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New diagnosis for me besides V V D - myofascial pain

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Some of you may remember that I recently suffered from total body

muscle spasms - from my pelvic area, clear up to my eyes.

This has been going on sporadically for about 2 yrs now. I was

checked for fibro and found negative for that. I do not have the

particular symptomology of fibro.

However, I awaken feeling like someone has taken a baseball bat and

beat me from head to toe.

And of course, I suffer from vulvodynia and vestibulitis.

Sometimes I noticed that the vulvar burning corresponded with the

body muscle spasms. Sometimes not.

I was finally checked by a spinal dr and diagnosed with myofascial

pain syndrome [MPS]. MPS is a neuro muscular condition in which the

muscles of the body contract, starving those muscles of oxygen. MPS

is SIMIILAR to Fibromyalgia in some ways, but is NOT the same.

However, the 2 conditions can co-exist in some individuals.

http://www.sover.net/~devstar/myopain.htm

Lo and behold, when I researched MPS,I even found educational

articles for DRS, of different specialties, informing them about MPS.

And some of medical professionals addresssd of course, were

gynecologists. Even more amazing...was the information that vulvar

disorders such as vulvodynia and vestibulitis can be triggered by

MPS-->Neuro and muscular..both also components of vulvodyn and

vestib.

Hmmm..

Seems to me that this just confirms what many of us think - that

vulvodyn. and vestib. are integrated somehow in nervous system

dysfunction; then add the pelvic floor muscle pain.

Anyway,just thought I would add yet another monekey wrench into

already complex pie of possibilities. :) But seriously, it affirms

my own opinion that our bodies' various systems are very closely

connected and if one part suffers,it can affect another part.

Best wishes to you all..

snofyre00@...

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Sno,

You don't have to have the classic symptoms of fibro to have it.

You don't have to have the total number of points to have fibro

either.

Myofascial pain is a cousin to fibromyalgia and having the two

together is not that uncommon.

Vulvodynia and the specific category of vulvodynia: vulvar

vestibulitis syndrome can also be symptoms of fibro for some

people. So can abdominal/pelvic pain for some.

I urge you to get this MPS diagnosis confirmed by a

rheumatologist b/c of the fact that if you ever have to go on

disability thru SS they won't accept the word from the

neurologist even though like fibro it is a neuromusculoskeletal

problem. They will only accept the word from a rheumatologist.

I was talking to someone else just recently that said she read

something written by a dr that said that vulvodynia could also

be a form of RSD. I happen to agree and eventually I want to

get checked for it b/c I've been suspecting it for a while.

Just out of curiosity, have you been checked for Celiac as well?

The reason I ask (thanks for the info on this Arline) is b/c

some of the symptoms of Celiac can also be symptoms of fibro and

MPS (eventually something else I need to get checked out for).

Kristy :)

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Hi,

Just wondering--when you talk about feeling like you've been beaten with a

baseball bat when you wake in the morning, does it take about 15 minutes or

so to feel back to normal and you forget about it til the next morning?

CarolLynn

>

>Reply-To: VulvarDisorders

>To: VulvarDisorders

>Subject: New diagnosis for me besides V V D - myofascial pain

>Date: Tue, 17 Oct 2006 06:48:00 -0000

>

>Some of you may remember that I recently suffered from total body

>muscle spasms - from my pelvic area, clear up to my eyes.

>

>This has been going on sporadically for about 2 yrs now. I was

>checked for fibro and found negative for that. I do not have the

>particular symptomology of fibro.

>

>However, I awaken feeling like someone has taken a baseball bat and

>beat me from head to toe.

>

>And of course, I suffer from vulvodynia and vestibulitis.

>Sometimes I noticed that the vulvar burning corresponded with the

>body muscle spasms. Sometimes not.

>

>I was finally checked by a spinal dr and diagnosed with myofascial

>pain syndrome [MPS]. MPS is a neuro muscular condition in which the

>muscles of the body contract, starving those muscles of oxygen. MPS

>is SIMIILAR to Fibromyalgia in some ways, but is NOT the same.

>However, the 2 conditions can co-exist in some individuals.

>

>http://www.sover.net/~devstar/myopain.htm

>

>

>Lo and behold, when I researched MPS,I even found educational

>articles for DRS, of different specialties, informing them about MPS.

