Re: Inga: Short-term use of GH

[Guest guest]

Inga -

Re your post about short-term use of GH. This is a question

currently in the thoughts of many doctors, including Dr. H. A large

European study (Dr. Wollmann who spoke at the MAGIC convention) gave

double-doses of GH for just 2-3 years. Basically what they found is

that when they stopped, about half the kids' growth fell back down to

their original low curves (so you would begin the GH again). But the

other half just fell a little bit and then began a new curve.

So.... it all depends on what you want in end result. If you want

EVERY INCH YOU CAN GET - then you should do GH and not stop at any

time (if you stop, and then later start again, you will forfeit some

incremental height in the end).

If you are willing to play the odds a bit, you have options. I have

never posted this before, but my husband and I have already decided

(and discussed this with Dr. H with her approval), that we are going

to continue 's GH nightly injections UNTIL her height growth

slows down to that of a " normal " child -roughly 2 inches a year.

Studies have found that this often occurs after about 3 years on GH.

We are hoping that will be at the 35%'tile in height at that

time (of course, Dr. H is shooting for 50%'tile or greater). At that

point, we will discontinue GH, and monitor her. If her height drops

below the 10%'tile, then we will start the GH again.

I want to caution everyone that the percentile groupings I use are

PERSONAL, based on 's projected height without having RSS

(she would have been 5'8 " without RSS). Each family's decision

should be based on what their own child's target height is.

But to be honest, if it was our son Tyler that had GH, my husband has

said that he would not play the odds. Because discontinuing the GH

for even 3-6 months can mean a loss of an inch or so at the end.

Clearly, this is a personal decision. I have posted the GH/Insulin

resistance question to Dr. Harbison and to Gayle Duca, the MAGIC GHD

director.

> >> > Hi,

> >> >

> >> > I am new to the group. I have a 9 year old son who has been

on GH

> >> > for 3 years. Recently, I have learned that Joe may need to

have a

> >>3

> >> > day stay at the hospital for blood draws on IGFTT (whatever

that

> >>is)

> >> > and checking for insulin resistance. Jodi, or anyone else, do

you

> >> > have any help for me. I am concerned that this may mean he is

> >> > developing diabetes. Is this something to be worried about

with

> >> > using GH? According to his endo, he is in the pre-pubescent

time

> >> > frame with no visible signs of puberty.

> >> >

> >> > Thanks for you help.

> >> > Marie

> >>

> >

> >

> >_________________________________________________________________

> >Join the world's largest e-mail service with MSN Hotmail.

> >http://www.hotmail.com

> >

> >

> >

> >

> >

> >

[Guest guest]

Inga -

Re your post about short-term use of GH. This is a question

currently in the thoughts of many doctors, including Dr. H. A large

European study (Dr. Wollmann who spoke at the MAGIC convention) gave

double-doses of GH for just 2-3 years. Basically what they found is

that when they stopped, about half the kids' growth fell back down to

their original low curves (so you would begin the GH again). But the

other half just fell a little bit and then began a new curve.

So.... it all depends on what you want in end result. If you want

EVERY INCH YOU CAN GET - then you should do GH and not stop at any

time (if you stop, and then later start again, you will forfeit some

incremental height in the end).

If you are willing to play the odds a bit, you have options. I have

never posted this before, but my husband and I have already decided

(and discussed this with Dr. H with her approval), that we are going

to continue 's GH nightly injections UNTIL her height growth

slows down to that of a " normal " child -roughly 2 inches a year.

Studies have found that this often occurs after about 3 years on GH.

We are hoping that will be at the 35%'tile in height at that

time (of course, Dr. H is shooting for 50%'tile or greater). At that

point, we will discontinue GH, and monitor her. If her height drops

below the 10%'tile, then we will start the GH again.

I want to caution everyone that the percentile groupings I use are

PERSONAL, based on 's projected height without having RSS

(she would have been 5'8 " without RSS). Each family's decision

should be based on what their own child's target height is.

