Re: Joey's Kidney Biopsy Results - Correction

[Guest guest]

It sounds like the biopsy evaluation is not complete, since the

immunofluorescence part of it has not yet been done. This is the test which

determines how predominant the IgA immune complex deposits are in the

mesangium, so, it's the hallmark of IgAN.

No scarring is certainly a good sign.

Pierre

Re: 's Kidney Biopsy Results - Correction

>

> I just read Dr. L's email. He did not received the biopsy results as I

previously understood, so he called the pathologist.

> Here is what he wrote:

> " I had not heard from UCSF yet, so I called the pathologist directly

> today.

> Dr. O did review the new slides and agreed with the diagnosis of

> IgA

> nephropathy. It's a little difficult to explain, but she can't

> entirely

> rule something else out since she wasn't able to perform a test called

> immunofluorescence. However, the electron microscopy findings were

> very

> typical of IgA nephropathy.

>

> She also went on to say that because of certain changes on the biopsy

> (or

> to word it more precisely, the lack of changes), Joe falls into a " good

> prognosis " category since he had no scarring or inflammatory changes... "

> So, what do you think?

> Thank you,

> Esther

>

[Guest guest]

It sounds like the biopsy evaluation is not complete, since the

immunofluorescence part of it has not yet been done. This is the test which

determines how predominant the IgA immune complex deposits are in the

mesangium, so, it's the hallmark of IgAN.

No scarring is certainly a good sign.

Pierre

Re: 's Kidney Biopsy Results - Correction

>

> I just read Dr. L's email. He did not received the biopsy results as I

previously understood, so he called the pathologist.

> Here is what he wrote:

> " I had not heard from UCSF yet, so I called the pathologist directly

> today.

> Dr. O did review the new slides and agreed with the diagnosis of

> IgA

> nephropathy. It's a little difficult to explain, but she can't

> entirely

> rule something else out since she wasn't able to perform a test called

> immunofluorescence. However, the electron microscopy findings were

> very

> typical of IgA nephropathy.

>

> She also went on to say that because of certain changes on the biopsy

> (or

> to word it more precisely, the lack of changes), Joe falls into a " good

> prognosis " category since he had no scarring or inflammatory changes... "

> So, what do you think?

> Thank you,

> Esther

>

[Guest guest]

Hi Esther, I am so happy for you all, hopefully you will continue to get great

results.

Esther G wrote:I just read Dr. L's email. He did not

received the biopsy results as I previously understood, so he called the

pathologist.

Here is what he wrote:

" I had not heard from UCSF yet, so I called the pathologist directly

today.

Dr. O did review the new slides and agreed with the diagnosis of

IgA

nephropathy. It's a little difficult to explain, but she can't

entirely

rule something else out since she wasn't able to perform a test called

immunofluorescence. However, the electron microscopy findings were

very

typical of IgA nephropathy.

She also went on to say that because of certain changes on the biopsy

(or

to word it more precisely, the lack of changes), Joe falls into a " good

prognosis " category since he had no scarring or inflammatory changes... "

So, what do you think?

Thank you,

Esther

Esther G wrote:

Hi Guys:

Dr. Lau just called to let me know that the results came back. The biopsy

didn't indicate any destroyed glomeruli or inflammation which gives a good

prognosis. Dan and I are so happy! Dr. L wants to continue taking fish

oil. He is even going to mail the spreadsheet of 's lab results and kidney

biopsy to us.

BTW, Pierre, I mentioned this group to him and how it helped us. He was

pleasantly surprised. He wants to refer his patients to the group for support

and asked for the link. I hope you don't mind that I gave it to him.

Anway, I just wanted to share this news with all of you.

Hugs,

Esther

" No man can be called friendless when he has God and the companionship of good

books. "

-- Barrett Browning

http://www.catholichomeschoolhawaii.com

http://groups.yahoo.com/group/estheralohatags/

---------------------------------

Do you Yahoo!?

Take Yahoo! Mail with you! Get it on your mobile phone.

[Guest guest]

Hi Esther, I am so happy for you all, hopefully you will continue to get great

results.

Esther G wrote:I just read Dr. L's email. He did not

received the biopsy results as I previously understood, so he called the

pathologist.

Here is what he wrote:

" I had not heard from UCSF yet, so I called the pathologist directly

today.

