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Miranda,

I have VV and have been doing basic yoga for about 8

months now. I love it. My PT told me that not only is

my vestibule inflammed but all the muscles surrounding

the area are short and tight which leads to

exaggerated pain when provoced (sp?).

I think that I naturarally tense up in my abdomen when

I'm stressed which hurts my condition. Yoga has helped

me not only to stretch so many muscles but also help

me with my breathing. This in turn has helped me to

'tell' my pelvic floor to relax - not something that

came easy to me for quite some time.

I stick to 'heated' yoga only so I can't speak on

behalf of non-heated classes.

Good luck with your recovery!

--

--- wavemiranda wrote:

> Hello girls! I'm almost done my little working

> holiday here in

> Vancouver and heading back to Toronto Saturday. I

> was trying to

> think of what I want to achieve this year in terms

> of treatment and

> progress with my VV.

>

> I think one of my main goals in dealing with this is

> to explore

> every non-medical option (no drugs,surgery,physio)

> before I resort

> to other treatments. I'm lucky enough that my

> boyfriend hasn't put

> pressure on me, and being in another city has helped

> me ignore the

> problem for a while. I am moving in with him

> Saturday, and I guess

> I'm a bit afraid that pressure is going to increase

> with us living

> together.

>

> Anyway, I am just wondering who out of this group

> does yoga, or has

> tried exercise as a way of controlling their VV? I'm

> talking, at

> least one or two hours, three times a week. I think

> this is what I

> am going to focus on the next six months. If I

> commit to it and it

> doesn't work, then I may be willing to try medical

> solutions.

>

> So anyone have advice?

>

> I'm just thinking, since I haven't regularly worked

> out in about two

> years now (since I was hit by a car), this has

> decreased my

> flexibility big time, and perhaps that is why I am

> getting backpain,

> and all these other problems...maybe I'm just too

> tense. Anyway I

> want to rule out the possibility. Please let me know

> anything that

> has helped you. And also, anyone know a good place

> in Toronto for

> yoga? I'm thinking YMCA just because it's close by.

>

> Thanks in advance for the advice,

>

> Miranda

>

>

>

__________________________________________________

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Miranda,

I have VV and have been doing basic yoga for about 8

months now. I love it. My PT told me that not only is

my vestibule inflammed but all the muscles surrounding

the area are short and tight which leads to

exaggerated pain when provoced (sp?).

I think that I naturarally tense up in my abdomen when

I'm stressed which hurts my condition. Yoga has helped

me not only to stretch so many muscles but also help

me with my breathing. This in turn has helped me to

'tell' my pelvic floor to relax - not something that

came easy to me for quite some time.

I stick to 'heated' yoga only so I can't speak on

behalf of non-heated classes.

Good luck with your recovery!

--

--- wavemiranda wrote:

> Hello girls! I'm almost done my little working

> holiday here in

> Vancouver and heading back to Toronto Saturday. I

> was trying to

> think of what I want to achieve this year in terms

> of treatment and

> progress with my VV.

>

> I think one of my main goals in dealing with this is

> to explore

> every non-medical option (no drugs,surgery,physio)

> before I resort

> to other treatments. I'm lucky enough that my

> boyfriend hasn't put

> pressure on me, and being in another city has helped

> me ignore the

> problem for a while. I am moving in with him

> Saturday, and I guess

> I'm a bit afraid that pressure is going to increase

> with us living

> together.

>

> Anyway, I am just wondering who out of this group

> does yoga, or has

> tried exercise as a way of controlling their VV? I'm

> talking, at

> least one or two hours, three times a week. I think

> this is what I

> am going to focus on the next six months. If I

> commit to it and it

> doesn't work, then I may be willing to try medical

> solutions.

>

> So anyone have advice?

>

> I'm just thinking, since I haven't regularly worked

> out in about two

> years now (since I was hit by a car), this has

> decreased my

> flexibility big time, and perhaps that is why I am

> getting backpain,

> and all these other problems...maybe I'm just too

> tense. Anyway I

> want to rule out the possibility. Please let me know

> anything that

> has helped you. And also, anyone know a good place

> in Toronto for

> yoga? I'm thinking YMCA just because it's close by.

>

> Thanks in advance for the advice,

>

> Miranda

>

>

>

__________________________________________________

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Miranda,

I have VV and have been doing basic yoga for about 8

months now. I love it. My PT told me that not only is

my vestibule inflammed but all the muscles surrounding

the area are short and tight which leads to

exaggerated pain when provoced (sp?).

I think that I naturarally tense up in my abdomen when

I'm stressed which hurts my condition. Yoga has helped

me not only to stretch so many muscles but also help

me with my breathing. This in turn has helped me to

'tell' my pelvic floor to relax - not something that

came easy to me for quite some time.

I stick to 'heated' yoga only so I can't speak on

behalf of non-heated classes.

Good luck with your recovery!

--

--- wavemiranda wrote:

> Hello girls! I'm almost done my little working

> holiday here in

> Vancouver and heading back to Toronto Saturday. I

> was trying to

> think of what I want to achieve this year in terms

> of treatment and

> progress with my VV.