But to be honest, if it was our son Tyler that had GH, my husband has

said that he would not play the odds. Because discontinuing the GH

for even 3-6 months can mean a loss of an inch or so at the end.

Clearly, this is a personal decision. I have posted the GH/Insulin

resistance question to Dr. Harbison and to Gayle Duca, the MAGIC GHD

director.

> >> > Hi,

> >> >

> >> > I am new to the group. I have a 9 year old son who has been

on GH

> >> > for 3 years. Recently, I have learned that Joe may need to

have a

> >>3

> >> > day stay at the hospital for blood draws on IGFTT (whatever

that

> >>is)

> >> > and checking for insulin resistance. Jodi, or anyone else, do

you

> >> > have any help for me. I am concerned that this may mean he is

> >> > developing diabetes. Is this something to be worried about

with

> >> > using GH? According to his endo, he is in the pre-pubescent

time

> >> > frame with no visible signs of puberty.

> >> >

> >> > Thanks for you help.

> >> > Marie

> >>

> >

> >

> >_________________________________________________________________

> >Join the world's largest e-mail service with MSN Hotmail.

> >http://www.hotmail.com

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks, . It is good to hear this info on the height question. I'm

actually having an additional reason for liking to use growth hormone, though -

bulking. I read an article about the use of GH for cystic fibrosis patients at

around the 5th percentile weight to height and it significantly improved their

weight to height, muscle, etc. I feel that with Tim being at less than the

first percentile weight to height, the combination of g-tube and GH for several

years could really help his muscle/bone mass which could have a lot of

practical implications when he gets older..

Inga

At 07:49 AM 12/31/2001 +0000, you wrote:

>

> Inga -

>

> Re your post about short-term use of GH. This is a question

> currently in the thoughts of many doctors, including Dr. H. A large

> European study (Dr. Wollmann who spoke at the MAGIC convention) gave

> double-doses of GH for just 2-3 years. Basically what they found is

> that when they stopped, about half the kids' growth fell back down to

> their original low curves (so you would begin the GH again). But the

> other half just fell a little bit and then began a new curve.

>

> So.... it all depends on what you want in end result. If you want

> EVERY INCH YOU CAN GET - then you should do GH and not stop at any

> time (if you stop, and then later start again, you will forfeit some

> incremental height in the end).

>

> If you are willing to play the odds a bit, you have options. I have

> never posted this before, but my husband and I have already decided

> (and discussed this with Dr. H with her approval), that we are going

> to continue 's GH nightly injections UNTIL her height growth

> slows down to that of a " normal " child -roughly 2 inches a year.

> Studies have found that this often occurs after about 3 years on GH.

> We are hoping that will be at the 35%'tile in height at that

> time (of course, Dr. H is shooting for 50%'tile or greater). At that

> point, we will discontinue GH, and monitor her. If her height drops

> below the 10%'tile, then we will start the GH again.

>

> I want to caution everyone that the percentile groupings I use are

> PERSONAL, based on 's projected height without having RSS

> (she would have been 5'8 " without RSS). Each family's decision

> should be based on what their own child's target height is.

>

> But to be honest, if it was our son Tyler that had GH, my husband has

> said that he would not play the odds. Because discontinuing the GH

> for even 3-6 months can mean a loss of an inch or so at the end.

>

> Clearly, this is a personal decision. I have posted the GH/Insulin

> resistance question to Dr. Harbison and to Gayle Duca, the MAGIC GHD

> director.

>

>

>

>

> > >> > Hi,

> > >> >

> > >> > I am new to the group. I have a 9 year old son who has been

> on GH

> > >> > for 3 years. Recently, I have learned that Joe may need to

> have a

> > >>3

> > >> > day stay at the hospital for blood draws on IGFTT (whatever

> that

> > >>is)

> > >> > and checking for insulin resistance. Jodi, or anyone else, do

> you

> > >> > have any help for me. I am concerned that this may mean he is

> > >> > developing diabetes. Is this something to be worried about

> with

> > >> > using GH? According to his endo, he is in the pre-pubescent

> time

> > >> > frame with no visible signs of puberty.