Dr. O did review the new slides and agreed with the diagnosis of

IgA

nephropathy. It's a little difficult to explain, but she can't

entirely

rule something else out since she wasn't able to perform a test called

immunofluorescence. However, the electron microscopy findings were

very

typical of IgA nephropathy.

She also went on to say that because of certain changes on the biopsy

(or

to word it more precisely, the lack of changes), Joe falls into a " good

prognosis " category since he had no scarring or inflammatory changes... "

So, what do you think?

Thank you,

Esther

Esther G wrote:

Hi Guys:

Dr. Lau just called to let me know that the results came back. The biopsy

didn't indicate any destroyed glomeruli or inflammation which gives a good

prognosis. Dan and I are so happy! Dr. L wants to continue taking fish

oil. He is even going to mail the spreadsheet of 's lab results and kidney

biopsy to us.

BTW, Pierre, I mentioned this group to him and how it helped us. He was

pleasantly surprised. He wants to refer his patients to the group for support

and asked for the link. I hope you don't mind that I gave it to him.

Anway, I just wanted to share this news with all of you.

Hugs,

Esther

" No man can be called friendless when he has God and the companionship of good

books. "

-- Barrett Browning

http://www.catholichomeschoolhawaii.com

http://groups.yahoo.com/group/estheralohatags/

---------------------------------

Do you Yahoo!?

Take Yahoo! Mail with you! Get it on your mobile phone.

[Guest guest]

Hi Esther, I am so happy for you all, hopefully you will continue to get great

results.

Esther G wrote: I just read Dr. L's email. He did not

received the biopsy results as I previously understood, so he called the

pathologist.

Here is what he wrote:

" I had not heard from UCSF yet, so I called the pathologist directly

today.

Dr. O did review the new slides and agreed with the diagnosis of

IgA

nephropathy. It's a little difficult to explain, but she can't

entirely

rule something else out since she wasn't able to perform a test called

immunofluorescence. However, the electron microscopy findings were

very

typical of IgA nephropathy.

She also went on to say that because of certain changes on the biopsy

(or

to word it more precisely, the lack of changes), Joe falls into a " good

prognosis " category since he had no scarring or inflammatory changes... "

So, what do you think?

Thank you,

Esther

Esther G wrote:

Hi Guys:

Dr. Lau just called to let me know that the results came back. The biopsy

didn't indicate any destroyed glomeruli or inflammation which gives a good

prognosis. Dan and I are so happy! Dr. L wants to continue taking fish

oil. He is even going to mail the spreadsheet of 's lab results and kidney

biopsy to us.

BTW, Pierre, I mentioned this group to him and how it helped us. He was

pleasantly surprised. He wants to refer his patients to the group for support

and asked for the link. I hope you don't mind that I gave it to him.

Anway, I just wanted to share this news with all of you.

Hugs,

Esther

" No man can be called friendless when he has God and the companionship of good

books. "

-- Barrett Browning

http://www.catholichomeschoolhawaii.com

http://groups.yahoo.com/group/estheralohatags/

---------------------------------

Do you Yahoo!?

Take Yahoo! Mail with you! Get it on your mobile phone.

[Guest guest]

Hi Esther, I am so happy for you all, hopefully you will continue to get great

results.

Esther G wrote: I just read Dr. L's email. He did not

received the biopsy results as I previously understood, so he called the

pathologist.

Here is what he wrote:

" I had not heard from UCSF yet, so I called the pathologist directly

today.

Dr. O did review the new slides and agreed with the diagnosis of

IgA

nephropathy. It's a little difficult to explain, but she can't

entirely

rule something else out since she wasn't able to perform a test called

immunofluorescence. However, the electron microscopy findings were

very

typical of IgA nephropathy.

She also went on to say that because of certain changes on the biopsy

(or

to word it more precisely, the lack of changes), Joe falls into a " good

prognosis " category since he had no scarring or inflammatory changes... "

So, what do you think?

Thank you,

Esther

Esther G wrote:

Hi Guys:

Dr. Lau just called to let me know that the results came back. The biopsy

didn't indicate any destroyed glomeruli or inflammation which gives a good

prognosis. Dan and I are so happy! Dr. L wants to continue taking fish

oil. He is even going to mail the spreadsheet of 's lab results and kidney

biopsy to us.