>And some of medical professionals addresssd of course, were

>gynecologists. Even more amazing...was the information that vulvar

>disorders such as vulvodynia and vestibulitis can be triggered by

>MPS-->Neuro and muscular..both also components of vulvodyn and

>vestib.

>

>Hmmm..

>

>Seems to me that this just confirms what many of us think - that

>vulvodyn. and vestib. are integrated somehow in nervous system

>dysfunction; then add the pelvic floor muscle pain.

>

>Anyway,just thought I would add yet another monekey wrench into

>already complex pie of possibilities. :) But seriously, it affirms

>my own opinion that our bodies' various systems are very closely

>connected and if one part suffers,it can affect another part.

>

>Best wishes to you all..

>snofyre00@...

>

>

_________________________________________________________________

Get FREE company branded e-mail accounts and business Web site from

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Hi,

Just wondering--when you talk about feeling like you've been beaten with a

baseball bat when you wake in the morning, does it take about 15 minutes or

so to feel back to normal and you forget about it til the next morning?

CarolLynn

>

>Reply-To: VulvarDisorders

>To: VulvarDisorders

>Subject: New diagnosis for me besides V V D - myofascial pain

>Date: Tue, 17 Oct 2006 06:48:00 -0000

>

>Some of you may remember that I recently suffered from total body

>muscle spasms - from my pelvic area, clear up to my eyes.

>

>This has been going on sporadically for about 2 yrs now. I was

>checked for fibro and found negative for that. I do not have the

>particular symptomology of fibro.

>

>However, I awaken feeling like someone has taken a baseball bat and

>beat me from head to toe.

>

>And of course, I suffer from vulvodynia and vestibulitis.

>Sometimes I noticed that the vulvar burning corresponded with the

>body muscle spasms. Sometimes not.

>

>I was finally checked by a spinal dr and diagnosed with myofascial

>pain syndrome [MPS]. MPS is a neuro muscular condition in which the

>muscles of the body contract, starving those muscles of oxygen. MPS

>is SIMIILAR to Fibromyalgia in some ways, but is NOT the same.

>However, the 2 conditions can co-exist in some individuals.

>

>http://www.sover.net/~devstar/myopain.htm

>

>

>Lo and behold, when I researched MPS,I even found educational

>articles for DRS, of different specialties, informing them about MPS.

>And some of medical professionals addresssd of course, were

>gynecologists. Even more amazing...was the information that vulvar

>disorders such as vulvodynia and vestibulitis can be triggered by

>MPS-->Neuro and muscular..both also components of vulvodyn and

>vestib.

>

>Hmmm..

>

>Seems to me that this just confirms what many of us think - that

>vulvodyn. and vestib. are integrated somehow in nervous system

>dysfunction; then add the pelvic floor muscle pain.

>

>Anyway,just thought I would add yet another monekey wrench into

>already complex pie of possibilities. :) But seriously, it affirms

>my own opinion that our bodies' various systems are very closely

>connected and if one part suffers,it can affect another part.

>

>Best wishes to you all..

>snofyre00@...

>

>

_________________________________________________________________

Get FREE company branded e-mail accounts and business Web site from

Microsoft Office Live

http://clk.atdmt.com/MRT/go/mcrssaub0050001411mrt/direct/01/

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Hi,

Just wondering--when you talk about feeling like you've been beaten with a

baseball bat when you wake in the morning, does it take about 15 minutes or

so to feel back to normal and you forget about it til the next morning?

CarolLynn

>

>Reply-To: VulvarDisorders

>To: VulvarDisorders

>Subject: New diagnosis for me besides V V D - myofascial pain

>Date: Tue, 17 Oct 2006 06:48:00 -0000

>

>Some of you may remember that I recently suffered from total body

>muscle spasms - from my pelvic area, clear up to my eyes.

>

>This has been going on sporadically for about 2 yrs now. I was

>checked for fibro and found negative for that. I do not have the

>particular symptomology of fibro.

>

>However, I awaken feeling like someone has taken a baseball bat and

>beat me from head to toe.

>

>And of course, I suffer from vulvodynia and vestibulitis.

>Sometimes I noticed that the vulvar burning corresponded with the

>body muscle spasms. Sometimes not.