> > >> >

> > >> > Thanks for you help.

> > >> > Marie

> > >>

> > >

> > >

> > >_________________________________________________________________

> > >Join the world's largest e-mail service with MSN Hotmail.

> > ><http://www.hotmail.com>http://www.hotmail.com

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thanks, . It is good to hear this info on the height question. I'm

actually having an additional reason for liking to use growth hormone, though -

bulking. I read an article about the use of GH for cystic fibrosis patients at

around the 5th percentile weight to height and it significantly improved their

weight to height, muscle, etc. I feel that with Tim being at less than the

first percentile weight to height, the combination of g-tube and GH for several

years could really help his muscle/bone mass which could have a lot of

practical implications when he gets older..

Inga

At 07:49 AM 12/31/2001 +0000, you wrote:

>

> Inga -

>

> Re your post about short-term use of GH. This is a question

> currently in the thoughts of many doctors, including Dr. H. A large

> European study (Dr. Wollmann who spoke at the MAGIC convention) gave

> double-doses of GH for just 2-3 years. Basically what they found is

> that when they stopped, about half the kids' growth fell back down to

> their original low curves (so you would begin the GH again). But the

> other half just fell a little bit and then began a new curve.

>

> So.... it all depends on what you want in end result. If you want

> EVERY INCH YOU CAN GET - then you should do GH and not stop at any

> time (if you stop, and then later start again, you will forfeit some

> incremental height in the end).

>

> If you are willing to play the odds a bit, you have options. I have

> never posted this before, but my husband and I have already decided

> (and discussed this with Dr. H with her approval), that we are going

> to continue 's GH nightly injections UNTIL her height growth

> slows down to that of a " normal " child -roughly 2 inches a year.

> Studies have found that this often occurs after about 3 years on GH.

> We are hoping that will be at the 35%'tile in height at that

> time (of course, Dr. H is shooting for 50%'tile or greater). At that

> point, we will discontinue GH, and monitor her. If her height drops

> below the 10%'tile, then we will start the GH again.

>

> I want to caution everyone that the percentile groupings I use are

> PERSONAL, based on 's projected height without having RSS

> (she would have been 5'8 " without RSS). Each family's decision

> should be based on what their own child's target height is.

>

> But to be honest, if it was our son Tyler that had GH, my husband has

> said that he would not play the odds. Because discontinuing the GH

> for even 3-6 months can mean a loss of an inch or so at the end.

>

> Clearly, this is a personal decision. I have posted the GH/Insulin

> resistance question to Dr. Harbison and to Gayle Duca, the MAGIC GHD

> director.

>

>

>

>

> > >> > Hi,

> > >> >

> > >> > I am new to the group. I have a 9 year old son who has been

> on GH

> > >> > for 3 years. Recently, I have learned that Joe may need to

> have a

> > >>3

> > >> > day stay at the hospital for blood draws on IGFTT (whatever

> that

> > >>is)

> > >> > and checking for insulin resistance. Jodi, or anyone else, do

> you

> > >> > have any help for me. I am concerned that this may mean he is

> > >> > developing diabetes. Is this something to be worried about

> with

> > >> > using GH? According to his endo, he is in the pre-pubescent

> time

> > >> > frame with no visible signs of puberty.

> > >> >

> > >> > Thanks for you help.

> > >> > Marie

> > >>

> > >

> > >

> > >_________________________________________________________________

> > >Join the world's largest e-mail service with MSN Hotmail.

> > ><http://www.hotmail.com>http://www.hotmail.com

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Jodi,

Yeah, we're really not so social this year - we tucked Tim in after staying up

a bit to play a new card game he got for Christmas and then Rob and I talked on

the couch awhile, not staying up to welcome in the New Year, though I'm

planning to try and call a friend in Australia later tonight to see if the

fires have affected her...