BTW, Pierre, I mentioned this group to him and how it helped us. He was

pleasantly surprised. He wants to refer his patients to the group for support

and asked for the link. I hope you don't mind that I gave it to him.

Anway, I just wanted to share this news with all of you.

Hugs,

Esther

" No man can be called friendless when he has God and the companionship of good

books. "

-- Barrett Browning

http://www.catholichomeschoolhawaii.com

http://groups.yahoo.com/group/estheralohatags/

---------------------------------

Do you Yahoo!?

Take Yahoo! Mail with you! Get it on your mobile phone.

[Guest guest]

Esther,

It's wonderful that they didn't see any scarring! Congrats on that!! I

hope the final results show things in very early stages with no major

problems....by the sounds of things to this point I'm hoping for more good news.

:-)

Amy G.

Esther G wrote: I just read Dr. L's email. He did not

received the biopsy results as I previously understood, so he called the

pathologist.

Here is what he wrote:

" I had not heard from UCSF yet, so I called the pathologist directly

today.

Dr. O did review the new slides and agreed with the diagnosis of

IgA

nephropathy. It's a little difficult to explain, but she can't

entirely

rule something else out since she wasn't able to perform a test called

immunofluorescence. However, the electron microscopy findings were

very

typical of IgA nephropathy.

She also went on to say that because of certain changes on the biopsy

(or

to word it more precisely, the lack of changes), Joe falls into a " good

prognosis " category since he had no scarring or inflammatory changes... "

So, what do you think?

Thank you,

Esther

Esther G wrote:

Hi Guys:

Dr. Lau just called to let me know that the results came back. The biopsy

didn't indicate any destroyed glomeruli or inflammation which gives a good

prognosis. Dan and I are so happy! Dr. L wants to continue taking fish

oil. He is even going to mail the spreadsheet of 's lab results and kidney

biopsy to us.

BTW, Pierre, I mentioned this group to him and how it helped us. He was

pleasantly surprised. He wants to refer his patients to the group for support

and asked for the link. I hope you don't mind that I gave it to him.

Anway, I just wanted to share this news with all of you.

Hugs,

Esther

" No man can be called friendless when he has God and the companionship of good

books. "

-- Barrett Browning

http://www.catholichomeschoolhawaii.com

http://groups.yahoo.com/group/estheralohatags/

---------------------------------

Do you Yahoo!?

Take Yahoo! Mail with you! Get it on your mobile phone.

[Guest guest]

Esther,

It's wonderful that they didn't see any scarring! Congrats on that!! I

hope the final results show things in very early stages with no major

problems....by the sounds of things to this point I'm hoping for more good news.

:-)

Amy G.

Esther G wrote: I just read Dr. L's email. He did not

received the biopsy results as I previously understood, so he called the

pathologist.

Here is what he wrote:

" I had not heard from UCSF yet, so I called the pathologist directly

today.

Dr. O did review the new slides and agreed with the diagnosis of

IgA

nephropathy. It's a little difficult to explain, but she can't

entirely

rule something else out since she wasn't able to perform a test called

immunofluorescence. However, the electron microscopy findings were

very

typical of IgA nephropathy.

She also went on to say that because of certain changes on the biopsy

(or

to word it more precisely, the lack of changes), Joe falls into a " good

prognosis " category since he had no scarring or inflammatory changes... "

So, what do you think?

Thank you,

Esther

Esther G wrote:

Hi Guys:

Dr. Lau just called to let me know that the results came back. The biopsy

didn't indicate any destroyed glomeruli or inflammation which gives a good

prognosis. Dan and I are so happy! Dr. L wants to continue taking fish

oil. He is even going to mail the spreadsheet of 's lab results and kidney

biopsy to us.

BTW, Pierre, I mentioned this group to him and how it helped us. He was

pleasantly surprised. He wants to refer his patients to the group for support

and asked for the link. I hope you don't mind that I gave it to him.

Anway, I just wanted to share this news with all of you.

Hugs,

Esther

" No man can be called friendless when he has God and the companionship of good

books. "

-- Barrett Browning

http://www.catholichomeschoolhawaii.com

http://groups.yahoo.com/group/estheralohatags/

---------------------------------

Do you Yahoo!?

Take Yahoo! Mail with you! Get it on your mobile phone.

[Guest guest]

Hi, Esther, Yes, the neph did mention those chemo drugs with worse side effects

if this route does not help, but Iam just not sure he will be able to handle

anymore side effects from the drugs, I don't think its worth it. I guess this

has been the hardest part for me, because his disease came about overnight and a

biopsy was done right away ending with poor results, his neph consantly told me

how worried he was for him, and I litterally became speechless and never asked

any questions I could only listen and try to digest everything he told us. I

think I became more obsessed with trying to figure out how the heck he got this

disease instead of trying to understand it and accept it. The other part I

noticed is everyone has had a very slow diesease taking many years to get were

they are now. I am so anxious to see his neph next week for I have so many

questions, espcially what his GFR is now that I learned that from everyone. I

have to say I am glad I found this group, its been a

comfort and a blessing for me.

Thanks for listening Esther, that felt good to get all this out.

ps. there is a website called igansupport.org re:school daze (I am pretty sure

this is it) let me know if I am wrong. Thanks again.

Esther G wrote:

Hi :

I didn't know that. Actually, we used to homeschool . This is his first year

back after a few years. He is starting to think going to this school is what

caused his condition :-) I will ask his neph the same question when we see him.

When we first saw the doctor and then the neph about this I understood that

there was a chemo therapy type treatment (with all the drugs) or not treating

it. It depended on the severity. Did he mention that to you?

Esther

PS: I admire your son for putting up with this. I really do.

susan capo wrote:

Hi Esther, I am so glad is doing well. The reason I asked about school is

my neph told me that igan could cause lack of concentration and learning which

he has to work hard to keep his grade levels up, as if we don't have enought

stress... I have to say he has handled his condition pretty well up to now, he

is getting fustrated with all the meds and its side effects and wants to come

off them, I starting to think maybe not treating is better than going thru these

side effects, well anyway, I'll be seeing his neph next week and I have lots of

questions for him. I hope continues to do well. Thanks,

Esther G

wrote:Oh , I'm sorry to hear that. Poor . How is he handling this?

How about you?

As for , he is not fatigued and he is doing fine in school. Thanks for

asking.

Esther

susan capo wrote:

Hi Esther, actually, will going in the hospital again overnight for his

iv tx on 2/10. which still isn't really helping his protein spill, I am hoping

this next time it will make a difference and get those numbers down. He is doing

ok. thanks for asking. How is doing with school and is he fatigued alot?

Esther G

wrote:Thank you , I hope so too. BTW, how is your son doing?

Esther

susan capo wrote:

Hi Esther, I am so happy for you all, hopefully you will continue to get great

results.

Esther G

wrote: I just read Dr. L's email. He did not received the biopsy results as I

previously understood, so he called the pathologist.

Here is what he wrote:

" I had not heard from UCSF yet, so I called the pathologist directly

today.

Dr. O did review the new slides and agreed with the diagnosis of

IgA

nephropathy. It's a little difficult to explain, but she can't

entirely

rule something else out since she wasn't able to perform a test called

immunofluorescence. However, the electron microscopy findings were

very

typical of IgA nephropathy.

She also went on to say that because of certain changes on the biopsy

(or

to word it more precisely, the lack of changes), Joe falls into a " good

prognosis " category since he had no scarring or inflammatory changes... "

So, what do you think?

Thank you,

Esther

Esther G

wrote:

Hi Guys:

Dr. Lau just called to let me know that the results came back. The biopsy didn't

indicate any destroyed glomeruli or inflammation which gives a good

prognosis. Dan and I are so happy! Dr. L wants to continue taking fish oil.

He is even going to mail the spreadsheet of 's lab results and kidney biopsy

to us.

BTW, Pierre, I mentioned this group to him and how it helped us. He was

pleasantly surprised. He wants to refer his patients to the group for support

and asked for the link. I hope you don't mind that I gave it to him.

Anway, I just wanted to share this news with all of you.

Hugs,

Esther

" No man can be called friendless when he has God and the companionship of good

books. "

-- Barrett Browning

http://www.catholichomeschoolhawaii.com

http://groups.yahoo.com/group/estheralohatags/

---------------------------------

Do you Yahoo!?

Take Yahoo! Mail with you! Get it on your mobile phone.