping bags, unless the boys wanted to sleep -- one on > the > bench seat and one on the floor. We also had the campkitchen and > cooler in the " hole in the middle " (behind the driving area, We rarely > ate out, and did not have to stop for meals if we didn't want to. Good > thing we had all that room because in Yellowstone EVERYTHING (even > toothpaste) that came in contact with food had to be stored in the Van > when not in use. We were able to camp just fine at Mt. Rushmore, but > our tents only lasted three nights in Yellowstone because the last > night there was snow (on June 10!). We woke up to eight inches, but we > hearty campers still were able to make our morning meal! It made for a > great vacation video! > > There was one last silver lining (other than we had one zero banlance > charge card to help us with lodging for the next two weeks), That was > that even thought the Yellowstone lodges didn't have tv, we had our > own > and plenty of videos for the VCR. > > Sad to say the following fall was when I nosedived and have never been > off oxygen totally. When we want to " get back to nature " now, we just > book two our three nights at one of the state park inns (just like a > motel but better food and better scenery). > > Sorry for blathering on, but you helped me remember some of my last > really fun times. I'm only on night ozygen right now, so if the humira > starts working better, maybe we'll get to an inn yet this summer! > > Take care, > > > WELLER, WELLER, WELLER, OY, OY, OY > RENENES, BOOTSTRAP FAIRY. > > > > Thanks . Yes, I do agree with you there - the trade-off is > worth > > it. The beautiful scenery and the time with my family will be one > of > > those times I will never forget. > > Luv, Debbie > > PS I have no idea how you travelled for 4 weeks and 5000 miles!! > Must > > have used a ton of bootstraps! > > > > rkelty@... wrote: > > As long as it is a sarc victim, he or she will always receive purple > > bootsraps (in recognition of the sarc purple ribbons). However, > other > > colors are available to non sarc folks, and to sarc folks to be used > > with the purple. It is the purple that holds the strength for us. > > > > Sorry you are suffering the payback for a lovely vacation. Imagine > how > > I felt after four weeks and 5000 road miles. Actually, I didn't > suffer > > much at all, but enough that I know I would have been better off > > physically if I had stayed home, but the trade off ( like we make > > every day) is SOOOOO worth it. > > > > Take care, > > REneness, BSF > > > > -- > > Life is a menu! Why not go gourmet! > > > > > > > > > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > The Neurosarcoidosis Community > > > > Live Group Chat:- > > Mondays & Fridays 10pm EST USA > > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > > > Message Archives:- > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > > > Members Database:- > > Listings of locations, phone numbers, and instant messengers. > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 , Debbie, Jan, Jeri and everybody else who wished me a good birthday.... Thanks so much. This was probably the worst week physically....that I've had in a long time. The big 'let-down' after the party. Oh man...I can't even describe the internal crap going on...the 'heating-up'...the unbelievable increase in back pain...and feeling like everything is just shutting down. And I mentioned the back pain to the wrong people and I get comments like...I should try yoga or the chiropractor(I have tried him before and he only helped so much...tho he did help). I could much rather have had a hug than these 'helpful' words. I wouldn't even have mentioned it but they asked. Guess I fell into that one... But it's hard to always suck it up, ya know. My husband didn't forget my birthday. He just didn't get me anything. And that hurt more than anything this week cuz this was one time he shouldn't have cuz I was already feeling like sh_t on a hot sidewalk. So I dragged/drug? myself to s and bought myself a decent easel. And I got blessed again cuz it was 40 percent off. So instead of $100 I only paid $60!!!! Of course I've felt too crappy most of the week to paint but I know I will use it. It's an indoor/outdoor kind and it only weighs 5 lbs. Well, after getting yelled at in my much-enhanced bitchy state-of-mind...he came home with a jade pendant today(three days after my birthday and lots of complaining...). It's nice and I really like it but I hope he doesn't think this makes up for not making the time to shop...only a year!. We've been married 26 years and he knows that I am the type of person who wants their present on time...especially since I always make such a big deal out of everybody else's birthdays and such. I suppose that makes me sound petty but I really don't care at this point. , you've got a real sweetheart for a husband cuz my husband wouldn't even think of doing that for me. I had to bitch till mine bought a car/truck that didn't make me feel every little bump. Took three cars and some strong suggestions. But I do agree with everyone that sometimes you have to do stuff anyway though you know you'll pay the price. Everybody with great partners...give them an extra hug and kiss today. You may not know how good you've got it! Thanks for letting me vent. I'm doing my night time cycle this week. Sleeping most of the day and awake all night. Along with the extra pain also comes abit of depression but that's also par for the course for me...And Jeri, I'm the same as you...always crying for the least thing and, yeah, it does help. lots of love and hugs sent to all of you S. bitchy princessrenee kelty wrote: Debbie,Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, we made the trip in the coolest set up. My in-laws drove up the previous spring and sold us this xtra large van, partially customized for a thousand. went out and purchased a small television and VCR (actually much nicer than the LCD screen that flips down in the new van that has the vcr under the right passenger seat.He and the kids also bought some kind of converterbox so that we could plug in the tv and vcr and the three of us could watch while drove and listened. There was only one bench seat in a van designed for three. We put in the middle and my husband jury rigged this awesome bed/storage area in the back. He made or found some palettes and put legs on them so that the pallete was just lower than the top of the bench seat in front off it. He took the two flip chairs from my sons' room (each flipped out to a twin bed with a pillowl, so together it was a king!) So dear old gimpy mom usually slept on that princess bed if there was any long night driving ahead (otherwise I sat in the front seat taking many movies). Also, below the pallete there was still room for my scooter--- I just had to remove the seat and put it upside down under me. There was also plenty of room for all of our comping gear (we have way too much), and, of course, I just slept on everyone's sleeping bags, unless the boys wanted to sleep -- one on the bench seat and one on the floor. We also had the campkitchen and cooler in the "hole in the middle" (behind the driving area, We rarely ate out, and did not have to stop for meals if we didn't want to. Good thing we had all that room because in Yellowstone EVERYTHING (even toothpaste) that came in contact with food had to be stored in the Van when not in use. We were able to camp just fine at Mt. Rushmore, but our tents only lasted three nights in Yellowstone because the last night there was snow (on June 10!). We woke up to eight inches, but we hearty campers still were able to make our morning meal! It made for a great vacation video!There was one last silver lining (other than we had one zero banlance charge card to help us with lodging for the next two weeks), That was that even thought the Yellowstone lodges didn't have tv, we had our own and plenty of videos for the VCR.Sad to say the following fall was when I nosedived and have never been off oxygen totally. When we want to "get back to nature" now, we just book two our three nights at one of the state park inns (just like a motel but better food and better scenery).Sorry for blathering on, but you helped me remember some of my last really fun times. I'm only on night ozygen right now, so if the humira starts working better, maybe we'll get to an inn yet this summer!Take care,WELLER, WELLER, WELLER, OY, OY, OYRENENES, BOOTSTRAP FAIRY.> Thanks . Yes, I do agree with you there - the trade-off is worth > it. The beautiful scenery and the time with my family will be one of > those times I will never forget.> Luv, Debbie> PS I have no idea how you travelled for 4 weeks and 5000 miles!! Must > have used a ton of bootstraps!>> rkelty@... wrote:> As long as it is a sarc victim, he or she will always receive purple > bootsraps (in recognition of the sarc purple ribbons). However, other > colors are available to non sarc folks, and to sarc folks to be used > with the purple. It is the purple that holds the strength for us.>> Sorry you are suffering the payback for a lovely vacation. Imagine how > I felt after four weeks and 5000 road miles. Actually, I didn't suffer > much at all, but enough that I know I would have been better off > physically if I had stayed home, but the trade off ( like we make > every day) is SOOOOO worth it.>> Take care,> REneness, BSF>> --> Life is a menu! Why not go gourmet!>>>>>>>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community>> Live Group Chat:-> Mondays & Fridays 10pm EST USA> http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php>> Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 Interesting rant. I'm giving double points for " sh_t on a hot sidewalk. " I hadn't heard that one before. Perhaps we'll call it the S. innovation! Again, lacking those caps always costs you a few decimals. Overall, a good effort. 