We have also joined the Little People of America, year-by-year - it's actually

cheaper to get a lifetime membership, but we just weren't sure we would until

Tim wanted it. Yet we have met some fantastic people in that organization,

even though I haven't gotten around to much more than the annual campout, which

Tim loves. Most members have achondroplasia, which will not respond to GH. I

remember being greeting by one full-grown gentleman around Tim's height now,

who held himself with such dignity. That's what I want the most for Tim. I

want him to be big 'on the inside'. But I do want to do what is best

considering all factors to help with his physical challenges as well. Whew,

like you said, it's never easy!

I send my love, hugs, and prayers to you and your family for 2002!

Inga

At 09:08 PM 12/31/2001 -0500, you wrote:

>

> Inga,

>

> Bulking Max up was one of the reasons that led us to start gh with him as

> well. He definitely became stronger after using it for awhile. I sincerely

> hope that you have the success that we have had in that department.

> Unfortunately, it is no longer giving him the height advantage that he used

> to have, but according to Dr. H., that is not the norm, so don't worry about

> that. Poor Max. He seems to get the bad end of so many things....At least

> he is a great kid.

>

> As I said to Annette in an earlier message, the biggest change we have seen

> in Max over the past 6 months is his increase in bulk/weight. I know that is

> because of the Risperdal that he is taking for Tourette's Syndrome. It is

> nice to see him outgrowing clothes now and to hug him and feel broad

> shoulders and a tummy. We are walking that delicate line, however, of not

> eating too much, but needing to eat to help him grow. It's never easy, huh?

>

> I hope that you have a happy and healthy new year. We've already been out to

> a nice dinner with the two kids and now my husband is the chauffer for four

> teens to go to an alchohol-free party. So much for family time. It's nine

> o'clock and I'm already in my pj's. What a social life.

>

> Jodi

> Re: Re: Inga: Short-term use of GH

>

>

> Thanks, . It is good to hear this info on the height question.

> I'm

> actually having an additional reason for liking to use growth hormone,

> though -

> bulking. I read an article about the use of GH for cystic fibrosis

> patients at

> around the 5th percentile weight to height and it significantly improved

> their

> weight to height, muscle, etc. I feel that with Tim being at less than the

> first percentile weight to height, the combination of g-tube and GH for

> several

> years could really help his muscle/bone mass which could have a lot of

> practical implications when he gets older..

>

> Inga

>

> At 07:49 AM 12/31/2001 +0000, you wrote:

> >

> > Inga -

> >

> > Re your post about short-term use of GH. This is a question

> > currently in the thoughts of many doctors, including Dr. H. A large

> > European study (Dr. Wollmann who spoke at the MAGIC convention) gave

> > double-doses of GH for just 2-3 years. Basically what they found is

> > that when they stopped, about half the kids' growth fell back down to

> > their original low curves (so you would begin the GH again). But the

> > other half just fell a little bit and then began a new curve.

> >

> > So.... it all depends on what you want in end result. If you want

> > EVERY INCH YOU CAN GET - then you should do GH and not stop at any

> > time (if you stop, and then later start again, you will forfeit some

> > incremental height in the end).

> >

> > If you are willing to play the odds a bit, you have options. I have

> > never posted this before, but my husband and I have already decided

> > (and discussed this with Dr. H with her approval), that we are going

> > to continue 's GH nightly injections UNTIL her height growth

> > slows down to that of a " normal " child -roughly 2 inches a year.

> > Studies have found that this often occurs after about 3 years on GH.

> > We are hoping that will be at the 35%'tile in height at that

> > time (of course, Dr. H is shooting for 50%'tile or greater). At that

> > point, we will discontinue GH, and monitor her. If her height drops

> > below the 10%'tile, then we will start the GH again.

> >

> > I want to caution everyone that the percentile groupings I use are

> > PERSONAL, based on 's projected height without having RSS

> > (she would have been 5'8 " without RSS). Each family's decision

> > should be based on what their own child's target height is.

> >

> > But to be honest, if it was our son Tyler that had GH, my husband has

> > said that he would not play the odds. Because discontinuing the GH

> > for even 3-6 months can mean a loss of an inch or so at the end.

> >

> > Clearly, this is a personal decision. I have posted the GH/Insulin

> > resistance question to Dr. Harbison and to Gayle Duca, the MAGIC GHD

> > director.