>

> I think one of my main goals in dealing with this is

> to explore

> every non-medical option (no drugs,surgery,physio)

> before I resort

> to other treatments. I'm lucky enough that my

> boyfriend hasn't put

> pressure on me, and being in another city has helped

> me ignore the

> problem for a while. I am moving in with him

> Saturday, and I guess

> I'm a bit afraid that pressure is going to increase

> with us living

> together.

>

> Anyway, I am just wondering who out of this group

> does yoga, or has

> tried exercise as a way of controlling their VV? I'm

> talking, at

> least one or two hours, three times a week. I think

> this is what I

> am going to focus on the next six months. If I

> commit to it and it

> doesn't work, then I may be willing to try medical

> solutions.

>

> So anyone have advice?

>

> I'm just thinking, since I haven't regularly worked

> out in about two

> years now (since I was hit by a car), this has

> decreased my

> flexibility big time, and perhaps that is why I am

> getting backpain,

> and all these other problems...maybe I'm just too

> tense. Anyway I

> want to rule out the possibility. Please let me know

> anything that

> has helped you. And also, anyone know a good place

> in Toronto for

> yoga? I'm thinking YMCA just because it's close by.

>

> Thanks in advance for the advice,

>

> Miranda

>

>

>

__________________________________________________

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Hi Miranda,

I would never discourage anyone from doing something so wonderful as

yoga...but i will just share, that when I got my vulvar pain i was really

into meditation and did a lot of chigong as well for the very reason you

suggest....for healing. Honestly....i loved it, but it did nothing in that

regard. This was 2 and 3 years ago--to present. I just started yoga this

week myself. I love it and plan to continue with it, but whether or not it

does anything for the vulvar pain....not sure but i love it for other

reasons as well. Good luck with your yoga. If you pick up any of the yoga

magazines it will list a lot of places by state/city and i know i've seen

Toronto listed. Good Luck-- it's certainly worth a try and may also help

your back pain that you mentioned. I know Toronto has some indoor rock

climbing....and rock climbing for me has definitely been a blessing for my

back. It strengthens you in ways you can't imagine---but then again, so

does yoga.

CarolLynn

>

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Hi Miranda, I did either pilates or yoga (whatever class was at my gym when I got out of work) for 4 months, 6 days a week and while it was less painful than running, it didn't help alleviate the pain, it just didn't make it worse for the hour or so after working out. Nonsurgical options I tried were mainly steroids, low oxalate, antidepressents, antivirals, antifungals, antibiotics... at some point or another, by means of being misdiagnosed by 3 GYN's and a urologist, I tried most nonsurgical VV treatments. By the time I was properly diagnosed, my doctor suggested the surgery right away bc everything else had already been tried. I had a vestibulectomy done 6 weeks ago. WHile I have not experienced complete pain resolution, and I'm not able to have sex yet, the burning has gone WAY down. Before the surgery I never would have believed anyone who told me what I am

about to tell you: the surgery sounds way worse in concept than it actually is. And I don't look any different. I am not telling you this to try and pressure you. I just hope that this may alleviate some of your anxiety that if more conservative measures fail, your last shot will be horrific. It's not a picnic in the park, but within days of the surgery my pain was down to pre-surgery levels already! wavemiranda wrote: Hello girls! I'm

almost done my little working holiday here in Vancouver and heading back to Toronto Saturday. I was trying to think of what I want to achieve this year in terms of treatment and progress with my VV. I think one of my main goals in dealing with this is to explore every non-medical option (no drugs,surgery,physio) before I resort to other treatments. I'm lucky enough that my boyfriend hasn't put pressure on me, and being in another city has helped me ignore the problem for a while. I am moving in with him Saturday, and I guess I'm a bit afraid that pressure is going to increase with us living together. Anyway, I am just wondering who out of this group does yoga, or has tried exercise as a way of controlling their VV? I'm talking, at least one or two hours, three times a week. I think this is what I am going to focus on the next six months. If I commit to it and it doesn't work, then I may be willing to

try medical solutions. So anyone have advice?I'm just thinking, since I haven't regularly worked out in about two years now (since I was hit by a car), this has decreased my flexibility big time, and perhaps that is why I am getting backpain, and all these other problems...maybe I'm just too tense. Anyway I want to rule out the possibility. Please let me know anything that has helped you. And also, anyone know a good place in Toronto for yoga? I'm thinking YMCA just because it's close by. Thanks in advance for the advice, Miranda

Get your own web address for just $1.99/1st yr. We'll help. Yahoo! Small Business.

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Hi everyone - thanks so much for this input. I think yoga will help

me as far as decreasing my stress because I tend to be a worrier.

It's worth a shot! I just think, because I'm so young, I don't want

to have the surgery or try pills etc. until I've tried everything

else at my own pace. I'm quite protective of my body, and I want to

know that the situation is bad enough that it won't resolve on it's

own or with other methods. I think it's definitely sinking in that

this is a long term condition though. It's been over a year for me

and I'm still not better. I know this isn't as bad as some of you,

but it's still discouraging for me.

Miranda

> Hello girls! I'm almost done my little working holiday

here in

> Vancouver and heading back to Toronto Saturday. I was trying to

> think of what I want to achieve this year in terms of treatment

and

> progress with my VV.

>

> I think one of my main goals in dealing with this is to explore

> every non-medical option (no drugs,surgery,physio) before I resort

> to other treatments. I'm lucky enough that my boyfriend hasn't put

> pressure on me, and being in another city has helped me ignore the

> problem for a while. I am moving in with him Saturday, and I guess

> I'm a bit afraid that pressure is going to increase with us living

> together.

>

> Anyway, I am just wondering who out of this group does yoga, or

has

> tried exercise as a way of controlling their VV? I'm talking, at

> least one or two hours, three times a week. I think this is what I

> am going to focus on the next six months. If I commit to it and it

> doesn't work, then I may be willing to try medical solutions.

>

> So anyone have advice?

>

> I'm just thinking, since I haven't regularly worked out in about

two

> years now (since I was hit by a car), this has decreased my

> flexibility big time, and perhaps that is why I am getting

backpain,

> and all these other problems...maybe I'm just too tense. Anyway I

> want to rule out the possibility. Please let me know anything that

> has helped you. And also, anyone know a good place in Toronto for

> yoga? I'm thinking YMCA just because it's close by.

>

> Thanks in advance for the advice,

>

> Miranda

>

>

>

>

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help. Yahoo!

Small Business.

>

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Hi everyone - thanks so much for this input. I think yoga will help

me as far as decreasing my stress because I tend to be a worrier.

It's worth a shot! I just think, because I'm so young, I don't want

to have the surgery or try pills etc. until I've tried everything

else at my own pace. I'm quite protective of my body, and I want to

know that the situation is bad enough that it won't resolve on it's

own or with other methods. I think it's definitely sinking in that

this is a long term condition though. It's been over a year for me

and I'm still not better. I know this isn't as bad as some of you,

but it's still discouraging for me.

Miranda

> Hello girls! I'm almost done my little working holiday

here in

> Vancouver and heading back to Toronto Saturday. I was trying to

> think of what I want to achieve this year in terms of treatment

and

> progress with my VV.

>

> I think one of my main goals in dealing with this is to explore

> every non-medical option (no drugs,surgery,physio) before I resort

> to other treatments. I'm lucky enough that my boyfriend hasn't put

> pressure on me, and being in another city has helped me ignore the

> problem for a while. I am moving in with him Saturday, and I guess

> I'm a bit afraid that pressure is going to increase with us living

> together.

>

> Anyway, I am just wondering who out of this group does yoga, or

has

> tried exercise as a way of controlling their VV? I'm talking, at

> least one or two hours, three times a week. I think this is what I

> am going to focus on the next six months. If I commit to it and it

> doesn't work, then I may be willing to try medical solutions.

>

> So anyone have advice?

>

> I'm just thinking, since I haven't regularly worked out in about

two

> years now (since I was hit by a car), this has decreased my

> flexibility big time, and perhaps that is why I am getting

backpain,

> and all these other problems...maybe I'm just too tense. Anyway I

> want to rule out the possibility. Please let me know anything that

> has helped you. And also, anyone know a good place in Toronto for

> yoga? I'm thinking YMCA just because it's close by.

>

> Thanks in advance for the advice,

>

> Miranda

>

>

>

>

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help. Yahoo!

Small Business.

>

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I am doing yoga at the very strong urging of my physical therapist.If you are fortunate enough to have a choice of types of yoga I would recommend Iyengar. My teacher is trained in Iyengar and it is a very therapeutic yoga - props like blocks and straps help get you into positions comfortably. It is really helping me strengthen and loosen up the muscles around the pelvis

cheersB

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I am doing yoga at the very strong urging of my physical therapist.If you are fortunate enough to have a choice of types of yoga I would recommend Iyengar. My teacher is trained in Iyengar and it is a very therapeutic yoga - props like blocks and straps help get you into positions comfortably. It is really helping me strengthen and loosen up the muscles around the pelvis

cheersB

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I am doing yoga at the very strong urging of my physical therapist.If you are fortunate enough to have a choice of types of yoga I would recommend Iyengar. My teacher is trained in Iyengar and it is a very therapeutic yoga - props like blocks and straps help get you into positions comfortably. It is really helping me strengthen and loosen up the muscles around the pelvis

cheersB

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My physical therapist also strongly recommended yoga as a way to decrease muscle tension in that area of my body (pelvis), and that raises the possibility that tissue will become healthier. It also decreases anxiety, which can decrease the perception of the pain. Just a side note-I have done pilates for years but have stayed away from it since the vv diagnosis. Pilates is designed to TIGHTEN core muscles and many of the exercises are going to, in my humble opinion, create more tension in the areas that you want to decrease tension. Pilates and yoga are two VERY DIFFERENT things. I think yoga has been very helpful for me. Let's face it, this disorder probably does not have one single cause in most of us, so we will need to try different modalities to heal. I have felt so much better with elavil, diflucan, guided imagery, walking, and yoga. Lindsey

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