8.9 final score, but some controversy among the judges. Keep up the good work & don't forget those caps! Judge Rose Original Message: ----------------- From: Solberg mary_s777@... Date: Sun, 18 Jul 2004 21:27:03 -0700 (PDT) To: Neurosarcoidosis Subject: Re: Re: purplebootstraps , Debbie, Jan, Jeri and everybody else who wished me a good birthday.... Thanks so much. This was probably the worst week physically....that I've had in a long time. The big 'let-down' after the party. Oh man...I can't even describe the internal crap going on...the 'heating-up'...the unbelievable increase in back pain...and feeling like everything is just shutting down. And I mentioned the back pain to the wrong people and I get comments like...I should try yoga or the chiropractor(I have tried him before and he only helped so much...tho he did help). I could much rather have had a hug than these 'helpful' words. I wouldn't even have mentioned it but they asked. Guess I fell into that one... But it's hard to always suck it up, ya know. My husband didn't forget my birthday. He just didn't get me anything. And that hurt more than anything this week cuz this was one time he shouldn't have cuz I was already feeling like sh_t on a hot sidewalk. So I dragged/drug? myself to s and bought myself a decent easel. And I got blessed again cuz it was 40 percent off. So instead of $100 I only paid $60!!!! Of course I've felt too crappy most of the week to paint but I know I will use it. It's an indoor/outdoor kind and it only weighs 5 lbs. Well, after getting yelled at in my much-enhanced bitchy state-of-mind...he came home with a jade pendant today(three days after my birthday and lots of complaining...). It's nice and I really like it but I hope he doesn't think this makes up for not making the time to shop...only a year!. We've been married 26 years and he knows that I am the type of person who wants their present on time...especially since I always make such a big deal out of everybody else's birthdays and such. I suppose that makes me sound petty but I really don't care at this point. , you've got a real sweetheart for a husband cuz my husband wouldn't even think of doing that for me. I had to bitch till mine bought a car/truck that didn't make me feel every little bump. Took three cars and some strong suggestions. But I do agree with everyone that sometimes you have to do stuff anyway though you know you'll pay the price. Everybody with great partners...give them an extra hug and kiss today. You may not know how good you've got it! Thanks for letting me vent. I'm doing my night time cycle this week. Sleeping most of the day and awake all night. Along with the extra pain also comes abit of depression but that's also par for the course for me...And Jeri, I'm the same as you...always crying for the least thing and, yeah, it does help. lots of love and hugs sent to all of you S. bitchy princess renee kelty wrote:Debbie, Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, we made the trip in the coolest set up. My in-laws drove up the previous spring and sold us this xtra large van, partially customized for a thousand. went out and purchased a small television and VCR (actually much nicer than the LCD screen that flips down in the new van that has the vcr under the right passenger seat. He and the kids also bought some kind of converterbox so that we could plug in the tv and vcr and the three of us could watch while drove and listened. There was only one bench seat in a van designed for three. We put in the middle and my husband jury rigged this awesome bed/storage area in the back. He made or found some palettes and put legs on them so that the pallete was just lower than the top of the bench seat in front off it. He took the two flip chairs from my sons' room (each flipped out to a twin bed with a pillowl, so together it was a king!) So dear old gimpy mom usually slept on that princess bed if there was any long night driving ahead (otherwise I sat in the front seat taking many movies). Also, below the pallete there was still room for my scooter--- I just had to remove the seat and put it upside down under me. There was also plenty of room for all of our comping gear (we have way too much), and, of course, I just slept on everyone's sleeping bags, unless the boys wanted to sleep -- one on the bench seat and one on the floor. We also had the campkitchen and cooler in the " hole in the middle " (behind the driving area, We rarely ate out, and did not have to stop for meals if we didn't want to. Good thing we had all that room because in Yellowstone EVERYTHING (even toothpaste) that came in contact with food had to be stored in the Van when not in use. We were able to camp just fine at Mt. Rushmore, but our tents only lasted three nights in Yellowstone because the last night there was snow (on June 10!). We woke up to eight inches, but we hearty campers still were able to make our morning meal! It made for a great vacation video! There was one last silver lining (other than we had one zero banlance charge card to help us with lodging for the next two weeks), That was that even thought the Yellowstone lodges didn't have tv, we had our own and plenty of videos for the VCR. Sad to say the following fall was when I nosedived and have never been off oxygen totally. When we want to " get back to nature " now, we just book two our three nights at one of the state park inns (just like a motel but better food and better scenery). Sorry for blathering on, but you helped me remember some of my last really fun times. I'm only on night ozygen right now, so if the humira starts working better, maybe we'll get to an inn yet this summer! Take care, WELLER, WELLER, WELLER, OY, OY, OY RENENES, BOOTSTRAP FAIRY. > Thanks . Yes, I do agree with you there - the trade-off is worth > it. The beautiful scenery and the time with my family will be one of > those times I will never forget. > Luv, Debbie > PS I have no idea how you travelled for 4 weeks and 5000 miles!! Must > have used a ton of bootstraps! > > rkelty@... wrote: > As long as it is a sarc victim, he or she will always receive purple > bootsraps (in recognition of the sarc purple ribbons). However, other > colors are available to non sarc folks, and to sarc folks to be used > with the purple. It is the purple that holds the strength for us. > > Sorry you are suffering the payback for a lovely vacation. Imagine how > I felt after four weeks and 5000 road miles. Actually, I didn't suffer > much at all, but enough that I know I would have been better off > physically if I had stayed home, but the trade off ( like we make > every day) is SOOOOO worth it. > > Take care, > REneness, BSF > > -- > Life is a menu! Why not go gourmet! > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Ahhhhh....J.Rose. Please take it into account that it is now 3 days later. lol You slay me, girl!...lol I have to admit that I often get 'creative' in the put-down department. Calling him an asshole all evening got a little old and held little impact after awhile. I usually swear when I am really frickin' mad so when I say F-ck you and ad-ifinitum then he knows he has passed into " 's Twilight Zone" and that is definately a very scary place to be. Once I threw a whole box of Bisquick all over the kitchen tornado-style and we were still finding it weeks later. The only things I throw at him are water balloons off the second story porch. Alot of people seem to get that type of idea concerning him. He got hit with a HUGE water balloon by the next-door neighbor last Sunday. I just stepped aside and let him get soaked and laughed my ass off. Once I taped his feet together with scotch tape and he almost fell on his head when he tried to get out of bed in the morning. I'll try to do better with my ranting in the future. But I'm not sure if everybody else wants to hear all the bloody details, hey? still smiling from your review....lol S."mamadog@..." wrote: Interesting rant. I'm giving double points for "sh_t on a hot sidewalk." I hadn't heard that one before. Perhaps we'll call it the S.innovation! Again, lacking those caps always costs you a few decimals. Overall, a good effort. 8.9 final score, but some controversy among thejudges. Keep up the good work & don't forget those caps! Judge RoseOriginal Message:-----------------From: Solberg mary_s777@...Date: Sun, 18 Jul 2004 21:27:03 -0700 (PDT)To: Neurosarcoidosis Subject: Re: Re: purplebootstraps, Debbie, Jan, Jeri and everybody else who wished me a goodbirthday.... Thanks so much. This was probably the worst weekphysically....that I've had in a long time. The big 'let-down' after theparty. Oh man...I can't even describe the internal crap going on...the'heating-up'...the unbelievable increase in back pain...and feeling likeeverything is just shutting down. And I mentioned the back pain to thewrong people and I get comments like...I should try yoga or thechiropractor(I have tried him before and he only helped so much...tho hedid help). I could much rather have had a hug than these 'helpful' words.I wouldn't even have mentioned it but they asked. Guess I fell into thatone... But it's hard to always suck it up, ya know. My husband didn'tforget my birthday. He just didn't get me anything. And that hurt morethan anything this week cuz this was one time he shouldn't have cuz I wasalready feeling like sh_t on a hot sidewalk. So I dragged/drug? myself to s and bought myself a decent easel. And I got blessedagain cuz it was 40 percent off. So instead of $100 I only paid $60!!!! Of course I've felt too crappy most of the week to paint but I know I willuse it. It's an indoor/outdoor kind and it only weighs 5 lbs. Well,after getting yelled at in my much-enhanced bitchy state-of-mind...he camehome with a jade pendant today(three days after my birthday and lots ofcomplaining...). It's nice and I really like it but I hope he doesn'tthink this makes up for not making the time to shop...only a year!. We'vebeen married 26 years and he knows that I am the type of person who wantstheir present on time...especially since I always make such a big deal outof everybody else's birthdays and such. I suppose that makes me soundpetty but I really don't care at this point. , you've got a realsweetheart for a husband cuz my husband wouldn't even think of doing thatfor me. I had to bitch till mine bought acar/truck that didn't make me feel every little bump. Took three cars andsome strong suggestions. But I do agree with everyone that sometimes youhave to do stuff anyway though you know you'll pay the