> >

> >

> >

> >

> > > >> > Hi,

> > > >> >

> > > >> > I am new to the group. I have a 9 year old son who has been

> > on GH

> > > >> > for 3 years. Recently, I have learned that Joe may need to

> > have a

> > > >>3

> > > >> > day stay at the hospital for blood draws on IGFTT (whatever

> > that

> > > >>is)

> > > >> > and checking for insulin resistance. Jodi, or anyone else, do

> > you

> > > >> > have any help for me. I am concerned that this may mean he is

> > > >> > developing diabetes. Is this something to be worried about

> > with

> > > >> > using GH? According to his endo, he is in the pre-pubescent

> > time

> > > >> > frame with no visible signs of puberty.

> > > >> >

> > > >> > Thanks for you help.

> > > >> > Marie

> > > >>

> > > >

> > > >

> > > >_________________________________________________________________

> > > >Join the world's largest e-mail service with MSN Hotmail.

> > > ><<http://www.hotmail.com>http://www.hotmail.com>http://www.hotmail.com

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Jodi,

Yeah, we're really not so social this year - we tucked Tim in after staying up

a bit to play a new card game he got for Christmas and then Rob and I talked on

the couch awhile, not staying up to welcome in the New Year, though I'm

planning to try and call a friend in Australia later tonight to see if the

fires have affected her...

We have also joined the Little People of America, year-by-year - it's actually

cheaper to get a lifetime membership, but we just weren't sure we would until

Tim wanted it. Yet we have met some fantastic people in that organization,

even though I haven't gotten around to much more than the annual campout, which

Tim loves. Most members have achondroplasia, which will not respond to GH. I

remember being greeting by one full-grown gentleman around Tim's height now,

who held himself with such dignity. That's what I want the most for Tim. I

want him to be big 'on the inside'. But I do want to do what is best

considering all factors to help with his physical challenges as well. Whew,

like you said, it's never easy!

I send my love, hugs, and prayers to you and your family for 2002!

Inga

At 09:08 PM 12/31/2001 -0500, you wrote:

>

> Inga,

>

> Bulking Max up was one of the reasons that led us to start gh with him as

> well. He definitely became stronger after using it for awhile. I sincerely

> hope that you have the success that we have had in that department.

> Unfortunately, it is no longer giving him the height advantage that he used

> to have, but according to Dr. H., that is not the norm, so don't worry about

> that. Poor Max. He seems to get the bad end of so many things....At least

> he is a great kid.

>

> As I said to Annette in an earlier message, the biggest change we have seen

> in Max over the past 6 months is his increase in bulk/weight. I know that is

> because of the Risperdal that he is taking for Tourette's Syndrome. It is

> nice to see him outgrowing clothes now and to hug him and feel broad

> shoulders and a tummy. We are walking that delicate line, however, of not

> eating too much, but needing to eat to help him grow. It's never easy, huh?

>

> I hope that you have a happy and healthy new year. We've already been out to

> a nice dinner with the two kids and now my husband is the chauffer for four

> teens to go to an alchohol-free party. So much for family time. It's nine

> o'clock and I'm already in my pj's. What a social life.

>

> Jodi

> Re: Re: Inga: Short-term use of GH

>

>

> Thanks, . It is good to hear this info on the height question.

> I'm

> actually having an additional reason for liking to use growth hormone,

> though -

> bulking. I read an article about the use of GH for cystic fibrosis

> patients at

> around the 5th percentile weight to height and it significantly improved

> their

> weight to height, muscle, etc. I feel that with Tim being at less than the

> first percentile weight to height, the combination of g-tube and GH for

> several

> years could really help his muscle/bone mass which could have a lot of

> practical implications when he gets older..

>

> Inga

>

> At 07:49 AM 12/31/2001 +0000, you wrote:

> >

> > Inga -

> >

> > Re your post about short-term use of GH. This is a question

> > currently in the thoughts of many doctors, including Dr. H. A large

> > European study (Dr. Wollmann who spoke at the MAGIC convention) gave

> > double-doses of GH for just 2-3 years. Basically what they found is

> > that when they stopped, about half the kids' growth fell back down to

> > their original low curves (so you would begin the GH again). But the

> > other half just fell a little bit and then began a new curve.