>

>I was finally checked by a spinal dr and diagnosed with myofascial

>pain syndrome [MPS]. MPS is a neuro muscular condition in which the

>muscles of the body contract, starving those muscles of oxygen. MPS

>is SIMIILAR to Fibromyalgia in some ways, but is NOT the same.

>However, the 2 conditions can co-exist in some individuals.

>

>http://www.sover.net/~devstar/myopain.htm

>

>

>Lo and behold, when I researched MPS,I even found educational

>articles for DRS, of different specialties, informing them about MPS.

>And some of medical professionals addresssd of course, were

>gynecologists. Even more amazing...was the information that vulvar

>disorders such as vulvodynia and vestibulitis can be triggered by

>MPS-->Neuro and muscular..both also components of vulvodyn and

>vestib.

>

>Hmmm..

>

>Seems to me that this just confirms what many of us think - that

>vulvodyn. and vestib. are integrated somehow in nervous system

>dysfunction; then add the pelvic floor muscle pain.

>

>Anyway,just thought I would add yet another monekey wrench into

>already complex pie of possibilities. :) But seriously, it affirms

>my own opinion that our bodies' various systems are very closely

>connected and if one part suffers,it can affect another part.

>

>Best wishes to you all..

>snofyre00@...

>

>

_________________________________________________________________

Get FREE company branded e-mail accounts and business Web site from

Microsoft Office Live

http://clk.atdmt.com/MRT/go/mcrssaub0050001411mrt/direct/01/

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Hi, This makes perfect sense to me as I also had muscle contracture. My drug of choice when I was sick was Valium. I know that Dr. Weiss often prescribes 5 mg Valium nightly as we seem to contract more at night. I remember trying to sleep with my biofeedback machine in in hopes that it would beep and wake me when I would start in on my nightly subconcious kegelling. Unfortunately, it woke the whole house. My husband, my kids, my mother (who had to come stay with us because I was so suicidal) but I was still sound asleep. Somehow I never lost the ability to sleep. This just adds to the case for physical therapy. love, MollyCarolLynn DiFelice wrote: Hi,Just wondering--when you talk about feeling like you've been beaten with a baseball bat when you wake in the morning, does it take about 15 minutes or so to feel back to normal and you forget about it til the next morning?CarolLynn>From: "snofyre00" <snofyre00>>Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: New diagnosis for me besides V V D - myofascial pain>Date: Tue, 17 Oct

2006 06:48:00 -0000>>Some of you may remember that I recently suffered from total body>muscle spasms - from my pelvic area, clear up to my eyes.>>This has been going on sporadically for about 2 yrs now. I was>checked for fibro and found negative for that. I do not have the>particular symptomology of fibro.>>However, I awaken feeling like someone has taken a baseball bat and>beat me from head to toe.>>And of course, I suffer from vulvodynia and vestibulitis.>Sometimes I noticed that the vulvar burning corresponded with the>body muscle spasms. Sometimes not.>>I was finally checked by a spinal dr and diagnosed with myofascial>pain syndrome [MPS]. MPS is a neuro muscular condition in which the>muscles of the body contract, starving those muscles of oxygen. MPS>is SIMIILAR to Fibromyalgia in some ways, but is NOT the same.>However, the 2

conditions can co-exist in some individuals.>>http://www.sover.net/~devstar/myopain.htm>>>Lo and behold, when I researched MPS,I even found educational>articles for DRS, of different specialties, informing them about MPS.>And some of medical professionals addresssd of course, were>gynecologists. Even more amazing...was the information that vulvar>disorders such as vulvodynia and vestibulitis can be triggered by>MPS-->Neuro and muscular..both also components of vulvodyn and>vestib.>>Hmmm..>>Seems to me that this just confirms what many of us think - that>vulvodyn. and vestib. are integrated somehow in nervous system>dysfunction; then add the pelvic floor muscle pain.>>Anyway,just thought I would add yet another monekey wrench into>already complex pie of possibilities.

:) But seriously, it affirms>my own opinion that our bodies' various systems are very closely>connected and if one part suffers,it can affect another part.>>Best wishes to you all..>snofyre00>>__________________________________________________________Get FREE company branded e-mail accounts and business Web site from Microsoft Office Live http://clk.atdmt.com/MRT/go/mcrssaub0050001411mrt/direct/01/

Get your own web address for just $1.99/1st yr. We'll help. Yahoo! Small Business.

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Hi, This makes perfect sense to me as I also had muscle contracture. My drug of choice when I was sick was Valium. I know that Dr. Weiss often prescribes 5 mg Valium nightly as we seem to contract more at night. I remember trying to sleep with my biofeedback machine in in hopes that it would beep and wake me when I would start in on my nightly subconcious kegelling. Unfortunately, it woke the whole house. My husband, my kids, my mother (who had to come stay with us because I was so suicidal) but I was still sound asleep. Somehow I never lost the ability to sleep. This just adds to the case for physical therapy. love, MollyCarolLynn DiFelice wrote: Hi,Just wondering--when you talk about feeling like you've been beaten with a baseball bat when you wake in the morning, does it take about 15 minutes or so to feel back to normal and you forget about it til the next morning?CarolLynn>From: "snofyre00" <snofyre00>>Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: New diagnosis for me besides V V D - myofascial pain>Date: Tue, 17 Oct

2006 06:48:00 -0000>>Some of you may remember that I recently suffered from total body>muscle spasms - from my pelvic area, clear up to my eyes.>>This has been going on sporadically for about 2 yrs now. I was>checked for fibro and found negative for that. I do not have the>particular symptomology of fibro.>>However, I awaken feeling like someone has taken a baseball bat and>beat me from head to toe.>>And of course, I suffer from vulvodynia and vestibulitis.>Sometimes I noticed that the vulvar burning corresponded with the>body muscle spasms. Sometimes not.>>I was finally checked by a spinal dr and diagnosed with myofascial>pain syndrome [MPS]. MPS is a neuro muscular condition in which the>muscles of the body contract, starving those muscles of oxygen. MPS>is SIMIILAR to Fibromyalgia in some ways, but is NOT the same.>However, the 2

conditions can co-exist in some individuals.>>http://www.sover.net/~devstar/myopain.htm>>>Lo and behold, when I researched MPS,I even found educational>articles for DRS, of different specialties, informing them about MPS.>And some of medical professionals addresssd of course, were>gynecologists. Even more amazing...was the information that vulvar>disorders such as vulvodynia and vestibulitis can be triggered by>MPS-->Neuro and muscular..both also components of vulvodyn and>vestib.>>Hmmm..>>Seems to me that this just confirms what many of us think - that>vulvodyn. and vestib. are integrated somehow in nervous system>dysfunction; then add the pelvic floor muscle pain.>>Anyway,just thought I would add yet another monekey wrench into>already complex pie of possibilities.

:) But seriously, it affirms>my own opinion that our bodies' various systems are very closely>connected and if one part suffers,it can affect another part.>>Best wishes to you all..>snofyre00>>__________________________________________________________Get FREE company branded e-mail accounts and business Web site from Microsoft Office Live http://clk.atdmt.com/MRT/go/mcrssaub0050001411mrt/direct/01/

Get your own web address for just $1.99/1st yr. We'll help. Yahoo! Small Business.

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Hi, This makes perfect sense to me as I also had muscle contracture. My drug of choice when I was sick was Valium. I know that Dr. Weiss often prescribes 5 mg Valium nightly as we seem to contract more at night. I remember trying to sleep with my biofeedback machine in in hopes that it would beep and wake me when I would start in on my nightly subconcious kegelling. Unfortunately, it woke the whole house. My husband, my kids, my mother (who had to come stay with us because I was so suicidal) but I was still sound asleep. Somehow I never lost the ability to sleep. This just adds to the case for physical therapy. love, MollyCarolLynn DiFelice wrote: Hi,Just wondering--when you talk about feeling like you've been beaten with a baseball bat when you wake in the morning, does it take about 15 minutes or so to feel back to normal and you forget about it til the next morning?CarolLynn>From: "snofyre00" <snofyre00>>Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: New diagnosis for me besides V V D - myofascial pain>Date: Tue, 17 Oct

2006 06:48:00 -0000>>Some of you may remember that I recently suffered from total body>muscle spasms - from my pelvic area, clear up to my eyes.>>This has been going on sporadically for about 2 yrs now. I was>checked for fibro and found negative for that. I do not have the>particular symptomology of fibro.>>However, I awaken feeling like someone has taken a baseball bat and>beat me from head to toe.>>And of course, I suffer from vulvodynia and vestibulitis.>Sometimes I noticed that the vulvar burning corresponded with the>body muscle spasms. Sometimes not.>>I was finally checked by a spinal dr and diagnosed with myofascial>pain syndrome [MPS]. MPS is a neuro muscular condition in which the>muscles of the body contract, starving those muscles of oxygen. MPS>is SIMIILAR to Fibromyalgia in some ways, but is NOT the same.>However, the 2

conditions can co-exist in some individuals.>>http://www.sover.net/~devstar/myopain.htm>>>Lo and behold, when I researched MPS,I even found educational>articles for DRS, of different specialties, informing them about MPS.>And some of medical professionals addresssd of course, were>gynecologists. Even more amazing...was the information that vulvar>disorders such as vulvodynia and vestibulitis can be triggered by>MPS-->Neuro and muscular..both also components of vulvodyn and>vestib.>>Hmmm..>>Seems to me that this just confirms what many of us think - that>vulvodyn. and vestib. are integrated somehow in nervous system>dysfunction; then add the pelvic floor muscle pain.>>Anyway,just thought I would add yet another monekey wrench into>already complex pie of possibilities.

:) But seriously, it affirms>my own opinion that our bodies' various systems are very closely>connected and if one part suffers,it can affect another part.>>Best wishes to you all..>snofyre00>>__________________________________________________________Get FREE company branded e-mail accounts and business Web site from Microsoft Office Live http://clk.atdmt.com/MRT/go/mcrssaub0050001411mrt/direct/01/

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Hi Kristy... will do what you said. As I said, I dont have the symptoms (at least yet) of fibro. I did go to a rheum. who sent me elsewhere.. then to another.. who sent to me to spinal cliinc. as of yet I do not have to go on disabilty but I will take your advice. Have been looking for any support groups for MPA but they are non existent or just combined with fibro. Do you know of any? thanks :)Kristy Sokoloski wrote: Sno,You don't have to have the

classic symptoms of fibro to have it.You don't have to have the total number of points to have fibroeither.Myofascial pain is a cousin to fibromyalgia and having the twotogether is not that uncommon.Vulvodynia and the specific category of vulvodynia: vulvarvestibulitis syndrome can also be symptoms of fibro for somepeople. So can abdominal/pelvic pain for some.I urge you to get this MPS diagnosis confirmed by arheumatologist b/c of the fact that if you ever have to go ondisability thru SS they won't accept the word from theneurologist even though like fibro it is a neuromusculoskeletalproblem. They will only accept the word from a rheumatologist.I was talking to someone else just recently that said she readsomething written by a dr that said that vulvodynia could alsobe a form of RSD. I happen to agree and eventually I want toget checked for it b/c I've been suspecting it for a

while.Just out of curiosity, have you been checked for Celiac as well?The reason I ask (thanks for the info on this Arline) is b/csome of the symptoms of Celiac can also be symptoms of fibro andMPS (eventually something else I need to get checked out for).Kristy :)__________________________________________________

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Hi Kristy... will do what you said. As I said, I dont have the symptoms (at least yet) of fibro. I did go to a rheum. who sent me elsewhere.. then to another.. who sent to me to spinal cliinc. as of yet I do not have to go on disabilty but I will take your advice. Have been looking for any support groups for MPA but they are non existent or just combined with fibro. Do you know of any? thanks :)Kristy Sokoloski wrote: Sno,You don't have to have the

classic symptoms of fibro to have it.You don't have to have the total number of points to have fibroeither.Myofascial pain is a cousin to fibromyalgia and having the twotogether is not that uncommon.Vulvodynia and the specific category of vulvodynia: vulvarvestibulitis syndrome can also be symptoms of fibro for somepeople. So can abdominal/pelvic pain for some.I urge you to get this MPS diagnosis confirmed by arheumatologist b/c of the fact that if you ever have to go ondisability thru SS they won't accept the word from theneurologist even though like fibro it is a neuromusculoskeletalproblem. They will only accept the word from a rheumatologist.I was talking to someone else just recently that said she readsomething written by a dr that said that vulvodynia could alsobe a form of RSD. I happen to agree and eventually I want toget checked for it b/c I've been suspecting it for a

while.Just out of curiosity, have you been checked for Celiac as well?The reason I ask (thanks for the info on this Arline) is b/csome of the symptoms of Celiac can also be symptoms of fibro andMPS (eventually something else I need to get checked out for).Kristy :)__________________________________________________

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Molly you are correct. Treatment for CMP (chronic myf pain) consists of very specific physical therapy. I am relieved to find out what the problem is ,but know coping with this this will not be a piece of cake. Thanks for all your caring. snofyre00@... Carolyn: No i wish CMP (chronic myf. pain) would go away during the day. It doesn't, but usually feels worse when you get up from bed. Muscles love to contract more at night. Treatment consists of very specific physical thearpy and sometimes local numbing agents inserted in the trigger points. There are also other types of treatment being tried. Snofyre@... molly ring wrote: Hi, This makes perfect sense to me as I also had muscle contracture. My drug of choice when I was sick was Valium. I know that Dr. Weiss often prescribes 5 mg Valium nightly as we seem to contract more at night. I remember trying to sleep with my biofeedback machine in in hopes that it would beep and wake

me when I would start in on my nightly subconcious kegelling. Unfortunately, it woke the whole house. My husband, my kids, my mother (who had to come stay with us because I was so suicidal) but I was still sound asleep. Somehow I never lost the ability to sleep. This just adds to the case for physical therapy. love, MollyCarolLynn DiFelice <sealynndhotmail> wrote: Hi,Just wondering--when you talk about feeling like you've been beaten with a baseball bat when you wake in the morning, does it take about 15 minutes or so to feel back to normal and you forget about it til the next morning?CarolLynn>From: "snofyre00" <snofyre00>>Reply-To:

VulvarDisorders >To: VulvarDisorders >Subject: New diagnosis for me besides V V D - myofascial pain>Date: Tue, 17 Oct 2006 06:48:00 -0000>>Some of you may remember that I recently suffered from total body>muscle spasms - from my pelvic area, clear up to my eyes.>>This has been going on sporadically for about 2 yrs now. I was>checked for fibro and found negative for that. I do not have the>particular symptomology of fibro.>>However, I awaken feeling like someone has taken a baseball bat and>beat me from head to toe.>>And of course, I suffer from vulvodynia and vestibulitis.>Sometimes I noticed that the vulvar burning corresponded with the>body muscle spasms. Sometimes not.>>I was

finally checked by a spinal dr and diagnosed with myofascial>pain syndrome [MPS]. MPS is a neuro muscular condition in which the>muscles of the body contract, starving those muscles of oxygen. MPS>is SIMIILAR to Fibromyalgia in some ways, but is NOT the same.>However, the 2 conditions can co-exist in some individuals.>>http://www.sover.net/~devstar/myopain.htm>>>Lo and behold, when I researched MPS,I even found educational>articles for DRS, of different specialties, informing them about MPS.>And some of medical professionals addresssd of course, were>gynecologists. Even more amazing...was the information that vulvar>disorders such as vulvodynia and vestibulitis can be triggered by>MPS-->Neuro and muscular..both also components of vulvodyn and>vestib.>>Hmmm..>>Seems to me

that this just confirms what many of us think - that>vulvodyn. and vestib. are integrated somehow in nervous system>dysfunction; then add the pelvic floor muscle pain.>>Anyway,just thought I would add yet another monekey wrench into>already complex pie of possibilities. :) But seriously, it affirms>my own opinion that our bodies' various systems are very closely>connected and if one part suffers,it can affect another part.>>Best wishes to you all..>snofyre00>>__________________________________________________________Get FREE company branded e-mail accounts and business Web site from Microsoft Office Live http://clk.atdmt.com/MRT/go/mcrssaub0050001411mrt/direct/01/ Get your own web address for just $1.99/1st yr. We'll help. Yahoo! Small Business.

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Sno,

Your symptoms that relate to MPS may very well also be symptoms

of fibro. They often overlap.

If you can't find any MPS groups we can create one.

I will be glad to help you do so.

Kristy :)

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