price. Everybodywith great partners...give them an extra hug and kiss today. You may notknow how good you've got it! Thanks for letting me vent. I'm doing mynight time cycle this week. Sleeping most of the day and awake all night. Along with the extra pain also comes abit of depression but that's also parfor the course for me...And Jeri, I'm the same as you...always crying forthe least thing and, yeah, it does help. lots of love and hugs sent to allof you S. bitchy princessrenee kelty wrote:Debbie,Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, we made the trip in the coolest set up. My in-laws drove up the previous spring and sold us this xtra large van, partially customized for a thousand. went out and purchased a small television and VCR (actually much nicer than the LCD screen that flips down in the new van that has the vcr under the right passenger seat.He and the kids also bought some kind of converterbox so that we could plug in the tv and vcr and the three of us could watch while drove and listened. There was only one bench seat in a van designed for three. We put in the middle and my husband jury rigged this awesome bed/storage area in the back. He made or found some palettes and put legs on them so that the pallete was just lower than the top of the bench seat in front off it. He took the two flip chairs from my sons' room (each flipped out to a twin bed with a pillowl, so together it was a king!) So dear old gimpy mom usually slept on that princess bed if there was any long night driving ahead (otherwise I sat in the front seat taking many movies). Also, below the pallete there was still room for my scooter--- I just had to remove the seat and put it upside down under me. There was also plenty of room for all of our comping gear (we have way too much), and, of course, I just slept on everyone's sleeping bags, unless the boys wanted to sleep -- one on the bench seat and one on the floor. We also had the campkitchen and cooler in the "hole in the middle" (behind the driving area, We rarely ate out, and did not have to stop for meals if we didn't want to. Good thing we had all that room because in Yellowstone EVERYTHING (even toothpaste) that came in contact with food had to be stored in the Van when not in use. We were able to camp just fine at Mt. Rushmore, but our tents only lasted three nights in Yellowstone because the last night there was snow (on June 10!). We woke up to eight inches, but we hearty campers still were able to make our morning meal! It made for a great vacation video!There was one last silver lining (other than we had one zero banlance charge card to help us with lodging for the next two weeks), That was that even thought the Yellowstone lodges didn't have tv, we had our own and plenty of videos for the VCR.Sad to say the following fall was when I nosedived and have never been off oxygen totally. When we want to "get back to nature" now, we just book two our three nights at one of the state park inns (just like a motel but better food and better scenery).Sorry for blathering on, but you helped me remember some of my last really fun times. I'm only on night ozygen right now, so if the humira starts working better, maybe we'll get to an inn yet this summer!Take care,WELLER, WELLER, WELLER, OY, OY, OYRENENES, BOOTSTRAP FAIRY.> Thanks . Yes, I do agree with you there - the trade-off is worth > it. The beautiful scenery and the time with my family will be one of > those times I will never forget.> Luv, Debbie> PS I have no idea how you travelled for 4 weeks and 5000 miles!! Must > have used a ton of bootstraps!>> rkelty@... wrote:> As long as it is a sarc victim, he or she will always receive purple > bootsraps (in recognition of the sarc purple ribbons). However, other > colors are available to non sarc folks, and to sarc folks to be used > with the purple. It is the purple that holds the strength for us.>> Sorry you are suffering the payback for a lovely vacation. Imagine how > I felt after four weeks and 5000 road miles. Actually, I didn't suffer > much at all, but enough that I know I would have been better off > physically if I had stayed home, but the trade off ( like we make > every day) is SOOOOO worth it.>> Take care,> REneness, BSF>> --> Life is a menu! Why not go gourmet!>>>>>>>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community>> Live Group Chat:-> Mondays & Fridays 10pm EST USA> http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php>> Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Ahhhhh....J.Rose. Please take it into account that it is now 3 days later. lol You slay me, girl!...lol I have to admit that I often get 'creative' in the put-down department. Calling him an asshole all evening got a little old and held little impact after awhile. I usually swear when I am really frickin' mad so when I say F-ck you and ad-ifinitum then he knows he has passed into " 's Twilight Zone" and that is definately a very scary place to be. Once I threw a whole box of Bisquick all over the kitchen tornado-style and we were still finding it weeks later. The only things I throw at him are water balloons off the second story porch. Alot of people seem to get that type of idea concerning him. He got hit with a HUGE water balloon by the next-door neighbor last Sunday. I just stepped aside and let him get soaked and laughed my ass off. Once I taped his feet together with scotch tape and he almost fell on his head when he tried to get out of bed in the morning. I'll try to do better with my ranting in the future. But I'm not sure if everybody else wants to hear all the bloody details, hey? still smiling from your review....lol S."mamadog@..." wrote: Interesting rant. I'm giving double points for "sh_t on a hot sidewalk." I hadn't heard that one before. Perhaps we'll call it the S.innovation! Again, lacking those caps always costs you a few decimals. Overall, a good effort. 8.9 final score, but some controversy among thejudges. Keep up the good work & don't forget those caps! Judge RoseOriginal Message:-----------------From: Solberg mary_s777@...Date: Sun, 18 Jul 2004 21:27:03 -0700 (PDT)To: Neurosarcoidosis Subject: Re: Re: purplebootstraps, Debbie, Jan, Jeri and everybody else who wished me a goodbirthday.... Thanks so much. This was probably the worst weekphysically....that I've had in a long time. The big 'let-down' after theparty. Oh man...I can't even describe the internal crap going on...the'heating-up'...the unbelievable increase in back pain...and feeling likeeverything is just shutting down. And I mentioned the back pain to thewrong people and I get comments like...I should try yoga or thechiropractor(I have tried him before and he only helped so much...tho hedid help). I could much rather have had a hug than these 'helpful' words.I wouldn't even have mentioned it but they asked. Guess I fell into thatone... But it's hard to always suck it up, ya know. My husband didn'tforget my birthday. He just didn't get me anything. And that hurt morethan anything this week cuz this was one time he shouldn't have cuz I wasalready feeling like sh_t on a hot sidewalk. So I dragged/drug? myself to s and bought myself a decent easel. And I got blessedagain cuz it was 40 percent off. So instead of $100 I only paid $60!!!! Of course I've felt too crappy most of the week to paint but I know I willuse it. It's an indoor/outdoor kind and it only weighs 5 lbs. Well,after getting yelled at in my much-enhanced bitchy state-of-mind...he camehome with a jade pendant today(three days after my birthday and lots ofcomplaining...). It's nice and I really like it but I hope he doesn'tthink this makes up for not making the time to shop...only a year!. We'vebeen married 26 years and he knows that I am the type of person who wantstheir present on time...especially since I always make such a big deal outof everybody else's birthdays and such. I suppose that makes me soundpetty but I really don't care at this point. , you've got a realsweetheart for a husband cuz my husband wouldn't even think of doing thatfor me. I had to bitch till mine bought acar/truck that didn't make me feel every little bump. Took three cars andsome strong suggestions. But I do agree with everyone that sometimes youhave to do stuff anyway though you know you'll pay the price. Everybodywith great partners...give them an extra hug and kiss today. You may notknow how good you've got it! Thanks for letting me vent. I'm doing mynight time cycle this week. Sleeping most of the day and awake all night. Along with the extra pain also comes abit of depression but that's also parfor the course for me...And Jeri, I'm the same as you...always crying forthe least thing and, yeah, it does help. lots of love and hugs sent to allof you S. bitchy princessrenee kelty wrote:Debbie,Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, we made the trip in the coolest set up. My in-laws drove up the previous spring and sold us this xtra large van, partially customized for a thousand. went out and purchased a small television and VCR (actually much nicer than the LCD screen that flips down in the new van that has the vcr under the right passenger seat.He and the kids also bought some kind of converterbox so that we could plug in the tv and vcr and the three of us could watch while drove and listened. There was only one bench seat in a van designed for three. We put in the middle and my husband jury rigged this awesome bed/storage area in the back. He made or found some palettes and put legs on them so that the pallete was just lower than the top of the bench seat in front off it. He took the two flip chairs from my sons' room (each flipped out to a twin bed with a pillowl, so together it was a king!) So dear old gimpy mom usually slept on that princess bed if there was any long night driving ahead (otherwise I sat in the front seat taking many movies). Also, below the pallete there was still room for my scooter--- I just had to remove the seat and put it upside down under me. There was also plenty of room for all of our comping gear (we have way too much), and, of course, I just slept on everyone's sleeping bags, unless the boys wanted to sleep -- one on the bench seat and one on the floor. We also had the campkitchen and cooler in the "hole in the middle" (behind the driving area, We rarely ate out, and did not have to stop for meals if we didn't want to. Good thing we had all that room because in Yellowstone EVERYTHING (even toothpaste) that came in contact with food had to be stored in the Van when not in use. We were able to camp just fine at Mt. Rushmore, but our tents only lasted three nights in Yellowstone because the last night there was snow (on June 10!). We woke up to eight inches, but we hearty campers still were able to make our morning meal! It made for a great vacation video!There was one last silver lining (other than we had one zero banlance charge card to help us with lodging for the next two weeks), That was that even thought the Yellowstone lodges didn't have tv, we had our own and plenty of videos for the VCR.Sad to say the following fall was when I nosedived and have never been off oxygen totally. When we want to "get back to nature" now, we just book two our three nights at one of the state park inns (just like a motel but better food and better scenery).Sorry for blathering on, but you helped me remember some of my last really fun times. I'm only on night ozygen right now, so if the humira starts working better, maybe we'll get to an inn yet this summer!Take care,WELLER, WELLER, WELLER, OY, OY, OYRENENES, BOOTSTRAP FAIRY.> Thanks . Yes, I do agree with you there - the trade-off is worth > it. The beautiful scenery and the time with my family will be one of > those times I will never forget.> Luv, Debbie> PS I have no idea how you travelled for 4 weeks and 5000 miles!! Must > have used a ton of bootstraps!>> rkelty@... wrote:> As long as it is a sarc victim, he or she will always receive purple > bootsraps (in recognition of the sarc purple ribbons). However, other > colors are available to non sarc folks, and to sarc folks to be used > with the purple. It is the purple that holds the strength for us.>> Sorry you are suffering the payback for a lovely vacation. Imagine how > I felt after four weeks and 5000 road miles. Actually, I didn't suffer > much at all, but enough that I know I would have been better off > physically if I had stayed home, but the trade off ( like we make > every day) is SOOOOO worth it.>> Take care,> REneness, BSF>> --> Life is a menu! Why not go gourmet!>>>>>>>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community>> Live Group Chat:-> Mondays & Fridays 10pm EST USA> http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php>> Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Jeri, I probably shouldn't...but I loved your greeting, 'Dear Bitchy Princess'!!! That is so me! I posted some digital pictures at the yahoogroups site for rock painting but I have absolutely no idea how to post otherwise. YES!!! I am almost completely computer illerate. I paint on rocks mostly but also have done some canvas. I enjoy painting flowers for people to put in their landscapes, etc. I just finished a black panther in a jungle setting for a neighbor and I painted it for him to put outside but they are keeping it in the house and now his wife wants me to paint her a rock full of flowers and butterflies,etc. I am also experimenting with colored pencil drawings and maybe will try watercolors. Oil painting is too strong smelling for me to tolerate. It is getting harder for me to ask the grouchy husband to tote 40-50 rocks up to our second floor apartment. This outlet started less than three years ago because of spending so much time laying around losing my mind to boredom. So I bought one book on painting flowers and I really enjoyed it. I've sold many and that's fun, too. thanks for listening to my late-night rants. lol hugs S.KangiKanti7@... wrote: So I dragged/drug? myself to s and bought myself a decent easel. And I got blessed again cuz it was 40 percent off. So instead of $100 I only paid $60!! Dear Bitchy Princess, the above is the jewel in the lotus! Really made me smile! It's MOST IMPORTANT to notice the exquisite moments! That said, I do sympathize! The no good sorry son of a bitch ought to treat you better!! I know you'll make beautiful music with paint on your new easel! I hope you'll take digital pics of it and share them! As I told Toni in Brisbane: Ranting Vents R Us! LOTS of LOVE, Jeri~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAwww.mirc.com download the program, follow instructions find Server Dalnet then type in /join #NSChat. If you need help please notify at topdat@... or topdat on yahoo messenger.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Jeri, I probably shouldn't...but I loved your greeting, 'Dear Bitchy Princess'!!! That is so me! I posted some digital pictures at the yahoogroups site for rock painting but I have absolutely no idea how to post otherwise. YES!!! I am almost completely computer illerate. I paint on rocks mostly but also have done some canvas. I enjoy painting flowers for people to put in their landscapes, etc. I just finished a black panther in a jungle setting for a neighbor and I painted it for him to put outside but they are keeping it in the house and now his wife wants me to paint her a rock full of flowers and butterflies,etc. I am also experimenting with colored pencil drawings and maybe will try watercolors. Oil painting is too strong smelling for me to tolerate. It is getting harder for me to ask the grouchy husband to tote 40-50 rocks up to our second floor apartment. This outlet started less than three years ago because of spending so much time laying around losing my mind to boredom. So I bought one book on painting flowers and I really enjoyed it. I've sold many and that's fun, too. thanks for listening to my late-night rants. lol hugs S. S, I Love hearing about your paintings! I'll try to check the yahoo site sometime soon! Believe me, Dear - "Bitchy Princess" was meant in the most affectionate way!! I only addressed you that way because you closed your rant with it! I LOVE IT that you paint rocks! Love, Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Jeri, I probably shouldn't...but I loved your greeting, 'Dear Bitchy Princess'!!! That is so me! I posted some digital pictures at the yahoogroups site for rock painting but I have absolutely no idea how to post otherwise. YES!!! I am almost completely computer illerate. I paint on rocks mostly but also have done some canvas. I enjoy painting flowers for people to put in their landscapes, etc. I just finished a black panther in a jungle setting for a neighbor and I painted it for him to put outside but they are keeping it in the house and now his wife wants me to paint her a rock full of flowers and butterflies,etc. I am also experimenting with colored pencil drawings and maybe will try watercolors. Oil painting is too strong smelling for me to tolerate. It is getting harder for me to ask the grouchy husband to tote 40-50 rocks up to our second floor apartment. This outlet started less than three years ago because of spending so much time laying around losing my mind to boredom. So I bought one book on painting flowers and I really enjoyed it. I've sold many and that's fun, too. thanks for listening to my late-night rants. lol hugs S. S, I Love hearing about your paintings! I'll try to check the yahoo site sometime soon! Believe me, Dear - "Bitchy Princess" was meant in the most affectionate way!! I only addressed you that way because you closed your rant with it! I LOVE IT that you paint rocks! Love, Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Ok "June" - My oldest kind of reacts the same way, but he is at college during the school year and is here during the summer. SO now he just comes and goes as he pleases. He doesn't stay home much due to a construction job that has long hours and his girlfriend and other friends. I don't see him except for after work when he comes home to take a shower and he's off again. He doesn't like seeing me sick either. He is the most sensitive one of the lot and also the one who used to be the closest to me. Now as you say with the illness, it has changed. But I can say he is a good kid, never gets in trouble (that I know of!) and goes to work and to school. He made the Dean's List this spring. So I just have to live with the fact that he is getting older and is more on his own and pretty soon - he will be off on his own. (Believe me, you guys will hear about that when it happens - I will be upset , I already know!) He is going to school for Enviornmental Studies and would eventually like to make it to be a forest ranger or work for the National Parks. I guess its very hard to become a forest ranger - lots of hard exams and cuts along the ladder up. Only a handful actually make it. But he's determined. Then I got TWO MORE BOYS to contend with after that! You must have more too, I can't remember.............go figure. Luv, Debbierenee kelty wrote: Debbie,Before you get that June Cleaver image burned into you brain, I didn't mention that the majority of our trip was tainted by my eldest son who was rebelling like mad -- everything we suggested was a "drag,' and he really, really hated walking alongside of his gimpy mom riding her lame scooter. He ran away from home just four months later (and broke my heart beyond recover). We managed (well, I managed) to find out that he was on the greyhound headed for NYC. The papers had to go through, so we could not have him removed from the bus until Columbus, Ohio. He refused to come back and live with me. Instead he lived with my brother for four months (his wife assured me they would get him to come home). Finally after my brother complained that this sixteen year old genius was developing all sorts of talents best represented in jail, I let the boy go live with his father.I don't want to get into the mess he had to go through, but I am pleased that he figured out why I divorced his father in a few months. He wouldn't come home, though... said he had made his bed and had to live in it. Luckily he stayed in the advanced track at school, and was a stellar honors student (if you can overlook his constant truancy). He even managed to get accepted into the School of Business as a freshman at IU (unheard of -- students are usually accepted as juniors). He has his life together now (but drinks too much like his old man), but I still cry because I missed so much of his becoming a man. I used to cry to the point of wailing. Now I can control it after a few tears.Sorry about all that. But when he was finally pressed as to why he had to leave it was because he could no longer bear to see his mother disappearing more and more everyday. Heck. I couldn't even go to his graduation and see him recieve a double honor's diploma. It's just so sad. This disease has so many victims beyond those of us who house it in our bodies.I'm slipping some bootstraps under my own pillow tonight.WELLER, WELLER, WELLER, OY, OY, OYRENENES, BOOTSTRAP FAIRY.