> >

> > So.... it all depends on what you want in end result. If you want

> > EVERY INCH YOU CAN GET - then you should do GH and not stop at any

> > time (if you stop, and then later start again, you will forfeit some

> > incremental height in the end).

> >

> > If you are willing to play the odds a bit, you have options. I have

> > never posted this before, but my husband and I have already decided

> > (and discussed this with Dr. H with her approval), that we are going

> > to continue 's GH nightly injections UNTIL her height growth

> > slows down to that of a " normal " child -roughly 2 inches a year.

> > Studies have found that this often occurs after about 3 years on GH.

> > We are hoping that will be at the 35%'tile in height at that

> > time (of course, Dr. H is shooting for 50%'tile or greater). At that

> > point, we will discontinue GH, and monitor her. If her height drops

> > below the 10%'tile, then we will start the GH again.

> >

> > I want to caution everyone that the percentile groupings I use are

> > PERSONAL, based on 's projected height without having RSS

> > (she would have been 5'8 " without RSS). Each family's decision

> > should be based on what their own child's target height is.

> >

> > But to be honest, if it was our son Tyler that had GH, my husband has

> > said that he would not play the odds. Because discontinuing the GH

> > for even 3-6 months can mean a loss of an inch or so at the end.

> >

> > Clearly, this is a personal decision. I have posted the GH/Insulin

> > resistance question to Dr. Harbison and to Gayle Duca, the MAGIC GHD

> > director.

> >

> >

> >

> >

> > > >> > Hi,

> > > >> >

> > > >> > I am new to the group. I have a 9 year old son who has been

> > on GH

> > > >> > for 3 years. Recently, I have learned that Joe may need to

> > have a

> > > >>3

> > > >> > day stay at the hospital for blood draws on IGFTT (whatever

> > that

> > > >>is)

> > > >> > and checking for insulin resistance. Jodi, or anyone else, do

> > you

> > > >> > have any help for me. I am concerned that this may mean he is

> > > >> > developing diabetes. Is this something to be worried about

> > with

> > > >> > using GH? According to his endo, he is in the pre-pubescent

> > time

> > > >> > frame with no visible signs of puberty.

> > > >> >

> > > >> > Thanks for you help.

> > > >> > Marie

> > > >>

> > > >

> > > >

> > > >_________________________________________________________________

> > > >Join the world's largest e-mail service with MSN Hotmail.

> > > ><<http://www.hotmail.com>http://www.hotmail.com>http://www.hotmail.com

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Inga - 100% agree!!!! has gained 8 pounds since beginning GH

(this after the initial 3 pounds for the first 3 months of

Periactin). She doesn't look " heavier " -she just has wonderful

muscle mass. Her health has improved dramatically, with NO colds or

anything in 12 months.....cross our fingers...

> > > >> > Hi,

> > > >> >

> > > >> > I am new to the group. I have a 9 year old son who has

been

> > on GH

> > > >> > for 3 years. Recently, I have learned that Joe may need

to

> > have a

> > > >>3

> > > >> > day stay at the hospital for blood draws on IGFTT

(whatever

> > that

> > > >>is)

> > > >> > and checking for insulin resistance. Jodi, or anyone

else, do

> > you

> > > >> > have any help for me. I am concerned that this may mean

he is

> > > >> > developing diabetes. Is this something to be worried

about

> > with

> > > >> > using GH? According to his endo, he is in the pre-

pubescent

> > time

> > > >> > frame with no visible signs of puberty.

> > > >> >

> > > >> > Thanks for you help.

> > > >> > Marie

> > > >>

> > > >

> > > >

> > >

>_________________________________________________________________

> > > >Join the world's largest e-mail service with MSN Hotmail.

> > > ><http://www.hotmail.com>http://www.hotmail.com

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >