Re: Re: Inga: Short-term use of GH

[Guest guest]

Inga,

Bulking Max up was one of the reasons that led us to start gh with him as well.

He definitely became stronger after using it for awhile. I sincerely hope that

you have the success that we have had in that department. Unfortunately, it is

no longer giving him the height advantage that he used to have, but according to

Dr. H., that is not the norm, so don't worry about that. Poor Max. He seems to

get the bad end of so many things....At least he is a great kid.

As I said to Annette in an earlier message, the biggest change we have seen in

Max over the past 6 months is his increase in bulk/weight. I know that is

because of the Risperdal that he is taking for Tourette's Syndrome. It is nice

to see him outgrowing clothes now and to hug him and feel broad shoulders and a

tummy. We are walking that delicate line, however, of not eating too much, but

needing to eat to help him grow. It's never easy, huh?

I hope that you have a happy and healthy new year. We've already been out to a

nice dinner with the two kids and now my husband is the chauffer for four teens

to go to an alchohol-free party. So much for family time. It's nine o'clock

and I'm already in my pj's. What a social life.

Jodi

Re: Re: Inga: Short-term use of GH

Thanks, . It is good to hear this info on the height question. I'm

actually having an additional reason for liking to use growth hormone, though

-

bulking. I read an article about the use of GH for cystic fibrosis patients

at

around the 5th percentile weight to height and it significantly improved their

weight to height, muscle, etc. I feel that with Tim being at less than the

first percentile weight to height, the combination of g-tube and GH for

several

years could really help his muscle/bone mass which could have a lot of

practical implications when he gets older..

Inga

At 07:49 AM 12/31/2001 +0000, you wrote:

>

> Inga -

>

> Re your post about short-term use of GH. This is a question

> currently in the thoughts of many doctors, including Dr. H. A large

> European study (Dr. Wollmann who spoke at the MAGIC convention) gave

> double-doses of GH for just 2-3 years. Basically what they found is

> that when they stopped, about half the kids' growth fell back down to

> their original low curves (so you would begin the GH again). But the

> other half just fell a little bit and then began a new curve.

>

> So.... it all depends on what you want in end result. If you want

> EVERY INCH YOU CAN GET - then you should do GH and not stop at any

> time (if you stop, and then later start again, you will forfeit some

> incremental height in the end).

>

> If you are willing to play the odds a bit, you have options. I have

> never posted this before, but my husband and I have already decided

> (and discussed this with Dr. H with her approval), that we are going

> to continue 's GH nightly injections UNTIL her height growth

> slows down to that of a " normal " child -roughly 2 inches a year.

> Studies have found that this often occurs after about 3 years on GH.

> We are hoping that will be at the 35%'tile in height at that

> time (of course, Dr. H is shooting for 50%'tile or greater). At that

> point, we will discontinue GH, and monitor her. If her height drops

> below the 10%'tile, then we will start the GH again.

>

> I want to caution everyone that the percentile groupings I use are

> PERSONAL, based on 's projected height without having RSS

> (she would have been 5'8 " without RSS). Each family's decision

> should be based on what their own child's target height is.

>

> But to be honest, if it was our son Tyler that had GH, my husband has

> said that he would not play the odds. Because discontinuing the GH

> for even 3-6 months can mean a loss of an inch or so at the end.

>

> Clearly, this is a personal decision. I have posted the GH/Insulin

> resistance question to Dr. Harbison and to Gayle Duca, the MAGIC GHD

> director.

>

>

>

>

> > >> > Hi,

> > >> >

> > >> > I am new to the group. I have a 9 year old son who has been

> on GH

> > >> > for 3 years. Recently, I have learned that Joe may need to

> have a

> > >>3

> > >> > day stay at the hospital for blood draws on IGFTT (whatever

> that

> > >>is)

> > >> > and checking for insulin resistance. Jodi, or anyone else, do

> you

> > >> > have any help for me. I am concerned that this may mean he is

> > >> > developing diabetes. Is this something to be worried about

> with

> > >> > using GH? According to his endo, he is in the pre-pubescent

> time

> > >> > frame with no visible signs of puberty.

> > >> >

> > >> > Thanks for you help.

> > >> > Marie

> > >>

> > >

> > >

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