> - Yeah, I know what you mean about remembering the great times > "before worsening illness"! Those hit me once in awhile too. Thats > okay about going on, I enjoyed the story of your trip. Your husband > sounds like he loves you a lot and would do anything for you. You are > very lucky. The way he fixed up the van and all - it sounds like you > had it all! Sounds like a motor home! That trip must be a very fond > memory etched in your mind. Luv, Debbie> PS The 60 mgs of Pred and 40 mgs of Ritalin must have kept you PLENTY > energized too! lol>> renee kelty wrote:> Debbie,>> Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, we> made the trip in the coolest set up. My in-laws drove up the previous> spring and sold us this xtra large van, partially customized for a> thousand. went out and purchased a small television and VCR> (actually much nicer than the LCD screen that flips down in the new > van> that has the vcr under the right passenger seat.>> He and the kids also bought some kind of converterbox so that we could> plug in the tv and vcr and the three of us could watch while > drove and listened. There was only one bench seat in a van designed> for three. We put in the middle and my husband jury rigged this> awesome bed/storage area in the back. He made or found some palettes> and put legs on them so that the pallete was just lower than the top > of> the bench seat in front off it. He took the two flip chairs from my> sons' room (each flipped out to a twin bed with a pillowl, so together> it was a king!) So dear old gimpy mom usually slept on that princess> bed if there was any long night driving ahead (otherwise I sat in the> front seat taking many movies). Also, below the pallete there was> still room for my scooter--- I just had to remove the seat and put it> upside down under me. There was also plenty of room for all of our> comping gear (we have way too much), and, of course, I just slept on> everyone's sleeping bags, unless the boys wanted to sleep -- one on > the> bench seat and one on the floor. We also had the campkitchen and> cooler in the "hole in the middle" (behind the driving area, We rarely> ate out, and did not have to stop for meals if we didn't want to. Good> thing we had all that room because in Yellowstone EVERYTHING (even> toothpaste) that came in contact with food had to be stored in the Van> when not in use. We were able to camp just fine at Mt. Rushmore, but> our tents only lasted three nights in Yellowstone because the last> night there was snow (on June 10!). We woke up to eight inches, but we> hearty campers still were able to make our morning meal! It made for a> great vacation video!>> There was one last silver lining (other than we had one zero banlance> charge card to help us with lodging for the next two weeks), That was> that even thought the Yellowstone lodges didn't have tv, we had our > own> and plenty of videos for the VCR.>> Sad to say the following fall was when I nosedived and have never been> off oxygen totally. When we want to "get back to nature" now, we just> book two our three nights at one of the state park inns (just like a> motel but better food and better scenery).>> Sorry for blathering on, but you helped me remember some of my last> really fun times. I'm only on night ozygen right now, so if the humira> starts working better, maybe we'll get to an inn yet this summer!>> Take care,> >> WELLER, WELLER, WELLER, OY, OY, OY> RENENES, BOOTSTRAP FAIRY.> >> > Thanks . Yes, I do agree with you there - the trade-off is > worth> > it. The beautiful scenery and the time with my family will be one > of> > those times I will never forget.> > Luv, Debbie> > PS I have no idea how you travelled for 4 weeks and 5000 miles!! > Must> > have used a ton of bootstraps!> >> > rkelty@... wrote:> > As long as it is a sarc victim, he or she will always receive purple> > bootsraps (in recognition of the sarc purple ribbons). However, > other> > colors are available to non sarc folks, and to sarc folks to be used> > with the purple. It is the purple that holds the strength for us.> >> > Sorry you are suffering the payback for a lovely vacation. Imagine > how> > I felt after four weeks and 5000 road miles. Actually, I didn't > suffer> > much at all, but enough that I know I would have been better off> > physically if I had stayed home, but the trade off ( like we make> > every day) is SOOOOO worth it.> >> > Take care,> > REneness, BSF> >> > --> > Life is a menu! Why not go gourmet!> >> >> >> >> >> >> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Neurosarcoidosis Community> >> > Live Group Chat:-> > Mondays & Fridays 10pm EST USA> > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php> >> > Message Archives:-> > http://groups.yahoo.com/group/Neurosarcoidosis/messages> >> > Members Database:-> > Listings of locations, phone numbers, and instant messengers.> > http://groups.yahoo.com/group/Neurosarcoidosis/database> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Ok "June" - My oldest kind of reacts the same way, but he is at college during the school year and is here during the summer. SO now he just comes and goes as he pleases. He doesn't stay home much due to a construction job that has long hours and his girlfriend and other friends. I don't see him except for after work when he comes home to take a shower and he's off again. He doesn't like seeing me sick either. He is the most sensitive one of the lot and also the one who used to be the closest to me. Now as you say with the illness, it has changed. But I can say he is a good kid, never gets in trouble (that I know of!) and goes to work and to school. He made the Dean's List this spring. So I just have to live with the fact that he is getting older and is more on his own and pretty soon - he will be off on his own. (Believe me, you guys will hear about that when it happens - I will be upset , I already know!) He is going to school for Enviornmental Studies and would eventually like to make it to be a forest ranger or work for the National Parks. I guess its very hard to become a forest ranger - lots of hard exams and cuts along the ladder up. Only a handful actually make it. But he's determined. Then I got TWO MORE BOYS to contend with after that! You must have more too, I can't remember.............go figure. Luv, Debbierenee kelty wrote: Debbie,Before you get that June Cleaver image burned into you brain, I didn't mention that the majority of our trip was tainted by my eldest son who was rebelling like mad -- everything we suggested was a "drag,' and he really, really hated walking alongside of his gimpy mom riding her lame scooter. He ran away from home just four months later (and broke my heart beyond recover). We managed (well, I managed) to find out that he was on the greyhound headed for NYC. The papers had to go through, so we could not have him removed from the bus until Columbus, Ohio. He refused to come back and live with me. Instead he lived with my brother for four months (his wife assured me they would get him to come home). Finally after my brother complained that this sixteen year old genius was developing all sorts of talents best represented in jail, I let the boy go live with his father.I don't want to get into the mess he had to go through, but I am pleased that he figured out why I divorced his father in a few months. He wouldn't come home, though... said he had made his bed and had to live in it. Luckily he stayed in the advanced track at school, and was a stellar honors student (if you can overlook his constant truancy). He even managed to get accepted into the School of Business as a freshman at IU (unheard of -- students are usually accepted as juniors). He has his life together now (but drinks too much like his old man), but I still cry because I missed so much of his becoming a man. I used to cry to the point of wailing. Now I can control it after a few tears.Sorry about all that. But when he was finally pressed as to why he had to leave it was because he could no longer bear to see his mother disappearing more and more everyday. Heck. I couldn't even go to his graduation and see him recieve a double honor's diploma. It's just so sad. This disease has so many victims beyond those of us who house it in our bodies.I'm slipping some bootstraps under my own pillow tonight.WELLER, WELLER, WELLER, OY, OY, OYRENENES, BOOTSTRAP FAIRY.> - Yeah, I know what you mean about remembering the great times > "before worsening illness"! Those hit me once in awhile too. Thats > okay about going on, I enjoyed the story of your trip. Your husband > sounds like he loves you a lot and would do anything for you. You are > very lucky. The way he fixed up the van and all - it sounds like you > had it all! Sounds like a motor home! That trip must be a very fond > memory etched in your mind. Luv, Debbie> PS The 60 mgs of Pred and 40 mgs of Ritalin must have kept you PLENTY > energized too! lol>> renee kelty wrote:> Debbie,>> Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, we> made the trip in the coolest set up. My in-laws drove up the previous> spring and sold us this xtra large van, partially customized for a> thousand. went out and purchased a small television and VCR> (actually much nicer than the LCD screen that flips down in the new > van> that has the vcr under the right passenger seat.>> He and the kids also bought some kind of converterbox so that we could> plug in the tv and vcr and the three of us could watch while > drove and listened. There was only one bench seat in a van designed> for three. We put in the middle and my husband jury rigged this> awesome bed/storage area in the back. He made or found some palettes> and put legs on them so that the pallete was just lower than the top > of> the bench seat in front off it. He took the two flip chairs from my> sons' room (each flipped out to a twin bed with a pillowl, so together> it was a king!) So dear old gimpy mom usually slept on that princess> bed if there was any long night driving ahead (otherwise I sat in the> front seat taking many movies). Also, below the pallete there was> still room for my scooter--- I just had to remove the seat and put it> upside down under me. There was also plenty of room for all of our> comping gear (we have way too much), and, of course, I just slept on> everyone's sleeping bags, unless the boys wanted to sleep -- one on > the> bench seat and one on the floor. We also had the campkitchen and> cooler in the "hole in the middle" (behind the driving area, We rarely> ate out, and did not have to stop for meals if we didn't want to. Good> thing we had all that room because in Yellowstone EVERYTHING (even> toothpaste) that came in contact with food had to be stored in the Van> when not in use. We were able to camp just fine at Mt. Rushmore, but> our tents only lasted three nights in Yellowstone because the last> night there was snow (on June 10!). We woke up to eight inches, but we> hearty campers still were able to make our morning meal! It made for a> great vacation video!>> There was one last silver lining (other than we had one zero banlance> charge card to help us with lodging for the next two weeks), That was> that even thought the Yellowstone lodges didn't have tv, we had our > own> and plenty of videos for the VCR.>> Sad to say the following fall was when I nosedived and have never been> off oxygen totally. When we want to "get back to nature" now, we just> book two our three nights at one of the state park inns (just like a> motel but better food and better scenery).>> Sorry for blathering on, but you helped me remember some of my last> really fun times. I'm only on night ozygen right now, so if the humira> starts working better, maybe we'll get to an inn yet this summer!>> Take care,> >> WELLER, WELLER, WELLER, OY, OY, OY> RENENES, BOOTSTRAP FAIRY.> >> > Thanks . Yes, I do agree with you there - the trade-off is > worth> > it. The beautiful scenery and the time with my family will be one > of> > those times I will never forget.> > Luv, Debbie> > PS I have no idea how you travelled for 4 weeks and 5000 miles!! > Must> > have used a ton of bootstraps!> >> > rkelty@... wrote:> > As long as it is a sarc victim, he or she will always receive purple> > bootsraps (in recognition of the sarc purple ribbons). However, > other> > colors are available to non sarc folks, and to sarc folks to be used> > with the purple. It is the purple that holds the strength for us.> >> > Sorry you are suffering the payback for a lovely vacation. Imagine > how> > I felt after four weeks and 5000 road miles. Actually, I didn't > suffer> > much at all, but enough that I know I would have been better off> > physically if I had stayed home, but the trade off ( like we make> > every day) is SOOOOO worth it.> >> > Take care,> > REneness, BSF> >> > --> > Life is a menu! Why not go gourmet!> >> >> >> >> >> >> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Neurosarcoidosis Community> >> > Live Group Chat:-> > Mondays & Fridays 10pm EST USA> > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php> >> > Message Archives:-> > http://groups.yahoo.com/group/Neurosarcoidosis/messages> >> > Members Database:-> > Listings of locations, phone numbers, and instant messengers.> > http://groups.yahoo.com/group/Neurosarcoidosis/database> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Jeri, I took it in an affectionate way. That's why I loved it! hugs S.KangiKanti7@... wrote: Jeri, I probably shouldn't...but I loved your greeting, 'Dear Bitchy Princess'!!! That is so me! I posted some digital pictures at the yahoogroups site for rock painting but I have absolutely no idea how to post otherwise. YES!!! I am almost completely computer illerate. I paint on rocks mostly but also have done some canvas. I enjoy painting flowers for people to put in their landscapes, etc. I just finished a black panther in a jungle setting for a neighbor and I painted it for him to put outside but they are keeping it in the house and now his wife wants me to paint her a rock full of flowers and butterflies,etc. I am also experimenting with colored pencil drawings and maybe will try watercolors. Oil painting is too strong smelling for me to tolerate. It is getting harder for me to ask the grouchy husband to tote 40-50 rocks up to our second floor apartment. This outlet started less than three years ago because of spending so much time laying around losing my mind to boredom. So I bought one book on painting flowers and I really enjoyed it. I've sold many and that's fun, too. thanks for listening to my late-night rants. lol hugs S. S, I Love hearing about your paintings! I'll try to check the yahoo site sometime soon! Believe me, Dear - "Bitchy Princess" was meant in the most affectionate way!! I only addressed you that way because you closed your rant with it! I LOVE IT that you paint rocks! Love, Jeri~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAwww.mirc.com download the program, follow instructions find Server Dalnet then type in /join #NSChat. If you need help please notify at topdat@... or topdat on yahoo messenger.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Jeri, I took it in an affectionate way. That's why I loved it! hugs S.KangiKanti7@... wrote: Jeri, I probably shouldn't...but I loved your greeting, 'Dear Bitchy Princess'!!! That is so me! I posted some digital pictures at the yahoogroups site for rock painting but I have absolutely no idea how to post otherwise. YES!!! I am almost completely computer illerate. I paint on rocks mostly but also have done some canvas. I enjoy painting flowers for people to put in their landscapes, etc. I just finished a black panther in a jungle setting for a neighbor and I painted it for him to put outside but they are keeping it in the house and now his wife wants me to paint her a rock full of flowers and butterflies,etc. I am also experimenting with colored pencil drawings and maybe will try watercolors. Oil painting is too strong smelling for me to tolerate. It is getting harder for me to ask the grouchy husband to tote 40-50 rocks up to our second floor apartment. This outlet started less than three years ago because of spending so much time laying around losing my mind to boredom. So I bought one book on painting flowers and I really enjoyed it. I've sold many and that's fun, too. thanks for listening to my late-night rants. lol hugs S. S, I Love hearing about your paintings! I'll try to check the yahoo site sometime soon! Believe me, Dear - "Bitchy Princess" was meant in the most affectionate way!! I only addressed you that way because you closed your rant with it! I LOVE IT that you paint rocks! Love, Jeri~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAwww.mirc.com download the program, follow instructions find Server Dalnet then type in /join #NSChat. If you need help please notify at topdat@... or topdat on yahoo messenger.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Deb, Zak, my eldest will be a freshman at IU. Whereas my husband (his stepfather) was able to see him every schoolday after Zak left home at sixteen ( is a science teacher and football and rugby coach now -- he does chiropractic on rarely now). It was a comfort that I could get a blow-by-blow account even though it Zak and I awhile to get along ( well, for me NOT to break into tears every time he came over). Now, as is typical of his age, he only comes over with his hand out. We had to give him his dorm deposit. He did tell me his is having a first date with a new girl this evening. I've always thought that if he fell in love with an intelligent and sensitive girl that he would come around more. It would be even sweeter if that girl (he didn't give me the name of this new one yet) went to the same high school, as my husband is a very popular and good-looking teacher. I must admit that the only time Zak would stay with us once or twice a week was when he was dating a nice girl who lived about thirty miles away. She was very (too) religious, but she was very sweet (the problem was that she had to date Zak on the sly since we are Jewish and she was a Jehovah's witness). Last year's girlfriend was very, very demanding of his time and even though she was in his honors classes, she seemed very immature about parents. Maybe I'll get lucky yet. I know that every boyfriend and husband I ever had became much closer to their mothers and fathers at my " suggestion " (nagging), I have hope that he will remember how close we have been in the past a perhaps making our spacious house will be a more attractive base station during his vacations. And, yes, I have another son at home. Hayden is sixteen who is very sweet and devoted and received a prized service award from the same high school this year. He is very much like me -- he loves jazz and playing the sax and his calling in life is the theater, not competitive sports. And yet, even he is drawing away from me and spends much more time with his stepfather. Hayden has made it clear that even if I were to pass away, he wants to stay with and not his biological father. He and give me comfort knowing that I will always have their unconditional love-- it helps us withstand so much. I regret not having more children, but then I think that my boys were so young-- eight and ten -- when I got ill -- any other children would be even smaller. Sorry, once again, to rant, but I'm having my payback day and I feel pretty bad. I also truly soaked through my bedclothes and sheets twice in the pastfourteen hours. It takes so much out of me! WELLER, WELLER, WELLER, OY, OY, OY RENENES, BOOTSTRAP FAIRY. > Ok " June " - > My oldest kind of reacts the same way, but he is at college > during the school year and is here during the summer. SO now he just > comes and goes as he pleases. He doesn't stay home much due to a > construction job that has long hours and his girlfriend and other > friends. I don't see him except for after work when he comes home to > take a shower and he's off again. He doesn't like seeing me sick > either. He is the most sensitive one of the lot and also the one who > used to be the closest to me. Now as you say with the illness, it has > changed. > But I can say he is a good kid, never gets in trouble (that I know > of!) and goes to work and to school. He made the Dean's List this > spring. So I just have to live with the fact that he is getting older > and is more on his own and pretty soon - he will be off on his own. > (Believe me, you guys will hear about that when it happens - I will be > upset , I already know!) He is going to school for Enviornmental > Studies and would eventually like to make it to be a forest ranger or > work for the National Parks. I guess its very hard to become a forest > ranger - lots of hard exams and cuts along the ladder up. Only a > handful actually make it. But he's determined. > Then I got TWO MORE BOYS to contend with after that! You must > have more too, I can't remember.............go figure. > Luv, Debbie > > renee kelty wrote: > Debbie, > > Before you get that June Cleaver image burned into you brain, I didn't > mention that the majority of our trip was tainted by my eldest son who > was rebelling like mad -- everything we suggested was a " drag,' and he > really, really hated walking alongside of his gimpy mom riding her > lame > scooter. He ran away from home just four months later (and broke my > heart beyond recover). We managed (well, I managed) to find out that > he was on the greyhound headed for NYC. The papers had to go through, > so we could not have him removed from the bus until Columbus, Ohio. He > refused to come back and live with me. Instead he lived with my > brother for four months (his wife assured me they would get him to > come > home). Finally after my brother complained that this sixteen year old > genius was developing all sorts of talents best represented in jail, I > let the boy go live with his father. > > I don't want to get into the mess he had to go through, but I am > pleased that he figured out why I divorced his father in a few months. > He wouldn't come home, though... said he had made his bed and had to > live in it. Luckily he stayed in the advanced track at school, and was > a stellar honors student (if you can overlook his constant truancy). > He even managed to get accepted into the > School of Business as a freshman at IU (unheard of -- students are > usually accepted as juniors). He has his life together now (but drinks > too much like his old man), but I still cry because I missed so much > of > his becoming a man. I used to cry to the point of wailing. Now I can > control it after a few tears. > > Sorry about all that. But when he was finally pressed as to why he had > to leave it was because he could no longer bear to see his mother > disappearing more and more everyday. Heck. I couldn't even go to his > graduation and see him recieve a double honor's diploma. It's just so > sad. This disease has so many victims beyond those of us who house it > in our bodies. > > I'm slipping some bootstraps under my own pillow tonight. > > WELLER, WELLER, WELLER, OY, OY, OY > RENENES, BOOTSTRAP FAIRY. > > > > - Yeah, I know what you mean about remembering the great times > > " before worsening illness " ! Those hit me once in awhile too. > Thats > > okay about going on, I enjoyed the story of your trip. Your husband > > sounds like he loves you a lot and would do anything for you. You > are > > very lucky. The way he fixed up the van and all - it sounds like > you > > had it all! Sounds like a motor home! That trip must be a very fond > > memory etched in your mind. Luv, Debbie > > PS The 60 mgs of Pred and 40 mgs of Ritalin must have kept you > PLENTY > > energized too! lol > > > > renee kelty wrote: > > Debbie, > > > > Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, > we > > made the trip in the coolest set up. My in-laws drove up the previous > > spring and sold us this xtra large van, partially customized for a > > thousand. went out and purchased a small television and VCR > > (actually much nicer than the LCD screen that flips down in the new > > van > > that has the vcr under the right passenger seat. > > > > He and the kids also bought some kind of converterbox so that we > could > > plug in the tv and vcr and the three of us could watch while > > drove and listened. There was only one bench seat in a van designed > > for three. We put in the middle and my husband jury rigged this > > awesome bed/storage area in the back. He made or found some palettes > > and put legs on them so that the pallete was just lower than the top > > of > > the bench seat in front off it. He took the two flip chairs from my > > sons' room (each flipped out to a twin bed with a pillowl, so > together > > it was a king!) So dear old gimpy mom usually slept on that princess > > bed if there was any long night driving ahead (otherwise I sat in the > > front seat taking many movies). Also, below the pallete there was > > still room for my scooter--- I just had to remove the seat and put it > > upside down under me. There was also plenty of room for all of our > > comping gear (we have way too much), and, of course, I just slept on > > everyone's sleeping bags, unless the boys wanted to sleep -- one on > > the > > bench seat and one on the floor. We also had the campkitchen and > > cooler in the " hole in the middle " (behind the driving area, We > rarely > > ate out, and did not have to stop for meals if we didn't want to. > Good > > thing we had all that room because in Yellowstone EVERYTHING (even > > toothpaste) that came in contact with food had to be stored in the > Van > > when not in use. We were able to camp just fine at Mt. Rushmore, but > > our tents only lasted three nights in Yellowstone because the last > > night there was snow (on June 10!). We woke up to eight inches, but > we > > hearty campers still were able to make our morning meal! It made for > a > > great vacation video! > > > > There was one last silver lining (other than we had one zero banlance > > charge card to help us with lodging for the next two weeks), That was > > that even thought the Yellowstone lodges didn't have tv, we had our > > own > > and plenty of videos for the VCR. > > > > Sad to say the following fall was when I nosedived and have never > been > > off oxygen totally. When we want to " get back to nature " now, we just > > book two our three nights at one of the state park inns (just like a > > motel but better food and better scenery). > > > > Sorry for blathering on, but you helped me remember some of my last > > really fun times. I'm only on night ozygen right now, so if the > humira > > starts working better, maybe we'll get to an inn yet this summer! > > > > Take care, > > > > > > WELLER, WELLER, WELLER, OY, OY, OY > > RENENES, BOOTSTRAP FAIRY. > > > > > > > Thanks . Yes, I do agree with you there - the trade-off is > > worth > > > it. The beautiful scenery and the time with my family will be one > > of > > > those times I will never forget. > > > Luv, Debbie > > > PS I have no idea how you travelled for 4 weeks and 5000 miles!! > > Must > > > have used a ton of bootstraps! > > > > > > rkelty@... wrote: > > > As long as it is a sarc victim, he or she will always receive > purple > > > bootsraps (in recognition of the sarc purple ribbons). However, > > other > > > colors are available to non sarc folks, and to sarc folks to be > used > > > with the purple. It is the purple that holds the strength for us. > > > > > > Sorry you are suffering the payback for a lovely vacation. Imagine > > how > > > I felt after four weeks and 5000 road miles. Actually, I didn't > > suffer > > > much at all, but enough that I know I would have been better off > > > physically if I had stayed home, but the trade off ( like we make > > > every day) is SOOOOO worth it. > > > > > > Take care, > > > REneness, BSF > > > > > > -- > > > Life is a menu! Why not go gourmet! > > > > > > > > > > > > > > > > > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > The Neurosarcoidosis Community > > > > > > Live Group Chat:- > > > Mondays & Fridays 10pm EST USA > > > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > > > > > Message Archives:- > > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > > > > > Members Database:- > > > Listings of locations, phone numbers, and instant messengers. > > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Deb, Zak, my eldest will be a freshman at IU. Whereas my husband (his stepfather) was able to see him every schoolday after Zak left home at sixteen ( is a science teacher and football and rugby coach now -- he does chiropractic on rarely now). It was a comfort that I could get a blow-by-blow account even though it Zak and I awhile to get along ( well, for me NOT to break into tears every time he came over). Now, as is typical of his age, he only comes over with his hand out. We had to give him his dorm deposit. He did tell me his is having a first date with a new girl this evening. I've always thought that if he fell in love with an intelligent and sensitive girl that he would come around more. It would be even sweeter if that girl (he didn't give me the name of this new one yet) went to the same high school, as my husband is a very popular and good-looking teacher. I must admit that the only time Zak would stay with us once or twice a week was when he was dating a nice girl who lived about thirty miles away. She was very (too) religious, but she was very sweet (the problem was that she had to date Zak on the sly since we are Jewish and she was a Jehovah's witness). Last year's girlfriend was very, very demanding of his time and even though she was in his honors classes, she seemed very immature about parents. Maybe I'll get lucky yet. I know that every boyfriend and husband I ever had became much closer to their mothers and fathers at my " suggestion " (nagging), I have hope that he will remember how close we have been in the past a perhaps making our spacious house will be a more attractive base station during his vacations. And, yes, I have another son at home. Hayden is sixteen who is very sweet and devoted and received a prized service award from the same high school this year. He is very much like me -- he loves jazz and playing the sax and his calling in life is the theater, not competitive sports. And yet, even he is drawing away from me and spends much more time with his stepfather. Hayden has made it clear that even if I were to pass away, he wants to stay with and not his biological father. He and give me comfort knowing that I will always have their unconditional love-- it helps us withstand so much. I regret not having more children, but then I think that my boys were so young-- eight and ten -- when I got ill -- any other children would be even smaller. Sorry, once again, to rant, but I'm having my payback day and I feel pretty bad. I also truly soaked through my bedclothes and sheets twice in the pastfourteen hours. It takes so much out of me! WELLER, WELLER, WELLER, OY, OY, OY RENENES, BOOTSTRAP FAIRY. > Ok " June " - > My oldest kind of reacts the same way, but he is at college > during the school year and is here during the summer. SO now he just > comes and goes as he pleases. He doesn't stay home much due to a > construction job that has long hours and his girlfriend and other > friends. I don't see him except for after work when he comes home to > take a shower and he's off again. He doesn't like seeing me sick > either. He is the most sensitive one of the lot and also the one who > used to be the closest to me. Now as you say with the illness, it has > changed. > But I can say he is a good kid, never gets in trouble (that I know > of!) and goes to work and to school. He made the Dean's List this > spring. So I just have to live with the fact that he is getting older > and is more on his own and pretty soon - he will be off on his own. > (Believe me, you guys will hear about that when it happens - I will be > upset , I already know!) He is going to school for Enviornmental > Studies and would eventually like to make it to be a forest ranger or > work for the National Parks. I guess its very hard to become a forest > ranger - lots of hard exams and cuts along the ladder up. Only a > handful actually make it. But he's determined. > Then I got TWO MORE BOYS to contend with after that! You must > have more too, I can't remember.............go figure. > Luv, Debbie > > renee kelty wrote: > Debbie, > > Before you get that June Cleaver image burned into you brain, I didn't > mention that the majority of our trip was tainted by my eldest son who > was rebelling like mad -- everything we suggested was a " drag,' and he > really, really hated walking alongside of his gimpy mom riding her > lame > scooter. He ran away from home just four months later (and broke my > heart beyond recover). We managed (well, I managed) to find out that > he was on the greyhound headed for NYC. The papers had to go through, > so we could not have him removed from the bus until Columbus, Ohio. He > refused to come back and live with me. Instead he lived with my > brother for four months (his wife assured me they would get him to > come > home). Finally after my brother complained that this sixteen year old > genius was developing all sorts of talents best represented in jail, I > let the boy go live with his father. > > I don't want to get into the mess he had to go through, but I am > pleased that he figured out why I divorced his father in a few months. > He wouldn't come home, though... said he had made his bed and had to > live in it. Luckily he stayed in the advanced track at school, and was > a stellar honors student (if you can overlook his constant truancy). > He even managed to get accepted into the > School of Business as a freshman at IU (unheard of -- students are > usually accepted as juniors). He has his life together now (but drinks > too much like his old man), but I still cry because I missed so much > of > his becoming a man. I used to cry to the point of wailing. Now I can > control it after a few tears. > > Sorry about all that. But when he was finally pressed as to why he had > to leave it was because he could no longer bear to see his mother > disappearing more and more everyday. Heck. I couldn't even go to his > graduation and see him recieve a double honor's diploma. It's just so > sad. This disease has so many victims beyond those of us who house it > in our bodies. > > I'm slipping some bootstraps under my own pillow tonight. > > WELLER, WELLER, WELLER, OY, OY, OY > RENENES, BOOTSTRAP FAIRY. > > > > - Yeah, I know what you mean about remembering the great times > > " before worsening illness " ! Those hit me once in awhile too. > Thats > > okay about going on, I enjoyed the story of your trip. Your husband > > sounds like he loves you a lot and would do anything for you. You > are > > very lucky. The way he fixed up the van and all - it sounds like > you > > had it all! Sounds like a motor home! That trip must be a very fond > > memory etched in your mind. Luv, Debbie > > PS The 60 mgs of Pred and 40 mgs of Ritalin must have kept you > PLENTY > > energized too! lol > > > > renee kelty wrote: > > Debbie, > > > > Well, I was on 60 mg of prednisone and 40mg of ritalin a day. Also, > we > > made the trip in the coolest set up. My in-laws drove up the previous > > spring and sold us this xtra large van, partially customized for a > > thousand. went out and purchased a small television and VCR > > (actually much nicer than the LCD screen that flips down in the new > > van > > that has the vcr under the right passenger seat. > > > > He and the kids also bought some kind of converterbox so that we > could > > plug in the tv and vcr and the three of us could watch while > > drove and listened. There was only one bench seat in a van designed > > for three. We put in the middle and my husband jury rigged this > > awesome bed/storage area in the back. He made or found some palettes > > and put legs on them so that the pallete was just lower than the top > > of > > the bench seat in front off it. He took the two flip chairs from my > > sons' room (each flipped out to a twin bed with a pillowl, so > together > > it was a king!) So dear old gimpy mom usually slept on that princess > > bed if there was any long night driving ahead (otherwise I sat in the > > front seat taking many movies). Also, below the pallete there was > > still room for my scooter--- I just had to remove the seat and put it > > upside down under me. There was also plenty of room for all of our > > comping gear (we have way too much), and, of course, I just slept on > > everyone's sleeping bags, unless the boys wanted to sleep -- one on > > the > > bench seat and one on the floor. We also had the campkitchen and > > cooler in the " hole in the middle " (behind the driving area, We > rarely > > ate out, and did not have to stop for meals if we didn't want to. > Good > > thing we had all that room because in Yellowstone EVERYTHING (even > > toothpaste) that came in contact with food had to be stored in the > Van > > when not in use. We were able to camp just fine at Mt. Rushmore, but > > our tents only lasted three nights in Yellowstone because the last > > night there was snow (on June 10!). We woke up to eight inches, but > we > > hearty campers still were able to make our morning meal! It made for > a > > great vacation video! > > > > There was one last silver lining (other than we had one zero banlance > > charge card to help us with lodging for the next two weeks), That was > > that even thought the Yellowstone lodges didn't have tv, we had our > > own > > and plenty of videos for the VCR. > > > > Sad to say the following fall was when I nosedived and have never > been > > off oxygen totally. When we want to " get back to nature " now, we just > > book two our three nights at one of the state park inns (just like a > > motel but better food and better scenery). > > > > Sorry for blathering on, but you helped me remember some of my last > > really fun times. I'm only on night ozygen right now, so if the > humira > > starts working better, maybe we'll get to an inn yet this summer! > > > > Take care, > > > > > > WELLER, WELLER, WELLER, OY, OY, OY > > RENENES, BOOTSTRAP FAIRY. > > > > > > > Thanks . Yes, I do agree with you there - the trade-off is > > worth > > > it. The beautiful scenery and the time with my family will be one > > of > > > those times I will never forget. > > > Luv, Debbie > > > PS I have no idea how you travelled for 4 weeks and 5000 miles!! > > Must > > > have used a ton of bootstraps! > > > > > > rkelty@... wrote: > > > As long as it is a sarc victim, he or she will always receive > purple > > > bootsraps (in recognition of the sarc purple ribbons). However, > > other > > > colors are available to non sarc folks, and to sarc folks to be > used > > > with the purple. It is the purple that holds the strength for us. > > > > > > Sorry you are suffering the payback for a lovely vacation. Imagine > > how > > > I felt after four weeks and 5000 road miles. Actually, I didn't > > suffer > > > much at all, but enough that I know I would have been better off > > > physically if I had stayed home, but the trade off ( like we make > > > every day) is SOOOOO worth it. > > > > > > Take care, > > > REneness, BSF > > > > > > -- > > > Life is a menu! Why not go gourmet! > > > > > > > > > > > > > > > > > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > The Neurosarcoidosis Community > > > > > > Live Group Chat:- > > > Mondays & Fridays 10pm EST USA > > > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > > > > > Message Archives:- > > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > > > > > Members Database:- > > > Listings of locations, phone numbers, and instant messengers. > > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Keep it coming, - Tell us all about it! Let us share your Joy and pain! We Love you! L & L, Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Keep it coming, - Tell us all about it! Let us share your Joy and pain! We Love you! L & L, Jeri Quote Link to comment Share on other sites More sharing options...
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